Weird Symptoms of Celiac Disease | Atypical Clinical Features
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- เผยแพร่เมื่อ 20 ก.ค. 2024
- Weird Symptoms of Celiac Disease | Atypical Clinical Features
Celiac disease is a gastrointestinal condition involving autoimmune destruction of the absorptive surface of the small intestine, which is triggered by the gluten breakdown product gliadin. Celiac disease is characterized by hallmark gastrointestinal signs and symptoms including abdominal pain, diarrhea and weight loss. However, particular nutrient deficiencies can also occur in Celiac disease leading to “weird” (atypical) and more rare findings. In this lesson, we discuss these more atypical and rare signs and symptoms and why they occur.
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JJ
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Many celiacs are NOT under but overweight. The malabsorbtion does not affect calory uptake. So because of malnutrition (vitamins etc) celiacs crave more food and "overeat" in an attempt to get the nutrients they lack.
I think I have celiac desiese and I am 52 kilos.
@@rockmetalband Yes, you get both. I am sorry to hear that.
That would be me! Then again, almost every single one of my abdominal organs is wrecked + I have anemia and am IgG deficient in all 4 subclasses. I am tired of going around with a broken, painful digestive system requiring an arsenal of meds to not vomit + being fully dietarily compliant.
@@ooommm4024dont eat while you drink(before 30 minutes and after 2 hours,dont eat sugar nochocolates or softdrinks even softdrinks without sugar are bad and dont eat glutten bread or croissants also start exercising i exercise 4 times a week mma ) all of the above help alot
I'm Italian and I feel attacked. We are all over weight
My daughter had chronic constipation as a child, she was sent to a GI who screened her for celiac. She was negative, but has the gene. A few years later I noticed my son had severe GI symptoms every time we ate restaurant food. His doc had no idea why, and something told me to have him tested. The doc said no, he is growing (and chunky) but I insisted. He tested positive. We fired the pediatrician! He sees his GI yearly now since he is doing so well. Chubby kids can have celiac! Edit to add: he is in college, went low carb in high school and is a normal weight now.
Thank you for this. Yes, overweight children can be celiacs.
There is no specific test for celiac. Please look into parasites.
You have to be eating gluten at the time you take the celiac test, otherwise can get a false negative as it's looking for anti-bodies.
My body was in survival mode because of years of eating gluten and after cutting it out my body got thinner, and stronger I also had a lot more energy I was sick a lot less
When I was a child, after waking up from an afternoon sleep. I would always wake up crying. It would drive Mother mad. Growing a little, once the afternoon naps stopped, things were fine. But later in life I started to take afternoon naps again & would always wake up with a horrible feeling. Almost like feeling suicidal, (Honestly though, I don't know what genuinely like to feel Suicidal. It's the only way can describe the feeling). When I was getting into my 40's though I started getting mild joint pains especially in my hips. By chance I came across an article by a lady called Zoe Harcombe, that stated there was an association with wheat & some other cereal grains to arthritis. So as an experiment, I cut all cereal grains out of my diet. It worked & my mildly painful joints got better. I also have more energy then before & now when I wake up from an afternoon nap, I feel refreshed. If only my Mun knew this when I was a child. That said, I'm 59 now & up until this date I still haven't had or sought out a diagnosis. Though I did mention it to my doctor once, he wasn't even interested.
I'm 51 now and was diagnosed at 47. I've always been underweight since childhood, and had a gluten allergy but didn't know. By the time I was diagnosed I was showing obvious symptoms most people notice:
- extended stomach bloating
- reoccuring persistent itchy skin rashes
- bleeding gums and swollen tongue
- brittle nails and splitting hair
- chronic fatigue and tiredness
After diagnosis and undergoing scans and tests, they revealed advanced Coeliacs Disease damage to my body:
- chronic deficiency in vitamins and minerals due to inability to absorb them
- osteopenia, low calcium bone density, pronounced spine curvature
- severe intestinal inflammation and damage to lining
Despite doing my best to follow a gluten-free diet (which is actually quite hard unless you avoid all processed-foods and can cook), my symptoms worsened
to the point of the more atypical symptoms described in the video:
- Chronic depression and cognitive impairment
- Gastrointestinal bleeding (coughing up blood most days)
- Severe weight loss (20% or more and was already underweight)
- Restless leg syndrome and inability to sleep properly
- Increased need to urinate and more urgently
- Occasional pains and odd nerve sensations in extremities (arms, hands, feet)
It's estimated that up to 20% of the population have gluten-allergy, but not all will go on to develop Coeliacs Disease. A common an unusual feature to people with gluten-allergy is a tendency to crave foods with gluten, particularly wheat foods like bread, ironically.
Coeliacs Diease despite being fairly common is still not well understood or recognised by Doctors because its a silent disease and people with gluten allergy can go decades without presenting any noticeable symptoms. There's also a lot of conflicting (and often incomplete or inaccurate) information regarding treatment and following a strict gluten-free diet.
There's a whole range of food additives that contain gluten and should be avoided such as:
- Modified Starch and Modified Maize Starch (common in processed and canned foods)
- Processed Soya meat alternatives (unless labelled Gluten-Free)
- Barley and other grains besides wheat (often used for colour and flavouring in Cola)
- Yeast Extract
- Oats (unless Gluten-Free Oats)
- Caramel Colouring
- Smokey Flavouring
Most beers contain gluten but you can buy Gluten-Free beer or cider.
My advice to anyone showing early signs of gluten allergy is to stop eating gluten then get a diagnosis early on to avoid having serious problems later in life.
And if you have been diagnosed with Coeliacs Disease and like myself have some of the more severe complications, my advice is to avoid processed foods except clearly labelled Gluten-Free processed foods, and eat only non-gluten simple foods, ie foods in their natural state. Don't make the mistake I did for years of assuming just because the ingredients look ok and there's no warning about gluten it's safe to eat. At present, there's no legal regulations on food manufacturers in most countries to mention the risk of cross-contamination in food factories that handle wheat and gluten, so always assume unless a food is labelled Gluten-Free there's a risk it may contain trace amounts of gluten and isn't safe to eat. Don't take the chance.
And most important, to combat the nutrient deficiency problems associated (because your body won't be able to absorb nutrients as well even on a gluten-free diet) is to take a really high-quality well absorbed vitamin and mineral supplement daily. You're better off getting this from a Doctor prescribed or from a qualified nutritionalist. Normal over-the-counter pill supplements are usually poorly absorbed and even less well absorbed in Coeliacs sufferers. So you may need B12 injections and mega-doses of vitamin D and Calcium in easy to absorb formulas.
It can take many months and often YEARS to fix chronic nutrient deficiency (up to 5 years to replace calcium loss in bones) so It's well worth getting regular blood tests done to monitor your nutrient levels and treatment progress and see whether you need more/better supplements. If you can't get blood tests done via a Doctor, there's plenty of private medical services that do this now via the mail with simple inexpensive kits you can order online and do at home with just a pin-prick. You mail it back and they send you detailed analysis which you can use to monitor your recovery. Unless you have a good Doctor, it's probably something you're going to have to take care of yourself to get well and stay well being a life-long condition.
