I did something similar on my own for a while. I would walk in the pool at a depth of shoulder level, i.e no body weight being supported, and gradually try to go to shallower and shallower depths while trying to support my body weight on my own. If nothing else, it felt pleasant. Eventually, I became more and more paralyzed due to radiotherapy side effects. I was being treated for an inoperable spinal tumor, T2 (complete). I've just discovered these TH-cam videos by fellow paraplegics and it's *friggin' life changing*! Thanks for making them. Sincerely, Thank You!!!
This was amazing! I know I’m a complete stranger but I feel so proud of you! I sincerely hope one day you will definitely walk again, I think you will keep up the good work x
I'm not him so I can't speak for him...but I know when I use muscles that don't work, it is far from 'liberating' for me. It is a strain on muscles that won't develop and is very painful because I basically strained those muscles. Please think people.
you are a strong person in this video I my self just became a para due to a gun shot in my T11. ur an inspiration Love the videos hun keep them up.. 4-20-12
@krisreckner Hey Kris, I'm not actually getting this therapy consistently...I just volunteered for them to test me for 2 sessions. Even if I did want to do this therapy it would be a long way away and they said I would have to completely stop taking baclofen. I had HORRIBLE spasms before I got my baclofen pump so the benefits of this therapy don't outweigh the misery of 24/7 muscle spasms. I'm glad I did it though.
Hey Dude. Just revisiting your experimental therapy while working on my restorative therapy today, Rise Paralysis Recovery, Walnut Creek, CA. What's new? How's the little one and the Mrs. I don't see any new posts.
I hope they develop more options to possibly help you walk again one day! I follow emma Carey who was able to walk again after her accident but she has incomplete paralysis. Still, it’s amazing the things they can do now and I really believe something will come about for you one day!
I hear ya with getting off baclofen ,I dont think I could do that either ,not without an inordinate amount of pain medication which tends to help with spasms as well as pain. Keep that in mind if they ever offer this to you again because I know someone that was able to walk again with therapy similar to this with the parallel bars.
NeuroFit @ Sheltering Arms is a great place to go for rehabilitation. My close friend who is a quadriplegic states that he participates in 1-2 hour sessions only for $75/hour which includes Lokomat (gait training) for him.
@honkytonk2010 For me, the baclofen pump has been a lifesaver so I will not be stopping anytime soon. This is not a therapy that I am continuing to do. I would've liked to continue it but I am not willing to have muscle spasms own me anymore. They were absolutely horrible.
I stopped taking baclofen about a year ago coz I didn't want to...so now I get spasms, but I am able to cope with it. And It's not that bad. I am a T2 complete.
I'm a recovering c5 quadriplegic, how do manage to keep thin? My muscles have atrophied a lot so I'm pretty skinny but no matter how much I diet my stomach won't slim down. I have therapy everyday but nothing makes me lose weight
Don't give up and screw what the doctors was. I was told I wouldn't ever walk after my surgery and a 8 months after long hard therapy I started to walk and now I am home walking with a walker. It's all mind over matter. GOD bless and positive vibes and prayers.
Youre really lucky, Im trying to get therapy like this and in the therapy pool they have at my rehab facility, which is apparently one of the only ones in the northeast, but its like pulling teeth with only medicare and disability. aYou look like youre doing really well, what do youre therapists say when you tell them about the bike? You oughta go to therapy sometime on the bike and have someone follow you with your chair, just to see their jaws drop, lol
Hello, My name is Brian Kang from Seoul National University, Korea. We are currently planning to film a 10 minutes video lecture about Introducing rehabilitation robots in Korean. The purpose of this lecture is to introduce current rehabilitation robot field to high school students and undergraduate students. The lecture will be open access. And I was wondering if I can use this video as part of the material for the lecture Could you give us permissions to use this video? Thank you very much.
my nane is derek i am a 17 year old stroke survivor i had to take baclafin for my muscle spasms oncei was taken off the spsm got weaker but i now sometimes experience conas as you get stronger the connection between tour body and brain strengthens and the spasms go away
All hail Baclofen, I'm on the highest dose of the oral form before a pump can be inserted, I still get spasms, but only when I push myself, and I also take flexeril too.
Helios Gaming can you walk with pump in you? I’m getting the baclofen pump in December after walking on crutches for 30 years and being on the maximum 40mg 3 times a day dosage. I can walk on crutches but am nervous pump will knock my leg strength out.
+Seung Moon I don't go to physical therapy anymore but I do have a membership to a gym where I go 2-3 times a week. I primarily use the hand cycle which is similar to an exercise bike. It's a great upper body cardio workout. I also lift weights as well.
@@ParalyzedLiving Hi Brian, I was wondering how often you do physiotherapist? And what kind of exercise you are doing? Nice to see you practising your walking. Kind regards, from, PaulLaw.
