What is Orthostatic Intolerance? Part 1- Diagnostic Workup
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- เผยแพร่เมื่อ 13 ก.ย. 2024
- MEDICAL PROVIDER EDUCATION:
This video is geared toward medical professionals. However, we encourage everyone to watch it and share it with loved ones to increase awareness of orthostatic intolerance in ME/CFS.
The National Academy of Medicine has reported there is sufficient evidence to suggest a high prevalence of orthostatic intolerance (OI) exists in those with ME/CFS.
OI is measurable, and the ability to identify and manage OI can greatly improve patient outcomes and daily functioning. Part 1 in this video series will address ways to assess and measure orthostatic intolerance, while Part 2 addresses interventions and management.
*Although this video focuses on the diagnostic criteria of OI in those with ME/CFS, the content within this video applies to all who may experience OI/POTS/Neurally mediated hypotension.
These videos were made possible with support from the Utah Medical Association, the R. Harold Burton Foundation, and other generous donors.
Super interesting and helpful info but as someone with ME/CFS, the background music and wavy graphics made it painstaking to get through.
I wish i had discovered this presentation a decade ago. It's easy to understand and the graphics make remembering information easier than long paragraphs. Thank you.
This is excellent. Thank you very much for posting it.
Great video - simple yet comprehensive 🙂
WHY would you have background music playing behind the information?!? Isn’t this supposed to be for ME/CFS patients? With sensory issues? And lack of selective attention because of ME/CFS? I couldn’t make it through one minute of this. I will have to ask a family member to listen to it and give me the information. Yikes! How did Bateman Horne Center make that mistake? Well, Center For Solution for ME/CFS has unwatchable videos too because of the overwhelming Chaotic music they use and refuse to do anything about. They continue to release videos without a “solution” to making them watchable by ME/CFS patients, if that isn’t Irony than I don’t know what is.
Yup fade in 20 second in please
My daughter has severe ME/CFS. She can't even sit upright in her bed. When I wrap her with elastic bandages up to her waist she can walk around the house for few minutes. We do this three times a day even though it sometimes aggravates her symptoms.
I flinch my butt muscles which helps tone the muscles like the pelvic floor. Your daughter has seen a vascular surgeon?
Hope you can find help ... this is too sad and hard to live like this... for you and for patient.
Omg! How awful!
You need to help her find adequate compression clothing to help her. Compression socks, stockings, even a full body compression suit may help her. You are doing basically the same thing when you wrap her, but there is actually compression clothing that she can wear that may help. Best wishes.
Great information!
Thank you.
Thanks... Your presentation seems more aimed at medical personnel as it is a bit challenging to follow the rapidity of presentation with some of the unfamiliar terms and phrases.
You are right; It is aimed at medical professionals. I am not in medicine, but I have POTS, and I found this very easy to follow, and not rapid at all.
To slow a YT video using Windows / keyboard:
1) Press SHIFT < to slow to .75 speed;
2) Press SHIFT
Dr Peter Rowe has lectures that may be easier to follow as an introduction to the topic.
What happens if someone has this, but has severe head pressure when lying down?
Also feels like mitral stenosis, which i may have,as was diagnosed with mitral insufficiency many years ago, through an echocardiogram, im so ill im bed bound.
I have been in bed for over 18 months. I first thought it was just me needing some sleep (i did sleep at first 8-10 hours) Few months later i do sleep 6-7 hours now but still need to stay in bed laying down for hours
Thank you for all the information. My son developed pots two weeks after the Covid 19 vaccine and it has been very hard, we are still looking for answers. Please comment in the medications that will help the high blood rate, high blood pressure and when it goes down that it will not lower too much the low blood pressure, the beta blockers current used is not helping.
Thank you. Please continue to share with everyone your knowledge and experience with pots.
Blessings
POTS doesn't involve high blood pressure.
I developed Orthostatic intolerance after the COVID vaccine too. Though I will say, Pots and OI have low blood pressure, not high. Hope your son is doing ok!
The part I don't understand (and I've pointed this out in your earlier publications) is why the "hours of upright time in 24 hours" is counted as a diagnostic tool. In my country, doctors will say it is totally predictable then, that OI occurs since "you lie in bed all day". Can you explain why this would be a good diagnostic tool? Thank you.
What i understood, about his explanations in this video, is that lying down is a compensatory action: people are lying down because they're feeling better in that position. Hence, it can become a diagnostic tool.
@@sgueymard thank you. But that's just the thing: I know we do that to feel better, but most doctors here will argue that it's a diagnostic tool. They say it's the cause. Ofcourse thats not the case (we know that), but how can it be objectively used as a diagnostic tool when there's so much controversy around this?
I am coming out of an eight month acute phase of ME/CFS and even though I’m now able to manage most of my daily activities and most of my symptoms have diminished significantly I still couldn’t make it past the four minute mark of the NASA lean test, which really surprised me.
I know this is late but perhaps you still have the question. If you watch this video made for clinicians it cautions clinicians against suggesting activity in cases of post exertional malaise (PEM). Orthostatic intolerance should be treated differently with and without the presence of a condition that causes PEM. Without PEM exercise is often an effective therapy for OI.
th-cam.com/video/2KkYcA5zbNQ/w-d-xo.html
@@sannajonkhart8758 It can be both at the same time. It doesn't have to be one or the other. If you take a person with pure depression who is in bed or isolated to their room all day, OI will become a symptom even though ME/CFS isn't the correct diagnosis. You may lay down to compensate, but that also is counterproductive and makes OI worse. Often it doesn't matter if the chicken or the egg came first as it's the same treatment either way.
I would love to get the links to the statements in the video
2:50 OI flowchart
5:15 NASA lean test chart
Is anyone aware of a physician or facility that does this NASA Lean testing?
You can actually do this at home with the help of someone and a bloodpressure + pulse measuring tool. You can find instructions on the web.