If you don't avoid gluten completely (even trace amounts) and take a good nutrient supplement, then you're putting your health and life at risk. As well being more at risk of neurological diseases such as dementia you can die early from complications related including stroke/heart-failure and and an increased risk of fatal respitory infections and also various cancers.
Remember it's an auto-immune disease, so over time your immune system is impaired and that combined with the nutrient deficiencies and damage to organs all contribute to a significantly higher risk of serious illnesses and terminal diseases, which can be avoided if you take care of yourself by gettting proper dietary nutrition support and completely avoiding gluten. Don't eat foods prepared outside your home because cross-contamination is a real risk.
You keep equating allergy like it is related to Celiac. It is NOT. If you have an allergy to wheat, it is a completely different disease. It does not somehow morph into Celiac disease. If you are going to copy paste something multiple times, at least check it for errors.
Thank you for sharing!!
I've had severe bowel & digestive issues all of my freaking life!
I thought I was only allergic to dairy!
After continuously studying Coeliac disease just within the last few days on TH-cam & Google I have every issue & symptom!
It most recently started with extremely painful gut purging after eating some bread that had wheat gluten added to it in the ingredient list.
2 weeks later I consumed a small amount of the same bread & the same extremely painful purging occurred, both times within 1 hour of consumption.
Now... I am a self diagnosed Coeliac @ 70 years old.
I will have my doctor do tests as well!
I am now going to eat a strictly Carnivore diet & pray my health finally improves.
Well wishes ❤
God bless you for this information, and May the Lord God,the Lord of Mercy and the Great healer ,send healing to you in Jesus name, May you be healed and your health restored in Jesus Name,Amen.
I was diagnosed with celiac at 51. Based on all the different health problems I have had, it’s been with me since prob childhood. Literally all of my health problems I’ve had over the years coming from this one thing. I am so grateful for this video and the other one you’ve done on this particular condition. I have learned so much, and feel that I am in better health by addressing these deficiencies. Thank you from the bottom of my heart! Merry Christmas!🎄
Spread the word to others.
We are born with it. In childhood photos I’m the one with the big frog belly. Bleeding disorders, anemia,rashes even though sibling ate the same food. I don’t remember even knowing it existed until the 80s.
Yes! Thank you so much and Blessings to you and yours 🙏🏼🎄
@@NanaGagie Oh my… When you just said big frog belly, I just had a flashback yes I see pictures of myself as a three-year-old with a giant frog belly. I’m the only one of my siblings. We all ate the exact same food.
Yeah same I was diagnosed later in life at 35 but had the symptoms forever it seems
Thanks for making this video. I was diagnosed at 38, with mostly atypical symptoms. I stopped absorbing my levothyroxine, so I had many hypothyroid symptoms. Every crumb of gluten causes a rheumatoid arthritis & vasculitis flare. I also had the typical malabsorption issues, deficient in iron, b-6, folate, b12, d, magnesium, and zinc. Along with that came many symptoms associated with the vitamin deficiencies, like depression, tension headaches, etc. And because I was starving at the cellular level, my food cravings were uncontrollable. Now that I’ve been gluten free for three years, I’m off most of the meds and vitamin supplements. My mental health is stable, and my food cravings have normalized. Now I can focus my energy back to managing the rheumatoid arthritis. 🎉
Kindly reply ...
Did you have diahorrea or constipation
That's fantastic, thanks for sharing.
There is kind of undeclared ban on wheat consumption among south Indians , since thousands of years.
Collagen- hydrolyzed to undo damage
@@shabnamimran7053, I’d had constipation for years, and diarrhea in the month before my diagnosis.
I appreciate this video, but all doctors need to hear this, not just people like me sitting on TH-cam all day.
I'd like to know why most doctors do not test for CD when there are SO many symptoms and it is the most common autoimmune disease in the US and UK? I cannot tell you how angry I am at the medical community for treating CD like it is a joke. It goes beyond infuriating! I am sure my son has it and my sis did too, but she is dead now, never having been tested.
THANK YOU.. I'm 60 n have suffered since childhood.. TG TH-cam has so much wonderful info is available .. l've learned to basically diagnose myself.. SHAMEFUL worst doctors in best city NYC hospitals I have found ESPECIALLY gastro!! Thanks wishing you well! ( Still suffering a bit but NATURAL REMEDIES n making my own diet!) GOOD HEALTH to all!!!
It should be talked about in schools. But wheat has a big lobbiest
The trouble is, there's no expensive drug to prescribe for celiac disease. If there was one then the doctors would be a lot more interested in diagnosing this illness.
@@SeanFication i agree.
I understand your frustration, many Drs don’t thinks of CD
I wasn't diagnosed until 60. Until then I was healthy and fit. Then I went through the deaths of several family and friends, my husband divorcing me, and 2008 hit leaving me jobless and almost homeless. Yes, stress kills and brings on health conditions you didn't even know you had. My celiac manifested with a heart attack from lack of potassium and I ended up with a pacemaker. If I get gluten by accident, I have severe ringing in my ears and the worst dizziness you can imagine. So, yes, it affects everyone differently.
Your story is similar to mine . Gluten makes me deathly ill , I don't miss it. Hope you get to feeling better.
I Came VERY NEAR to a heart attack in 2020 due to my Potassium dropping to 2.5 ... Thankfully the ER caught it and Gave 2 IV bags of Potassium and I spent 2 nights on the Cardiac Unit...it took many more months to Figure out why~My colonoscopy biopsy came back negative for celiac BUT my Nutrition Specialist I was sent to took me off both Gluten and Lactose...my body just can't tolerate it at all...I'm slowly healing but had gone into malabsorption and was ALSO very low on certain vitamin minerals so of course I'm still on supplements...and a strict diet~This is NOTHING to play with ~It can and does cause death ...like Heart attacks like you survived...I'm happy to hear ya made it...stay blessed 🙏✌️
@@suzettejohnson9428 Same for you to stay healthy and blessed. I've done a lot of research and the wheat and dairy in the U.S. are filled with pesticides, unlike places like Europe. I can eat European wheats but not U.S. Since I don't live in Europe I just don't eat anything with gluten and that includes even things like supplements, lipstick, and other stuff you'd never dreamed of drenched in gluten products (thickeners, etc.)
@@katieskorner8164 Totally agree.
I have vertigo from gluten. I've never heard anyone say they also get this.
I am SUPER excited I found your channel. I wish I had found it 4 months ago when I started Microbiology and A &P. The detail and the organization is phenomenal ☺️. I love it! Thank you so much for your efforts and trying to help people like me. God bless you!
A lot of women with Poly Ovarian Syndrom are Celiac as well as insulin resistant.
