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Epilepsy Specialist Discusses Seizure Triggers

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  • เผยแพร่เมื่อ 18 ส.ค. 2024
  • This video is about Seizure Triggers: things which make it easier to have a seizure if you're prone to getting them.

ความคิดเห็น • 69

  • @quinceykrein3018
    @quinceykrein3018 8 ปีที่แล้ว +5

    Dr. Reeves has been so very helpful in my epilepsy diagnosis -- SUPER SMART GUY who really cares!!!!! I hope you can meet him.

  • @astrofrk
    @astrofrk 4 ปีที่แล้ว +6

    Forgetting or being off schedule with medication, lack of sleep and alcohol. I can stick my face in front of a strobe light and be fine yet my eyes has its own strobe light when a seizure starts.

    • @stevenharris6626
      @stevenharris6626 2 ปีที่แล้ว +1

      I have epilepsy and the best way to remember to take them......leave the full bottles or your dose by your door, or somewhere in the house where you must go every day!! Even on you pillow!!

  • @realizationstation2173
    @realizationstation2173 6 ปีที่แล้ว +2

    I appreciate this more than words can express. I have experienced what they diagnosed as "mini seizures" that began after very invasive brain surgery since 2005. After my 4th operation, I surrendered because it really wasn't looking good for me. Shortly after asking for guidance, I was introduced to healing nature's way and although I have come SO far, I still struggle with these. It is mysterious and very difficult to pinpoint the triggers. They come seemingly out of nowhere. I smell and taste something, have a quick visual flash that feels nostalgic (not in a good way), I stare for a moment and then my anxiety is through the roof. Once I breathe through it and calm down, I have zero energy and need to rest. This is the first I've heard about musicogenic episodes and I'm fascinated because most times while I'm singing along with the guitar (tuned to 432hz which is a healing tone) and drums, I have these! Especially when I smoke marijuana (which used to help) beforehand. Any further insight would be GREATLY appreciated. Thank you for sharing. Much love and many thanks!

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  6 ปีที่แล้ว +2

      I'm glad you liked the video, and thanks for your feedback. It certainly sounds like you have some form of musicogenic spells. They are fascinating and often wildly different from person to person. One patient would have seizures when listening to women singing, but only women who don't have classically trained voices. We had another patient who had seizures triggered by hearing the US national anthem. It caused lots of problems because he was a teacher and would attend school sporting events. For some people specific frequencies or tones have an impact. The brain is such a FASCINATING thing, which is one reason my job is never dull. Best of health to you.

  • @BrenJean59
    @BrenJean59 4 ปีที่แล้ว +3

    I just read in Brain Life Magazine today about Reflex Seizures. I have never heard that term but it exactly describes what our family has. Sensory triggers resulting in jerks or myoclonus then going into Tonic Clonic. After over 20 years of dealing with this, we finally are having genetic testing. Thanks for putting this out. Sometimes I really felt like nobody believed that sensory intake could cause the seizures. It is a long battle for us and I hope to have some answers before my kids reach the age of onset.

    • @Nat-te3mg
      @Nat-te3mg 4 ปีที่แล้ว

      I also have Epilepsy but am still trying to find out which triggers bring on the jerks and tonic clonic phase. Have you discovered any triggers that bring on your disease??

    • @BuffaloEskate
      @BuffaloEskate ปีที่แล้ว

      I hope you have had some luck with narrowing some things down.. and would like to hear what as I have the same seizures

    • @joshuabolyard7769
      @joshuabolyard7769 ปีที่แล้ว

      I have this issue with sensory overstimulation causing my seizures .Its generally caffeine, sodium in my diet ,light sensitivity and preservatives, also stress .I hope this helps ive eliminated most of these and it really helps.

