Q&A with Dr. B! It's MS Awareness Month, let's CHAT!
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- เผยแพร่เมื่อ 28 ก.ย. 2024
- The Boster Center for Multiple Sclerosis accepts all major insurance carriers and accepts consults from around the globe, both in office and via telemedicine. www.BosterMS.com or call 614-304-3444 to schedule!
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COMMENT with your thoughts and questions below! I look forward to reading and responding!
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NOTE: Make sure to talk to your provider before ANY treatment decision. We hope to educate, empower and energize those impacted by Multiple Sclerosis. This channel consists of a collection of formal lectures and informal video clips about MS to help education others. These videos do not provide medical advice and are for informational/educational purposes only. The videos are not intended to be a substitute for professional medical advice, diagnosis or treatment. Always seek the advice of a qualified health provider with any questions you may have regarding a medical condition. Never disregard professional medical advice or delay in seeking it because of something you have read or seen in any of our videos. They are just to help educate you about the condition guys!
![[TH] FS vs BME - VCT Ascension Pacific - Lower Bracket Final](http://i.ytimg.com/vi/wnygqsR2Fig/mqdefault.jpg)
Can RRMS turn in to SPMS?
yes. here's a vid on progression: th-cam.com/video/fZPQ48N-nIs/w-d-xo.html
Wat is spms is that the inner between br fore ppms
@@crystalakers8324 Warning, I am not a physician, but my mom had MS throughout my childhood and I was diagnosed at age 22. I'm now 53. I will answer to the best of my understanding. If I'm wrong, I hope Dr. B will correct me and/or tell me to shut up! haha SPMS = Secondary Progressive MS. It is often, but not always, the "next step" in worsening of Relapsing-Remitting MS. In other words RRMS can worsen (or "convert" into SPMS. It was often the "normal course" before Disease Modifying Therapy was available. Now, if one starts a DMT before "converting" to SPMS, one might never worsen to the point of SPMS. I've been on DMTs since 1996. I have not "converted." to SPMS. My mom had no treatment, and she worsened the way MS patients used to do. Now, the question becomes, what is Primary Progressive MS versus Secondary Progressive MS. In PPMS, the pattern of the disease is not generally "a relapse followed by a remission". Remissions are rare or non-existent in PPMS. Most diagnoses start with RRMS, and now SPMS is not as frequent, because of DMT's. PPMS, (Primary Progessive MS) though, is diagnosed by an MS Specialist if the patient generally does not have a pattern of remissions. Please see your MS Specialist for your specific diagnosis, and be sure to follow his/her advice for treatment!
Is there 4 4 stages of ms aleast that wat I though but coudnt remember but but 2
Iment I remember 2 actually name but remaber there 3rd the spms kat sparked my memery now but cant rember fourth nor sur if ther is a 5th
Please don’t turn it off we need folks who understand this disease. I can live with ads it’s worth it
Dear Dr. Boster, I am sure you can use this money you can get through advertising for good educationor your foundation!
I normally don't like advertising, but in this case I am proud to be part of some fundraisers, just by watching your videos!
In Germany the advertising laws are very strict. But founding a foundation to raise awareness on MS and education for nurses,doctors and others who are working in the medical field is wonderful!
Teaching us more abourt our disease is wonderful! Showing us, just by going online, that we are not alone, is wonderful! So many people jump online on your live-streams and write notes and questions from yll over the world!
You must be overwhelmed by this response! I would be, definitely.
And I am so glad that even your father and your stepmom jump online and watch your videos!! They can be so proud of you!
THanks you so much for your time and efforts to educate us! I know that your job is exhausting and emotionally difficult sometimes!
Thank you for everything you do!
Have a wonderful weekend! Greetings from Germany, Britta
TY Britta. I value your opinion and appreciate your sharing your vote
Maintain monetization and do what you think is best with the money. If that’s putting it into your pocket or donating it then that’s your business. Everyone here finds value and therefore is creating value it is valuable! Don’t feel any guilt about it, the people that would judge you negatively for making money are not the kind of people you need in your life. This channel is the single most valuable resource for me hands down!!!
wow! Thank you for such kind words! I'm really touched!