Ah yes. You just described me.
Your comment should be pinned
One symptom that's not mentioned is psoriasis. Two days after being diagnosed with coeliacs disease and starting on a gluten free diet, I noticed that my skin felt a little better. After twelve weeks my (lifelong) psoriasis had almost completely disappeared. Now, two years after starting the gluten free diet it's almost impossible to tell that I ever had psoriasis.
Interesting you mention that. I have plaque psoriasis. I’m on Skyrizi a biologic which made me 100% clear but I’ll occasionally eat gluten as I have no symptoms but I noticed when I do eat gluten it flares up my psoriasis. So I’ve since quit eating gluten n I haven’t had any flares up. I didn’t know those 2 were associated together
@@merdoscooper3074no one knows because doctors dont know or dont tell
This is true,,,,,
@annberlin5811 They just don't know. Doctors are regular people, and regular people are lazy, aren't very smart, and can't think for themselves.
I had a rheumatologist laugh and tell me that diet has nothing to do with autoimmune disease. She acted like the suggestion was woo woo nonsense.
The same thing happened for me. Also migraines went away.
Thank you so very much for this top quality information. It is the very best I have ever come across on TH-cam. You're a great teacher. You give all the relevant medical info without dumbing it down. Thanks again.
I'm 73, had CD for 20 years, diagnosed by genetic test.
Just started on low format diet, take supplements that labs so I'm low in and went to hormone specialist. The diet and hormones have changed my life. Still eat gluten and dairy free, but
No more fatigue, depression, bloating, etc
It never hurts to get 2nd or 3rd opinions.
How about your hair? Did you loose any?
Hi. New to all of this, but came off of HRT in August, and now mew diagnosis at 55. Can you share what HRT you are using? I'm so very sad about this and thinking I was so much better off on HRT. My MD will allow me to go back on them. Wondering if I should. Diet has been nearly GF for the last 4y, just bc I felt better, but now I have to and it's so depressing to me.. It's so stupid to grieve these results, but here I am doing it. Thanks for sharing.
Really depends on each
individual. My labs showed low progesterone, testosterone. They were prescribed as compounding for me. They cost more then regular meds, but so worth it.
I also use a LIV marodyne for osteoporosis 3 x day.
Will re test in a year, but much research shows this is the best LIV on the market.
I did lose hair, but now coming back after about 9 months
@charborgmann954 Ahh, ok. I wish I could just take progesterone. That is the feel-good hormone! Thank you for responding. Is it a naturopath who is doing the Rx or MD?
I diagnosed myself with nonceliac gluten sensitivity in my sixties
I've researched a lot. It can cause many illnesses. Some are very serious.
Thank you
Thank you doctor for the information i really appreciate it i did not know this i learned something new I love watching you
.
Can you make a video about Microscopic Colitis? I really like all of your information on health.
Thank you, best ever description!
My daughter had seizures caused by gluten and my son had bleeding intestines. Diagnosed at age 10 and 15. They are in their mid 30's now.
Hi Deborah. Out of the blue my 7yo started having seizures and I'm suspicious that she may be Gluten or Celiac sensitive. We are about to test for Gluten Intolerance. How long did your daughter take to stop having seizures after she was diagnosed? My daughter's seizures came out of nowhere and doctor's are only interested in her symptoms. I'm trying to find the cause of then. I'd appreciate any information that you can offer please and thank you.
My mom has gone on & on about b12 for years. You were right, Mom!!!
This is excellent, very informative. Thank you.
Having many of these symptoms I have often thought that I was diagnosed wrongly as a child,being told that I had asthma at age 7 but could never get any real relief from the numerous inhalers and preventatives I was using. I had a number of health conditions where I spent much of my childhood and some of my adult life in hospitals. I have had a number of GI symptoms with gastritis,inflammation and bleeding of the ileum along with both peptic and duodenal ulcers among some of them. I was diagnosed at age 18 with bronchiectasis but over the years have had several different diagnosis with lung diseases including last year being diagnosed at age 50 with fibrocavitary fibrosis. I haven't had wheat or gluten for 7 years due to having an allergy to the wheat protein which caused me to have severe hives and dermatitis along with anaphylaxis. Last year I was treated for a severe B12 deficiency and I am under Specialist care seeing a Haematologist on a regular basis. I have hemiplegic migraines with a movement disorder which causes aphasia and seizures. Have severe anxiety so have been seeing a psychotherapist for a year now, I just wish someone once and for all could treat my health conditions as a whole.
🙏🙏🙏
Sometimes gluten hides in food additives like "natural" flavors or artificial. Someone double check me? But for sure if you get accidental micro contamination, you will commonly see ppl continue to have symptoms, especially when they have severe sensitivity. ❤❤❤
Try not to eat out. The grill can be contaminated, and frying grease is almost always contaminated.
Eating eggs at a place that does pancakes...won't be totally GF, due to cross contamination. ❤❤❤
Wow, this makes so much sense! Thank you for sharing!
Best video on celiac I’ve seen so far. Thanks for this.
Thank you! I knew I was alregic to gluten, as I do much better on a GF diet. But I did not know why I had the rash on my thighs. It is itchy and nothing seems to help, sometimes gold bond does. I take a Zyrtec often too.
Many thanks for this video. I have Coeliac Disease and Dermatitis Herpetiformis both controlled with a very strict Gluten Free diet and Vit B12 supplement. When diagnosed in my mid 30s I was 50kg. I went on a GF diet and 2 years later I weighed 85kgs and my Dr told me I had to lose weight. Really??? I am now 73kg and 76 years. This was a very helpful video and thanks.
Thanks so much for this informative explanation! I’ve never been diagnosed as celiac because I stopped eating gluten, wheat when it was suggested doing so would alleviate my terrible symptoms. But I can see now how it may be responsible for my anemia and severe ibs. Will be meeting with the hematologist on Monday and this video will definitely help me make the most of my visit with him or her. Tnx again 🙏
Small intestine sampling told my doctor I had CD since birth but was asymptomatic. My diagnosis came after 12 years of trying to solve anemia including monthly iron infusions. Bone density is a serious problem for me - at 45 I had the bone density of a 62 yo.
I had a lower intestinal resection due to a twist, 12 yrs ago.
Osteoporosis + other issues
Celiac hits every nerve
I’m trying to get some relief from herniated disc’s and severe sciatica, the anemia issues are there, bloodwork showed otherwise, I appreciate your information thank you
Same here, I have the same back injuries, nerve pain is a big problem. I noticed the nerve pain gets worse, after being accidentally glutened. CD can come on at any age. I was in my 60s, I know of a lady in her 80s just being diagnosed with CD. I feel so sorry for kids having It 😞 so hard for kids.
How did you manage to do this e tire video without mentioning severe constipation from inflammatory response?
