My Chronic Lyme Disease Journey PT. 3 | Symptoms | Antibiotics | Breaking Point | Recovery
ฝัง
- เผยแพร่เมื่อ 14 พ.ค. 2020
- In this video, I disclose details of the last 7 years with Chronic Lyme Disease, Babesiosis and Bartonella, in which I get worse, find hope, and eventually begin to recover.
I visit a new LLMD (Lyme Literate MD) in Maine, and learn 5 key factors in how I can help the medication truly work for me.
I have my breaking point following a grueling New York Fashion Week and am given an ultimatum by my now husband, in order to save my life.
Throughout the video I list my chronic Lyme symptoms as well as the medications that made the difference in my last 6 months on antibiotics. Dr. Horowitz’s book ‘Why Can’t I Get Better’ was a major factor in guiding my doctor and I in my regime.
In my recovery, I rebuilt my strength through Barre classes at Exhale Spa, and eventually become a teacher which I put to use once moving from NYC to the U.K.
Please comment and ask any questions, and if you’re struggling - stay strong!
Caught LD in 1981, didn't get a proper diagnosis till 2007. Lived 40 years with this, with no support from anyone, mostly being treated like an idiot druggie because I was always sick, tired, depressed and poor.
I am so sorry to hear this. To hear you’ve suffered for 40 years is devastating. Have you received appropriate treatment now? Any improvement?
I have Lyme right now, have had most of the symptoms you have said. I am taking Doxycycline currently. Thanks for sharing your Story Kelly, it helps me out alot.
i took 3 months of Doxy, only minor help, then no doctor can give me any more though I had 4 months of Rifampin supposedly because I had latent TB which I never understood why, but i think those really hurt me instead of helping...since after those months I believe it destroyed my vitamin supplies and tested low for Vit D for example. I hop the doxy helps you, I supposedly should be okay according to the docs, but I am not (as many people feel). I am on natural tinctures, but not sure though I also tale some of Buhner's protocol for Chronic Fatigue....i am not noticing great things regardless....i tried all the no sugar, no gluten, no eggs, did not help so I went back to a less strict diet...I guess we are all different! take care!
My son was hit hard from Lyme, we took the natural approach, and after a year and half of treatments he has almost made a full recovery...unfortunately a lot of people are misdiagnosed due to our medical labs (Canada), our naturopath decided to send his blood sample to Germany where it was finally confirmed for Lyme. They believe my son had it from when he was extremely young, contrary to what most think, Lyme can also be transmitted through eating red meat, one of my sons favorite things. The clinic is BIE I believe they are also located in the US, very strange treatment, along the lines of acupuncture with electricity and silver water. They literally saved his life, although he goes through stages of pain due to nerve damage, he is slowly making a full recovery. Along with this he did IV therapy with vitamins, or Myers cocktails as it is known, this has also helped him in his recovery as well. I am glad we did not go the antibiotic route, being from Canada it would have came at no cost, but we decided to go naturally, and it probably has set us back by $10,000...but the end results were amazing, on top of that, this clinic was able to rid his body of all allergies, dairy, pollen and feathers. He is also using a high quality CBD oil to help with joint pain. Thank you for your story....I feel your pain, my son is around your age as well, and there is nothing worse then seeing your child suffer. I hope you make a full permanent recovery!
Lyme disease cannot be transmitted by eating red meat. Who told you that?
What province are you in? I'm trying to gather ppl with Lyme in Saskatchewan, have 58 ppl so far
Tremendously helpful for me to hear your story. Still seeking a more formal diagnosis here but so much symptom overlap. Sharing your videos with my doctors to help them understand. Grateful for your efforts putting these videos out there. Sincere thanks! Best wishes on your continued recovery.
Thank you so much! Going through the same thing. It helps to hear from one that is also back at 85%. Good luck !
Thank you so much for sharing your story And for the Hope you give US all
Thank you so much for sharing your story. You are the first video I watched of the people sharing their Lyme disease journey. I am so happy that you are feeling and doing better, as only the person who is going through what you have been through and still are, knows how the improvement you are talking about feels. You are such a delight and I am so happy you and Layton are married and together in your little town. YOU ARE SUCH A DELIGHT.
Thank you so much!! I have taken a break from posting videos but I will be returning soon with more on my journey! I’m glad you hav improved as well and hope you are feeling good now!
Your story is amazing I saw your story somewhere along time ago and I though you were 100 well again in that story but how could you know without knowing the future
Thank you so much for sharing your story you said it in a really good way you're a really good story teller
Thank you! I have taken a break from posting videos for the past few years but I will be returning soon with more on my journey!
@@kellygibsonbrooks1454 Looking forward to it!
