UNC doctor calls Alpha-gal meat allergy 'tremendously underdiagnosed'

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  • เผยแพร่เมื่อ 13 ม.ค. 2025

ความคิดเห็น • 71

  • @dib7161
    @dib7161 8 ปีที่แล้ว +28

    I have this darned allergy, have had it for years. I am part of an online group of over 2000 people with it. Believe me, it is not as simple as avoiding mammal meat and dairy! People with the allergy can be allergic to the mammal by-products that are in versions of everything we eat and use. Many become allergic to foods with whey and animal sourced vitamins, and to personal products like deodorants and makeup and lotions, to soaps and detergents, and even to many allergy medications that have mammal in their formulations. Even worse, many are allergic to life saving medications and diagnostic medications, because so many of those have mammal ingredients. Many develop an asthma-like reaction to meat fumes and scented products that use animal fats as carriers for the scents. This allergy is so much more difficult than most doctors and allergists have been told. Even the reactions cover so much more of a range than traditional allergies. Many people go for years, misdiagnosed with other conditions, when if they knew to leave mammal-containing products out of their diets and environments, they would feel well again.

    • @MRAIDANGWALSH
      @MRAIDANGWALSH 6 ปีที่แล้ว +2

      What Group are you in Di B? Do you have any pointers for me aside from the foods like cleaning product shampoo detergents hand soaps dish soaps even shaving cream that may be safe any Brands best I am in the UK now thank you

    • @miaacosta8500
      @miaacosta8500 3 ปีที่แล้ว +2

      what group are you in i would love to join i have struggled with my alpha-gal allergy for 5years now

    • @royalstarshanbarnes1221
      @royalstarshanbarnes1221 3 ปีที่แล้ว +1

      @@MRAIDANGWALSH Amen 🙏🏻 I was misdignoised for many years and this Alpha Gal syndrome has been challenging and stressful don't nobody understands what I am going through with this Alpha Gal allergy with so many food restrictions I am very fortunate I don't have no other health problems other than alpha Gal syndrome food allergy sucks it's good to know am not alone battling this Lone Star Tick bite illness I am in Alpha Gal Syndrome Research group and support groups

    • @MRAIDANGWALSH
      @MRAIDANGWALSH 3 ปีที่แล้ว

      @@royalstarshanbarnes1221 I wish you wellness soon Shan x x God bless you x x Alpha-Gal Sat Remission is also on Facebook

    • @Name-rl7lv
      @Name-rl7lv 3 ปีที่แล้ว

      @@royalstarshanbarnes1221 I hope some scientists make a cure for Red meat allergy

  • @MrCouvade
    @MrCouvade 6 ปีที่แล้ว +14

    i have this also... been 4 years...even some candy has mammal protein...

    • @headinthecloudsagain1735
      @headinthecloudsagain1735 6 ปีที่แล้ว

      Photobymike Michael Green neat... but why do you gotta go telling everybody on every video related too this it’s good getting the word out I guess but it mostly Makes you look desperate for attention

    • @jemimahkendall6579
      @jemimahkendall6579 5 ปีที่แล้ว +5

      @@headinthecloudsagain1735 you're an arsehole, maybe he needs someone to talk to about it

    • @daikayll1897
      @daikayll1897 4 ปีที่แล้ว +2

      Brian , he used just one sentence to your 3 ! Now whoes bleating ? Twat.

    • @kingdomambassador1904
      @kingdomambassador1904 ปีที่แล้ว

      Marshmallows. Gummy and jelly candy, supplements etc.
      Tainted

  • @jeanbobolts3877
    @jeanbobolts3877 3 ปีที่แล้ว +4

    It's been 44 years that I haven't eaten red meat.. At the age of 18, all of a sudden red meat (which I ate up until then) was making me sick, to the point I had to have my stomach pumped twice.. They didn't have a name for it back then.. I was just told I was missing an enzyme that helps in the digestion of red meat.. Which they said basically means you're allergic to red meat.. For 44 years I've lived with the "yeah right", the eye rolls and the accusations that I was making it up... I just found out about Alpha-gal syndrome from a post a friend posted on facebook just two days ago.. I was totally blown away.. Because I believe I may have had Alpha-gal as far back as 1978..

