What Happened to My Skin ? | Lichen Planus Treatment | Lichen Planus Cure | Skin Disease

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  • เผยแพร่เมื่อ 20 ต.ค. 2024

ความคิดเห็น • 777

  • @TRACEESDANCEIMPACT
    @TRACEESDANCEIMPACT ปีที่แล้ว +28

    I took 10,000 vit D last night and this morning the big bump that has been on my wrist for 2 weeks is flat!!! Other bumps not itching today!! It’s a miracle!!! Thank you SO much for sharing!!!!!

  • @itssandiy
    @itssandiy 3 ปีที่แล้ว +190

    Reading through the comments, I didn't know so many people also suffer with Lichen Planus. Hang in there everyone! We will get through this

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +5

      no problem thanks for watching !! 🧡

    • @jatinpandey3162
      @jatinpandey3162 3 ปีที่แล้ว +6

      I dont think i will find love ever, thanks to lichen planus😭😭

    • @shadowbanned4211
      @shadowbanned4211 2 ปีที่แล้ว +1

      @@KaylynIvy just got diagnosed yesterday. I was prescribed prednisone for a couple weeks, but haven’t started them. I haven’t gotten my blood work results or an allergen test yet, and I wonder if it’s better to take the steroids now or wait until I have more information that might help identify the cause of my flare up. Any thoughts for me?

    • @kanjarlapreethi1944
      @kanjarlapreethi1944 2 ปีที่แล้ว

      @Julie jesse Carol wat is the treatment for this

    • @kanjarlapreethi1944
      @kanjarlapreethi1944 2 ปีที่แล้ว +1

      @@KaylynIvy hii even i am suffering from ths pls can u tell me how to get rid from black spots pls

  • @toddbacon3262
    @toddbacon3262 2 ปีที่แล้ว +39

    I went to the doctor today and got 50,000 vitamin d and take it 1 a week plus laid in sunbed again it’s unbelievable what’s happening I’ve spent loads of money trying to get rid of this nightmare and you have made it so simple. To all that have this please try. it’s working for me. Thank God. Again thank you for making this video.

    • @nikhilkumar-hj8rt
      @nikhilkumar-hj8rt 2 ปีที่แล้ว

      I tried vit d3 (60K IUs) for 6 weeks 1per week.. I still have itchiness

    • @saravananesvar001
      @saravananesvar001 2 ปีที่แล้ว

      How much was your vitamin D initially?

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +3

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @presben8516
      @presben8516 2 ปีที่แล้ว

      Did you have oral lichen planus by any chance?

    • @melarie205
      @melarie205 ปีที่แล้ว

      @@Emi-vg7du where are your videos

  • @puppylove3477
    @puppylove3477 8 หลายเดือนก่อน +6

    Young lady you are AMAZING!!! I am SO PROUD of you!! You are WAKING UP to the health care system!! You are your OWN advocate for your health !! There are MANY of us who are awake or waking up to the fact that it is all about the MONEY !! I have found MOST of my health questions answered on TH-cam!! You have to sift through them but my goodness it is a WEALTH of information that has helped me so much! YOU INCLUDED!! GREAT info. THANK YOU THANK YOU!!! GOD BLESS YOU!!!

  • @enlightenedspirittarot6947
    @enlightenedspirittarot6947 2 ปีที่แล้ว +19

    I'm almost crying listening because every single word is true this was hell for me it's lonely it's very uncomfortable you literally get so depressed 😔 and afraid because of the confusion of it all you really go to a dark place.. Thank you for sharing.

  • @Sammicupcakeheart
    @Sammicupcakeheart 3 ปีที่แล้ว +38

    I’m so glad I found this video, I have had lichen planus for over a year now and it affects nearly every part of my body. There’s not enough information out there and until looking at the comments on this video I didn’t know just how many people also suffer with this condition. So glad I found this channel 🥺 x

    • @edwardespinoza7002
      @edwardespinoza7002 3 ปีที่แล้ว +2

      I feel you Sam ;(

    • @Ishikayadav785
      @Ishikayadav785 2 ปีที่แล้ว

      @Julie jesse Carol hii

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +1

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @shamit300
      @shamit300 2 ปีที่แล้ว

      Do you have it on the nails?

  • @tanishawatkins-williams3574
    @tanishawatkins-williams3574 ปีที่แล้ว +13

    OMG! I was recently diagnosed, I've had it for almost a year but it wasn't diagnosed until about 4 months ago! Then I found out my brother living in another state was diagnosed in 2019. I have been so self conscious wearing long sleeve shirts, covering my back and ankles - in the summer mind you! I'm so happy that you have these videos! This has definitely affected my self esteem!

  • @rstrong1991
    @rstrong1991 ปีที่แล้ว +18

    I was just diagnosed 4 months ago and my condition has spread all over my body just as yours did. Originally I thought I had gotten bitten but it would go away the raise again. I went to a dermatologist and a biopsy was performed. When the results came back, I was told I have linchen planus. I was given steroid cream and was told if needed they could give me a steroid shot but that's all that could be done. When I told my primary doctor, he said " oh that's nothing" and brushed me off. I am in tears just typing this response. I have been researching in hopes of finding something that will help me. Thank you for sharing your story. It gives me more hope that this will pass. I am going to speak with my Rhemotologist (also have Lupus). I pray that my condition goes into remission, as well. Thank you so much!!

    • @mballer
      @mballer ปีที่แล้ว

      Did you take vitamin D3?

    • @ceemm4462
      @ceemm4462 ปีที่แล้ว

      Use calendula oil (organic if possible) you will see improvement. Blessings

    • @patselkirk1
      @patselkirk1 ปีที่แล้ว

      @@mballer what dosage of D3 and how often?

    • @mballer
      @mballer ปีที่แล้ว

      @@patselkirk1
      You should measure your blood levels to see where your starting point is.
      Try to get it to mid-range or above.
      Many people start with 5000 IU daily.
      Magnesium is also needed for conversion.

  • @EricaYE6
    @EricaYE6 2 ปีที่แล้ว +10

    *You should be a doctor. I would love to have a doctor with your attitude towards health and helping people. Glad you're doing better.*

  • @cdr072
    @cdr072 2 ปีที่แล้ว +28

    Girl, you are telling my story!! I went to multiple dermatologists and by the time it was diagnosed, I had lichen planus on my scalp causing hair loss and even in my esophagus!! I understand your frustration with trying to figure out what's wrong! So glad to see you have such beautiful, glowing skin now! Thank you for giving me hope! ❤

    • @rebekkad.2092
      @rebekkad.2092 2 ปีที่แล้ว +1

      Mine is on my scalp too. Itchy and no fun.

    • @lindamillikan5210
      @lindamillikan5210 2 ปีที่แล้ว +6

      Same here, no one not one person belived me or considered I might have a real problem. After 2 yrs not even my doctor or dermatologists just blew me off. If I hear one more person say this, "well when WE get older you know ... Bla bla bla I know how old I am but SOMETIMES dam it there's something really wrong no matter a person's age, ya know? I mean who knows your body better than anyone ? I'm widowed no help there lol I'm alone except 1 daughter and grandkids so I'm on my own . It does help to know there are others tho I hate this for all of us that are going this awful ordeall. I'm praying for anwsers ❤️❤️

    • @realitydoinz9656
      @realitydoinz9656 2 ปีที่แล้ว

      Quick cure I will advise you to contact Dr iyaremoses on TH-cam where all heath problems are solve without stress and delay

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +4

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @realitydoinz9656
      @realitydoinz9656 2 ปีที่แล้ว

      @@Emi-vg7du Are you completely free now??