  • @dorisamollo6911
    @dorisamollo6911 3 ปีที่แล้ว

    Thank you 🙌🙌 seven years later the best information I have received

  • @ahamadali6963
    @ahamadali6963 5 ปีที่แล้ว +7

    True, sometimes when I'm reading suddenly i can no longer identified the text, like it's in a foreign language
    It's difficult to explain it

    • @beefybriles
      @beefybriles ปีที่แล้ว

      have you been diagnosed for anything i have the exact same issue

  • @chaoticdays
    @chaoticdays ปีที่แล้ว

    My triggers are:
    1) Alcohol
    2) Lack of sleep or stress
    3) Fever
    4) Caffeine (in excess)
    5) Added sugar (in excess)
    6) Cold weather

  • @astrofrk
    @astrofrk 4 ปีที่แล้ว +3

    I had hallucinations on one of my seizures while in the hospital, it was crazy. Everyone looked like a neanderthal and everything was covered with brown fur. I was also seeing blue and red dots everywhere and bugs. The doctors gave me some overnight test. My epilepsy starts in the visual area of my brain and I think it might be related to the AVM and/or aneurysm. I had gamma knife surgery a year ago.

    • @paolasilva5124
      @paolasilva5124 3 ปีที่แล้ว

      that sounds crazy, my first seizure my brain just told me "you did everything you do everyday" but I when I wake up I was like "where the fuxk am I???" and got diagnosed almost 1 year after. Mine "total seizures" always happened in the morning

    • @astrofrk
      @astrofrk 3 ปีที่แล้ว +1

      @@paolasilva5124 I'm doing better now but it did give me a funny feeling when my doctor was a Neanderthal LOL. I am now on SSDI and being able to sleep at any time of day helped allot. Being tired was my #1 trigger, worse than forgetting meds or drinking alcohol. Bosses are not too keen when one tells them one has to go to sleep in the middle of the work day so I cannot work. My adventure into epilepsy started with a brain aneurism while driving a bus on a major college campus, that was a WILD night! I seen the "flashes" before but that time was much worse. SSDI still insisted I could drive for two years (would YOU be comfortable as my passenger?) and it took me two years to get my check and only after I also had a heart attack.

    • @paolasilva5124
      @paolasilva5124 3 ปีที่แล้ว

      @@astrofrk you survivor. and beeing who i am i wouldn't be comfortable but i would still geet your bus

    • @astrofrk
      @astrofrk 3 ปีที่แล้ว

      @@paolasilva5124 What I also have is Status Epilepticus (look that up). I have to get to the hospital fast when the bad one's hit or I will suffer further brain damage or death. As it is, I had a hard time writing this.

  • @lukeydukey2680
    @lukeydukey2680 3 ปีที่แล้ว +1

    I have ocd and fear having a seizure even though I have never had one

  • @thirstforfruit5825
    @thirstforfruit5825 7 ปีที่แล้ว +3

    Can you have more than one trigger... much thanks for all your help Andrew

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  7 ปีที่แล้ว +2

      Absolutely! When I diagnose someone with epilepsy I discuss many common triggers, but each person is just a little different. Commonly people will have seizures triggered by missing sleep AND by stress AND by getting sick...to name just a few.

    • @cottontail1039
      @cottontail1039 4 ปีที่แล้ว

      I have a lot of triggers, including too much exercise (which also counts as overheating), weird smells, and hormones.

  • @cmontana2141
    @cmontana2141 3 ปีที่แล้ว +2

    I’ve been taking seizures for past 8 years and pretty much take them 80% of the time when I’m in shower or just after so I think I partially have hot water epilepsy but was never diagnosed I literally think I just been triggered 99% of the time mainly from the showers but I’ve taken some I think due to lack of sleep and skipping meals too

  • @timjohnson1199
    @timjohnson1199 ปีที่แล้ว

    Yes, I'm more worried about it than actually having it. My trigger is the hangover from too much alcohol and that's it. I was watching a movie with flashing lights and I started hyperventilating from anxiety but nothing happened. Haven't had a seizure in a long time now.

  • @suzanneporter7907
    @suzanneporter7907 2 ปีที่แล้ว

    What triggers seizures for me is when I'm in a public and people are using cell phones. My Epileptologist did a EEG on me and I didn't know it but
    he was purposely using his cell phone and each time his cell phone was on the spikes went up in my EEG showing that I'm cell phone sensitive and
    that's do to the frequency the cell phone uses. What's weird is I am a ham radio operator and those frequencies don't bother me. Also hot water
    like taking a shower used to both me until I had surgery to reduce my use seizures then I no longer had that problem.