Hi brian nice therapy but isnt it hard. I mean balancing, walking. I mean it great especially for youre body. It very good for the blood streaming. And if it is not working to walk again then its always good for exercise and youre body. But it seems also hard and being tired for trying walking and balancing at the same time. I would be exhausted if i should have to do that. Love sabrina
+Moka Bokal Incomplete spinal cord injuries (SCI's) mean the person has some sensation or control over there body. Typically a "complete" injury equates to no sensation or motor function. This means that the person feels nothing and can move nothing below the level their spinal cord was injured. In my case my injury is a T1 complete meaning I can't feel or move anything below my armpit level.
+Paralyzed Living thanks a lot for the reply . may i ask you this how did you injured ur spine ? i hope my case dont laid me to get paralyzed. and i pray for everybody to get a fast recovery
+Paralyzed Living im sorry about that . i used to gave one but thank God i sold it lol . im now considering to see a orthopaedic surgeon to fox my T5 and 6 . but im afraid of surgery
Paralyzed Living its a struggle guys but I pray they get this in Arkansas Got shot last year and the place I go for therapy don't teach you nothing so I pray that i get better in Jesus name...Amen
I did something similar on my own for a while. I would walk in the pool at a depth of shoulder level, i.e no body weight being supported, and gradually try to go to shallower and shallower depths while trying to support my body weight on my own. If nothing else, it felt pleasant.
Eventually, I became more and more paralyzed due to radiotherapy side effects. I was being treated for an inoperable spinal tumor, T2 (complete). I've just discovered these TH-cam videos by fellow paraplegics and it's *friggin' life changing*! Thanks for making them. Sincerely, Thank You!!!
Oh wow. I remember when the incident was all over the news. I hope you're adjusting well enough. It takes time and lots of patience I know. Take care!
This was amazing! I know I’m a complete stranger but I feel so proud of you! I sincerely hope one day you will definitely walk again, I think you will keep up the good work x
Great job buddy.....it's a weird feeling to see you legs going again....keep up the good work and video coverage of your life......
Todd
This has to feel liberating for him.
I'm not him so I can't speak for him...but I know when I use muscles that don't work, it is far from 'liberating' for me. It is a strain on muscles that won't develop and is very painful because I basically strained those muscles. Please think people.
@@morgancalvi6675 you replied to a 5 year old TH-cam comment....think
@@bmorebirdsnest92 ugh...no you think...you replied to a 1 yr old TH-cam comment. Duh!
This is truly an inspiration..
you are a strong person in this video I my self just became a para due to a gun shot in my T11. ur an inspiration Love the videos hun keep them up.. 4-20-12
@krisreckner Hey Kris, I'm not actually getting this therapy consistently...I just volunteered for them to test me for 2 sessions. Even if I did want to do this therapy it would be a long way away and they said I would have to completely stop taking baclofen. I had HORRIBLE spasms before I got my baclofen pump so the benefits of this therapy don't outweigh the misery of 24/7 muscle spasms. I'm glad I did it though.
Hey Dude.
Just revisiting your experimental therapy while working on my restorative therapy today, Rise Paralysis Recovery, Walnut Creek, CA. What's new? How's the little one and the Mrs. I don't see any new posts.
I hope they develop more options to possibly help you walk again one day! I follow emma Carey who was able to walk again after her accident but she has incomplete paralysis. Still, it’s amazing the things they can do now and I really believe something will come about for you one day!
And even if not you seem to be living your best life and very positive and I love that!
I hear ya with getting off baclofen ,I dont think I could do that either ,not without an inordinate amount of pain medication which tends to help with spasms as well as pain. Keep that in mind if they ever offer this to you again because I know someone that was able to walk again with therapy similar to this with the parallel bars.
NeuroFit @ Sheltering Arms is a great place to go for rehabilitation. My close friend who is a quadriplegic states that he participates in 1-2 hour sessions only for $75/hour which includes Lokomat (gait training) for him.
@honkytonk2010 For me, the baclofen pump has been a lifesaver so I will not be stopping anytime soon. This is not a therapy that I am continuing to do. I would've liked to continue it but I am not willing to have muscle spasms own me anymore. They were absolutely horrible.
I stopped taking baclofen about a year ago coz I didn't want to...so now I get spasms, but I am able to cope with it. And It's not that bad. I am a T2 complete.
I'm a recovering c5 quadriplegic, how do manage to keep thin? My muscles have atrophied a lot so I'm pretty skinny but no matter how much I diet my stomach won't slim down. I have therapy everyday but nothing makes me lose weight
I hope they try this with me. I am not taking no for a answer I'm fighting to walk again. I have NMO
I know dats right miss I'm not giving up either
Don't give up and screw what the doctors was. I was told I wouldn't ever walk after my surgery and a 8 months after long hard therapy I started to walk and now I am home walking with a walker. It's all mind over matter. GOD bless and positive vibes and prayers.