  • @allisonjones2307
    @allisonjones2307 2 ปีที่แล้ว +7

    For the longest I thought I was alone. I have been to so many doctors and dermatologist so many test and blood work for the last 8 years and no one has yet to help me. Thank you so much for this video.

    • @benjaminphillip9562
      @benjaminphillip9562 2 ปีที่แล้ว

      I was diagnosed with hypothyroidism during COVID, I wasn't able to eat food which also affected my taste. Using Dr iyaremoses on TH-cam herbal medicine helped get rid of lichens planus

  • @sandrar5118
    @sandrar5118 2 ปีที่แล้ว +12

    I had an outbreak when I was 14 and nobody had a clue as to what it was and it took a year to go away. Fast forward I’m now 43 and here they are again right after cutting myself shaving as well. 5 months later biopsy done and diagnosed with LP but no treatments are helping. I’m so glad to have found your videos, thank you !

    • @marieholmes7765
      @marieholmes7765 2 ปีที่แล้ว

      Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses

    • @shaneldurham7399
      @shaneldurham7399 2 ปีที่แล้ว +3

      I feel like mine started with a razor cut too. I noticed after I shaved my legs with a razor that had become a little dull was when it started flaring up.

    • @marieholmes7765
      @marieholmes7765 2 ปีที่แล้ว

      @@shaneldurham7399 dear search dr iyaremoses on TH-cam for permanent cure he cure me completely with his natural herbs

  • @emediongmartin1788
    @emediongmartin1788 10 วันที่ผ่านมา +1

    This video was made 3 year ago. I'm glad I found you fr.
    The 23 mins is worth it. I took my time listening.
    I'm gonna watch everything esp for dark spots.
    Thank you so much.❤
    I'm grateful.

  • @folasadeosibodu7119
    @folasadeosibodu7119 2 ปีที่แล้ว +13

    I’m sorry you went through this. I’m sorry the medical system doesn’t take us serious or value us. However, I am so happy to hear your journey and that you have come out of it on the other side and teaching others. I am inspired and encouraged by your honesty and strength.

  • @arienpreema1
    @arienpreema1 21 วันที่ผ่านมา +2

    I'm so glad I found this video 🙏 I'm having lichen planus past many years. I didn't realise Vitamin D was the solution. I have started with Vitamin D and B12. Didn't know citrus fruits also being a part of this. Thank you so much!

  • @nkwms
    @nkwms 2 ปีที่แล้ว +10

    Thank you for sharing your story!! So inspirational. Two years ago, I received a lichen planus diagnosis.. drug induced lichen planus. To this day, no one can tell me what medication/allergy caused it. Thanks to your video, I am now on a mission to find out. I’d given up. Thanks again! 🙏🏽

  • @jol4342
    @jol4342 ปีที่แล้ว +4

    Thank you. This has been 100% more helpful than my Dermatologist appointment a few days ago. I've had this going on for 2 months and a bit now, and it started with oral lichen planus, and a few spots on my hands. Now I have a billion spots all over, and still have the mouth ulcers. Oral planus can lead to oral cancer, so don't have anything with alcohol in it (including mouth wash) and don't smoke.
    The dermatologist didn't suggest a biopsy, or did she take blood. She has prescribed steroids which I might not even bother with, having watched this.
    All of you fellow LP sufferers, let's fight this together.

    • @82easyrider
      @82easyrider 9 หลายเดือนก่อน

      There is a no conclusive evidence OLP leads to cancer. Some research suggest erosive OLP has 3-5% chance but its considered rare. Secondly, those studies did not monitor other cancer risk factors. LP/OLP is considered more as a cosmetic, inconveniencing disease. I'm a pharma researcher.

    • @jahstafari4606
      @jahstafari4606 5 หลายเดือนก่อน

      th-cam.com/video/SRt7qTuMJI4/w-d-xo.html i dont know if it works ....my mom havethis condition so i'm searching for other ppls experiences solving this

  • @ritamoore2393
    @ritamoore2393 ปีที่แล้ว +13

    I am so happy to come across this video, I was just diagnosed today with LP and by you sharing your journey through this helps others narrow down treatments, ask the right questions, etc. I go next week to discuss my treatment with my dermatologist, so we’ll see

    • @SaraswatBharat-vv2zr
      @SaraswatBharat-vv2zr 10 หลายเดือนก่อน +2

      I'm facing the problem of lichen planus can tell me tell me how can I overcome on this

  • @katieburke2902
    @katieburke2902 3 ปีที่แล้ว +26

    Hi Kaylyn, I remember your story about 3 or 4 yrs ago...I felt so bad for you...So happy for you...Yay...♡♡

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +2

      Hi Katie !! thanks for watching ! i’m glad you can see the improvement ! 🥰

    • @katieburke2902
      @katieburke2902 3 ปีที่แล้ว

      most definitely...Congrats...♡

  • @crystalm9973
    @crystalm9973 ปีที่แล้ว +8

    I need to say Thank-you, So much for sharing your story. You have just brought me to tears! I have had an undiagnosed skin problem for over a year and it has and continues to spread and scar my entire body and face. which has drastically impacted my quality of life in the worst way. I honestly had given up on doctors and for the past few months I have just been self diagnosing and trying to survive through the pain, the itch, the appearance, and my diminished self esteem the best I can! Listening to your story has for the first time during this awful experience made me feel not alone in my struggle! Thankyou so much for your genuine strength and bravery in allowing yourself to be open and vulnerable with the details of your experiences with this. I think you have nailed it for me and you have re-motivated me to not give up on problem solving and finding an effective resolution to my skin and possible Auto immune system disease.
    Eternally Grateful….
    Cry❤

  • @Itzzcamillesworld
    @Itzzcamillesworld 3 ปีที่แล้ว +25

    If this isn't my many doctor visit story I don't know what is. I can relate so much here. Thank you. I picked up on the vitamin d deficiency for myself and started taking it a week ago and I do see the difference. Doctors are something else

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +1

      sadly this is the story of too many 🤦🏽‍♀️ thank you for watching and stay healthy Camille! 🧡

    • @samyo6033
      @samyo6033 3 ปีที่แล้ว +3

      Doctors have very little education on vitamins! Im suffering now from this! 3-4 yrs😥

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @cumanobles4166
      @cumanobles4166 2 ปีที่แล้ว +1

      Sounds exactly like my dermatologist too I’m sitting over here in misery as I type she just keep putting me on different meds and won’t do a skin biopsy because she’s so sure it’s lichen Planus

    • @elenadecosta
      @elenadecosta ปีที่แล้ว

      I am Vit D deficient as well. I've been given vit D tablets.how are you now? What did you do?

  • @XiomaraArielle
    @XiomaraArielle 3 ปีที่แล้ว +46

    Girl, thank you so much. This really helped, I just got diagnosed today. I think i’ll start vlogging my experience as well because this needs to be more talked about amongst woman of color! thank you so so much!

    • @neelasandhyarani1125
      @neelasandhyarani1125 3 ปีที่แล้ว

      My daughter got diagnosed yesterday. Please share your treatment. We are continuously worrying about this.