  • @cassandrasollars3763
    @cassandrasollars3763 7 ปีที่แล้ว +1

    hi my name is Cassandra Sollars and I've had seizures since I was 15 and I am now 28. I remember my first seizure, I remember feeling lightheaded and hearing a noise like a helicopter in slow motion and I didn't think anything of it because I always felt and heard that when I woke up every morning, but then one morning I woke up on the way to the hospital. now I know when I'm about to have a seizure because that's what will happen. I think you would find my seizures really strange when it comes to what triggers them and the things I hear.

    • @cassandrasollars3763
      @cassandrasollars3763 7 ปีที่แล้ว

      Hi its Cassandra again, just thought I would give you a little more info. about my seizures, I can also throw myself into a seizure just by thinking about them. it sucks, I have bad seizures where I tighten up and bite my tongue and my whole body hurts the next day. I have them just by waking up, getting excited, scared, good news bad news, just sitting here writing and thinking about my seizures I can feel it through my whole body and I can throw myself into one. I have three kids and I can't do many things with them that I would like too. I have so many more triggers that they control my life, it really does suck.

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  7 ปีที่แล้ว

      Sorry to hear things are so rough, Cassandra. Not surprisingly, I recommend you see an epilepsy specialist--an epileptologist--near you. Cases like yours are sometimes beyond the skills of a general neurologist. Best of luck to you!

    • @cottontail1039
      @cottontail1039 4 ปีที่แล้ว

      @@cassandrasollars3763 Yeah, you're not the only 1.

  • @globalcliques
    @globalcliques 5 ปีที่แล้ว +1

    I can not listen to music the majority of the time. On better days I can. I can listen to people talk, but specific tones I can not handle. I have photonic sensitivity, but not to all flashes, I did not react to hyperventilation on my last eeg. Certain odors like bleach have an effect. Hot showers. Being outside in the sun. I'm not exactly sure what is happening there, maybe extreme light? I wear dark sunglasses, hat, my skin is covered. It's very painful, and exhausting. I worked outside the majority of my life, with no problems. This sensitivity is recent, past year or 2. I used to sweat quite a bit, I sweat significantly less now. I live in Pennsylvania, I wore 2 sweatshirts, and sweatpants during the summer. The first time I woke in the ICU was 2014. Including 2014 I've had 5 ICU stays. I have allergy to Dilantin, and zonisamide, and namenda. When I stopped taking lamictal I passed out less, as a mood stabilizer it did not assists with my shifting mood, which is uncharacteristic of me. Keppra is used to stabilize me at the ER/ICU.
    I take vimpat now. I may not be symptom free, but it's not as bad as it used to be. The majority of my symptoms are in the morning, sometimes all morning, and again in the evening. I look forward to more stability.

    • @paolasilva5124
      @paolasilva5124 3 ปีที่แล้ว

      are you better now? like, did the medications worked?
      I'm from Brazil and yep I also got diagnosed with epi in 2014 and since then I use fenobarbital (but I don't really know if the name is the same in all countries) and I last time I went to get the medication the doctor just make it double. But it works well. sorry to talk this much but I have no one whose like to talk about it and learn with others exp

  • @alpineglow8848
    @alpineglow8848 2 ปีที่แล้ว +1

    It seems the Amazon warehouse I work in intentionally tries to trigger seizures by playing 2 different types of music simultaneously! Of course they know nothing about that, but just because you're Paranoid doesn't mean someone's Not after you. Seriously, how can there be a "non-epileptic seizure" ? Isn't that exhibit A of an Oxymoron?

  • @ethelmurmur
    @ethelmurmur 3 ปีที่แล้ว

    My daughter is hormonal and scar from a resection from a brain tumor she had when she was 5.. It didn't come back to seizures until she hit puberty

  • @barbschultheis3021
    @barbschultheis3021 3 ปีที่แล้ว +1

    I have two quick questions for you, Dr. First, can strong emotions, such as anger or excitement be considered triggering? Anger seems to be a trigger for me. I have MS and was wondering if there is a correlation to MS and my temporal lobe seizures? I get so many weird little things going on in my brain and wonder if these occurrences are seizures or the MS, or both.