I was diagnosed with Celiac at 45, and I had all of the above symptoms. And neurological problems are indeed irreparable as I failed to get a diagnosis on time, must have had it for over 10 years , if not longer.....Since I was diagnosed, 3 other members of my family did as well, including my elderly mother that did not have any gastrointestinal symptoms....
I had CD for 8 years before it was diagnosed. There are many in my family that have it, so it does seem to be hereditary as my mother also had it. Only 1 was diagnosed as a baby when he started eating solids; the rest all developed the symptoms in teen and adult life and often after something stressful like surgery, bereavement, and extreme dieting for weight loss. Hashimotos thyroiditis also come along with it in my siblings and I. My nephew has the dermatitis only, while the rest of us all have bowel trouble and severe pain when we accidentally eat gluten. Not a fun thing, but we are thankful there is now so much better labeling and many more gluten free products available compared to when the first ones were diagnosed 50 years ago!
Do the hashimoto and dermatitis go away with gluten free diet?
@@PatroliHoax The dermatitis will go away with the gluten free diet, but not the thyroid problem. I have to take a little pill for that every morning. Some people have beat Hashimotos with diet, but they didn’t have celiac too. Dr Berry’s wife Neisha has done that. So have the folks on Rain Country homestead. They and Dr Berry and his wife are all on TH-cam.
I think we’re related..lol..same story except I wasn’t diagnosed until 48.
My symptoms start by age 5. Finally diagnosed at 48.
I have hashimotos, too. I'm also thankful for better labeling. It's so much easier! I have to treat myself with NDT ordered from online because I can't find a doctor in my state that even understands hashimotos, and they won't treat it here. I was diagnosed with CD at 32, but had diagnose the thyroid problem myself at 58. I had goiter and kept gaining weight despite starving myself trying to control it. Now I feel better and am no longer obese. I had symptoms of both since birth but some doctors are useless. One gave me tetracycline for the dermatitis because I get that, too. Tetracycline has gluten in it! If course it made it worse - and he told me to keep taking it. I didn't.
I have very fortunately been diagnosed when I was around 10 years old. I am very much lucky for this as my mum found ouit after me in her 40s. She has been diagnosed with fribromyalgia earlier on and we have a suspition that the undiagnosed celiac diease led to her fribromyalgia. I have had dermatitis that has calmed down a lot since i have stopped eating gluten 4-5 years ago. I consider myself to be very much lucky for have been had this diagnosis so early on.
So can anyone explain the impairment of the spleen in coeliac disease. I have been given various vaccines against meningococci type bugs. I have laterally ridged finger nails but normal folates. Also four further food allergies including lactose. My condition took 20 years to be diagnosed and a healthy gall bladder was removed along the way. The most frustrating issue was being lectured by a clinician on mind over matter and being accused of attention seeking.
Should make a complaint on their license for doing inadequate work
Maybe change clinicians, many don’t see it for the serious disease it is. If they had it, they’d soon understand. I’ve noticed celiacs often become lactose intolerant.
May be you are deficient in fat soluble vitamins , vitamin d especially can cause lower immune levels. Fat malabsorption may cause gallbladder dysfunction.
I was a used and hospitalized for anorexia as a 19 year old. I was also type 1 diabetic and it took 20 years to diagnose. I was at my lowest cuz my family criticized me everyday. It was awful!
@@calisingh7978 One reason for doctors brushing off this problem is because of all people who claim they have the problem when actually it is just a dietary fad. A lot of people avoid gluten thinking it’s bad for you anyway. So doctors do n’t want to be bothered with the self-diagnosed hypochondriacs. They’ve never known much about true celiac disease and now they act like it doesn’t exist. Demand a small intestine biopsy.
Excellent info
I have the MTHFR genetic anomaly, and came down with a terrible case of SIBO, which is not autoimmune but can be practically indistinguishable from celiac. I ended up getting transfused with 4 packed red blood pints. I was fortunate to be able to respond quickly to treatment.
It might be worth one's while to research both MTHFR and SIBO.
You are so right. After getting my 2nd celiac test (did it correctly the 2nd time) came back negative I've started to look at SIBO closely. As I watched this video I was struck by how many similarities the CD symptoms are to SIBO. Reading Dr. Davis "Super Gut" on how to naturally cure SIBO and how to keep it away as you heal. I'm already wheat free despite the negative celiac test and I'm keeping it that way. Patience is needed to deal with SIBO. I've been aware of MTHFR for a while. I wonder who you can trust to get affordable genetic testing. I'd love to see what my genes say but I don't want certain corporations having my genetic code which they may sell if not specifically prohibited and I'm not sure that is a good thing to have happen in this day and age.
I have corn induced celiacs and it’s kind of annoying to hear only the wheat version and have people for decades misdiagnosis me because they don’t understand how corn gluten is overused in our food system. Have had anemia horribly and life is pretty miserable trying to avoid corn m. Definitely fortified foods are problematic. But no problems in Europe so
My GI is convinced I have this. I’m 63 and was diagnosed with adult pyloric stenosis at 60. Essentially, my stomach keeps trying to close up. He goes in periodically and does balloon dilation to ensure my passageway doesn’t close up with catastrophic consequences. I also have become highly anemic. However, my vitamin B is above normal. I recently took the celiac disease blood test and it came back negative. He’s going into my stomach again in a week and try and do a visual. I fasted 48 hours for last months balloon dilation but there was still undigested food in my stomach preventing him from going past my pyloric. Hopefully he can get in that area next week. It’s very frustrating. I trust my new GI immensely. He’s dedicated to figure out what’s going on with me to get to a solution. After a blood transfusion and 2 iron infusions recently my iron is fine but we have to figure out why I became so anemic. Fun times.
I want to thank you for this video full of great information. I was diagnosed with celiac disease 14 years ago. I also have the skin disorder. I am native American and about five years ago my husband noticed that my skin was getting very pale. We could not figure out what happened or what was going on. Thanks to this video, I now understand!
Have you try gluten free diet?
Low Fodmap diet
This is a wonderful video, thank you. Every GP should view this video. I actually diagnosed myself, after many years of running around to many specialist. I now realise It’s virtually impossible to eat out. I ask for gluten free as I’m celiac, they assure me saying yes it’s GF, what they don’t take into consideration is cross contamination, whilst these GF foods are being processed. 🤷♀️ Manufactures would under stand if they, them selves or family members had CD.
May I ask where you first noticed the paleness? As in what area of the body? My hands have gotten really pale. But other times they appear to be very red. Other times they are a mottled combination of red and white like when I make a fist and then open my palm it looks blotchy. I'm also part native American. The good part 😉
@@jimig399 I want to see my face at first. But I can tell you what was taking place at the time that everything went pale. My gallbladder had went out and I had unknown to me, three gall stones removed at the same time my gallbladder was removed. I'm not sure how they're connected, but that's what I remember. That was a little over five years ago.
