What you need to know about Chronic Lyme Disease
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- เผยแพร่เมื่อ 2 พ.ค. 2023
- Explore Chronic Lyme Disease further at: richmondfunctionalmedicine.co...
In this video, I talked about the often misunderstood and misdiagnosed condition known as Chronic Lyme Disease. I discussed the various symptoms, how it is diagnosed, and the different treatment options available.
People with Chronic Lyme Disease face a lot of challenges, and it is important for medical professionals to understand and address it in the same way as other underlying health issues such as mold, MCAS, and hypermobility. Let's delve into the world of Chronic Lyme Disease together and bring attention to this significant topic.
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Keep up the good work. Its not a mystery, drs typically dont listen. Make sure to keep listening to your patients.
Thanks for the response about the Crptolepis, from the research I just did for a few minutes it sounds amazing . Thanks Again
Getting tested in 2 weeks for Lyme. Have had many bitwa in past and strange symptons that come and go. Especially panic attacks, auto immune issues and depression/anxiety, costochondritis. Doctors say I’m healthy but symptons tell us something
I'm sorry to hear about the challenges you've been facing with your health. It must be frustrating to experience those symptoms and not be getting clear answers from your doctors. It's good that you're getting tested for it in two weeks. Hopefully, the test will give you some clarity on what's going on. In the meantime, take care of yourself and prioritize activities that help manage stress and promote overall well-being. This might include practicing relaxation techniques, engaging in gentle exercise, and maintaining a healthy diet.
Thank you! yes I'm eating very healthy plus taking herbs from a homeopathic doctor. And taking it easy. Hopefully they find Lyme, so I can have answers and the right treatment@@RIFMAdmin
Good videos
Your words say a lot....stuck with a patient...avoided for years...having lyme is not chosen...it's really hard to have it. 😢
Thanks for an excellent summary of the main points about Chronic Lyme. I am trying to delve deeper into the subject and I appreciate this as an advanced retrospective. You obviously know what you are talking about!
Greatly appreciated. I'm glad the information here could help you!
I got severe Lyme in 2007, housebound for the first 2.5 yrs full body paralyzed for 6 months. Ive had relapse after relapse, Medical Medium protocol has helped me the most, got me out of the wheelchair.
Did you try antibiotics or herbs before medical medium ?
@@donaldpasserelli3529 I had a port for doxy on my chest for 2 yrs when I first got Lyme in 2007 18 months in I went full body paralyzed for 6 months. I was on deaths door when I found MM. In a wheel chair, could walk but major struggle. I can snap my fingers again, couldnt do that for many yrs, like to music. Lyme is really a combo of EBV and Zoster virus feeding off of heavy metals mainly mercury. MMs protocol works on removing heavy metals and killing the viruses or helping them go dormant. My mobility is amazing the recovery through his protocol. For about 2 yrs I juiced 5 grapefruits a day drinking it all at once with many supplements added. Ive had Shingles 11xs since 2007. I have a lot of neuropathy, damage. MS is really only stage 6 of Lyme, same viruses cause it. When I stopped the drugs I was on 10 gabapetins a day. I no longer take Gaba. I am in pain management for oxy and have a muscle relaxer I can take but I only use them when I hit a level 8-10 pain. Mostly during Relapse, which these days with all the stress in the world has been difficult. I also use medical canabis and RSO Rick Simpson Oil has been a life saver at times. I found the terrapin Ocimene which is in some strains of Cannabis and an herb called Holy Basil helps a lot. Melatonin also helps me a lot. Its been a long journey with many ups and downs, deaths doorstep 5xs now. I firmly believe changing our view from Living to eat to eating to Live is the way. Stay Blessed hope that info helps ;-)
I had Epstein Barr followed by Lyme followed by two strains of hpv followed by covid. My Lyme was treated way late due to my doctor becoming more conservative with his antibiotic prescribing. I wound up with bullseyes all over and at that time they didn’t believe that these rashes happened anywhere but at the site of a bite, so it delayed my treatment even longer. It was only after my second test that I got positive on all bands. I learned that I do have attributes of Ehlers Danlo syndrome. I also lost my gallbladder after my first pregnancy. I learned that I have deficiencies in fat soluble vitamins especially. Supplementing changed my world. It improved so many of my chronic symptoms from the Lyme and HBV reactivation.
I'm so sorry you had to experience these things while dealing with Lyme but we are so glad that things are improving!
What did you supplement with ?
Ive Been treating Lyme since 2016 but now I realize I had specific symptoms of borellia, babesia, Bartonella since age 11.
