Human Conditions, Challenge, Relationships, Social Issues, Disability, VLOG Mom&Son Jorde/Madsen Ep1
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- เผยแพร่เมื่อ 30 ก.ย. 2024
- #overcomingchallenges #acceptingchallenges #momandsonvlog #overcomer #Ep1
This video is episode 1, and an introduction to a new, mom & son blog, with Debbie Jorde and Logan Madsen.
Our goals are to communicate to you honestly and candidly, how we are able to overcome,, accept and live with, the multiple challenges we face every day. We will share our methods for finding joy, happiness, and peace in the face of both common and uncommon, challenges. We hope to help you as you face your challenges. Believing that sharing our stories in these honest, candid conversations we will have together, about the human condition, will help other people, gives meaning to our challenges and purpose to our lives.
Many of our vlog episodes will be answering people’s questions, your questions. We invite you to submit questions in the comments section. We thank you in advance!
Message from Logan Madsen, artist and public speaker:
"I spend all of my energy on creating art, chores and working hard on my mental health, to stay alive; and maybe even enjoy it some more. I've had profound conversations with friends, family and strangers about how much we all have in common, as it pertains to the human condition. These experiences are the foundation for why my mother and I want to do this vlog. Please ask either of us any questions in the comments! I appreciate you for being here!"
Message from Debbie Jorde, author and public speaker:
“We all have challenges. When people see the challenges our family faces due to my son and daughter, Logan and Heather Madsen, having two rare syndromes; Miller syndrome and a lung disease called, Primary Ciliary Dyskinesia (PCD), autism, profound hearing loss, and other challenges, as well as, the challenges I face from having multiple sclerosis, MS, they think their challenges pale in comparison.
I’m telling you that your challenges feel just as hard to you as ours feel to us. For example, fear is fear, sad is sad, frustrated is frustrated, etc., no matter who’s feeling the emotion. This is the ‘human condition that Logan talks about above. We are not alone in our challenges. We can overcome them together.”
Learn more about our family on Debbie Jorde TH-cam channel, where you will find videos of talks we’ve given to the general public, medical students, Department of Workforce Services, medical personnel, caregivers, and others. You will find other videos as well, such as, slide shows of Logan’s art, slideshows of photos of Heather and Logan from childhood to adult, and more.
Debbie Jorde TH-cam Channel Link
/ @debbiejorde
Sadly, Heather Madsen, writer, and public speaker, passed from advanced endometrial cancer on July 23, 2021. Although Heather won’t be with us physically to record our vlog videos, she is always in our hearts and we will share stories, writings, and experiences with and about Heather. You can watch the celebration of Heather’s life on Debbie Jorde TH-cam:
• Full Event: Celebratin...
Debbie Jorde’s Website:
www.debbiejord...
Debbie Jorde’s memoir, EIGHT FINGERS AND EIGHT TOES: ACCEPTING LIFE’S CHALLENGES, is available on Amazon. Learn more and find a link to the paperback, ebook, and audible book on amazon:
www.debbiejord...
Trailer for EIGHT FINGERS AND EIGHT TOES: ACCEPTING LIFE'S CHALLENGES
• 2-min Book Trailer, EI...
Logan Madsen’s Website:
www.loganmadse...
LOGAN'S SYNDROME Award-Winning Documentary Trailer Logan Madsen, Artist Has 2 Rare Diseases & Autism
• LOGAN'S SYNDROME Award...
Read Heather Madsen’s writings on her blog:
www.debbiejord...
You can watch my talk about what Heather and Logan’s births, 3 years apart, were like for me, and what caused both of my children to have these 2 rare syndromes.
• Mother Shares Births o...
Dr. Lynn Jorde Describes Rare Genetic Diseases Miller Syndrome & PCD & Genome Sequencing Project
• Dr. Lynn Jorde Describ...
Mother Shares Births of 2 Babies with Rare Disabilities in Dr. Lynn Jorde's Genetics. Debbie Jorde
• Mother Shares Births o...
Living with 2 Rare Syndromes & Autism, Logan Madsen, Artist, Speaks in Dr. Lynn Jorde's Genetics
• Living with 2 Rare Syn...
Living with 2 Rare Syndromes & Autism, Heather Madsen, Writer, Speaks in Dr. Lynn Jorde's Genetics
• Living with 2 Rare Syn...
Q&A Rare Disease Miller Syndrome, Lung Disease, Autism, Dr. Lynn Jorde Genetics, Debbie Jorde Family
• Q&A 2 Rare Diseases, M...
Debbie Jorde’s Website
www.debbiejord...
Accept & Overcome Challenges Jorde/Madsen Family Talk Caseworkers About 2 Rare Diseases
• Accept & Overcome Chal...
Q&A Family w 2 rare Diseases & Autism Speak Workers Ut Voc Rehab Debbie Jorde Heather & Logan Madsen
• Q&A Family w 2 rare Sy...
Subscribe to our channel so you can watch our next episode!
Debbie Jorde
/ @debbiejorde
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I really REALLY enjoyed this! It was a wonderful opportunity for us to get to know you better - thanks for sharing with us and inviting us in to your world! I’m really excited for these vlogs ☺️ I also would highly recommend viewers go watch your documentary Logan’s Syndrome, it is just incredible 🥰
Wonderful message Courtney! Thank you so very much!🌷 We appreciate you! Sending love❤️
I admire you both so very much. You both have had to go through tough times but yet have worked through it and now this Blog will help others going through some tough times too.