    • @XiomaraArielle
      @XiomaraArielle 3 ปีที่แล้ว +7

      @@neelasandhyarani1125 Hey Neela, So I've been taking the medications that were prescribed to me and that helped. I also went to get bloodwork done, and similar to her, my Vitamin D levels were extremely low. I also did the AIP diet, where i've eliminated citrus, spicy foods, sugars and most things but vegetables, salmon and water to know what my body likes! Doing my best to heal my gut and just watching what I'm consuming! My doctor recommend Niacinamide for the dark spots, i'll keep you updated on how that works. Sending your daughter so much love, God wants us to see this through! Peace and blessings

    • @dont_talk2me
      @dont_talk2me 3 ปีที่แล้ว

      @@XiomaraArielle hi. Can you please share an update? How is the progress?

    • @XiomaraArielle
      @XiomaraArielle 3 ปีที่แล้ว +4

      @@dont_talk2me Hi love! Yesss, my skin has gotten much better. I have flare ups here and there, but what keeps me going is reminding myself that my skin is in a season. I noticed I flare up when I intake meat and dairy so I've completed removed those from my diet. Similar to her, my Vitamin D levels were low so I try and stay on top of that supplement. I found a product online for Lichen Planus from Tickle Belly that has truly helped with the itching and inflammation. Try and stay positive about this situation, as annoying as it can be. Talk to your family and friends so they know what you're going through as well. Our skin goes through seasons!

    • @dont_talk2me
      @dont_talk2me 3 ปีที่แล้ว +1

      @@XiomaraArielle thank you ! I'll get vitamin D tested

  • @purnimasingh6923
    @purnimasingh6923 3 ปีที่แล้ว +36

    You're so great for documenting and sharing your story. I can not tell you how much this is going to help other people dealing with this. I had lichen planus(still have some hyperpigmentation on my body) and seriously I've been so indulged in these videos. Thank you !

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +1

      💛💛💛 thank you for your support !

    • @dont_talk2me
      @dont_talk2me 3 ปีที่แล้ว

      @Julie jesse Carol What??

    • @nehav35
      @nehav35 2 ปีที่แล้ว

      @purnima what did you do for pigmentation

    • @Werkitbehen
      @Werkitbehen 2 ปีที่แล้ว +1

      hey i have been recently diagnosed too. please tell me what treatment helped you

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @wiilover151
    @wiilover151 3 ปีที่แล้ว +23

    OMG Vitamin D, I am in remission but I definitely will make sure I am consistent with taking vitamin D!! Thanks girl!

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +4

      hopefully you stay in remission forever ! thanks for watching !! 🤍

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @jaseelajazi9443
      @jaseelajazi9443 ปีที่แล้ว

      How u went into remission ?

  • @izzygee2216
    @izzygee2216 2 ปีที่แล้ว +17

    This is the best explanation that I’ve seen yet, thank you for making this video and sharing your experience I felt your frustration and your passion for seeking the help you needed!! Great work! And thank you again for sharing. God bless you! ✝️🙏🏽

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +2

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @dimelo30
    @dimelo30 2 ปีที่แล้ว +15

    I’m at the vitamin D part and yes I read this in the Mayo Clinic Study! We are so deficient in so many vitamins and nutrients that we don’t realize how it’s affecting our bodies! The foods that we eat are so empty of nutrients that this will be the new norm.

    • @marieholmes7765
      @marieholmes7765 2 ปีที่แล้ว

      Am a living testimony to dr iyaremoses on youtube he cured me using his herb medication which sent to me here in California now am just fine thank you doc#driyaremoses

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +1

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @tdthrush
    @tdthrush 2 ปีที่แล้ว +7

    Citrus, love anything citrus. A big orange 2 nights ago. Drinking Crystal Light lemonade. Itchy little bumps returning. You are definitely on to something! Well, citrus off my list.
    Love the way you explain simply but thoroughly! Like crystal clear. Sounds like you have a great doctor. Hard to find nowadays. Going to your next video on getting rid of those dang spots! GREAT VIDEO!

  • @shefalirana3325
    @shefalirana3325 3 ปีที่แล้ว +20

    I went through the exact thing. I was diagnosed in 2018 and still struggle with the new leisons every year. I have tried everything from steroids to methotrexate and tarcolimus. Recently i got a new flare up after getting covid and I have been taking vitamin c supplements I feel it is getting worse because of it. After listening to you I have stopped all vitamin c sources and increased my vitamin d supplement. I hope this helps, will give an update for sure. Thank you xoxo

    • @dont_talk2me
      @dont_talk2me 3 ปีที่แล้ว

      Hi.. any update. Did vitamin C cause anything??

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @claudiawilliams1014
      @claudiawilliams1014 2 ปีที่แล้ว

      Hey hey, any update?

    • @Umbrellaoflove
      @Umbrellaoflove 2 ปีที่แล้ว +1

      This seems very similar to my story. I caught Covid and then about nine months later, had my first Pfizer vaccine. Five days later I came out with lichen simplex planus/chronica . I didn’t take vitamin E, but I was on prednisone also and 4/5 different types of creams. None of them which worked and now I will be starting UV phototherapy treatment three times a week. I have to say I’m a senior and suffered from a rare condition called Kyrle disease so at the beginning I thought I was out of remission. I’ve been suffering with skin ailments for a long time, but this has thrown me back into the depths of despair. It’s all over my front my back one leg and started with my left arm/right leg and then went to my right arm. It has no pattern. Presently it in my groin area/breast and scalp as well as my upper torso, lower back torso and around my belly button. I’m definitely going to try Vitamin E in conjunction with the UV Treatment. At this point it can’t hurt. Just curious has anyone felt so depressed from all of this? I’ve had doctors upon doctors doing the same thing to me because they thought it was kyrle disease and I knew it wasn’t. If any of you go for phototherapy I hope you have one close by because in Canada I believe we only have two in Ontario and they’re miles away from me. The travelling time is about two hours there and back for 15 minutes of treatment. And you have to do it for at least 4 to 6 weeks to see any improvement. I know this because I’ve done it before.

    • @elenadecosta
      @elenadecosta ปีที่แล้ว

      Hi @shefalirana3325, how is the LP now?

  • @margiebooher5998
    @margiebooher5998 14 วันที่ผ่านมา +1

    I have had lichen planus for over eight years often on I have huge spots of hair missing that will not come back but every couple years I get a few spots but when it first started, I was polluted my whole body had spots on it my legs, my back my breasts everywhere. I’m so glad to hear that somebody else Understands about this illness. I did have a biopsy done but I wouldn’t take steroids so I just suffered with it. It did clear up on its own but a few bumps return every now and then. Thank you so much for your information

  • @ofthesol444
    @ofthesol444 3 ปีที่แล้ว +15

    I don’t have this disease but I’ve been following ur journey for years, ur skin looks amazing! You’ve come such a long wayy

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว

      thank you so much !! 🥰

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @valinkamiranda8196
      @valinkamiranda8196 2 ปีที่แล้ว

      @@Emi-vg7du hi dear I have lost Chen planus too do you still have it ?

  • @angelpeace
    @angelpeace 2 ปีที่แล้ว +9

    Thanks for your video, I went through the exact same thing. I went from doctor to doctor until I found one that actually diagnosed and helped me. It’s extremely stressful not knowing what’s going on and watching what happens to your skin.