Really enjoyed all three of your videos and can relate to many things you have gone/are going through. For help with moods my Lyme doc put me on 5 mg of Lithium Orotate twice a day and it has been so helpful. No side effects and no withdrawal. I am 62 and came down with Lyme just over 3 years ago. Originally diagnosed with Fibromyalgia and told to learn to live with it. Even at 62 I can relate to you saying you watched all your friend do this and that ... I feel that as well. It's just simply a reality my body doesn't work too well. All my treatment is out of pocket at a private clinic. It's almost impossible to get good or any Lyme treatment through our medical system in Canada. We do tend to learn to live on day at a time :) One thing that has been helpful for me for sleep is 10 mg of time released Melatonin and 200 mg of L Theanine before bed. When I wake in the night I take another 100 mg chewable tablet of L Theanine. Thanks for sharing your story. Hope you are continuing to have good days!
Happy for you that you have mostly recovered. I'm going thru the Lyme journey now and making progress. Had the weak wobbly legs for a while too, and I agree it's quite scary. Thanks for making this vid :) Good luck to you.
Jason Keck thank you! Best of luck to you. It may seem hopeless at times but you will get there!!
i get the spaghetti legs, I played soccer all my life until Lyme...my legs and muscles look strong(but it seems they don't want to obey my commands), yet more than 3 minutes standing my legs are shaky and also I have vertigo for 3 years now, I guess that's why my legs act out..not to menton light sensitivity in my eyes....it sucks
I don’t know if I have Lyme but I get the pins and needles in my calves and have to stop walking after a few steps. Is this a symptom of chronic Lyme?
I have that right now I’m honestly scared as well because I just don’t feel the same and def feel like I have motor problems
I also live in central Maine and have been ill for over 35 years from a long list of health problems so to study and treat myself with food therapy has been critical for my survival as some of the health problems came from Lead poison Tularemia Lyme disease Hodgkin's disease and enviornmental toxins of air pollution from the wood industry near bye and at work so the synergy of all of the above working against me was very challenging but survived through by the right spirit and live food described nicely in Be Your Own Doctor by Ann Wigmor and her Wheat Grass Book so please check them out when you can also most people are exposed to some level of lead especialy in their tap water because copper pipes pre 2014 were most generally 8 % lead and now with all the wi Fi and microwave ovens and Floride added to public water the water becomes electrified especialy dangerous with Floride added because Floride is an Alkaloid salt and lead is an acid so they together make electrolysis resulting in polonium production and when fully charged only one gram may kill 20 million people according to Wikipedia and lead leaves the blood rapidly so a blood test for it is not accurate and doctors who know their stuff request a zinc erithrosite test as an indicator of lead poison exposure because lead poisoning destroys zinc levels in the blood and whole human body so taking extra zinc each day can be critical because without it we can not make inulin and B1 vitamin is needed to metabolize it
The above is incomplete but maybe a good start as I shall add to the above info later as I need to plant my garden some or the squash and things won't have time to ripen as we are experiencing quite the monsoon now
Chin up and keep up the good work
Yes screen for rickettsia and babesiosis
dr. dubak sounds empathic and great doctor probably bc his own wife had had it ;) Who feels it knows......one great add is Physiotherapy, espec. Chiropractics and those who do Shiatsu. Yes Sugar and Alcoholfree is very good with Lyme, but i oppose Milk Free, we need Organic Raw Milk for our Bones and for Vitamin D. You are very right everything you say in this Video
Would you recommend SOT therapy? Three people in my family have Lyme and it helped them tremendously.
I have lyme and also mycotoxins im my body. Had all these symptoms. Wonder if you had mold exposure as well? Were you ever tested for mycotoxins?
how did you get a diagnosis of babeosis lyme and bartonella ? are pcr tests reliable ?
How are you now ? My name is Teddy from Minnesota I been having this for 20 years and I'm, a milkman working through this
In how many months after treatment you start getting better?or did u suffer along with treatment for ten years😥please clear this after treatment did u feel better soon or it takes time?
After how many weeks/months of antibiotics did you feel better and see improvements?
What exact combo of antibiotics were you on besides doxy?
I am in Arkansas and I dont know when I got lyme disease. I tested very positive for epstein barr. Another year goes by of feeling ill and after I quit my job and gained weight from my pregnancy 5 years ago and I have been sick since. I became bedridden after quiting my job last year 2021. I cant concentrate. I cant remember conversations well. I have spasms esp in my back that make it difficult to walk longer than half a block if that. I'm struggling to loose weight because I csnt exercise without feeling like I have the horrible flu the next day. Do you think your sore throat is from epstein barr or lyme??? I know I am about to have a flare when my right side of my throat starts to hurt. Im glad you are feeling better. You remind me of me when I was your age. I have felt ill since I was 14 or so. I am currently 36. Its been a long time coming.