  • @vivaciousdramaqueen
    @vivaciousdramaqueen 7 ปีที่แล้ว +2

    ok, please don't think I'm nuts, but i only have seizures on full or new moons. My trigger is when stress and sleep deprivation combine on a full/new moon. Have you ever heard of anything like this? Thankfully my breakthrough grand mals only occur once or twice a year.

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  7 ปีที่แล้ว

      I've heard this many times, actually. The "full moon effect" has been investigated a number of times, and generally in larger groups the effect doesn't really hold up. Sometimes it's just coincidence. Other times, for women, they may have "Catamenial Epilepsy" (szs linked to menstrual cycle) and it'll LOOK like it's linked to the moon cycle....for obvious reasons. Other times I have patients who simply seem to have a sz every X number of weeks. Or even clusters of szs. They can look like it's linked to the lunar cycle, in some cases. Still, every person is different, and there may be many triggers for individuals which we simply don't know. Not everyone is wired the same way!

  • @briangeorge3427
    @briangeorge3427 7 ปีที่แล้ว +8

    I smoke marijuana and it helps me with my seizures

    • @briangeorge3427
      @briangeorge3427 7 ปีที่แล้ว +1

      Yesss it does.... I'm glad not to have any seizures any more.. seizure free almost 2 years now

    • @kypreston1045
      @kypreston1045 5 ปีที่แล้ว +2

      It doesn’t keep the police from siezeing your weed

  • @violector
    @violector ปีที่แล้ว

    I have heterotopic matter in my brain. My doctor thinks they come from there.
    I also have high cholesterol.
    I am trying to reduce it but I am not sure it will make a difference (?)

  • @Marco-nx5tj
    @Marco-nx5tj 7 ปีที่แล้ว +1

    I have noticed that I felt like I was going to have a seizure when i was in a room that had a chekerd flag pattern all over the room I literally felt like my body was going to twist to the side and fall i don't no y it made me get a feeling that it was going to give me a seizure if i stayed in there

    • @Marco-nx5tj
      @Marco-nx5tj 6 ปีที่แล้ว

      Noah Jones i don't no what to say probably should let your doctor know about it

  • @paolasilva5124
    @paolasilva5124 3 ปีที่แล้ว

    it was, thanks
    I have concient small ones in eyes and hands (sometimes the entire arm but when ut happens I need to be worried a lot) and sometimes some kind of sound, top loud sounds like a too loud drum or a too high and loud note make them happens... but yeah, i think the BIG ONE is stress and bad sleeping, then i can have a unconcious seizure and be really really tired, most of my unconcious seizures I did bite my tongue and it hurts for more than a week.. and I don't think that, like, I have a bad epi... but the small ones kinda sucks sometimes

  • @myjeanification
    @myjeanification 5 ปีที่แล้ว +1

    I had a TBI 4 yrs ago and my eeg shows seizure activity. Just recently I had an episode of uncontrolled shaking on one side and my head due to loud noise, there happened to be an RN there who said it was a seizure. I could see and hear but I couldn't talk or stop the shaking or head shaking, it lasted about 90 seconds and stopped about 15 seconds after the noise stopped. was this actually a seizure? Is it possible the noise brought it on? It was also a very stressful situation.

  • @thirstforfruit5825
    @thirstforfruit5825 7 ปีที่แล้ว

    One more question... how common is self harm in a person with severe TLE with a Generalised Seizures... I'll understand if you can't answer this question for obvious reasons but thanking you in advance for any help you can give.

  • @authenticmslife
    @authenticmslife 2 ปีที่แล้ว

    Interesting, thanks! I wonder if hyperacusis might have some relationship with musicogenic seizures.