I did DNA Connexions test in 2017 and it showed borellia, babesia, Ehrlichia.. my LLMD also diagnosed Bartonella
Recent igenex test showed positive for the genus of borellia, Babesia, bartonella.
Herbals made me worse, combination antibiotics keep me functioning but doesn’t cure me.
I want my life back, I want my brain back!
Chronic infections whether it's tick borne, Epstein-Barr virus are associated with immune system being dysregulated. For example many of these people have chronic inflammatory response syndrome not caused by water damage building but caused by the immune activation from the chronic infection. so you really have to work on any and all associated phenomena. If there are toxins in the environment or if they have gut issues or if they're hypermobile with connective tissue issues. these all have to be addressed.
Hope you feel better, I was diagnosed 2 months ago with 6-7 strains, I’ve been on four antibiotics and 10-12 herbs , I can barely function last couple weeks hope yours get better. Don’t think people around me understand how weak it makes you. Make things worse I believe I’ve had it for 10 years or more.
Good luck
I hear you. I moved from antibiotics to frequency therapy by investing in some equipment. It works for me in such that health is at a level where I can enjoy life. Less skin problems, sleep isn't perfect but better, less freaky nervous problems, better digestion, and so.
No complete recovery, but out of hell.
Which frequency equipment did you go with? There are so many options now. Have you heard of FLFE? I guess you don't need any equipment with the FLFE frequency. Inspire channel recommends them. Not sure who or what to trust anymore. 😊@@omlokahsamastah
Direct iv ozone
Thank you for talking about this. I am dealing with Chronic Lyme. The antibiotics didn’t work for me.
Thank you. I hope you find this video helpful!
Disulfiram !!
Doxycycline alone didn’t work for my child. We added another antibiotic and lots of supplements and that did the trick to heal. We went to a practitioner that followed Dr. Horowitz’s Lyme treatment protocol.
@@BJ-bc7sl I hope your child is healing and doing better. I am taking cryptolepis root and some other supplements I really do think these are helping me. I am not as tired.
I just started them a few days ago.
@@BJ-bc7slwas that antibiotic called dapsone? And are you cured of Lyme disease now? How do you feel
Thanks for sharing, my problem came from a deer fly so different but similar to Lyme, it's called Tulameria. Is it treated the same as Lyme?
Can having anemia /low iron effect healing from Lyme?
Hi all! Does anyone know if there is a test for biofilms? I have heard you can see things like spirochetes under a microscope and am wondering if it’s possible to also see biofilms. Thank you 🙏
There is no direct test for biofilms unless doing a biopsy, some people will look at blood smears the dark field microscopy and see the hints of biofilms but it's not something that can be directly tested for.
I have not ever hit the 2 tier testing criteria cdc standard for Lyme. I had a + RMSF IFA in 2016... I've been sick for 15 years.....I am now disabled....I have no resources left. Are you aware of any grant programs to help people like me? It makes a lot of sense to me that you would need to use an antibiotic to get the spirochetes to come out and then test....I do have autoimmune and likely mold too. And I have read that if you have mold and lyme issues you are likely more sensitive to EMF radiation such as that from cell phones.
Yes and autism is the cause
@@tomsale5142 The cause?...or a factor in why we get so sick...and many others do not fair so well. I just found out at 70 years old I'm on the spectrum...Asperger's...Klinghardt has some good information on autism/Lyme/Pyrrole disease online. Klinghardt thinks that Lyme is causative factor for autism...I'm too old for that to be the case since it was not created until the 70s...and I've been "special" all of my life.
I'm sorry for your trials and tribulations...too many of us are in the same boat. Just 12 years for me...What I've found is you have to eat as clean as possible ...no wheat....gluten...cheese...dairy...sugar....non Gmo...organic if possible...plenty of greens and veggies/nuts/healthy oils/seeds. Get plenty of sunshine and maybe rebound a little (if you can...just having to do the "normal" task wears me down so I rarely feel enough energy to rebound...CFS...then adrenal fatigue from pushing it)...drink plenty of purified water...stay on a parasite cleanse...one week a month off to allow the body to rest (Danna Gesellchen yt has great herbs at a reasonable price...she also deals with Lyme and has a lot of intel that you might find interesting). Coffee enemas have helped the most with pain...along with God's perfect herb. I hope and pray that you find something that helps...but...I can tell you who helps the most...and it is totally free...and freeing. If you don't already have a relationship with Jesus...then search for Him in His word...He will provide comfort ...and give you hope for an eternal future. That is my blessed Hope...Maranatha
I'm thinking about doing a project on chronic Lyme disease. What are some helpful sources you'd recommend to learn more about it?