    • @katiebrooklyn5968
      @katiebrooklyn5968 2 ปีที่แล้ว

      I used some herbs from Dr iyaremoses on TH-cam channel and it works perfectly am free from lichen planus

  • @accesstotheredcarpet
    @accesstotheredcarpet 2 ปีที่แล้ว +11

    Girllllll dang this is so informative and helpful. I’ve had this problem for years and I was diagnosed with hypothyroidism back in 2014 or earlier. I’ve gone to a dermatologist who specializes in skin cancer because I’m a breast cancer survivor and girl, she was lazy AF and so condescending. I was ready to smack her! 😂😂 The blood work part you mentioned about literally helped. A lightbulb moment for me and I took alot of notes too. So I can address this to my primary care physician to write up a script to get my blood work done. I’m gonna see a diabetes specialist and discuss this issue because obviously, my hypothyroidism is making it worse. I have it on both sides of my torso and some spottings on my back. And one on my under arm and few on my legs. Thank you gorgeous! New subbie! Tired of the bullshit doctors dragging us with no answer! Why the hell are they even doctors!? 🙄🙄😡😡 I can’t believe you had to go through all the run around nonsense omg!

    • @realitydoinz9656
      @realitydoinz9656 2 ปีที่แล้ว

      Quick cure I will advise you to contact Dr iyaremoses on TH-cam where all heath problems are solve without stress and delay

    • @realitydoinz9656
      @realitydoinz9656 2 ปีที่แล้ว

      Quick cure I will advise you to contact Dr iyaremoses on TH-cam where all heath problems are solve without stress and delay

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @joonscrab5697
    @joonscrab5697 2 ปีที่แล้ว +7

    I was diagnosed when I was 16.. It's been 3 years.. ITS ALL OVER MY BODY.. I m glad I found out why I got it.. Turns out my cousins and my aunt and uncles (my moms side) they have it so yeah felt better that I wasn't alone.. But i got it worse because mine is way bad then theirs it's just frustrating.. Thanks for the vid

    • @KaylynIvy
      @KaylynIvy  2 ปีที่แล้ว

      mannn i know the feeling. hope yours gets healed soon !

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @veronicaleon8075
    @veronicaleon8075 ปีที่แล้ว +2

    I could not believe it when I came across your video. My body is riddled with it. Head to calves. So glad yoy made this. Now can I mention to MD and get the right specialist and lab work done. Thank you so much for sharing!

  • @phylathropymuzvanya1695
    @phylathropymuzvanya1695 3 ปีที่แล้ว +11

    I went through the same ,I got Lp in 2019 and I'm trying to get rid of dark spots.Thank you I'm glad the treatment worked for you ,it gives hope to us that these dark spots will fade away .I will try vitamin D3. Looking forward to the next video .

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +7

      these dark spots are a PAIN to deal with. i never knew just how long these were going to stick around. but i will try my best to give my honest advice on how to get rid of them in my video and hopefully it helps! thank you for watching ! :)

    • @rhazali94
      @rhazali94 3 ปีที่แล้ว

      Thank you so much

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @docalan2732
    @docalan2732 2 ปีที่แล้ว +5

    Hey group. I am a 67-year-old male who got a small outbreak on my leg in August 2021. Went to two dermatologist and was told it was eczema and it would resolve itself. Kept getting worse so saw more doctors. Finally, it's April 2022 and I found a Dermatologist who did a correct biopsy and ID'd the situation as LP with other autoimmune-type issues. Never had this before, so didn't advocate for myself enough. Thank you Kaylyn for you video and insightful comments. I agree with other comments that this much more common that what the general medical profession believes and if they could put their massive egos aside, may actually try to help their patients!

    • @jennytorry2027
      @jennytorry2027 2 ปีที่แล้ว

      I urge everyone to use Dr iyaremoses on TH-cam channel herbal cure because he cured me from lichens planus with his natural herbs medications

    • @Glojune
      @Glojune 2 ปีที่แล้ว

      I have the same exact story! It started with flat white dots and then turned into this I thought it was from the sun from lifeguarding and didn’t get it checked until this year and I got a biopsy a few weeks ago and went to the dermatologist today and she said it was LP so I’m going to try to resolve it. It’s only on my leg and I don’t really notice any other physical symptoms going to try the vitamin d. What worked for you? Updates?

    • @shelleyrollins4782
      @shelleyrollins4782 ปีที่แล้ว

      You’ve hit the mail on the head! It IS THEIR MASSIVE EGOS! I’m in Canada & basically screwed. My lichen planus is lichen planopilaris. Started end of February 2020 just before COVID lockdowns we had up here which made it all the more difficult. I’ve had no remission & have been really suffering…so much so that I’ve asked for my scalp to be surgically removed!
      I will detail my journey later on after I’ve read more reviews but I wanted to let you know that inflated doctor egos are often to blame. Isn’t that really sad? We go to them because we need HELP but so many of them are too lazy-assed to do their jobs even though they are getting paid more than they are worth

  • @JessicaRodriguez-dw7zw
    @JessicaRodriguez-dw7zw 3 ปีที่แล้ว +16

    I thought I was the only one with this condition. Thank you so much for this.

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @ronnimitchell7467
    @ronnimitchell7467 3 ชั่วโมงที่ผ่านมา

    I am so glad to find a video on this, I never known or met anyone else who has had this condition. Thank you so much for sharing. I was diagnosed in 2018 but just rebuked it and went on bout my business, they did a skin biopsy and also provided me a steroid cream it ended up clearing up a few months later. Now fast-forward 2024 it’s back and worse than 2018. SMH, I heard Teatree oil works. I have the steroid cream, but I don’t know. I’m so over this. But again this video is a blessing I am definitely going to try the vitamin D. Thanks for sharing.

  • @Jesusislovingu
    @Jesusislovingu 2 ปีที่แล้ว +5

    Thank,you for sharing this so much . I have been dealing with this and I’m so glad I’m not alone in this . So glad you shared your story I was just prescribed flagyl/metronidazole for 3 months and very high dosage but I’m going to pass on it. I don’t feel it’s the best thing for me and that God wants me to pursue a different option. Your video has been very encouraging to me right now. I’m going to listen to what I feel God is telling me and I don’t believe finding your video is coincidental. Take care.

    • @mansourkwt
      @mansourkwt 2 ปีที่แล้ว +1

      I had an upset stomach, and diarrhea, doctor proscribed for me antibiotics, Metronidazole, he told me to take it for five days but I took it for three days afraid that this kind of medicine could flare up Lichen planus, because I had Lichen planus before , and had been flared up by antibiotics to my stomach but I wasn’t sure which kind, so after two weeks or more from taking this medication I started to get Lichen planus on my wrist ,mouth and my back for three months, so I started using only cream for treatment , but I heard that Purslane is good natural plants for it , so I will start to eat and see what will happen.

  • @TraceyBoyland
    @TraceyBoyland 3 ปีที่แล้ว +10

    Excited for your next video. I'm so glad you are standing up for yourself, being your own health advocate. Until next time doll.

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +2

      Thanks always for your continuous support Tracey ! 🥰❤️

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +1

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @hiwetendewazayasaznal1295
    @hiwetendewazayasaznal1295 หลายเดือนก่อน

    Oh my God first of all I wanna say thank you baby. You save my life. I have exactly same problem like you even now. I have that problem my doctor. He took so many time my blood but he never told me it is vitamin D problem. He never told me about my immune system. At the same time. I take chemo. My immune system is gone even today. I didn’t get the solution from the doctor, but you save me thank you so so much. Please keep going with another video. Thank you.