  • @bazziwenoah4478
    @bazziwenoah4478 4 ปีที่แล้ว +1

    Flashing lights and Artificial sweeteners

  • @francoisrobillard3164
    @francoisrobillard3164 6 ปีที่แล้ว

    I wish i could send you a video.im in tremors hours a day, actually morning to night, neg eeg ,neg parkinson, neg essentials tremors.intensity and speed varies from day to day. Three neuro have look at my case and all gave me a good luck speach.

  • @mrsbird2952
    @mrsbird2952 6 ปีที่แล้ว +1

    You had mentioned reading causing the seizures “even with the mouth open” is reading with the mouth closed a trigger? We are trying so hard narrow down what is causing our 7 year old to have intermittent seizures even though she is on medication. She has them at school pretty often and I do notice the absence seizures at home when she is focusing really hard on homework or over stimulated by too much ambient noise while doing homework. Could reading with her mouth open or focusing with her mouth open help?

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  6 ปีที่แล้ว

      Body or mouth position being a trigger for epilepsy would be pretty darned rare, I would think. Not impossible, of course, as there are many unusual cases described. Reflex epilepsies are uncommon, and to figure them out usually takes a lot of trial and error.

    • @ManFromEngland
      @ManFromEngland 6 ปีที่แล้ว

      Andrew Reeves Neurology hi, can loud noises trigger seizures?

    • @jillmiller9886
      @jillmiller9886 2 ปีที่แล้ว +1

      He speaks of reading epilepsy in this video. Just a thought for you ... my son and sister have myoclonus due to light (sister is TV or phone/computer screen, son is so sensitive driving with sunlight varying through tree branches triggers and flashing light is instant.). I am only triggered by strobe lights and was in college horribly - heavy reading load & son became worse in college too. Reading is a change in light to retina transmitter to the brain as the page alternates between Print and no print with each letter on the page!

  • @xuezhaozheng3439
    @xuezhaozheng3439 3 ปีที่แล้ว +1

    Are those staring episodes bad for the brain? Do they cause long term damage?

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  3 ปีที่แล้ว

      Well, absence seizures (a form of primary generalized seizure) cause brief staring but are not felt to cause any longer term damage. Complex partial seizures (aka 'focal seizure with retained awareness') can, over time, make it easier to have more seizures.

  • @emildathuthimalar8400
    @emildathuthimalar8400 5 ปีที่แล้ว +2

    I have hyperventilation and that really
    triggers me and I have seizure alot

  • @theyuha
    @theyuha 6 ปีที่แล้ว +1

    I bite myself suddenly often waking myself at night- my jaw suddenly jerks and I bite myself. it isnt a habit but i have done it all my life. it seems like a misfiring in my brain or nervous system. Is there a name for this and can it be treated?

    • @AndrewReevesNeurology
      @AndrewReevesNeurology  6 ปีที่แล้ว

      Some folks just have that happen for no clear reason (I know someone who gets that from time to time), but in a few cases it does relate to some kind of myoclonus syndrome--epileptic or otherwise. Usually those with epileptic myoclonus have several kinds of myoclonus syptoms (e.g., face, hand/arm, etc.) that fluctuates a bit. If it's often, you might visit with a neurologist about it.

    • @Noname-hc1fn
      @Noname-hc1fn 2 ปีที่แล้ว

      I also bite myself i toe walk I can hear but don’t respond I head bang I walk around unresponsive they have me as unspecified epilepsy

  • @margiecarter2096
    @margiecarter2096 6 ปีที่แล้ว +3

    My friend cadie see butterfly when she go in to one

    • @milky_lp
      @milky_lp 3 ปีที่แล้ว

      I see lice

  • @limsa6968
    @limsa6968 ปีที่แล้ว

    Hi doctor , you look fun 😅

  • @virgobro2025
    @virgobro2025 7 ปีที่แล้ว

    You're cool.

  • @Mafiatunes1
    @Mafiatunes1 6 ปีที่แล้ว +1

    Fuck what doesn’t cause a seizure

  • @sherrelnewton
    @sherrelnewton ปีที่แล้ว

    Nosie

  • @ZoyaKhan-ei1fr
    @ZoyaKhan-ei1fr 6 ปีที่แล้ว

    Hello my son 7year old hi is brain demage 2016