    • @gratefultedd969
      @gratefultedd969 2 ปีที่แล้ว +1

      Iv had it under a year. But did get lyme 10 years ago.
      Interesting that you got it in 78 because that is when lyme was discovered. Wondering what state you got it in? I got it in Michigan. I get ticks embedded quite often. Just went 7 months with out beef and pork.
      But decided to give it a try last night. The symptoms were much worse the annaflaxis was worse and i was left with a vicious headache all the next day.

    • @jeanbobolts3877
      @jeanbobolts3877 2 ปีที่แล้ว +1

      @@gratefultedd969 I grew up in Western NY.

    • @gratefultedd969
      @gratefultedd969 2 ปีที่แล้ว +2

      @@jeanbobolts3877 not surprised you were in the northeast . Thats where tick weponization studies were taking place in the 70's .

    • @phoenix-rising-86
      @phoenix-rising-86 2 ปีที่แล้ว

      Purple honey farm channel tried saat an acupuncture treatment and it worked for her I hope this gets read. I don't have it Alpha gal but this would probably help my shellfish allergy 🤞

    • @lisagrace6471
      @lisagrace6471 2 ปีที่แล้ว

      If I have it, I believe my older brother has it too, as well as my mom. My brother is in his early 40's. I also believe I may have passed it on to my son in the womb. Took the test this week at a walk in lab- will see.

  • @kitttyscore
    @kitttyscore 3 ปีที่แล้ว +1

    I’ve just found out I have this…my doctor said it could be very deadly to me. I didn’t take this serious before but now I will. It’s going to be a huge struggle trying to change my diet.

  • @royalstarshanbarnes1221
    @royalstarshanbarnes1221 3 ปีที่แล้ว +2

    I have Alpha Gal syndrome from the Lone Star Tick bite illness gave me a life threatened meat allergy and depriveites from mammals hoofed animals beef pork lamb deer goat rabbit and dairy products and deprived mammal medicines and gelltin gelcaps jello house hold prouducts shampoo conditioner and laundry detergent and fabric softener and toothpaste handsantizer every thing is in it I have air born Alpha Gal allergy too I can't be around meat cooking or someone eating it I get sick fast I black out dizzy spells brain fog praying 🙏🏻 for cure for me and the others who are suffering with the Alpha Gal syndrome just like me...

  • @headinthecloudsagain1735
    @headinthecloudsagain1735 6 ปีที่แล้ว +5

    This might sound dumb but it’s my personal opinion I think shorts are safer than pants because if a tick crawls up your leg you can see it vs pants where they can crawl under your pants and you won’t be able too see them and if you feel them and take your pants off they can stick too the inside of your pants and you can’t find them or they can crawl onto your pants behind you and crawl up onto your shirt and go onto your head

    • @MrAppalachia
      @MrAppalachia 4 ปีที่แล้ว +1

      I agree, unpopular opinion

    • @marieruhlin4991
      @marieruhlin4991 4 ปีที่แล้ว

      Completely agree! Also, ladies, don't shave your legs if you're going outdoors... it helps you feel them crawl up your leg

    • @phoenix-rising-86
      @phoenix-rising-86 2 ปีที่แล้ว

      Ummm no tuck your pants into your socks ffs I hope your plan fails and you post for attention!

  • @jessehoward578
    @jessehoward578 4 ปีที่แล้ว +6

    Just found out today that I have this

    • @MrAppalachia
      @MrAppalachia 4 ปีที่แล้ว +1

      Same bro lmao FUCK

    • @ketocutie2981
      @ketocutie2981 3 ปีที่แล้ว

      How did you find out? Did you have to take a test?

