@@amandachay7466 You have helped already. So far, this has been the weirdest journey. I am 63yo. I never had the malar rash on my face. I have a rash down both arms(looked like thousands of chigger bites(which is what doc thought at first), a spot on my calf, spots on the back of hands and forehead. It's my joints and muscles that are killing me( that has only been a week since being taken off prednisone). Can't get into the rheumatologist until Dec, which is much better than originally 6-30-25.
Would you be willing to do a video sharing the appearance of your fingernails? This has been something I’ve dealt with for my entire adult life and never understood what it was. Mine are my thumbs and the ridges are horizontal and massive…sometimes I get deep cracks that bleed.
Oh man-you bleed from these cracks?! Sounds painful. I do have some ridges, but it doesn’t really bother me. For this reason, I am not a good candidate for this video. Let me know if you have other suggestions
@@amandachay7466 yes, only during mega flares. I know I have autoimmune disorders-but we are in the early stages of trying to figure out exactly what and how to treat. Thanks for the reply
Hello. ❤I just found your video and everything you say it s so truth and real it s so devastating having autoimmune issues,but there is one thing surprises me when you said you don t know anyone in remission because you believe is for lifetime . You check out dr Brook Goldner I m so surprised you haven’t followed yet her protocol you ll not only be in remission but you ll not have it at all. I ve done the protocol and I m fine. I want you to be good too you are so young ❤🎉❤Many hugs
Thank you for your comments. I have performed extensive research on Lupus, spoken to several rheumatologist and specialists, and read multiple clinical trials and books as for research on my book on Lupus. Yes, people can go into remission, but the majority struggle with even achieving this. Even with remission, lupus is still considered not cured. It’s a lifelong disease.
Just check out her videos ( also she s having Wednesday wellness live at 20:30 pm Uk time)when you ll have time , people on the 6 weeks recovery are not struggling anymore with Lupus. Also dr Brook Goldner is free of lupus since 18 years now ❤
Thank you. I was just diagnosed last Friday. It helps to hear from someone who is not all gloom and doom.
Ugh 😩 Sorry to hear this. Welcome to the club you never wanted to join. Please let me know if I can be of help.
@@amandachay7466 You have helped already. So far, this has been the weirdest journey. I am 63yo. I never had the malar rash on my face. I have a rash down both arms(looked like thousands of chigger bites(which is what doc thought at first), a spot on my calf, spots on the back of hands and forehead. It's my joints and muscles that are killing me( that has only been a week since being taken off prednisone). Can't get into the rheumatologist until Dec, which is much better than originally 6-30-25.
Extremely well presented.
Thank you💕 much appreciated
Thanks 😊
Oh okay, she is good!
Please advise what treatment you're on?
I take Plaquenil and Benlysta for my sle, along with meds for managing my neuropathy
@@amandachay7466 thank you for responding. Can you advise what tests you did for the neuropathy?
@@Queen_OfLeos I went through a whole range of test with my neurologist, including blood test, skin biopsies, and a EEG.
@@amandachay7466 thank you for being so open. Great big hugs xxx
Overcome lupas?
I wish! It’s something that all is us are hoping and praying for ❤
Would you be willing to do a video sharing the appearance of your fingernails? This has been something I’ve dealt with for my entire adult life and never understood what it was. Mine are my thumbs and the ridges are horizontal and massive…sometimes I get deep cracks that bleed.
Oh man-you bleed from these cracks?! Sounds painful. I do have some ridges, but it doesn’t really bother me. For this reason, I am not a good candidate for this video. Let me know if you have other suggestions
@@amandachay7466 yes, only during mega flares. I know I have autoimmune disorders-but we are in the early stages of trying to figure out exactly what and how to treat. Thanks for the reply
Hello. ❤I just found your video and everything you say it s so truth and real it s so devastating having autoimmune issues,but there is one thing surprises me when you said you don t know anyone in remission because you believe is for lifetime . You check out dr Brook Goldner I m so surprised you haven’t followed yet her protocol you ll not only be in remission but you ll not have it at all. I ve done the protocol and I m fine. I want you to be good too you are so young ❤🎉❤Many hugs
Thank you for your comments. I have performed extensive research on Lupus, spoken to several rheumatologist and specialists, and read multiple clinical trials and books as for research on my book on Lupus. Yes, people can go into remission, but the majority struggle with even achieving this.
Even with remission, lupus is still considered not cured. It’s a lifelong disease.
Just check out her videos ( also she s having Wednesday wellness live at 20:30 pm Uk time)when you ll have time , people on the 6 weeks recovery are not struggling anymore with Lupus. Also dr Brook Goldner is free of lupus since 18 years now ❤
Are u okay?
Yes I am. Thank you for asking. Hope you’re well too ❤