THANK YOU
Thanks doc very informative
Thank you
I quit gluten and dairy two weeks ago hoping it calms the hives and angioedema I’ve suffered with for 35+. I already feel/see a difference.
I was diagnosed fifteen years ago. The dietitian diagnosed it since the doctors gave me every test but this one. I think I had it as a kid because I would get the rash. Never could gain weight. .
Does anyone else with Celiac’s disease get joint pain??
I get systematic joint pain as well as brain fog.
Joint pain u til I'm sobbing. I can't do anything to relieve it. Just wait for pain pills to bring it down, 😮some.
Spot on.
Super interesting to me as I am celiac with none of the obvious GI symptoms and many of the atypical symptoms: secondary infertility, early menopause, vitamin d deficiency, joint pain were and confirmed hashimotoa thyroiditis.
all this led my Endocrinologist to run a celiac antigen test - lo and behold, it was positive. My GI Dr ran bw that revealed I had the genes for celiac and subsequent Endoscopy confirmed damage to my small intestine.
Age 46 when dx as celiac. And I now have osteoporosis.
My mother was then dx as celiac at age 75. as we discussed the "symptoms", we concluded my maternal grandmother and 4 of my mother's siblings all had celiac - vitamin B12 deficiency "runs in my family" so I was told - ya, clearly celiac is the root cause.
So I now warn my brothers, their kids and my kids to watch for the atypical symptoms and to get tested for celiac periodically.
Did you have any hairloss?
@@laurawhite4118 I did not experience hair loss due to being celiac. But decades after being diagnosed I am experiencing hair loss and cannot find an obvious cause. I suspect that either my age, genetics or another acquired/ triggered autoimmune disorder is at work. My hypothyroidism is under control if you believe in TSH and Free T4 tests... I do believe in the tests based on monitoring the results in relation to my symptoms for so many years.
@@debmurray2734 I was wondering because I've seen several people talk about hairloss with celiac.they cut out gluten and their hair grew back.thanks for answering.
I gave up sugar, then bread. Currently eating meat, eggs. Some veggies and fruits. Cheese and gluten free bread once in awhile. No other dairy. Lost 42 pounds. Brain clearer. Digestion better. On days when i have only meat i feel great. The body needs protein. 😊
@CookieMonster_hey what’s the deal with cheese?
Absolutely 👍 eggs, meat and cheese have saved my life! 👏☺️
@@MegaTruthseeker thanks 🙏🏼
I grew up with weird symptoms my entire life and no doctors could figure out what the heck was going on and they had no clue that was actually a symptom of undiagnosed celiac disease. I used to get migraines and leg cramps as a child. No reason was found for it. I was always anemic. I had late onset menstrual period. I was born with bone malformation. I was born with scoliosis. I was born with balance problems. I also had anxiety and depression as a child. Plus I had the usual GI symptoms. Unfortunately I wasn't diagnosed until I was 47 years old and at that point I was already close to death. My doctors couldn't figure out why I was so sick and why I was losing so much weight and why I couldn't take in any more nutrients. I was sent to the hospital and that's where I got my diagnosis through an upper endoscopy. I was severely dehydrated and I was depleted of all my vitamins and minerals. My lower body started to swell because I was lacking in protein. So my lower limbs started to fill with fluid and that didn't go away until I got enough protein in my body.
There’s a Dr. de Adamo who wrote a book called eat right for your type. In this book he indicated that type O do not handle the digestion of grains well. The most common blood type is type O. I think anybody suffering from chronic illness would do well to try an elimination diet. I was chronically anemic my entire life I only recently had a good enough hemoglobin to donate blood. I didn’t discover I had a wheat intolerance until I went on the Prizm diet for weight loss. Eliminated all grains and sugar . I lost 20 pounds in two weeks just from eliminating the inflammation it was all water. Also got rid of all of the pain in my joints. Also suddenly had a normal hemoglobin.
Yup, my blood type is O, and I have to avoid grains 😑 due to celiac disease.
Doctors certainly were not trained in detecting celiac symptoms evidently. I had a mouth full of canker sores, the most the doctors said they had ever seen, but no one tested me for celiac. I was instructed to brush teeth every time I ate one bite and use some kind of rinse they prescribed. Of course it did not help.😅. So glad more doctors are becoming aware of it.
I was diagnosed with Celiac at age 30 and it’s very different I have bad days and good days 😢 but I have to deal with it
So I have virtually all of these symptoms but I have been diagnosed with POTS, heat intolerance with that rash, and IBS.
There is some overlap between POTS and coeliac disease, but it's poorly researched. Some POTS sufferers benefit from a gf diet, and a LOT of them benefit from low carb. Might be worth a try?
@@danmcdaid Thanks 😊
Hi JJ,
Could you also make a video about Cystic Fibrosis, PLEASE?!? (Also falls into the celiac type diseases)
As it wasn't routinely tested for before 1989 (by genetic test on baby heel prick test at birth), there will be a fair few people who walk around undiagnosed, wondering what is wrong with them.
Thank you
From what I have learned since 2011 that Celiac Disease is caused in children to start with when their mothers take them off their milk and put them on solid Baby foods. The food is made with three foods that have gluten in them. They are Wheat, Rye, and Barley. Just after turning 67 I found I had these blisters appear (yes, your number 5 (DH). Saw three doctors and the first two recommended I see a Dietician but they had no idea what I had. I had these blisters that were the size of my ring finger nail on my hand (second largest nail).
Meanwhile I learned to cut each blister off below my kneecaps, off below my elbows, and I usually had five to six blisters on my shoulder blades; if there were five on the right side there were five on the left side, if the next day there were six on one side there were six on the other side. And another collection of blisters on my buttocks. Never told my wife but had to cut each and every one of them with my thumbnail to be able to sleep from the intense itch that was there. Finally, eleven months later I went to see my Dermatologist 100 kilometers away for my yearly skin cancer tests. Whilst she was looking at everything I asked her what she thought of the blisters I had on my knees and elbows. She took one look at them and said she would take a biopsy off my right knee and one off my left elbow. As she walked away she said she suspected she would have to give me tablets! A week later with the results she put me on two Dapsone tablets a day for 50 days, then one tablet for 100 days, and had just put me on half a tablet when she rang me at home and said STOP.
Your Biliruben has gone out the window. Long story short my Y-DNA is I1a3a1 haplogroup and we are of Northern European ancestry. They are the only people who are said to get Dermatitis Herpetiformis (DH). Caused by a close person making fun of him/her. It is said that one can come right and go off being gluten-free if we are lucky. I went back to normal in 2016 but now having moved again to an area where there is limestone in the town water I seem to have blisters come around. Much different to DH as they are just as itchy but are mostly on my forearms ...little pin-head-size blisters. I would imagine this could come right if we bought another fresh water tank for all our other water needs. This time I note my wife has them, and no 2 daughter half an hour's drive away as it is in her town too. Might I suggest you google Professor Lionel Fry as I saw his many years of testing in 2012 onwards. Also a lady from Scandinavia. Kia Ora.
