Ankylosing Spondylitis FAQ: My Diagnosis, Biologics, Workouts & Diet | Chronic Illness Insights
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- เผยแพร่เมื่อ 4 มิ.ย. 2024
- In this video we dive into the most frequently asked questions from my Instagram community about Ankylosing Spondylitis. In this video, I share some of the most frequently asked questions and my personal journey with Ankylosing Spondylitis - from diagnosis to management strategies. I'll discuss how I was first diagnosed with Ankylosing Spondylitis, my thoughts on biologics, and I also provide insights into my workout routine and even dietary choices. If you've ever wondered about the when, how, and what of Ankylosing Spondylitis, I hope this video can help!
You might enjoy this Yoga for Ankylosing Spondylitis video: • Yoga for Ankylosing Sp...
Here are a few other classes you might enjoy if you have Ankylosing Spondylitis:
- 10 Minute Back Friendly Core Workout - Beginner Pilates: • 10 Minute Beginner Pil...
- Yoga for Neck & Shoulders: • Yoga for Neck and Shou...
- Yoga For Upper Back | Yoga for Ankylosing Spondylitis: • Yoga for Upper Back | ...
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My favorite back pain & arthritis products:
amzn.to/3se12zj
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More at:
▶︎ www.elinafromsweden.com
▶︎ Instagram: @elinafromsweden
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Elina from Sweden, LLC recommends that you consult your physician regarding the applicability of any recommendations and follow all safety instructions before beginning any exercise program. When participating in any exercise or exercise program, there is the possibility of physical injury. If you engage in this exercise or exercise program, you agree that you do so at your own risk, are voluntarily participating in these activities, assume all risk of injury to yourself.
#ASFAQs #Bechterews #AnkylosingSpondylitis #ChronicIllnessJourney #ankylosaurus
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Hello from America. I too have AS. Thank you for making videos. It helpful to others. I just made my first video and short tonight. I hope to be helpful to others as well
Hiiii! Im so glad you're here and yay for doing your first video, I have to check it out!
Thank you🙏
Let me know if you have any other questions! 🩷🩷🩷
Hi Elina! Wonderful content so helpful, I've also been diagnosed AS and fibromyalgia, sometimes im not sure which is more painful. What is the medication you took? I'm also not a big beleiver in popping pills but id like to see of something might help me. Im in Australia and doctors are not so good here, helpful or experienced. Ive had to pretty much research everything myself for the past 12 years. Thank you 😊
hi! so glad you found the video helpful! Sorry to hear you have fibromyalgia too :( Im currently not on any medication but I've been on Humira twice, which is a biologic. I also used to take a lot of anti inflammatory meds like Ibuprofen etc but had to stop that as I got some really bad stomach issues from it. So now I'm not on anything, I try eat as anti inflammatory as possible and do daily exercise, and its working pretty well!
Hello! 👋 I am a 45 yo woman and just diagnosed in 2022. I have had it since my early 20’s if not earlier.
I am on Cosentyx for now.
Everyday is a struggle.
Your story sounds a lot like mine.
My doc kept telling me that my back pain was from a herniated disc. I could not walk either. Finally gave up until I had the worst flare I have ever had. I was referred to a rheumy and finally diagnosed.
im so sorry to hear about your pain! but glad you at least got diagnosed! is the cosentyx helping you? hang in there, it WILL get better! we got this!
Sorry to ask this but why aren’t you able to walk
hi! im not sure what you mean? Im able to walk and always have been, but I had a hard time with it for a while because of the pain and hip/SI joint instability. hope that helps! @@WaseemKhan-vy4eb
Hi, Elina, I have been following you both here and on Instagram. I feel the same way about training and the importance of resistance training and to be honest, havier weights. Yoga just doesn't seem to do it for me, even light pilates - i felt so frustrated, as I lost flexibility and progress, so now back at strenght and my mobility has improved. My question is - I recently took to running, I love it, but my ankles keep getting swollen,. I wonder if it is my fast upping the effort and my body not being used to it, or if it is AS related. The doctors, of course, said I should by no means run. However, you said you know people with AS that run and do thriatlons. Can you share more about it...and what does running do to you. Or any tips from you or these people. Thanks.