    • @grahamcourtney2017
      @grahamcourtney2017 3 ปีที่แล้ว

      I’ve got it too buddy, and I’m 18. It’s awful. So sorry you’ve got it😭

    • @rosealexander9007
      @rosealexander9007 2 ปีที่แล้ว

      I just found out this past Wednesday that I have it.

    • @Asking-for-a-friend
      @Asking-for-a-friend 2 ปีที่แล้ว

      I hope you're all doing well. It's scary that this can happen.

  • @bibbycat1
    @bibbycat1 3 ปีที่แล้ว

    I was bitten by a lone star tick and hope that I don’t develop this allergy. I got bitten in March while doing backyard spring cleanup. I don’t camp or do any outdoor sports. When I was a kid, we used to lay out on the lawn to get a suntan. Nowadays, we’re afraid to walk on the grass with our shoes and socks on.

  • @streetriderlee4993
    @streetriderlee4993 5 ปีที่แล้ว +6

    Burn all the ticks

    • @daikayll1897
      @daikayll1897 4 ปีที่แล้ว

      Stop eating meat dopey !

    • @streetriderlee4993
      @streetriderlee4993 4 ปีที่แล้ว +1

      Dai Kayll you’re pathetic seeing as you only have 1 subscriber

  • @ss-bk7zk
    @ss-bk7zk 3 ปีที่แล้ว +2

    i had it from my 13th year to 18th
    but for me it was only on red meat and chicken
    but it is totally gone now and i don't know how.

    • @Taikutsu_Lyrz
      @Taikutsu_Lyrz 3 ปีที่แล้ว

      Really, I having it about 2 years

    • @lisagrace6471
      @lisagrace6471 2 ปีที่แล้ว +1

      Alpha gal is not supposed to be in chicken. Do you know why you reacted to it? Have they documented cross reaction?

    • @kingdomambassador1904
      @kingdomambassador1904 ปีที่แล้ว

      Reaction to chicken may be a corn or soy thing.

  •  หลายเดือนก่อน

    Sudden meat allergy is nothing to play with. I basically survived full blown anaphylaxis 😮. It waned off, and is self limited, but initially was very severe.... On occasion i get GI distress but way less frequently.

  • @Mauisunshine9
    @Mauisunshine9 ปีที่แล้ว

    I already have severe allergies they can’t even treat me because my reactions are severe and now I got bit by this lone star tick and having a rash and boil Where it bit me. I’m already allergic to so much food this will be horrible if my food allergies get worse.

  • @toketeng
    @toketeng 3 ปีที่แล้ว +1

    My 5th year being non red meat eater...tick bite consequences

    • @miaacosta8500
      @miaacosta8500 3 ปีที่แล้ว

      YEP! Me too I hit 5yrs in February

    • @Taikutsu_Lyrz
      @Taikutsu_Lyrz 3 ปีที่แล้ว +1

      Didn't it heal

  • @elizabethg
    @elizabethg 5 ปีที่แล้ว +7

    This tick could save the planet. Vegan diet is great for human health and for the environment. (Maybe it's the planet's way of fighting back?)

    • @keithscarberry4286
      @keithscarberry4286 5 ปีที่แล้ว +14

      What a jerk thing to say... This kid has been sick since he was 3!

    • @fertilityqueen7880
      @fertilityqueen7880 5 ปีที่แล้ว +14

      That's the most ignorant comment I've heard about nutrition.

    • @donhurst9913
      @donhurst9913 5 ปีที่แล้ว +11

      It is a very serious disease. I have been hospitalized several times in anaphylactic shock and was misdiagnosed for years. My blood pressure plummets and I pass out. My last episode was brought on by food that had been cross contaminated. Not a very cool thing to say....

    • @anniewilson5878
      @anniewilson5878 5 ปีที่แล้ว

      Gotta be related to the corrupt pig Tom Gordon ..

    • @MarkBrown-iw8oj
      @MarkBrown-iw8oj 5 ปีที่แล้ว +4

      You know it makes you allergic to All mammals themselves and not just their meat, right?