  • @lovelyone98
    @lovelyone98 6 หลายเดือนก่อน +1

    I just commented about trying Vitamin D or L lysine on one of your other videos. I am so happy to hear that you already have been using Vitamin D.

  • @cep420
    @cep420 ปีที่แล้ว +2

    I’ve been suffering with something like this on my chin, outter & inner thighs and down the back of my calf’s & some on my arms.
    I’m constantly eating spicy foods and drinking cokes and juice…
    Yes I drink water.
    And funny enough the bumps feel less irritated but as soon as I eat or drink anything else it flares back up.
    I find that when my cycle is near it flares up even worse..
    It hurts extremely bad, itches like a mosquito bite, sometimes feel like a million needles that are on fire constantly poking me.
    It’s messed up my life the past 2-3 years. Sometimes it’s so uncomfortable that I just wanna cry and sleep all day everyday.
    Thank you so much for this video🥰 I need to get my blood tested asap.

  • @divyashewkani8650
    @divyashewkani8650 ปีที่แล้ว +4

    I'm currently suffering from this i can totally relate to you sometime i just brokedown sometimes because I'm tired of this i wish i get my solution soon too nd get rid off it thankuh so much this helps me alot 🥺❤️

  • @sarahlarue
    @sarahlarue ปีที่แล้ว +2

    I’ve had Lichen Planus for about 5 years now and nobody connected my Vitamin D deficiency to it. They only put me 2000 a day. Definitely going to ask about a higher dose. I was put on an oral steroid for a different problem and had the same experience you had with the Prednisone. Thanks for sharing and helping others!

  • @marilyntorres3564
    @marilyntorres3564 ปีที่แล้ว +1

    OMG, I'm new to this recently diagnosed, its my exact story -Im not in remission yet, but the vitamin D is incredible for this, I'm so happy to hear her testimony, along with the citrus allergy...Im so happy to hear it , it made me cry...Thank you for posting your experience, and your right about the doctors!

  • @nancycastro6210
    @nancycastro6210 ปีที่แล้ว +4

    Your experience seems just like mine. I have OLP horribly and the spots on my skin are spreading. Thank you. I’m going out today and get the vitamin D to start today. I am having trouble even eating or drinking. Thank you for sharing.

    • @sindhud.1955
      @sindhud.1955 ปีที่แล้ว

      Hey, I’ve just got it too! How are you? Can you share what you are doing for OLP?

  • @TraceyBoyland
    @TraceyBoyland 3 ปีที่แล้ว +3

    Omg, omg. She's baaaack!!!!!
    Hey girl hey😍 let me watch now.

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +1

      hey girl heyyy !! 🧡🤍🧡

  • @CaramelMaccchiato
    @CaramelMaccchiato 2 ปีที่แล้ว +5

    Thank you sis for sharing. I recently was diagnosed with Lichen Planus during the summer time. Ugh. It spread crazy. And the doctors told me the same EXACT thing...

    • @sabriyeboz191
      @sabriyeboz191 ปีที่แล้ว +1

      change your washing detergent and use 999 Chinese itchy cream .you will start seeing the result in 1 week and disappear completely in 1 month

  • @falanaiman5793
    @falanaiman5793 3 ปีที่แล้ว +8

    I love you girl you saved my life!

  • @sierralafaye
    @sierralafaye 3 ปีที่แล้ว +17

    So glad you uploaded! I clicked so fast

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +1

      hey girl! 🤍

    • @cassandra1218
      @cassandra1218 3 ปีที่แล้ว +1

      Im going through it now😫😫 but I'm doing homeopathic medicine. I had lichen planus in 2011 now its back I trigger my lichen planus by drinking red wine.

  • @NorthernLightsExperiment
    @NorthernLightsExperiment 3 ปีที่แล้ว +3

    Thank you! You are spot on on all this info this is the only video on youtube that is worth watching about lichen planus!

  • @shaneldurham7399
    @shaneldurham7399 2 ปีที่แล้ว +2

    Your sorry of development is so much like mine. Fortunately, I have a great dermatologist. I took prednisone for a month. It didn’t work and it caused terrible insomnia for me. I would be awake for 22/23 hours. She immediately changed me to methotrexate and it seemed like new bumps stopped seemingly the same day. I still flare up but mostly in my left leg/ankle/foot. Thanks for sharing your story. You’re helping so many.

    • @jennytorry2027
      @jennytorry2027 2 ปีที่แล้ว

      I urge everyone to use Dr iyaremoses on TH-cam channel herbal cure because he cured me from lichens planus with his natural herbs medications

  • @srividhyaiyer4712
    @srividhyaiyer4712 3 ปีที่แล้ว +15

    Hey...just wanted to let you know... every single video u upload and the honesty u show...gives hope to people going through this... 🙌💫
    Also, can u please let us know how you healed the scars? That's the thing I'm still struggling with.

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +3

      thank you so much !! 💛💛
      and yes i got you on the dark spots video soon !

    • @tejashria.deshmukh4025
      @tejashria.deshmukh4025 3 ปีที่แล้ว

      Yes please, that will help me too! And thank you so much for all this information @Kaylyn Ivy, it really does help! God bless you ❤️

    • @santhigopavarapu5428
      @santhigopavarapu5428 3 ปีที่แล้ว +2

      @@KaylynIvy can u please upload video on how u got rid off the scars

    • @shrinnivasan7014
      @shrinnivasan7014 2 ปีที่แล้ว

      Same

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +1

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @hedleybutler9706
    @hedleybutler9706 3 ปีที่แล้ว +8

    "How do you know for sure what it's not, but you can't say what it is?" Girl🙌

  • @yungdame9983
    @yungdame9983 4 หลายเดือนก่อน +1

    Wow! I was diagnosed with Linchnoid Dermatitus/Lichen planus 2 months ago.
    Im currently at the end of my prednisone treatment and all I hear is how worse it comes back after. But what I havent done yet since last year, is get a blood test.
    For years ive had a vitamin D deficiency (15L) and I havent taken it seriously. So maybe i have the same issue where my immune system lack vitamin D and is causing my Lichen Planus.
    I will be sure to take it more serious now, thank you for the insight!!! I will be bringing it up to my doctor ASAP and scheduling a blood test.