hiiii! yes strength training is SO important and I totally agree on the yoga and light pilates! heavier is better for me too. I love that you took up running again, good for you! as for your ankles, im sorry to hear that. maybe try to ease into it more and see if that helps? maybe do the walk-run-walk for a while? and yes I do know people who run, so for some people its definitely possible! we're all so different. my body can handle handstands and crazy backbends, and I thrive with heavy weights - while others just do yoga and feel great, and others run, etc. for me, I used to be an avid runner but stopped when I got diagnosed. I've tried to get back into it probably 5 times but my back and my knees cant take it, I get so much pain and inflammation when trying so I've just given up on it now and im ok with that! but if running is your passion and you really want to make it work, I believe you can! our bodies can adapt to any pressure we put it under, we just have to be super strategic and have lots of patience :) maybe just take it super slow, and ease into it over a very long period of time? maybe also try to add some ankle strengthening work as well as ankle mobility stuff? and work on your hips too, if you have hip mobility issues it can affect everything else (just like ankle issues can affect the rest of your body). I hope this helps, good luck and please keep me posted how it goes!!! Much love to you!
In Greece it was difficult for the diagnosis of A.S.
Hopefully after 10 years from the start of the symptoms and much pressure from me find relief
But hey two years became hell.
No good sleep ,too much compression and one day of work was like three ...
The thing that helped me was from the time i sttarted anti tnf and specially Hyrimoz or imraldi (based on himura patent).
From then my life changed.
hi! im so sorry to hear you had such a long journey to get a proper diagnosis! but glad to hear you've found some things that work for you! 🙏🏻 keep up the great work, we got this! 🌸
I'm bailarina en a yogini for aprox.40 years now ( I am now 50). I tested positive for Hlab 27, 7 years ago( when my menopause started). I have two herniated discs (lumbar and cervical) and I some get very confused, If I should have a surgery or not. I have not tried biologics and I want to to ask you if you have had any surgery because doctors have told me that they can't ensure the pain will go with it. I don't know If by pain is Because of a pinche nerve ( reflex pain) or because I have the
AS activated, I don't know if you have have that same question at some point a long the way. What i'm sure about is that stress triggers pain and Menopuase alters the inmune system. I would have been very grateful is somebody have told me this before..... living with this diagnose and cronic pain takes way to much COURAGE!!!
hiiii! im so sorry to hear that! and yes I know exactly what you mean, it can be really hard to know where the pain is coming from. usually herniated discs will heal after a while on their own (it can take years though) - but I think they can also happen because of the AS, if there is a lot of inflammation and degeneration in the spine. My disc herniations were EXTREMELY painful for YEARS and I still have issues if I push myself too hard, I get nerve pain and my foot goes numb etc. I also have disc issues in my neck but I think thats from all the handstands I do :) I get a lot of nerve issues into my arms and hands from it. What usually helps me with my disc issues is physical therapy - have you ever done that? as far as surgery, I havent had any surgery because I havent wanted to go that route yet. maybe I'll need it someday but for now I prefer to manage with exercise & physical therapy as long as I can. but only you can make that decision for yourself! you'll have to decide whether the surgery is worth it, with the risk of it not helping the pain. my dad had 3 surgeries for his disc issues (he now has a lumbar spine made of steel, literally :)) and he LOVES it, so I think its a great option - IF it is the discs causing the pain. please let me know how it goes, good luck and hang in there!! much love to you!
Please don't base your decision of what is being commented by anybody on TH-cam. (Yes, I have AS). You need to see a reumatologist and have MRIs and CTs done, and then it will be clear whether you have AS or a pinched nerve, and also if the AS is active or not.
