My friends son has Duchenne. Since then we have been trying to raise awareness and support. Ive helped Action Duchenne but I am fully behind any charity that is trying to find a cure for this disease. I hope and pray that one day soon a cure will be found.Derek
Watch Muscular Dystrophy PATIENT TREATMENT (Testimonial). For More detail contact us at +91-9654321400 & Email us at info@advancells.com th-cam.com/video/Zer-duSRlYY/w-d-xo.html
Does anyone know of an update on Tom and his loving family? Would be so nice to see how he and his adorable little sister and parents are doing. New therapies have been approved by the FDA which slow the progression of muscle damage and increase quality of life. Wondering if Tom is benefitting from these developments in research?
SO so so sad. "This is 2015" and this warm woman says "it is tantalisingly close". We are in 2023 and we could still say the same thing. What was available or almost available in 2015 in the end had very little effect since the meds did not penetrate muscles well enough. So Sarepta is on the verge of getting its microdystrophin product on the market. It won't work in everyone (since it uses a virus some kids have antibodies to). I think this boy is now 15 years or so and probably went through all the phases she dreaded so much. He is probably wheelchair bound. But still there is a silverlining I hope and think: it won't be fatal for him, since that concerns heart and lungs and there are now quite a few drugs, especially SGT-102 which is also pretty close to come to market and I think it specifically targets those vital organs. I hope so. I hope he is still doing (relatively) well.
My friends son has Duchenne. Since then we have been trying to raise awareness and support. Ive helped Action Duchenne but I am fully behind any charity that is trying to find a cure for this disease. I hope and pray that
one day soon a cure will be found.Derek
I donated most of my money for thoes kind of treatments
Watch Muscular Dystrophy PATIENT TREATMENT (Testimonial). For More detail contact us at +91-9654321400 & Email us at info@advancells.com
th-cam.com/video/Zer-duSRlYY/w-d-xo.html
A very moving story which puts all of out lives into perspective.
I could see that the lady was trying to be a good mom. That means a lot for the young boy!
We've come far in 8 years. I feel lucky to be alive in this day and age where medical treatments are improving every day. #sarepta
Does anyone know of an update on Tom and his loving family? Would be so nice to see how he and his adorable little sister and parents are doing. New therapies have been approved by the FDA which slow the progression of muscle damage and increase quality of life. Wondering if Tom is benefitting from these developments in research?
Thanks for your comment, we have an update on our website here www.action.org.uk/blog/2017/09/04/friend-life
Nice to see the kids.they r going big now.allah ll give good health
Hi. Hows tom going. I can only find an update from 2017..
God Bless Tom.
How is Tom today? The update video is from 2017?
SO so so sad. "This is 2015" and this warm woman says "it is tantalisingly close". We are in 2023 and we could still say the same thing. What was available or almost available in 2015 in the end had very little effect since the meds did not penetrate muscles well enough. So Sarepta is on the verge of getting its microdystrophin product on the market. It won't work in everyone (since it uses a virus some kids have antibodies to). I think this boy is now 15 years or so and probably went through all the phases she dreaded so much. He is probably wheelchair bound. But still there is a silverlining I hope and think: it won't be fatal for him, since that concerns heart and lungs and there are now quite a few drugs, especially SGT-102 which is also pretty close to come to market and I think it specifically targets those vital organs. I hope so. I hope he is still doing (relatively) well.
My son now 8 years old has DMD. Am so sad.
My son has also dmd musculer dystrophy
Am really very sad, it's me and my son with Duchene 😢 and we ain't doing well.. we've never used any treatment.
😭
My son now 15yrs old DMD
I'm also muscular distrophy patient
My son is Duchenn mascular distophy 😭😭
Aru you from which country
Same
Couldn't they have prescribed him Prednisone?
im 26
i have that and i no what it is like
My 6 year old was just diagnosed with this 😭
@@Robert-lm5rr ty ty ty
How is he now
helo in not medicine....