  • @churchofphiladelphia6930
    @churchofphiladelphia6930 2 ปีที่แล้ว +3

    I am binging on your videos 😆. Worried about tomorrow but your videos give a lot of hope that everything is going to be 👌. I am glad that you got answers and have it under control. Thanks for the great content ❤️

  • @rachelmathew6197
    @rachelmathew6197 2 ปีที่แล้ว +3

    I have lichen planus. So happy I found this video. Thank you so much

  • @brutallyhonest8854
    @brutallyhonest8854 2 ปีที่แล้ว +4

    Great video I have lichen planus and had the same problem with a dermatologist I was so heated when I seen he wasn’t interested in helping me I did my own research and learned everything he didn’t tell me

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @crystallloyd1444
    @crystallloyd1444 หลายเดือนก่อน +1

    Hi Kaylyn
    Thank you for your testimony
    Sitting in the Sun is extremely comforting
    Triaminolsone cream 3x daily is helpful and Tea Tree oil
    Keep posting ❤

  • @chanagarapunavya7859
    @chanagarapunavya7859 3 ปีที่แล้ว +4

    Hi guys I was also suffering the same skin disease present my situation is dark spots same as u seen in vedio I got this allergy in 2020. I met doctors dermatologist
    Stopped spreading but dark spots r there I am so worrying about this. Thank you for giving solution

  • @cassandra1218
    @cassandra1218 3 ปีที่แล้ว +8

    Thank you girl you're saving lives ❤❤❤

  • @MzBossLady-fn6fo
    @MzBossLady-fn6fo ปีที่แล้ว +4

    I’m almost covered in lichen plains at this point I feel like I have burns all over and listening to your story and how the first doctor treated you broke my heart because I know you are telling the truth it’s happened to me. I’ve been given all types of different treatments and just finished being treated for syphilis because the last doctor said it looked like latent stage syphilis 😩. They got the results on my last penicillin shot visit come to find out I never had syphilis

  • @cappiejoe1969
    @cappiejoe1969 26 วันที่ผ่านมา

    Love this video, thank you for sharing!! I was just diagnosed with LS a month ago so have been watching TH-cam videos a lot trying to figure stuff out, this video is super informative!! You rock!

  • @samyo6033
    @samyo6033 3 ปีที่แล้ว +8

    Thats crazy! My doctor at least gave me a cream that sometimes helps. And she also took a biopsy. Ive been struggling with this for 3-4 years. Its not all over but just patches on chest, shoulder, high back. Im currently going to try a supplement called Purslane. Heard it works🤷‍♀️

    • @aartirajly8662
      @aartirajly8662 2 ปีที่แล้ว +1

      Did your pigmentation go away?

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว +1

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @melarie205
      @melarie205 2 ปีที่แล้ว

      update

  • @haydaisha
    @haydaisha 2 หลายเดือนก่อน

    Omgsh!!! I saw your thumbnail and I was like… that looks like what I have then I saw Lichen Planus! I went to a my derm and got a cream steroid but stopped taking it due to fears of being on a steroid but it flattened them. We attributed to stress, but vitamin D is a great call!! I found my people!!!

  • @ebo7310
    @ebo7310 ปีที่แล้ว +2

    I am sitting here taking notes. I have a dermatologist appointment in 2 days. I have spots similar to ring worm, and now red spots/bumps. I went to the ER then hospital and the hospital ER disputed the urgent care saying it wasn't ring worm. So I'll wait to see what my dermatologist says it is. Praying that it's only a contact rash and not LP or a serious autoimmune disease.

  • @denzeltebusweke8135
    @denzeltebusweke8135 2 ปีที่แล้ว +1

    Be blessed, your video did my friend wonderful, it’s been almost six months now, had to look you up to leave this appreciation! Even when the best doctors couldn’t help them, you did! Thank you .

    • @benjaminphillip9562
      @benjaminphillip9562 2 ปีที่แล้ว

      I was diagnosed with hypothyroidism during COVID, I wasn't able to eat food which also affected my taste. Using Dr iyaremoses on TH-cam herbal medicine helped get rid of lichens planus

  • @wrldofsara
    @wrldofsara 2 ปีที่แล้ว +4

    I had the exact same experience with the doctors. It’s shocking how much they just don’t care or refuse to do anything.

  • @omalleypieternelle392
    @omalleypieternelle392 3 ปีที่แล้ว +14

    Hey beautiful, welcome back.
    I'm so glad you're body is finally clear again 🤗
    It seems like those doctors are everywhere in this world 😤
    But thank God you're doing so well 🙏

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +3

      Thank you 🥰🤗!!! we gotta get those type of doctors outta here! 😡

    • @uroojhaider6599
      @uroojhaider6599 3 ปีที่แล้ว

      @@KaylynIvy Please help me. I GOT IT DUE TO A DR MISTAKEN MEDICINE. AND NOW I AM TRIEE OF IT NOW. PLEASE PELASE HELP. THEYRE BIGGER PATCHES LIKE BIG AREA EFFECTED. RUNNING MY SKIN. AND ALL THE DR ARE JSUT TEYING DIFFERENT MEDCINES :(

  • @deejay8514
    @deejay8514 2 ปีที่แล้ว +4

    This video helped so much I’m noticing everything that you’re saying especially the vitiligo I got that because of my autoimmune disease and my lichen planus is only getting worse me and my mom literally thought yesterday that it was because I had low vitamin D so I just started to increase my vitamin D

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @Rohitchoudhary-uf1jd
      @Rohitchoudhary-uf1jd 10 หลายเดือนก่อน

      How is your Lp now ..??? Reply please 🙏🏼

  • @valeriebaute4843
    @valeriebaute4843 7 หลายเดือนก่อน +1

    Thank you so much for this video; I was dianosed with Lichen Planus December 2023 .

  • @VarunDahiya85
    @VarunDahiya85 ปีที่แล้ว

    I have been bullied my whole childhood as I had in intense. Never found people or to share what I have been through and always thought I am the only one who has it. Seen doctors whole my life and couldn’t find any cure. Tho from last few years its slowed down. It’s good to see people in comments sharing their experience. Thanks for this video !

    • @nandini4830
      @nandini4830 4 หลายเดือนก่อน

      Heyyy....what treatment suits u better???Are u on allopathic or homeopathy or ayurvedic treatment.??

    • @VarunDahiya85
      @VarunDahiya85 4 หลายเดือนก่อน

      ⁠@@nandini4830I was on allopathy, I did try homeopathy but mostly allopathy. I did found one thing for me is in cold weather it reduces and goes down but in humid or beach weather it comes back. Tho diet is a key factor, avoid eating fatty foods and with masala and ginger in it. But overall important thing is your mental health. Accepting it and not caring what people think will keep it down too. :)

  • @zarinabanu2360
    @zarinabanu2360 2 ปีที่แล้ว +2

    I am suffering from past 3 months the first dermatologist I went to said I had scabies and I took medication for 1 month for scabies then I went to another doctor he did a biopsy and he told me I have lichen planus and I took steroids for one week and using ointments and moisturizers. But the bumps are increasing iam 46 and I am mentally exhausted. U video is good for people like me.

  • @dmckey
    @dmckey 11 หลายเดือนก่อน

    Omg!! Im so happy i found this video. Four weeks ago I went to the doctor and they didn't know what it was. They did a skin biopsy the first time and gave me an antiitch cream and two weeks later, the doctor said its Linchen Planus.... And how it was associated with hipatitus but they don't know the cause and have no cure....about liver failure etc. Girl! I don't drink and im not sexually active, so i just started freaking out and i broke down because i couldn't believe this was happening to me. That visit he took a blood for a bunch of test and tomorrow i will get the results. Once i get those results im going to get my history and find another derma. Because my skin has gotten worse. Red and the itching is crazy. Ughhh... Imma try your remedy.

  • @vandithauthappa
    @vandithauthappa 3 ปีที่แล้ว +4

    Thank you so much dear!!! I’m still figuring to get through this! And your story exactly matches mine.. especially the doctor story!

    • @vandithauthappa
      @vandithauthappa 3 ปีที่แล้ว

      @Julie jesse Carol kindly share the details

    • @shivamkunalsaxena3175
      @shivamkunalsaxena3175 3 ปีที่แล้ว

      Vanditha can u plz help me out to tell what exactly she is telling to cure lichen planus? I am unable to understand due to her accent. I am suffering from LP since 2 years and still the spots are increasing

    • @vandithauthappa
      @vandithauthappa 3 ปีที่แล้ว +2

      @@shivamkunalsaxena3175 hello there! After taking vaccine all of a sudden all my marks disappeared. I just left it natural to cure because none of the methods worked. Since this is a auto immune stress disorder I think there is no external medication for this. If you have any doubts I can brief you in detail.