Can Celiac be improved or cured with Bile Therapy ? It may be too early to tell but I could tolerate wheat better after taking 1-2 capsules of Ox Bile (500 mg) around meal time. Maybe the Bile breaks down the wheat so that your intestine isn't bombarded by undigested particles that trigger a response from your immune system. Due to other medical conditions I have making my pancreas and liver sluggish,I figured it'd be good to try some Ox Bile for digestion,but it improved my tolerance and absorption of wheat also.
Regarding the dermatitis herpetiformis regardingvthe itching and possible fluid,does these usually snell bad once you scratch it?
I wonder if I have this. I break out in weird, itchy, painful blisters all over the palms of my hands down to my wrists when I eat too much bread. I also get the cracking in the sides of my mouth, and it takes a long time to heal. I just thought that I was dehydrated.
You should get tested that’s how mine presented I believe it’s called dermatitis hermetephormis
I have celiac and gluten allergy. I had 25 symptoms. Including minor hallucinations asthma stomach pain
I never counted, but I had many too, but was not dx'd until I was 55. By then I had a lot of damage done.
@@cbryce9243 thats sad. My friend learned at 75. Its a tough pill to swallow when you find out so late.
May sound dumb but how did you get diagnosed? What kind of doctor? I cannnnnot find a reasonable gastro who w LISTEN! I had OSTEONECROSIS stage 6 of the hip plus w need probably 4 joints replaced eventually STILL SUFFERING w stomach! 62 yrs old ! Healthy habits .. it's the STOMACH!
@@janicejacome i was super sick went to allergist dermotologist pulmologist and one day at work i said to myself you have celiac. Like it was a thought from god . Never went to doc. When you stop eating gluten for 3 weeks you will know. I have zero symptoms i had before
I also have wheat allergy and celiac disease along with lupus!
I was diagnosed in my 40’s with celiac disease after a biopsy and genetic DNA testing. It took over 11 months to be diagnosed as I was a false negative on the original blood test. I was hungry all the time and actually gained weight as I became sicker as I was eating so much as my body was not getting the nutrients it needed. It took 3 weeks to start feeling better. I find it hard to eat out. I have found not all products marked gluten free are. I have found I can’t eat oats as well as wheat, rye, and barley. Thank you for this information as both my children have the genetic markers for celiac disease. Also, to my understanding the USA is allowed to have a higher level of trace gluten in their gluten free products than other countries like Australia.
I can’t do oats either.
I also have the symptoms but tested negative in ttg. Upper endoscopy showed gastritis but im not gettin any relief from medications. My symptoms appear after i eat. Its been 3 months and no relief. I don't know what to do.
If you haven't maybe read the Cleveland Clinic information on gastritis to see if there is something that helps-@@meghamehra3777
In Australia and New Zealand oats are not considered GF as it has a protein that can cause reactions similar to gluten in some celiac people.
It is frustrating to see so many products listed as Gluten Free in the USA and then look at the ingredients and oats are listed. @@drayner2517
Just stop eating anything with guten. You won't have abdomenal pain after eating, or at night. I've figured this for myself after many years of suffering.
easier said than done
@@DeionHarris Not really. Going gluten free is one of the easiest and things you can do. You have many gluten free products, bread, rice waffels, pasta, basically everything. Might be a bit more expensive, but it's worth it.
@@filipdinevmusic well it is for me because i also have rosacea and cant eat alot of things like potatoe white rice coconut and then i have thyroid which means another thing like almonds but i also think even if u dont have those things all they did with gluten free is replace those products with fat and a lot of sugar thats all they did which is still not healthy and ima tell u something else i dont believe in the products that they put out once u become something like vegan and then they come out with all this vegan stuff that stuff is fake its just like gluten then they come out with all this gluten free stuff that stuff will mess everything up in your body it might be safe for gluten but its not safe for other things yall need to know that this stuff aint nothing but commercial money they say ok they going vegan lets come up with vegan products it aint no such thing like if u go gluten free u still not suppose to eat nothing in a box just like with vegan that stuff is imitation and will get u sick im telling u
@@filipdinevmusic o and i forgot to mention the famed killer palm oil and palm fat so its hard all u have to do is read them ingredients and u will see yea it might not say wheat but they dam sure replaced it with badder things that can kill u gluten aint gonna kill u but the shiiiii in there that they replaced it will will kill you
Same. Had major issues for years and when finally went gluten free it was like night and day.
I had numbness in my feet already as a child, and white spots on my fingernails plus a lot of tiredness( zink and iron defiancy) and I was always pale. As a teenager I also got anemia. Still the symptoms worsened after a stressfull job situation. So diagnosed I was not until age 33 at year 2017. What do you folks think, was it hidden celiac disease from the start or was it a sensitivity in the beginning and celiac after the stress launching?
Is it known to DH on your upper back? I have it terribly when I ingest gluten.
I’ve cut all wheat and dairy out for wks now. Feeling a lot better without it. ❤
If you are not a Ceoliac then make sure you take extra vitamins and minerals as a gluten free diet is deficient
If there is a mixed picture having hb low but due to different causes ..
When the Atkin’s Diet was popular in the 1990’s & early 2000’s I was eating low carb(mostly vegetables, meat, some dairy & berry’s)the insanely itchy rash on my chest, stomach, buttocks & thighs disappeared. If I cheated on my diet the rash would reappear and I would sometimes grow painful lumps on the first joints at the end of my fingers. If I stay away from wheat, barley & rye the pain would subside & the lumps didn’t grow bigger. Could arthritis be related?
I have battled With anaemia for years. My dr told me it was due to poor diet, even though never discussed my diet! I think he never thought to consider my CD
My simptoms came in like 10 days. What I experienced is tiredness, constipation that was 7 days long, cramps, feeling like my blood was poisoned, my hands were going numb, I had ulcers inside my mouth, my anxiety was baddddd, when I stood up, i felt like OI had no balance. I felt good in the morning... until I ate and first meal always had gluten in it (pastries, cereal...). And I realised that something is wrong. I decided to stop eating gluten. Today marks the one week. And oh my gosh, the energy I have, I go number 2 every day, no more other symptoms, I AM LESS HUNGRY!!! Which i thought would be opposite because gluten free diet is not really tasty and I thought I would be hungry, but no. After meal I am full for so much longer. I am a bit overweight, so I'll see if that will impact my weight. Also my whoooole life I had thyroid problem, and my doctor never knew what was causing it, and also it wasnt that bad to treat it. Celiac often causes thyroid problem, so I'll also see how that goes, and if next blood work will come better.
Yeah, i totally feel you, gluten free diet is not that good, it also often depends on the companies that produce the gluten free food. Some of them have good breads, but disgusting sweets, etc.
It takes a lot of time to get used to it and all... For me to find good gluten free products took me atleast a few years!