I am not an expert or a doctor, but much of what you are describing sounds like Lyme to me. My sore throat was/is due to Lyme. I’ve heard many times of a connection between EBV and Lyme. I’m so sorry you’re struggling, I hope you get the correct diagnosis and treatment you need!
The sore throat sounds like EBV to me.
Also, what tests did he do?
Was you able to do anything lik going out and daily life I am asking because I am feeling very very bad tons of symptoms sleep disorder (insomnia)u r right very hard to handle with sleeping pills horrible. my head is burning like fire digestion stomach fully numbness tingling sensation feelings like electric sensation iam totally zero I feel.my head is very very heavy like some big stone on my head also felling like I have flu when I eat a bit dairy my eyes is burning alot of kongnativ issues alot memory loss irritated restlessness fearful totally depression symptoms I can't even live alone anxity panic a long list but the other side I have diagnosed recently Hashimoto thyroiditis also may be all together because lyme is mimic😭😭😭I hope i will soon better soon.i can't go out home bound.is your insomnia better now with treatment please update your health
I had different periods of feeling better and worse. Ultimately, trying to act “normal” and keep up with my friends by going out of the house daily, being active, drinking and eating bad food kept making me worse. However once I got the right treatment protocol and after many years, I am now living a mostly normal life! Im so sorry you’re struggling so much. My insomnia is now under control - once my Lyme and coinfections got better it improved, and my medication Mirtazapine has helped as well. Hang in there!!!
@@kellygibsonbrooks1454 thank you so much for your reply update your health tip and tricks which treatment was helpful did u follow any other protocol any mood heavy metals toxicity update if you have time please
Have you looked into mold exposure??
Horowitz gave me the 3 antibiotics and it made my head so bad I wanted to die. I quit going and now that they have found answers, they want me to pay up to 3 grand to return like a new patient bc it's been more than 3 years. Unfair
What lurks beneath
yeah, destroying your stomach is not really the answer because it just adds to future inflammation. I had 10 rounds of IV antibiotics after a spider bite which I believe gave me lymes, but the antibiotics destroyed my stomach and so I forever have a very thin stomach lining, which causes a lot of issues.
We’ll ultimately those medications helped me get better and stay at a maintained level of okay/good health so I am grateful for them! It’s not the answer for everyone but it worked for me.
eat lots of probiotics, like organic yogurt, kimchi, etc.
Your stomach lining recovers if you just let it.
Did the IV ruin your gut ? I thought IV were more safe then oral AT?
@@sunshinejansen85 imho the above statement can not be true.....iv ceftriaxon with lots of dissolving nacl liquid are one of the best cures for lyme. and eating probiotics, yogurt etc. during treatment will help.
Hi, thanks for sharing your story. You've been to hell and back again ! Hopefully things will just keep getting better. It has nothing to do with Lyme directly, but maybe check-out Dr Stephen Gundry and "The Plant Paradox". Couldn't do you any harm...
Also, check out this for some alternative therapies that might work for you ! th-cam.com/video/vptrR22l-_E/w-d-xo.html
Thank you, I appreciate it! I’ll have a look!
omg all those drugs!! That's crazy. He doesn't do any natural cures?
This is one species of insect I wish would disappear & inshallah this disease with it.
Agreed!!
Opossums kill it, they eat so many of them, unfort. Opossums are not in Europe and many other Countries.
Our daughter battled lyme disease for about 17 years - At times, we thought she would not make it. The only thing that saved her was prayer and bee venom therapy (BVT). We tried so much, spent tens of thousands of dollars, and none of it worked until she did BVT. She is now lyme symptom-free and pregnant with our first grandchild. Thank You, Jesus. About two months ago, I heard a lady (super smart lady who I believe has her PHD in medical research) speaking about Ivermectin and how effective it is against Covid 19. In her talk, she mentioned that Ivermectin can also help overcome lyme disease. You can find information about Ivermectin and lyme disease online. Hope this helps.
So glad your daughter is better after BVT- I’ve heard great things! And congratulations on your growing family. I will certainly look into Invermectin. Thank you, and I hope your daughter and future grandchild remain healthy and symptom free!
The prayer most likely did nothing, it was all the BVT.
Lyme isn’t hard to get rid of. It’s babesia and bartonella that make it hard to get rid of and by themselves are very hard to get rid of.
@@sebastianromero420 Babesia and bartonella can be eradicated completely by taking ivermectin twice daily until both are gone. This is, in essence, how ivermectin cures Lyme disease.
i almost ended my life because of life until i got on CYMBALTA. I cant take the pains so im going on leave for 6 months to get a hang of this. IGM BAND 39 came back for me
Did you have deer tick bite and rash bullseye