    • @dont_talk2me
      @dont_talk2me 3 ปีที่แล้ว +1

      @@vandithauthappa caN you please share details how to address internally? Would love to learn from your experience.

  • @rosalynrainey9570
    @rosalynrainey9570 2 ปีที่แล้ว

    Omg.....I am so happy to see this post!!! So many processed foods trigger my flare up.....

  • @alexmaize3780
    @alexmaize3780 2 ปีที่แล้ว +2

    I love your videos…keep up the good work…stay strong 💪🏼

  • @Julie-ev6vp
    @Julie-ev6vp 3 ปีที่แล้ว +3

    Omg i have LP like you had! My feet are sooo thick and calloused and inflamed it hurts to walk some days. Im going to ask my dermatologist about the uv light! My blood came back as low Vit D as well! Ty for this video!

  • @Susreesha
    @Susreesha 3 ปีที่แล้ว +3

    Your videos are a blessing. Thankyou so much and my doc suggested an allergy cream Diprobate G plus that worked wonders on raised black spots for me. Just wanted to let you guys know.

  • @RisoArt
    @RisoArt 3 ปีที่แล้ว +3

    Thanks for this story. I have a similar story. Aloe vera lavender helped me a lot, but I still have it. It's been about 4 years for me now. It was all over my body,but now it is just on my feet, and nails.

    • @crystalballiram9675
      @crystalballiram9675 3 ปีที่แล้ว

      Hi how did u used it

    • @RisoArt
      @RisoArt 3 ปีที่แล้ว

      @@crystalballiram9675in Lotion

    • @aartirajly8662
      @aartirajly8662 2 ปีที่แล้ว

      Hey did the pigmentation go away?

    • @vincetv8282
      @vincetv8282 2 ปีที่แล้ว

      What lotion

  • @adeniyiibitoye2850
    @adeniyiibitoye2850 ปีที่แล้ว +1

    great story! I went through similar. I wish I met you back in 2019!! :(

  • @TheNubianAngel
    @TheNubianAngel 7 หลายเดือนก่อน

    Makes sense I've been diagnosed with lichen planopilaris and lichen sclerosus, suddenly some side effects and waiting to see dermatologist, but now I have these fine dry pimples like sandpaper n horrible and now I feel it on my lips and my arms, thanks for speaking out. Life does lead a low blow sometimes. Thank you

  • @nequaknighten425
    @nequaknighten425 2 ปีที่แล้ว +3

    I think you’re on to something with Vit D. My doctor said I was deficient in it back in 2020… and then i developed Lichen Planus in March ‘22. I started taking OTC Vit D and the itchiness has completely stopped and I’m hoping I’m going into remission. I’m also taking Purslane, too.

    • @benjaminphillip9562
      @benjaminphillip9562 2 ปีที่แล้ว

      I was diagnosed with hypothyroidism during COVID, I wasn't able to eat food which also affected my taste. Using Dr iyaremoses on TH-cam herbal medicine helped get rid of lichens planus

    • @salehasajid7783
      @salehasajid7783 2 ปีที่แล้ว

      How are you now?

  • @shorttiee_1409
    @shorttiee_1409 3 ปีที่แล้ว +6

    I suffer from it as well. I have it on my arms and people always ask me did I get burned. I really need to see what causes my flare ups. Right now I’m ok but when it flares up it is so itchy and I can’t help but scratch. Thanks for all the tips.

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +3

      wow i can’t believe people have the guts to even ask you that. ridiculous !
      and no problem...hopefully this helps and you never have a flare up again ! 🤞🏽

    • @falanaiman5793
      @falanaiman5793 3 ปีที่แล้ว +1

      Same!

  • @tashabush9080
    @tashabush9080 3 ปีที่แล้ว +5

    I got diagnosed. From the comments I have pieces together the timeline since I noticed it. I got 2 rounds of Pfizer. That caused this to physically come out! I’m on a medication and cream for 1 week now. I’m hopeful after seeing this. Thank you everyone for sharing! I was so scared it was Lupus. I’ll take Lichen but it’s painfully itchy at night and I can’t sleep. Gabapentin 1200 mg fully stops the electrical pings and itching. The worst was at the base of my skull and the patches happened on the back of my legs. I’m scared now this will spread. Running to Walgreens to get my vitamin D!!! Good luck everyone!

    • @sheadevereaux7027
      @sheadevereaux7027 2 ปีที่แล้ว

      Hi, I got diagnosed with "new onset Lichen Planus" after i got my 2nd pfizer shot(august 12th 2021) I've never had any signs of having this illness before in my life. Today is december 17th and i can tell you that i am almost symtom free and have been for a few weeks. I've taken no medication exept really strong antihistamins every 12 hours for the itching. I recieve uvb light twice a week, but only on my feet as they were the worst, how ever they been healing at the same rate as the rest of my body, so i can't tell for sure how much of a diffrence it has done in my case. I don't like the idea of sterioids for me personally, so so far i make do without. I did start up a full spectrum on vitamins (but i was not low on any before this) and started eating a lot more healthy (no sugar, no dairy, no red meat) I got no idea if that has done a diffrence, but i'm healing, so i don't question it.
      When my LP was at it's worst it covered my feet (i could not walk for the pain) and hands entirely, and smaller patches here and there on my body. also in my mouth and lower lip. only have a bit around my feet now. Some things that really healped me was to cool it down when the itching got bad, a cool shower, a chilled footbath, even sleeping with icepacks helped me feel less insane. also a good moisturizer.
      I know this illness hit everyone in diffrent ways. But i wanted to let you know that there is hope to get better. i read the vaccine is most potent at the 4 month mark. then the effectiveness will become less. It fit's with my healing pattern. october and november was bad, horrible. But by the end of november i was rapidly healing and so far december has been wonderful. i can even go without the antihistamins most days now. itching is only there in tiny after the uvb treatment and only for a few hours. i hardly feel it at all.
      I hope this gives you hope for better days.

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

    • @scotyfilms
      @scotyfilms 2 ปีที่แล้ว

      Mine is from the covid vaccine too. It started in my mouth right after the vaccine now on my body. No one seems to believe me especially the medical community.

  • @natanne
    @natanne 2 ปีที่แล้ว +5

    Hi Kaylyn! I hope you're skin is still in remission. Thanks for creating this video. Question (if you even check your TH-cam)... Did your doctor prescribe just a regular vitamin D3 or was it something specific?

  • @reneeelder4556
    @reneeelder4556 ปีที่แล้ว

    Thanks you! I felt like the only person dealing with this. Now I feel a little better!

  • @mayaford8674
    @mayaford8674 3 ปีที่แล้ว +23

    I feel as if black women in particular do not get the proper medical treatment we deserve. We are brushed to the side while the doctors profit heavily off of us. We must be our own advocate since no one else will do it for us!! Good job Kaylyn!! Your story is very motivational, and I could see you one day being a health advocate or motivational speaker 😁😁 You go girl!!!!!👏🏽

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว

      you are so right! it’s honestly very sad and scary smh . but thank you for the kind words Maya! i wish nothing but the best for you 🥰🤗

    • @accesstotheredcarpet
      @accesstotheredcarpet 2 ปีที่แล้ว +6

      I’m Caucasian and get the same crap and had a Caucasian dermatologist. These doctors are something else. They don’t care unless if we have money.