I am in the process of being diagnosed as i await further tests. Mother has had it 10yrs.
Also diagnosed with a 6cm Hiatus hernia and Diverticular Disease/Diverticulitis since 2019. So my digestive system is a bit messed up 😂🤦🏻♂️
Diverticulitis is from eating a diet low in fiber. So when you eat your food, it tears the inside intestines trying to get the waste out. You cannot heal that. So the problem becomes when you eat things with seeds or popcorn, those seeds get into the tears and get stuck. They get inflamed and bleed. A diet high in fiber help move waste along quicker. Most Americans have diverticulitis from our diet. But just because we have it, shouldn’t make it an ok situation. We still need to address it. I have a friend who didn’t listen and perforated a diverticulum and had to have some of her colon removed.
A hiatal hernia comes from excess stomach acid. Another common problem from a poor diet. A diet high in fiber, fruits and vegetables will balance the pH in the body. But once you get a hiatal hernia, you will always have one. So you will always be prone to having acid rise up. A more base environment would be better for you to help with this and the diverticulitis.
I have it and several other autoimmune diseases a couple very rare. My body behaves badly with anything man made, acidic or even over sweet and I have trouble finding things that will not hurt me. I was hoping you might know of a way I could find out what foods are okay since most diets don't remove man made foods like corn. What is truly clean, gentle, and meant for our body?
I’m about to consider carnivore. Or carnivore plus a few leafy greens and see if that helps.
Female celiacs often bleed more and excessively because of vit k deficiency. Also there is a recognized increased risk of miscarriages.
Oh my goodness. I don't bleed I FLOOD!! This been going on for over 15yrs! I just been diagnosed with Celiac disease 2wks ago! I will speak to my GP regarding Vitamin K
@@maitabasa7693 You may have PCOS as that causes severely heavy bleeding, i have it too
I have a question, and since you all seem helpful I feel this is the right place to ask. I was diagnosed as celiac less than 2 months ago, having previously had symptoms for about 9 weeks. The symptoms just started a day after I came back from a short trip to Romania and Bulgaria, I had a late night flight, barely had any sleep the night I came back, and stayed up the rest of the day. That day I smoked a cigar, which I sometimes get nausea from, and so I figured that evening when I got nausea that that was it. Until I got it again the next night also. By the weekend I had a bloated stomach and the awful abdomen pain that's seemingly very common.
Now the reason for my comment, is while it's seemingly possible to start having symptoms randomly, it just strikes me as odd. Next is that for a couple of 3 day periods every so often in the 9 weeks I'd be completely fine, and while I wasn't eating the same thing daily, breakfast and lunch were always filled with gluten. Is it weird that sometimes I wouldn't react negatively to gluten? When I went to an initial checkup at the 9 week point, I was given a diagnosis of trapped wind, and I was given some prescription tablets to break down the acid. Ever since I have had 0 nausea, and the pain had shifted to just abdominal for the 6 weeks before I got blood test results back with the celiac diagnosis, even while obviously still consuming gluten. Unfortunately I'm not sure if the blood test that labelled me as celiac, was one specific to finding the disease. I have switched to a gluten free diet, and while I do feel better than I did, I don't feel like I am recovered, or even on the way to recovery. I think I'll be looking to seek a second opinion after Christmas, but it would be interesting to hear of others insights, any and all of which will be greatly appreciated.
I feel I should add and clarify that I had pretty gnarly eye surgery on both eyes in 2017 and 2018, which I would suggest is maybe too long ago to be the potential cause for my onset of 'celiac like' symptoms. The clarification is that other than the initial phase of bloating that I had in the first week, I can't recall really having it since. Plus the reason for me taking the initial 9 weeks to go for the first appointment was because I kept periodically feeling 'better' to the point I thought I'd recovered from whatever I thought I'd had, before being struck down with symptoms again.
Thanks all
Can the Vitamin K deficiency link directly to the Vit. D deficiency and vice/versa? How long after intense Vit. D deficiency are neurological symptoms presenting in the literature and at what point will a gluten free diet NOT reverse the problem of neuropathy and brain damage (AKA gluten ataxia)?
Some of these symptoms mimic POTS which I have and a folic absorption deficiency. I CANNOT remember the clinical term. So could this be related 🤔
look up info on MTHFR for folic acid absorption issues - it is in part a genetic variant. i have that, celiac disease, and hypogammaglobulinemia and found out about it when i got genetic testing to see which psych meds work best for me due to anxiety, depression, and adhd. many of these can have a connection, showing up together 🤬
MTHFR
@@ooommm4024 yes B-12 deficiency can cause psychiatric symptoms
Yes...most certainly...for 15 plus years I was diagnosed same as you! Finally the Malobsortion got so bad my Potassium dropped to 2.5 and it took several more months to find all the nutrition deficiencies that led to me being placed on a gluten free dairy free diet along with supplements...I lost 80 percent of my laundry list of symptoms that I had suffered with on and off since childhood...and I tested NEGATIVE by biopsy on my Colonoscopy...yet 8 months later after the near heart attack and being placed on the gluten free dairy free diet was THE TRUE ANSWER...I'm known as a Gluten Sensitive Person ~Best of luck to everyone
@@ooommm4024 Try Homocystene levels. They elevated in low folic acid and b12 deficiency
When I get accidentally glutened I get those sores on my tongue and gums. I had a very large and aggressive growth removed in my upper colon from years of damage. The Dr. tattooed the spot and now looks every colonoscopy I get. He wants me to get them more often that others due to my history now.
Anemia is a mother*******😮. I had IBS and other issues but the anemia, and resultant depression and brain fog were the absolute worst 🥵🤯. Didn't get diagnosed until this year, gut hasn't recovered yet but getting iron infusion this week.👍
I was diagnosed with celiacs disease in my 30s mental times misdiagnosed by doctors but I can tell you it make me swollen it puts me in pain and very tired and a very high white cell count I don’t eat ice I drink room temperature water and warm liquids I have a hard time losing weight doctors need to be more aware it get annoying to go to the doctor they don’t listen
I must of had this as a child but wasn't diagnosed till I was 52! I grew up eating wheat Rte and barley! I was active but always chunky around the middle! I was getting gret& white hair at 11 also my teeth were bad no enamel! One time my brother near said try wheat germ in yogurt just allittle made me pass out immediately on the table! I never ate that again! It affects bones I have brittle bones ! If I have shampoo with wheat protein my scalp burns and I have bad dandruff! My skin will itch and flake very dry! I had acid reflux and a hiatus hernia! At 52 had a stomach empty test! I ate a half of peanut butter & jelly on cracked wheat 17 hours before test and it was still in my stomach at time of test! It looked whole in picture never digest Ed! That's why I always had acid reflex
This is really interesting and quite a strange disease.. I've had Long Covid for 2 years with many odd symptoms and it's been a roller coaster, but I've always felt like something else was going on to add to my misery... there's a lot of cross over with CD and as LC is being talked about as being another autoimmune disease, then you normally start to get more.. as I'm feeling much better these days, what brought me here was the canker sore in the mouth, I don't have the sore, but I do have that red irritating part in the roof of my mouth.. I get the impression my Long Covid is mimicking celiac disease in some ways but not fully.... I know they are saying LC patients are low in iron, testosterone, serotonin, we all have insomnia and tinnitus.. not sure about the B12 though.,...
