I live in Germany and I also have a son who is 8 years old, it is great to find people who have the same problems especially who do not know a lot about this syndrome thank you for sharing your experience
HI! Keep in touch with us by joining our mailing list - congenitalhi.org and we can keep you informed about events. You can also join our Facebook support forum here:facebook.com/groups/hyperinsulinismsupport
Hi . My youngest son was born with RTS type 2 . He is 2 years old .Has some development delays . We are living in Markham Ontario. Would like to subscribe and share experience . Thanks .
I live in Germany and I also have a son who is 8 years old, it is great to find people who have the same problems especially who do not know a lot about this syndrome thank you for sharing your experience
HI! Keep in touch with us by joining our mailing list - congenitalhi.org and we can keep you informed about events.
You can also join our Facebook support forum here:facebook.com/groups/hyperinsulinismsupport
I was born with Ruebenstein taybi syndrome as well I just found your channel I just subbed
Hi . My youngest son was born with RTS
type 2 . He is 2 years old .Has some development delays .
We are living in Markham Ontario. Would like to subscribe and share experience . Thanks .
@@MrPolkovnik777 yes
Interesting to share experience how to grow up children with Rubinstein Taiby Syndrome . My youngest son has RTS type2. Thanks.
my little sis has rts
Just wondering what typical test need to be done for CHI? Just check blood sugar routinely? My daughter also has RTS 2