@@elinafromswedenstretching 💖
@@Rene_Christensen I have been to 4 reumatologists, and have had done MRI s and blood tests. Sometimes these 2 things are not so clear in a patient, every BODY is different. I value a lot the experience/ process of a person with AS. Many times neurosurgeons, traumatologists, chiropractors, osteopaths, orthopedists, rheumatologists, physiatrists, pain specialists, radiologists.... don´t have all the answers.Thank you for your opinion.
Hey Elina! 👋
hiii there!
hi, do u take NSAID medication? if yes, can pls share your experience. thanks
hi! I used to but recently stopped because I got stomach issues. I can do a video on my experience with all the meds :)
Hi Elina! I just found your video and found it encouraging and helpful. I have AS and definitely want to focus more on moving and regular exercise to move things. I have lots of pain in my hips most mornings but it subsides as the day goes on and an elbow with a severely limited range of motion (the synovial membrane has expanded in my elbow joint) . The hip pain comes and goes and isnt so bad, but the elbow is consistent and really bothers me. I had an initial flare up in india that was diagnosed as reactive arthritis, about 8 years ago. This current flare has been for the last year and a half.
I wanted to know your opinion on steroid injections? My rheumatologist has recommended it but i'm aware that steroids can ultimately weaken the joint and make it more prone to flares. I did have a few steroid jabs after the initial flare ups. I want to resolve it but not if its going to make it come back with more severity. What do you think and did you decide on steroids for any stubborn joints?
I've recently started taking LDN which ive found really helpful for overall pain. There's so much to learn! HLA-B27 brother
Hi! 👋🏻 thanks for being here, and nice to meet you! I personally think steroid injections are great if they work for you! I’ve had them in my shoulder and the pain went away completely. But I’ve also had them in my SI joints and nothing happened 🤷🏼♀️ So I guess it depends! But I’m aware that they’re just kind of “masking” the symptoms and not really healing the root issue, and I always try to do physical therapy in conjunction with injections. Just to make sure I support the surrounding structures properly and try to fix the actual problem vs just masking it if that makes sense! Hope that helps and please let me know how it goes! 😃
Hi elina .I am from india .i recently diagonised with acute sacroilitis.i have little pain in my buttock area.can i stop it to become ankylosing spondylitis
hi! im so sorry to hear that! I had that too and its awful, so I feel for you. I dont think there is anything you can do from stopping it to become AS per se, but you can at least try to minimize the inflammation with different approaches (stress reduction, nutrition, hydration, moderate exercise, etc). Good luck and I hope you feel better!
Hi I am 33 years old. Recently with AS diagnosed 8 months ago. Ongoing biologic. Question? Are you able to relieve ur pain?
Hi, and welcome! 🫶🏻💕 yes and no… I always have some degree of pain/discomfort usually but it’s not usually bad! I’m currently in a flare so my pain is pretty intense now but I’ve been almost pain free for the past year! Again, I think some discomfort might always be there (I’m VERY stiff in the mornings etc) but I’ve been able to reduce my pain soooo much so there is hope! 🫶🏻☀️💕 hope that helps! have a great weekend!
What medication you are on right now
Im not on any medication at the moment! Not even Tylenol actually :)
@@elinafromswedenstretching why are able to manage it without biologics
@@WaseemKhan-vy4eb I talk about this in my latest video! My 5 ways I manage without biologics - but please note everyone is different so always make sure to consult with your doctor!
Do you take supplements
Nope - just a regular multivitamin at the moment! I do like drinking turmeric tea though, its not a supplement per se but I feel like it helps my symptoms.
I have the same thing I understand completely I was forced to retire early I found out about it at the age of 20 have it for 14 years
hi! oh goodness im so sorry to hear that! sending you so much love!
Do u have kids mam?? Is it safe with as?
Hi! I do not but I believe it’s safe, at least that’s what my doctor told me!
One thing is " herniate" and other is " syndesmophites"...
Hi! im not sure im following?
😱 promo sm
:)
Sorry but is not Spondylite Ankylosant!! Any other form but not AS !!
Hi Dan! I'm sorry but im not sure what you mean?