I would start here (previous blog posts I've written on this subject)
richmondfunctionalmedicine.com/lyme-disease/
richmondfunctionalmedicine.com/lyme-disease-history/
At the bottom of Demystifying Lyme, I include further readings as well. Good luck!
Hi I had an equivocal lyme test but was tested for this and rheumatoid arthritis because of joint tenderness in my hand. My IgG was .9 would that mean an older infection?
This is tricky because having rheumatoid arthritis can trigger a false positive line test on several bands and having Lyme disease can give a syndrome that looks like when we turned arthritis and a positive Which Way Factor so you would need to work with someone who's aware that I can do additional testing to help figure out if it's both or combination
That's a very rich talk from someone who really cares to share with us his knowledge of a complex issue. I wish his elocution was easier to understand 🙂 as I'm a frenchi.
Thank you. One of our goals is to help people educate and encourage them to make informed decisions when it comes to health. If this video was helpful to you, we would appreciate it if you could support us by subscribing to this channel or by sharing this video. 😄
Turn down the speed to help understand what he is saying
I have tested negative on standard two tier test Elisa/western blot for 8 years following adult female deer tick bite and basketball sized bullseye rash clear as day 6-7 tests I have advanced labs culture negative igenex western blot positive for Lyme pcr positive anaplasmosis I have more testing immune gen relapsing fever and Lyme negative spinal tap negative 4 mris lesions all four mri frontal lobe 5mm 9 of them. Stoney brook picc lined me after 2 years fighting for diagnosis they gave me 2 g rocephin did nothing 4 g rocephin and it cut right through to the brain and cleared up a lot I went two years private iv multiple antibiotics and got to 100% better but if I stop abx 24-48 hours it comes back.
I had several hundred deer ticks on me in 2000 on a hunting trip, I slowly became sick over time but never thought about Lyme. I tested positive for Lyme in 2014 twice months apart, now I’m negative but still having ongoing symptoms. Can Lyme hide or become dormant to testing
Yes I test negative i had adult female deer tick bite and huge bullseye rash and tested negative then and know 6-7 western blots all negative basically one a year 7 years know
Yes, Lyme can become dormant during testing. I've seen patients where they've tested negative over and over and over again. And then eventually if tested positive or had flares of Lyme in the wintertime. So because the testing is not super sensitive, the standard testing can overlook a latent or indolent infection that's not active.
There’s a lot of false negatives associated with the standard western blot test.From the research I’ve done,having a deep tissue massage before testing flushes them out into the blood stream making it more easily detected.Igeneix is a pricey test but when I got tested 9years ago it was one of the better ones.
100 deer ticks !!!!!
@@navagatingthroughthebeasts2908 yes hundreds of baby deer “seed” ticks. Common here in the SE in late summer early fall. Most hunters in our area have run through a patch especially in thick brush
Doc can you treat mold and Lyme at the same time?
You typically need to treat mold 1st when dealing with Lyme but reality is it is usually done together
How about pet dander and the extra CO2 in the environment that attracts ticks too? How do all those strains develop? Many people I know get ticks on their body from their dogs...
Ticks are not mosquitoes and they're not bugs so they don't fly to their targets based on a suit CO2 concentration gradient. They sit and wait for their prey to walk by them, which typically are mammals that they are attached to. Yes, pets do actually bring them into the house, that is correct. Which is one of the concerns with indoor pets, especially dogs, since they are one of the preferred vehicles for ticks in relationship to human infection.
How can I get the Igenix test?
You would have to ask your provider or work with an MD who specializes in Lyme disease
Depending on your state, your chiropractor can also sign the order form. Order forms can be printed from the Igenex website. Results will be faxed to chiro.
I had mine sign my paper earlier this year. Been treating Lyme since 2016 but now I realize I had specific symptoms of borellia, babesia, Bartonella since age 11.
I did DNA Connexions test in 2017 and it showed borellia, babesia, Ehrlichia.. my LLMD also diagnosed Bartonella
Recent igenex test showed positive for the genus of borellia, Babesia, bartonella.
Herbals made me worse, antibiotics keep me functioning but doesn’t cure me.
I want my life back, I want my brain back!
I go to llmd that is the son of the owner of igenex and they clinically diagnose. Testing is garbage and it’s very easy to check for herx with antibiotics and then you can be sure.
I went through menopause and ended up with anemia. I have extreme fatigue to this day. The year after, I was diagnosed with active Epstein Barr. The year after that, I had a positive lyme test. Forward to 6 years later , I have been on 29 to 30 antibiotics, numerous supplements, and medications.
