CHRONIC FATIGUE FLARE UP's. What it's like to have a flare up/Crash with ME/CFS from doing too much.
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- เผยแพร่เมื่อ 14 ต.ค. 2024
- There are a lot of injustices going on in the world at the moment especially around the issue of race and inequality for black people.
Here is a link to the Black live Matter website, it is important that we educate ourselves on these issues, especially if we have white privilege. blacklivesmatt...
A link to a place to donate to Black Lives Matter, bail funds and protests. blacklives.hel...
This video shows my experience of being in a chronic fatigue flare up/Crash, for both intentional crashes from choosing to carry out activities that will result in a flare up and also crashes that are unavoidable because they are caused by situations outside of my control such as anxiety and exam stress which is what i am experiencing at the moment.
My name is Elinor, I am a 21 year old sociology student who has been living with ME/CFS for 5 years. This is an accurate representation of how my life is during a flare up of my illness. My illness used to be more severe and therefore my flare ups/crashes were more difficult to manage. So this video doesn't necessarily reflect everyone's experience with flare ups and crashes with chronic illness, even for people with the same diagnosis as me because we are all different.
Other Videos and Stuff on Chronic Illness:
My life with Chronic illness. (ME/CFS) • My life with a CHRONIC...
Quarantine week in my life with a chronic illness • QUARANTINE Week in my ...
Managing University with a Chronic illness (Blog Post) blogs.bath.ac.u...
Follow me on Instagram / ellellell_brown
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There are a lot of injustices going on in the world at the moment especially around the issue of race and inequality for black people.
Here is a link to the Black live Matter website, it is important that we educate ourselves on these issues, especially if we have white privilege. blacklivesmatter.com/
A link to a place to donate to Black Lives Matter, bail funds and protests. blacklives.help/?gclid=Cj0KCQ...
Gosh for how 2020 has been so rough, it kinda has gone by pretty fast 💨 I remember when all the protests was going on & taking a look at myself at the time and realizing that I’m privileged. I hope one day the world can be a better place for everyone 💜
@@JessieLee_ yes! It’s super important that we remember our own privilege!! 💕
Completely understand sometimes doing what you know will cause a crash is worth it. Doesn't feel like it during the crash, but the memories are worth the pain. Glad your videos make me feel less alone.
Thank you for being so honest and sharing this. I resonated with what you said about some things are worth it. My example is different isn't really comparable with yours though in it's severity. I'm wheat intolerant but I find it difficult to resist cake. When we have birthdays in our house my son in law usually makes a magnificent cake and we all gather to for the ceremony of blowing out the candles and cutting the cake. Before my daughter and her family moved in I always used spelt flour which doesn't affect me but my son in law doesn't like to so he always uses wheat. This is where I know my muscles will be weak and I'll be tired for 4 days but it's worth it! It's not nearly as severe as what you're showing and I know it always only lasts 4 days. My husband really doesn't understand it at all!
I'm in a crash right now and everything you said is true, crying, sleeping, mood swings, exhaustion is over whelming and I'm a functional cfs'er, I work full time, but have over done it this summer and now crashing, forgotten how awful it feels. Well done for bringing awareness, those that watch your video understand and it made me feel like I'm not so alone
Hi Elinor, you are brave.
I am 46 and was diagnosed with FM and CFS about 5 years ago. As a male it may have taken me longer to accept my condition also I have a science background which probably made it worse. I agree with everything you said and I am sorry you're suffering it's never nice. I still struggle with managing my baseline but have discovered many things to help me. I know this video is a year old but if you're interested in me sharing my experience please do ask.
Thankyou!
Thank you for sharing. This has made me realise early signs of cfs I missed long before everything finally came to a head 3 months ago and forced me to stop working. I used to think my crashes were laziness and didn’t realise how dangerously close to burnout I was. It makes me feel less alone seeing and reading about other cfs sufferers going through similar things. I’m glad your crashes aren’t as bad as they were. That gives me hope 🩵
Thank you so much for sharing this. I am in a flare and just wanted to feel validated. This helped me feel validated!!!
You are so welcome! 💜
Thanks for sharing, I’m coming to terms with possibly having CFS after having glandular fever last year and fatigue issues even before that
I'm glad you enjoyed the video! I know its hard but you got this !! 💖💖
A heartfelt and genuine thank you. I've only just found your channel, but I can guarantee that it will be a staple going forward. Simply inspirational.
Thankyou!!