🙋🙌🙌🙌🙌🙌yeeeey..... finally you have a training. Wish you getting better and much better.
Youre really lucky, Im trying to get therapy like this and in the therapy pool they have at my rehab facility, which is apparently one of the only ones in the northeast, but its like pulling teeth with only medicare and disability. aYou look like youre doing really well, what do youre therapists say when you tell them about the bike? You oughta go to therapy sometime on the bike and have someone follow you with your chair, just to see their jaws drop, lol
Where do you do therapy at???? I need to go there!!!!
Ashley Munroe same to you
What facility is this
I am also c5 c6 injury person now walking back again
@GOLDZCJ I severed my spinal cord in an accident in 2009.
Wish we could have that kind of stuff here in the Philippines where I am from the province. I too a paraplegic patient. Incomplete paraplegia,T12.♿
Von Shong Nery Monsanto my bro is T12-L1 complete we are in San Remigio Cebu...u where u from?
Hello,
My name is Brian Kang from Seoul National University, Korea.
We are currently planning to film a 10 minutes video lecture about Introducing rehabilitation robots in Korean.
The purpose of this lecture is to introduce current rehabilitation robot field to high school students and undergraduate students.
The lecture will be open access. And I was wondering if I can use this video as part of the material for the lecture
Could you give us permissions to use this video?
Thank you very much.
my nane is derek i am a 17 year old stroke survivor i had to take baclafin for my muscle spasms oncei was taken off the spsm got weaker but i now sometimes experience conas as you get stronger the connection between tour body and brain strengthens and the spasms go away
I wish you could continue the therapy without being in such horrible pain :( I hope they will find a way :)
Do you have contact info? Or can i give you mine?
What I told while studying is going to come soon in our country India
awesome brother keep it up! maybe someday ill be with you
I have incomplete injury.. I miss walk
My injury level also D3-D4, What is the name of the harness? Which help you to walk
All hail Baclofen, I'm on the highest dose of the oral form before a pump can be inserted, I still get spasms, but only when I push myself, and I also take flexeril too.
Helios Gaming can you walk with pump in you? I’m getting the baclofen pump in December after walking on crutches for 30 years and being on the maximum 40mg 3 times a day dosage. I can walk on crutches but am nervous pump will knock my leg strength out.
Are the spasms painful?
Nonhlanhla M for me spasms jerk the hips and cause more back pain but everyone is a little different
Katrina Looney Okay, now I understand. I thought they were actually good for muscle mass retention. Thanks for the response 😊
Hey Brian, was wondering how often you do physiotherapy? And what kind of exercises do you do?
+Seung Moon I don't go to physical therapy anymore but I do have a membership to a gym where I go 2-3 times a week. I primarily use the hand cycle which is similar to an exercise bike. It's a great upper body cardio workout. I also lift weights as well.
@@ParalyzedLiving Hi Brian, I was wondering how often you do physiotherapist? And what kind of exercise you are doing? Nice to see you practising your walking. Kind regards, from, PaulLaw.
It's good to walk
Hi brian nice therapy but isnt it hard. I mean balancing, walking. I mean it great especially for youre body. It very good for the blood streaming. And if it is not working to walk again then its always good for exercise and youre body. But it seems also hard and being tired for trying walking and balancing at the same time. I would be exhausted if i should have to do that. Love sabrina
In the subtitle it says “ my shoulders tight and and as balanced as possible”, just to let you know there is 2 and’s
what does mean incomplete spinal cord injuries ? Thx
+Moka Bokal Incomplete spinal cord injuries (SCI's) mean the person has some sensation or control over there body. Typically a "complete" injury equates to no sensation or motor function. This means that the person feels nothing and can move nothing below the level their spinal cord was injured. In my case my injury is a T1 complete meaning I can't feel or move anything below my armpit level.
+Paralyzed Living thanks a lot for the reply . may i ask you this how did you injured ur spine ? i hope my case dont laid me to get paralyzed. and i pray for everybody to get a fast recovery
+Moka Bokal I was in a motorcycle accident and hit a tree.
+Paralyzed Living im sorry about that . i used to gave one but thank God i sold it lol . im now considering to see a orthopaedic surgeon to fox my T5 and 6 . but im afraid of surgery
Paralyzed Living its a struggle guys but I pray they get this in Arkansas Got shot last year and the place I go for therapy don't teach you nothing so I pray that i get better in Jesus name...Amen
bu harika bişey türkiyede böyle bi alet varıdır
You keep up with the therapy with in a year you'll be doing cartwheels.but you got to get off baclafin. good luck.