I remember seeing Heather play the piano and was so delighted how well she played. So we all go through tough times through our lives that we have to work through and do the best we can. I lost my 47 yr old son this next March will be 4 yrs ago and still trying to work through that heartache. I am able to function but not a day goes by that I don't miss him.😢 He made bad choices that caused some medical problems in his late 30s that eventually took its toll on his health and his life. He had always been very healthy and he was always very smart. So it was mixed emotions that I was so hurt and angry that his bad choices almost destroyed me by losing him. I felt like he was selfish but I do realize addiction is a mental illness that is hard to stop. I just live now with a forever broken heart💔 I couldn't fix his illness or save him from the addiction, so every day of my life I feel the loss. I miss him terribly.😢 So many ifs !! My Prayer is to be with him again in Heaven when I die.. Thank you for your Blog❤
Thank you for sharing your personal story💕 I’m so sorry for your loss 🥲 I know the pain🥲 Grief is so complicated. A TED talk that is helping me is by Nora McInerny: We don't "move on" from grief. We move forward with it
Perhaps it might help you in some way🙏 Sending you love and a hug!❤️
Good morning Logan!! Good morning Debbie!! You both look amazing. 🌈 🌹
Good morning!😄❤️ Thank you so much for your encouragement and support !💕
We appreciate you! Sending you love!❤️
I was introduced to you, Debbie, when you gave that heartfelt talk to those doctors. Even then, I only saw that speech approximately 6 months ago. Since then, I have had a fast paced introduction to your beautiful family, watching your videos. Your wedding was beautiful. You're a wonderful mother and you gave birth to amazing kids. Heather was legendary! Logan is an amazingly talented man.
My son has disabilities which is so difficult at times. But us mums, we just keep going. Bringing love and light to our kids and our lives.
Blessed Be ❤️❤️❤️
Thank you so much for your heartwarming message, Violet! I really appreciate you taking the time. Everything you said is very meaningful for me. My heart goes out to you for having a son with disabilities. The hardest part is when they are suffering:) I'm sending you love and positivity to help you on your journey!
Beautiful! Thank you for sharing. You’re right. Sad is sad. Feelings and challenges are part the universal human condition. ❤️ so encouraging!
Wow! Thank you so very much for your lovely and encouraging message !🌷 I really appreciate you taking the time to comment! Sending you love!❤️
Enjoyed hearing you both. Logan you have done so well and it is so important that you have this vlog to help others understand.
Thank you so very much!🌷 Your encouragement and love means so much to us! Today we talked about Heather’s passing and how we’re coping🙏😇 We felt it was important to share because it’s the number one question we’re getting and it was good for us too. I will post it after editing.😇💕 Sending you love!❤️
Hi Logan and Debbie. I’m Vickie ( aka Kiki) a little old Cajun Lady. First, my condolences to your sister/ daughter, I’m so sorry. Hugs!!!! I enjoy this blog if Logan Sharing his world with us. Looking forward to many more! One question I have… if your lung continues to decline , will lung transplant help to in future? Thank you.
Thank you so much for watching our vlog and for your condolences!💕 We’re so glad you liked it! I will add your question to our list👍 I appreciate you asking! Sending love❤️
Thank you for your candor and your courage despite all the challenges you have faced. It’s so great to be invited into your living room so to speak to discuss how we can live our best life despite our challenges. I look forward to your next Vlog.
@J H Thank you so very much!🌷 We appreciate your kind message💕 You’ve encouraged us!😁 Sending you much love❤️
Logan, I appreciate the courage it took to leap into a public forum. I actually laughed at your “grumpy old man” comment. I am personally dealing with isolation. I think that isolation probably describes “the human condition” most prevalent today. I am my mother’s sole caregiver. Structuring my day has become something of a struggle. I love to read and write but find myself bogged down by the many mundane, repetitive tasks of life. And then there is the problem of pain, another “human condition”. Your courage and Debbie’s courage are a solace to me. Happy to follow your vlog!
Thank you so very much for your message Gloria!🌷 I agree, Isolation is so prevalent today. I wish you strength and peace as you care for your mother 🙏🥰 Thank you for following our new blog!🌺 Sending you love!❤️
Pain is pain. How true that statement is. When my brother was dying from cancer I experienced severe anxiety and depression. I was ashamed to talk to him about it. I felt like my issues were so insignificant compared to his terminal diagnosis. Once I broke down and shared what I was going through we were able talk openly. He was the one who made me realize that my pain was my pain and not to compare it.
Thank you so much for sharing your personal story!💕 I got chills reading it😍You’re brother had a lot of wisdom. I’m so sorry for your loss❤️ I appreciate your message! Sending you love!❤️
I am a doctor and I found the youtube videos with the talks to medical students to be inspiring and these talks should really be required listening for all future clinicians. I would love hospital administrators and insurance co execs (who control access to essential services for all of us) to all be required to listen to the wisdom you share.
Thank you so much Anita!💕 Your message means a lot to me. I love having our talks available to anyone who wants to watch them. I appreciate you taking the time to comment and I was excited to show my husband, the chair of human Genetics at the U of U, Lynn Jorde. Thank you!🌺 Sending love❤️
Debbie is one of the most classy and beautiful ladies I’ve ever seen and her son is smart and talented. They are both so strong.
What a nice compliment! Thank you so very much!🌷 We appreciate your message! Sending love❤️
@@debbiejorde
A question for Logan: For me, getting out into nature has always been rejuvenating for me. Sure, hiking, but also just road trips. Like to National Parks. Logan, are you able to take that kind of road trip, with friends or family? If so, what places have inspired you?
Hi Steve! Thank you for visiting our TH-cam channel! Thanks for your question, too! Nature is rejuvenating for me too. I'm happy you love traveling, taking wonderful photos and sharing them with all of us! I love your photos stevecoray.blogspot.com/
Sending you love, Steve!
It good to see you two still doing this just keep on doing what your doing
Thank you so very much!🌷 Your encouragement helps us keep doing this! We appreciate you! Sending you love!❤️