Anyone know why my vitamin levels always seemed fine enough, but I was still having symptoms like mouth ulcers? Took me three years of constant ulcers to be diagnosed with celiac. But if my vitamin levels are fine I don’t understand how it can happen
No one is talking about this, but vitamin d can actuality cause fatigue and lower mood. I was taking 10,000ius/day and couldn't figure out why I was so tired, groggy, lethargic, no motivation. Stopping the vitamin d, lowering the dose drastically and taking only before bed. Really helped. I went off of it completely for over a year just to start over with everything.
Imagine overdosing on something and being surprised that you don't feel well.
I was diagnosed with UC. Could I have been misdiagnosed?
Eliminate all gluten from your diet and you will quickly found out
I was diagnosed with Gastroparesis. When I finally went gluten free my stomach aches completely stopped. Either I was misdiagnosed or I have both
I am 51years old
Since 4 months first symptom is weight loss
Since 1 month shortness in breath, dry cough, body pain, weakness
Avoiding wheat, pulses getting relief
Wheat allergy test TTG is 0.83 normal
Started homeopathy treatment .
Ive been suspicious of gluten for a year or w bow but im positive ive had it since my mid twenties ... i have went days n days without food fasting and my stomach is hard as a rock. No matter what i eat nd no mtter how empty.. i did a raw vegandiet for about a year or two.. best iive ever felt but its a very hard diet to stick to..been living w this mess at least 30 years now as im 55 now... but since im considdered Obese when i complained to drs.. all they can see is Fat and would push me out the doors LITTERALLY saying just lose some weight 😮 but never attempt to figgure out the problem... blood work came back and all is good on the average so yet another Dr w a all is well diagnosis... but something is for certain messed up. 730 at night right now and haven't had a meal or a bite to eat since supper yesterday. My stomach is hard as a rock and I'm sick w low sugar at a reading of 60... just sick all the time but can't get ANY HELLLLLLLP 😭😭😭
How do they test you for this in the UK? I'm certain i have this issue. I've lacked a lot of vitamins and having issues with low iron, B12 etc
Go to your gp, tell them you suspect you have coeliac disease and would like the blood test. Point out that low b12 and iron are consistent with the disease, and you'd just like to eliminate it as a possibility for peace of mind. You'll need to eat gluten every day for six weeks prior to the blood test. Good luck!
@@danmcdaidThanks!! I was tested repeatedly, but not one Dr ever mentioned the need to consume gluten prior to the test. Each of the Drs insisted that I had CD, but disregarded following the negative test results.
Never mentioned by all the Doctors I visited with most of these symptoms.
My son was diagnosed with celiac disease at 7 months old he in his 40s now i was diagnosed in 2017 so i developed it, it can run in family's all you have to do is go on a gluten free diet have much fresh food as possible vegetables and fruit cook your own food so you know its gluten free and get into the habit of reading labels and when eating out ask or tell them you need gluten free.
No.
Could this make it so you cannot breeakdown meats too? I have all of these symptoms. I cant eat sugar, meat, carbs without insane pain an swelling. My hands an feet tingle an hurt, i get the stones on tonsils i have been tested a lot. Not diabetic, do have lymes tho. Any help is appreciated, i feel like im dying most days.
Any correlation with mucus creation in throat? Impossible to clear? Infrequently passing stool? Intestinal spasms? A problem with serious insomnia? Dry mouth? Likely some of these not related.. also a persistent jejunal Intussusception (found imaging)
I have the same symptoms as yours, Did you stop taking of depression medication? I did so after that I faced almost mentioned symptoms, Could you please tell how did you solve or overcome these problems.
Much appreciated if help me by telling your related experience
@@EduJob-dl7pu I was on some for about 2 years. But this happened unrelated it seems? Been off over 6 months, too. Is it the mucus issue? I still get it.
@@djkenny1202 It is not diagnosed yet
Thank you for the feedback
@@EduJob-dl7pu what symptoms?
@@djkenny1202 Throat and mouth dryness, pain in chest, stomach problems,bowels movements, nausea and diarrhea,
Why can we come back neg for celiac and have symptoms...
Too bad doctor's don't seem to know this! Too bad people don't believe this diagnosis too!
I agree it is difficult to find gluten free products in countries where it isnt a very well known disease...and if at all some pockets of the country have gluten free options they cost nearly 20times more than regular stuff ...i have started reading labels for finding alternatives for my different type of requirements aka avoiding all purpose flour etc but yeah even whole wheat bread bas added glutten in my country
Eating gluten free is easy, just eat real food bro. Vegetables, fruits, rice and animal products excluding dairy
@@Aviamoyal vegetarian...so no animal products
@@amitas7047are you from India..? I also have same problem gluten free flour of 1 to 5 kg is more expensive then 20 kg wheat flour bag ...
I am diagnosed negative but my doctor said me to avoid wheat products.
Oh boy, now I'm remembering the syncope and tachycardia I've had on and off for years😂🤯. Well it all makes sense, and not going to have these problems again soon.
I’m 23 deal with this. The tachycardia is a nightmare..
No info on treatment? Oral vitamins help?
I now have the dermatitis above one ankle, not both. It has the little blisters and severe itching. I have avoided gluten like it is poison so do not understand having the dermatitis.
I found taking vitimn D + K2 as oil form helped a lot :) I had pain in my tummy after eating gulten, and i start internal bleeding. haha my poo was like super glue! K2 seemed to fix this :)
Is taking vitamin K a preventative for gastrointestinal bleeding?
I have ma few autoimmune diseases. I believe it could be in my intestines. I get SIBO on and off. Must use Miralax daily to make my intestines work. In a Colonoscopy Dr removed precancerous polyps. I do bleed when I haven't taken miralax. I get rashes, have had it all over me!
What can you use on that dermatitis herpetiformis
As far as I know, the only treatment is to get off of gluten. There might be cream prescriptions for it, but I don't know of any.
@@cbryce9243 i have been off for a couple months now. My Dr also had me do the uv light treatment to stop the itch from the rash. It's not found away.
Protopic ointment and a lotion made for ezema
@@cbryce9243 protopic but its expensive
@@annberlin5811 thank you
I was diagnosed at the age of 34.The only symptom was Gerd and difficulty in swallowing.. Does any one feel that symptoms.?I m worried because even going gluten free i feel sometimes tightness in my throat ir feel like food is stucked in my throat. That is weird symptom i never listen. Otherwise I'm asymptomatic.
I have similar symptoms like u had