This comment is for your dad. Mr Boster you raised an awesome son, you should be very proud of him and yourself you did a great job
Do what your're comfortable with. I think using the money for education is a wonderful idea!
You're spending your free time doing this and helping people. If you can monetize then you should. People are used to ads on youtube. I don't think that will turn anyone off.
TY Terrific Bloke!
I don't like tons of ads. I have unsubbed from channels that abuse the monetization. Ad at the beginning ok, three ads in a 20 min video bad. Your time is worth something, and I have learned a ton keep it up.
I can ignore all the ads necessary to raise funds for a good cause
Please indicate whether or not skipping the ads will reduce the money you get. I want to be sure you get funds to educate.
I wondered that, too. I use an ad-blocker, but I don't want to "cheat" Dr. B out of $$$ he most likely will use to help us even more. I'd like to know, also.
Hi Dr B, it’s Janet B from the UK and I’ve just had my 15th Tysabri infusion today 😎😎😎😎😎. Nice to hear from u 😄😄😄😄
I was on Tysabri for 4 years, and mad as a hornet that my JCV shot up and I had to discontinue. Great, great treatment in my experience. I'm now on Ocrevus, though, and loving it just as much. It's comforting to know there is now such a variety of options. :)
Hi Cathy nice to meet u I do like Tysabri I’m a low JCV and just seeing how things are, they are very good where I go to in Lancashire UK and hopefully it will carry on 🤔🤔🤔🤔
@@janetbrockbank323 Wow, to have National Medical Care. Most of us, especially with this illness, can go broke trying to treat it... even with private health insurance! Isn't it sick and immoral to make profits from the misfortune of others? They have convinced most of the US population that National Health Care is "impossible" here, and that systems like the UK's & Canada are terrible and treatments are either unavailable or have terrible wait-times... Care to comment?
Cathy Collins well the NHS has its faults but in giving me and others Tysabri free it’s brill it really is xxxx I used to work as a ward sister in the NHS for 28 years till I had to take early retirement last year due to MS xxxx It is very immoral that health provision is not free in the US and it’s not right that paying for treatment carry’s on xxx
I make my living by running advertisements (Google Adsense) on all of my websites. Most of my sites are informationial and educationial in nature. My users are more than happy to see ads in return for good information.
I missed this because I was at work! Listened in the car on my way back, now I don’t think that ads are hindering to anyone here especially since it’s purpose is to capacitate your MS care team which equals more tools to make your patients the most awesome version of themselves. Last Q&A you asked for our opinion on something about your channel but I don’t think you brought it up! I think it’s awesome how much you’re willing to give for our cause 💪🏼
I’ve sent you a twitter DM about filtering questions! Also I have a question, my best friend told me to ask my neuro about fibromyalgia, I’m always asking her to “pinch my nerve” or to please make my “back knot pop” as I feel it relieves tension and that tightness feeling, I googled it and the spots that it are associated with the affected sites are the sites my massage therapist focus on, he always apologizes for putting me through that but I usually end up napping through it, I thought Fibro was increased pain sensitivity? I feel like my nerve ends are not as sensitive and that’s why I don’t mind pressure applied to those pressure points. Thoughts?
Also I think Keith’s idea is great, you answered that question for me at the conference! I struggle telling people at work, but I think it’s harder to tell and ask for patience and understanding from close friends and family- but then again it could just be me being stubborn 😂
Hey Doc from Montreal. I say monetize. I trust your judgement to use the $$$ for the good of MSers.
TY for the kind words and for your vote!
You deserve to do with the funds, generated off of this channel, to treat your staff, or you and your family as compensation for all of the time you devote to us. Just my $0.02. Sorry I missed this live. On your ask re: finding questions, perhaps have your channel moderator(s) attend to capture questions. and send them to you from the chat using Skype, or some other messaging client.