Thank you for sharing this. I’m sat here chuckling at the bloopers but crying at your honesty about how this crash is making you feel. Hang in there flower, year 1 of Uni almost done. Hugs 🤗 x
Maggie Raybould Thankyou so much Maggie !! My assignments are all done now (this video was filmed last week) and I’m feeling a lot better !! Xx 💕
You’re absolutely a doll 💜 Sometimes showing the most vulnerable moments during a flare up helps others know they’re not alone! It can feel like you’re putting out something so personal, but I know being 41 now & living with not only fibromyalgia/ chronic fatigue syndrome I have several chronic pain conditions..and you can feel alone in a room full of people at times bc they may love us and try to understand but they don’t understand truly how it is. I know this was 6ths ago but here in the states it’s really cold & we’re getting snow & this time of yr is especially hard on me and I know so many with chronic illness. I am utterly exhausted & my pain is horrible, plus I always get sick around this time of year. So it’s like all the chronic illness/ pain I have hits me all at once on top of depression/ anxiety. I cry a lot as well , the pain and fatigue is just so overwhelming. So I understand and thank you for being so vulnerable!
Last year I had an emergency gallbladder surgery and tho the procedure was outpatient & it went good , I ended up in the most horrible flare since my diagnosis or probably of my life. It was Oct 2019 & I didn’t come out of it until about February. It was the worst depression I’ve ever felt, I literally slept a whole month only getting up for a few hours here and thee to eat and try to spend time with my husband and adult children. I remember thinking is this the rest of my life , is this going to end!? It did ..thankfully. Than I got sick from February 6th all the way into March & than the lockdown and I got sick again. So technically I didn’t feel better until spring. I think it was all from events that lead up to my gallbladder surgery in October. I lost 2 dogs and my 35 yr old brother in 2017 , I’m the oldest of 6 so I really tried to remain strong for my mom , than 2018 my husband had a heart attack & he was in and out of the hospital that whole year. 2019 we lost my stepdad and that’s a whole story..but anyways in 2020 we all knw what happened, plus I lost an uncle to Covid. So I think me being strong for my mom, and my husband who had always been by my side , on top of losing my brother and of course the fear of my husband having another heart attack ( he lives with Crohn’s as well ) I just basically had a breakdown I guess. This year I’ve has my ups and downs but I’m really trying to have more gratitude and being more positive has helped some. I’m definitely not as depressed as last yr or the beginning of this pandemic. I’m still suffering lots of pain and fatigue and I get colds so easily just from being out and about when it’s cold , but nothing compares to my “breakdown” last year. We all have our moments I guess and I’m glad I found your channel. 💜💜💜
Thankyou fo saying this! Its so nice to hear that people appreciate what i'm doing! It can be really tricky so it really makes a difference to hear nice things!💖 That sounds really difficult, especially as you've got so much going on but I'm sure you can do it!! 💖You definitely deserve some breakdowns after all that! I certainly hope to be that good at handling everything one day! 💖 I'm glad you're feeling a bit better recently, even though it's still hard. 💖
Thank you so so much to share your vulnerable moments with us, it is so appreciated and I completely empathize with you. I know you work so hard on these videos and it's so brave of you to show your vulnerable side. I have bipolar, so I often switch from happy and prancing around to depressed and in pain... I want to show others how things really are, like you! But I worry about people thinking I'm an attention-seeker or dramatic or something. I admire your bravery and thanks again for the video!
Thank you so much!! if you want to share your experiences, you should go for it, i get very few negative comments, the good always out way the bad!! most people are lovely!
Hello. Am flaring so sorry for curt question but do you experience painful lymph nodes, especially in neck and feeling like you are coming down with a cold virus or influenza?
hi! no not really, sorry.
"some things are worth crashing for" is Olaf with a chronic illness.
I’m sat here chuckling at the bloopers but crying at your honest
Thankyou!
@@ElinorBrown ok need ur supprt
@@ariyanchoowdhury4414 With what ??
@@ElinorBrown back sis
❤hi Elinor, i hope you see this message
do you have a video to explain what helped you get from 1 month crashes to then just lasting a couple of days? How did you heal your body and get to this point? Im struggling 😢
I think sharing a glimpse of your worst moments and crying really help people to feel less alone thank you x
Do you start saying things that don't make any sense?
YES
I think you have iron deficiency without anemia. Get it treated with ayurveda if can't be permamently cured with allopathic medicines. Diagnose for ferritin levels. Increase or decrease in ferritin levels can cause these symptoms.
I do agree that unsolicited advice is a huge problem for the chronically ill. BUT: I have had me/cfs for over 15 years and it took me almost 10 years to find out how the medical profession has established what is a "normal". level of ferritin. Basically, they have just measured the levels in a general population without looking at how the participants are functioning and feeling. This means that the official "normal range" is very wide. This means that they have included people with very low levels who are struggling tremendously to work, keep house, raise families and uphold a social life. These people are sent home with assurance from the doctor that they need not do anything about their levels. Many are informed that they just need to step up and that it's all in their heads. I, for one, received an iron transfusion and became a different being.