My inflammation markers scored high through private testing done through Dr Bruce Patterson. Of course, I couldn't find a doctor to prescribe the suggested medications. I don't think antibiotics will help me at this time. Something else is happening at the immune system level. Hopefully long covid will open the doors for people with chronic fatigue, chronic lyme, and active Epstein barr.
I'm afraid they will be kicked to the curb like we have...you don't call attention to something you created to do what it is doing....
I know healing the gut is very important but am confused..I had a positive igenex WB many years ago but Elisa has always said negative. When I asked family doctor they said Elisa picks it up well and likely not lyme. Is it possible for a WB to be a false positive?
I did take antibiotics for 3 months with an LLMD but noticed no difference. Couldn’t you also just take fermented foods at the same time to prevent microbiome damage? Or it’s best to do naturally/heal your gut
Hi there, diagnosing Lyme disease can be challenging, as there's no perfect test. According to the CDC, it's primarily a clinical diagnosis rather than one based solely on lab results. However, we prefer using lab tests, especially for Chronic Lyme Disease.
The Western Blot test looks for antibodies your immune system produces when actively fighting Lyme. For a positive result, your immune system needs to be active. On the other hand, the ELISA test searches for Lyme particles directly in your blood. If you have dormant Lyme cells, ELISA might show a negative result.
Typically, Lyme diagnosis involves both the Western Blot and ELISA tests. If either is positive, it suggests Lyme disease. However, it can be tricky. Additional tests for immune function are valuable. For instance, a low natural killer cell count or low IgM indicates immune system issues. Elevated TGF beta one suggests problems with certain immune cells.
In our doctors' experience, patients with Chronic Lyme Disease often have mold-related illnesses, which should also be addressed. This aligns with the findings of Neil Nathan, a Lyme doctor in another part of the country, who wrote a book called "Toxic" on chronic illness.
I hope this helps answer your question.
@@RIFMAdmin so, even after you treat lyme though it’s possible the antibodies can stay positive a long time, right? so if I took a test again from igenex 10 years later .. it’s possible it’s still positive even if no active infection, since CDC says you can’t retest to know if cured or not.
should lyme be treated naturally? There seems to be great herbs as well for it like from buhner’s protocol. I know there’s types of antibiotics for cyst form, and antibiotics don’t address persisters as well. They really damage the gut microbiome so is it best to treat naturally ?
@@RIFMAdminalso, i thought the Elisa test looked for antibodies, but western blot was the more specific test with the bands and all that
@@goodvibesxox So sorry for the late response.
Yes, the antibodies can stay elevated for up to six to nine months but anything lower than that suggests there's still a low-grade infection or something else going on. The other thing to take note of is if it's one or two bands, especially band 41, that can be falsely positive. If people have other positive autoimmune markers, that particular band is not as specific as others. Technically, for testing, you need both a direct and indirect test, which would be something like the Western Blot, and then a PCR test. But ultimately, you also have to do immune system testing looking at people's natural killer cells, CD8 cells, complement systems, TGF-beta, C3a, C4, and a whole host of other labs can give you a better idea, and the more complicated patients. We wish it was as simple as one test one result, but it's a little more complicated than that.
@@RIFMAdmin well - on Marty Ross’s website he does mention there is no test to see if you’re cured or not because antibodies can stay positive many many years after initial infection
So in your opinion,what is the best way to get rid of chronic lyme?
Find what is blocking your immune system from clearing it and address it, then re treat the Lyme
I got treated by Lyme Literate Doc 9 years ago. After test came back positive for Lyme and 4 co-infections. Probably had about 20 symptoms, mostly neurological and most subsided after a year of treatment. A couple symptoms stayed but to a lesser degree. Occasionally, I seem to get a flare of a couple minor symptoms I had before. Is that fairly common?
After having Lyme disease, you may have significant neurological inflammation, systemic inflammation that can be around and be residual for quite some time. Typically this is associated with another type of inflammation called chronic inflammatory response syndrome, which goes into the world of environmental toxins or mycotoxins. So yes, this is quite common
@@AaronHartmanMD This post lyme inflammation can be healed with psilocybin.
Post Lyme Inflammation can be healed with a lot of things. Psilocybin is one of the things that has some research that can be helpful in resetting some of the brain-based inflammation.
@@AaronHartmanMD Ok.. I would be very curious, which other options I might have. Since, I cannot handle psychedelics after a LSD crash. Maybe I could handle microdosing, but I don´t know if this would help.
@@AaronHartmanMD What else could I do to heal the inflammation? I don´t even know, if I have still lyme, post lyme or CIRS.