Use money for inducing remyelination research!
Don’t have any qualms with taking the bucks for the great public work you do, Dr B.... you can hardly be criticised for being a Sell Out like some corporate rock band in its twilight years.
Good luck to you and all.
Maintain
Yes I'm coffe fanatic
Love the Java!
But only hot coffee not cold lol
Hey Cheryl from Montreal ;)
I've been getting 5hatvring in my ear alot lately
Let your MS provider know!
I am wondering can Ms contribute to low iron level
Monetize
For now I'm most comfortable NOT monetizing Robyn. Maybe down the road I'll turn it back on.
Yo Doc., if you can make a buck all the while helping folks like me in the process, why not? Do what you want with these funds you acquire. No business of ours what happens with these monies, weather you donate, college fund for your kids or beer money come the weekend. Congratulations on your channel and thanks again for your help.
Ole Spikeee here-
A friend today asked me if I knew it was MS awareness month -
I said im aware every day 😬😬😬
Hi Dr. B! I saw my new neurologist today. I left feeling validated. I got a hug and told, you are loved, cared about and worth it. I cried. He made sure I felt that and knew that before I left. It’s nice to know I’m cared about. I also did my 25 feet walk test for ampurya today. You’re amazing and I appreciate you, too!
I'm interested in your thoughts about trials with extracellular matrix or use of CBD oils. Are you following these or other new therapies? I usually miss the live chats, as I am Central Time zone (Iowa). If ads=money, go for it.
Yes yes B use it for foundation
TY for your vote Stacey!
So, I use the Ad time to run to the kitchen or find my notebook or warm up my coffee? You use the money at the Clinic? OK!!!
Monetize! For sure use it for education of people in your office. Love that idea.
B- monitize for foundation fund
TY for your vote Mahi fik
Love genius of generosity, Dr B! (giving to & educating others)
Awesome to know your fam listens in too!
Ads included w/ vids might give you time to peruse Qs throughout but honestly I'm more apt to opt out on listening to an hour-long chat that includes ads
I do not say this as a suggestion of what to do but I will mention that there are ad-blocking programs out there... Ask your favorite computer-savvy person about them ;)
I love your analogies and story telling to help us learn! Ty for all the live chats!
He's the best! I'm lucky enough to be his favorite patient.
@@ccollins2890 youre very lucky! How awesome!
I have learned an incredible amount of MS information from you and I am extremely grateful to have found your education channel. Thank you so very much. You are amazing and obviously have a huge heart and tons of passion for helping people navigate MS. Many thanks.
I thank you for being so generous with your time and knowledge. Have wondered what you get out of this. I don't mind an ad at the beginning. Do you still get credit if we skip the Ad? Would rather not have ads inturupt you. Any way that you could vet the ads for legitamacy so we know it's not snake oil
As his patient, I'm betting he gets two things out of it; One is the satisfaction of educating us because he truly cares. The other is that his own patients can get info here, and go into our clinic appointments needing less explanation of terminology, etc. At least I hope it's easier for him to work with well-informed patients.
I appreciate your input Leslie. I don't get to screen which ads unfortunately. I think I can control when in the vid the ad shows up (I think, but I'm still trying to figure it out!). For you, would you vote for me to turn them off?
@@AaronBosterMD I'm happy to have one or a few ads so can use the money. I really appreciate you educating us.
Generally speaking, can an MS patient receive Ocrevus infusions if they have been diagnosed with liver fibrosis caused by fatty liver disease. Would Copaxone be a better alternative? Generally speaking, knowing you have no knowledge of the MS patient. Thank you!
Dr. Boster, please help Dr. Yarger raise funds for the NDC-1308 clinical trials for NMO and MS. Please go to the Endece website. This is Ann Kenney, and I am in the video NDC-1308 to Induce Remyelination. Please talk to
Dr. James Yarger at james.yarger@endece.com
I know I said please a lot......but PLEASE!
This is Karen from Mundelein Illinois letme know if you see me