    • @lfishrd
      @lfishrd 2 ปีที่แล้ว +3

      I’m white. I had this crap for almost 2 entire years before a doctor diagnosed me properly. The first doctor I went to see was Filipino. I told him all about it and he looked at a couple spots and he laughed at me. He said I was crazy. It was all over my body. I was in terrible pain. It was in my mouth. It was EVERYWHERE except my face. The second doctor was a black female. She literally rolled in the door on a rolling chair she was like at least 400lbs. She told me I had shingles. I told her it doesn’t look anything like shingles. Neither of these doctors did anything for me or offered me any kind of meds at all. The third doctor was very very young white guy. He said show me everywhere you have it and I dropped the dumb gown they make you wear and he was like shocked that it was everywhere. He said let’s do a biopsy! I was like YES! Why didn’t the other doctors do this? It came back lichen planus. I called a nutritionist I know that is a rep for neo-life products. She had me buy a huge amount of vitamins and it went away in 1 week. It took a couple more weeks to heal my mouth, but it was gone! My lichen planus was caused by antibiotics that were prescribed to get rid of mastitis. It’s been gone for 16 years and it came back now and I am not having any luck getting rid of it this time. It feels like it’s growing in my throat. Which is scary. I am not going to the doctors cuz I feel they are a waste of time and money and completely unhelpful.

    • @phadrae161
      @phadrae161 2 ปีที่แล้ว +2

      @@lfishrd so what vitamins did you take to get rid of it?

    • @lfishrd
      @lfishrd 2 ปีที่แล้ว +1

      @@phadrae161 I take a multi enzyme, chlorella, zinc, iron ( cuz I’m anemic), acidophilus, vitamin D, and bromelain. The things that helped my mouth a ton is I have a water pic with the water tank and someone said adding some peroxide to the water helps and it did a ton. Then I would wipe some virgin coconut on my gums and that is so relieving. After that everyday multiple times a day for a month it’s now gone from my mouth. I have a bit still on my spine area and under my boobs, and my stomach. But it’s gotten so much better. I hope this helps you!

  • @juniorchavesopicassodeyahu988
    @juniorchavesopicassodeyahu988 3 ปีที่แล้ว +11

    Girl you look beautiful as usual

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +1

      thank you !! 🥰☺️

  • @salahadeenas3398
    @salahadeenas3398 3 ปีที่แล้ว +5

    Thank you for this I thought I was alone. I had the same experience in 2018 with starting a new med/ but was also hit by a car at the time .so the trauma and the reaction to the new mess caused mine to come forth. Been in remission since then and just figuring out these unsightly dark spot all over.

    • @Emi-vg7du
      @Emi-vg7du 2 ปีที่แล้ว

      Heyy guyss!!... My name is Esmeralda Lara. I was diagnosed with lichen planus December of 2020. Like most of you here, I searched restlessly for someone to voice out their experience and only came across Kaylyn. I believe it's time for more voices to share the journey of living with lichen planus. I will begin to share my own story on 04/25/2022 hoping it reaches out to each and every one of you that is where I once was.

  • @davajames5839
    @davajames5839 ปีที่แล้ว

    My psoriatic arthritis triggered with fast track immunization. 6 month with no one able to tell me what was wrong. Finally went to a pain doctor who was honest and told me that he could give me a shot but it wouldn’t help me because I had psoriatic arthritis. He was right. I became my own advocate after that.

  • @terrimac380
    @terrimac380 ปีที่แล้ว

    Thank you so much for sharing as I am trying to figure out a similar skin issue! I definitely subscribed!

  • @NaiaNa12
    @NaiaNa12 ปีที่แล้ว

    I wish I saw this before! My LP started about 6 months ago. Just got blood tests a couple of weeks ago, without prescription, just to see if everything was fine. The result: everything was fine except for Vitamin D. I've been having vitamin D for a couple of weeks and it's vanishing! Mine started in the hands and then I got it in my legs after shaving and in other parts of my body exposed to the sun. I've now advised all my friends with any kind of skin problems to check their VD levels :D

  • @neetuarora9729
    @neetuarora9729 2 หลายเดือนก่อน +1

    Thanks a ton .... whatever you suggested here has immensely helped in speedy recovery from lpp

  • @56abba
    @56abba 3 ปีที่แล้ว

    This happened to me. Took my own research to find out what I had. Finally a dermatologist diagnosis me and was treated win an cream. Thanks for sharing.

  • @scotyfilms
    @scotyfilms 2 ปีที่แล้ว +7

    I have this as well. I got it right after the covid19 vaccine Aril 2021. I initially thought is was bug bites and was wondering why am I the only one getting bit. Now it is everywhere and looks ugly. I'l try Vit D, phototherapy and purslane. I'll try anything. I take CBD to sleep so maybe I should stop. My doctors were the same. Not all but most don't really seem to care anymore.

    • @realitydoinz9656
      @realitydoinz9656 2 ปีที่แล้ว

      Quick cure I will advise you to contact Dr iyaremoses on TH-cam where all heath problems are solve without stress and delay

    • @ash86marie
      @ash86marie ปีที่แล้ว

      I got it right after the covid vaccine too

    • @ash86marie
      @ash86marie ปีที่แล้ว

      Did you get yours resolved?

  • @MsPumkin100
    @MsPumkin100 ปีที่แล้ว +3

    I hate prednisone because it makes me gain weight. What did you use to get rid of the dark spots?

  • @BetaDenDymonds
    @BetaDenDymonds 3 ปีที่แล้ว +2

    You better speak . Its crazy because out of 5 doctors I saw only one only figured out my scalp still now official diagnosis on my skin.. I had to figure it out on my own and I only got a diagnosis based on my scalp. Huge FYI *** you just help me figure out its my vitamin D. Wowwww bless you. I have low vitamin D for a while now. That's amazing!!! It all makes since now. Now I know why it stopped because I started taking vitamin D only because of it being do low for so long.

    • @KaylynIvy
      @KaylynIvy  3 ปีที่แล้ว +1

      wow that’s such a shame that we can’t even rely on doctors. but better to know that now than find out with something more serious. and when i had LP i was shedding hair LIKE CRAZYYY . it stopped along with all my other symptoms so vitamin d really is important !

    • @scotyfilms
      @scotyfilms 2 ปีที่แล้ว

      I diagnosed myself as well. The dermatologist thought it was psoriasis but she was wrong.

  • @DianaEpps-fs6bf
    @DianaEpps-fs6bf ปีที่แล้ว +2

    Hey Kaylyn, you are a brave soul. I to suffer from lichen planus , and was treated in 2016. The doctor didn't know what it was and so I was misdiagnosed with plaque psorasis. In 2021, I had a flare up and the treatment I was on stopped working. The doctor decided to give me a biopsy in 2022 only to find out it was Lichen planus. I spend my life covering my skin, so I dont have to explain what's wrong with me. Maybe its a good thing to let people know this disease exist. Do you know if there's a website for people suffering from lichen planus? I would be interested in joining.

    • @alaya9629
      @alaya9629 ปีที่แล้ว +1

      Same I hate it 😭