I was diagnosed by my naturopath with chronic lyme. I only tested 3 positive bans. CDC wants 5 or more positive bans. Yale say they would not test me for lyme because, and I quote, 'you don't look like you have lyme'. As someone in the medical field, I was shocked. I have symptoms for years. All kinds of symptoms. Headache, low back pain, stiff neck, muscle aches, joint pain, weakness in hand and foot, bell's palsy, ect. I lived with asbestos for 20 years. Once I contracted Covid and 3 Covid boosters, Moderna, it's like all the symptoms came home to roost. Could Covid had triggered lyme?
I'm actually not surprised. The medical universities tend to be the worst with this as their training deals only with acute Lyme disease, not chronic Lyme disease. And they don't recognize neither does the CDC that you have to have an intact immune system to make antibodies, which is what the bands are dealing with. So actually, I see this quite a bit and it's actually quite common, I am not surprised. And the symptoms you're listing are on the list related to chronic infections tick-borne illnesses, but not acute Lyme disease. So again, it would be overlooked by an acute care specialist in a hospital care system. You just must remember not to go to an acute care specialist or an acute care system for a chronic issue that's multi-system and multi-symptom. As far as reactivation it can be reactivated by a whole host of things. Recurrent Epstein Barr, head concussion, chronic mold exposure, and yes, even COVID. We are now seeing a reactivating Lyme disease.
I'm tearing up. How can I repay you for your advice? This helps a whole lot. I am grateful for individuals such as yourself. Please don't ever stop helping people like me. Now I know which doctor to seek out.@@AaronHartmanMD
Covid caused my Lyme to flare up, almost to a crisis state. It’s been 8 months and I’m still struggling with symptoms 😓
The COVID vaccine triggered the Lyme symptoms. I've had Lyme disease for 37 years. It took 27 years to get diagnosed. The list of my symptoms is too long to write. I chose not to get the covid vaccine and numerous booster's.
@@danaterry7257 I sure hope you find relief soon. It's been a while for me too. So mentally exhausted!
I have heds autism ADHD lost my mum.ti severe ms heds last year unsure uf i have kyme ir all the autism all frown up on farm 26 years cfs fybromyalgia since a fall huh
We can all thank AH. Copy?
Al Hirt? I don't copy...sorry LOL...We can all thank ole willie for helping create it.
More like 200 strains at least of Bb.
MORGELLON DISEASE ????? DO YOU KNOW ANYONE WHO IS STUDYING THIS ..... THE PAIN MY DAUGHTER IS JUST BREAKING MY HEART ..... SHE BEEN TOLD SHE US CRAZY ..... SHE SAYS MAMA CRAZY DON'T HURT WHEN TRY WALKING TO THE BATHROOM ..... PLEASE , PLEASE ..... IF YOU CAN HELP IN ANY WAY ..... SHE NEEDS HELP ..... SHE IS MISSING OUT ON HER 3 KIDS LIVES ...... SHE IS NOT CRAZY ...... THIS SHIT IS REAL ..... HELP US PLEASE ~~~~!!!!!!!!!!!!
There's a whole society dedicated to Morgellons syndrome. It is called the Charles E. Holman Foundation and the website is thecehf.org/
Hope this helps!
I just started taking Cryptolysis, maybe it can help her.
I really wonder if Buhner herb protocol wouldn’t help her situation as well!
Germ theory is out but it is a horrendous war of epic proportions. Devestating beyond any story I have heard of on record.
Read “Germs” by Judith Miller. That will open your eyes re: gulf war illness and Lyme
Anyone diagnosed with chronic lyme after getting the covid vaccine?
Vaccines, in susceptible people, can cause a reactivation of occult infections, including Lyme.
That wasn't a vaccine.
Yes I never even had a bite mark after the covid shot, I developed this one year later.
@cindyre85 I've had lyme for about 7yrs and I never saw the initial tick that got me either.
@@AaronHartmanMD Thank you for this information. I didn’t know that.
Here is what you need to know-- It can be gone in 30 minutes, energetically. I have done it hundreds of times without a failure.
Please explain further
No explanation of course!!!
Has anyone experienced or knows if hypoxic therapy is an effective treatment for Lyme Disease? I'm curious about alternative treatments and their real-world outcomes. Any insights or personal experiences shared would be greatly appreciated
Hi there. For Lyme disease, our doctors typically use hyperbaric therapy, not hypoxic therapy. So, they wouldn't suggest hypoxic therapy. But, they've seen good results with hyperbaric therapy in certain situations.