As a retired nurse, I say you go girl. You are 100% correct. Not only should they listen to you, they need to take action & fix it for you & others. Hope you are doing well. Much love from Florida
I hope they finally made your difficult IV starts part of your chart now. From my nurse's experience, hospitals listen closely to complaints. Let's hope this one does.
one of the stage 4 cancer patient that doctor gave up curing cures cancer with this methods in korea. 1.1600mg-2400mg mebendazole(fenbendazole albendazole) with 200mg-400mg cimetidine 50ml olive oil 1500mg meriva curcumin 2000mg omega 3 per day. she take these for 4days in a a week and then 2 20g(20000mg) liposomal vitamin c 100mg doxycyclin 500mg arzithromycine per day. she take these 3 days in a week. and everyday 2400mg quercetin. 400mg egcg .600mg pterostilbene .probiotics.betaglucan. 3mg natrexon(LDN).vitamin d5000iu.20mg melatonin. she cured the stage 4 cancer within 6 months...in korea. she ate tofu garlic onion beans beefs and vegetables.. 15 people that doctors gave up curing because there are no anti cancer medicines any more cured cancer with these methods......
It's good to speak up. I work in a major US hospital and many years ago a child died because the staff was not listening to the parents. Afterwards they negotiated with the hospital and the outcome was that a special protocol was set up for anyone who feels they are not be listening to by the staff and they can call a number and get immediate assistance and that all new employees hear the story of this family when they are going through orientation. You can make a difference.
As a parent, I had that happen in a hospital in Santa Fe. I should preface my post by saying my first son passed of SIDS and my second had severe allergies. When we arrived in the Santa Fe area, it triggered him. We landed in the ER and as a mother I just knew something was off with his cough. A young ER doctor tried to talk down to me, pass me off as a nervous mother who was uninformed. He even went so far as to tell me he had 3 kids and therefore understood kids better than me and was ready to release him. Well, I wouldn't have it. I demanded to see a pediatric doctor. The head of peds came down, took one look down is throat and saw that the esophageal flap was swollen. He looked at the ER doctor and said "What were you thinking? This is an automatic admit!" I believe had I not advocated for my son things could have ended tragically. We are raised not to question "authority" and sometimes we must. They are only human after all.
@@racheljay9963 Most likely parents came with a small child to the ER, the doctor who saw them dismissed their concerns as new parents overreacting and in this case, it wasn't just an overreaction.
Ever since I got sick badly, I realized how messed up the whole hospital system really was... I used to be innocent and think that I could blindly trust doctors and also thought that I would be listened to if something went wrong. They made many mistakes with prescribing the wrong medication and blaming side effects on me, while it was clearly written on the notice, mind you! I had to fight with so many of them just to avoid being shoved aside and ignored. That medication mess up lasted for 3 years, until one of them finally ready more than two lines of my medical file, I guess -_- I'm still upset to this day, especially because I was really sick and really didn't have the energy to fight against people for something so obvious. You're very courageous, keep it up!!!
As a Phlebotomist/Medical assistant we are taught to try 3 times and get a different special phlebotomist. I worked with people who didnt listen to the patient when they say I am a hard stick, I listen and try the easy way first, why make the person be in pain? Stand up for your self as a patient you have the right to demand proper care.
I have always been a hard stick since I was a kid. I've had so much hate from nurses and medical assistants blaming me for it. They will tell at me and laugh and say do you ever drink water or work out?? You have no veins! I had one wrong nurse try to put the iv in my neck! Because she couldnt find a vein in my arm and it wasnt not urgent at all. I had some swelling in my feet but my vitals were stable. Crazy!!
Same as a Medical Lab Scientist. After 3 tries we have to step away and get a phlebotomist. I had to advocate for my sister while she was in labor because the nurse kept sticking and couldn’t find a vein. It left her with so many bruises and in pain.
The nurses at the hospital where my orthopedic surgeries are so rude when I tell them I am a hard stick. They like to do it in my arm when it’s easier to do it in my hand. They get nasty and rude towards me. I hate that they don’t listen to me. I might see if they will be willing to call the pediatric iv team who are more patient and can usually get the iv in on the first try.
As someone who is also in and out of hospitals: I would not have had my life-changing surgery without filing a complaint. Medical staff are, rightly, proud of what they do but sometimes at the expense of patients. DEFINITELY advocate for yourself.
I don’t have cancer but with multiple diseases I know how you feel about medical professionals not listening. I am so sorry you went through this. I’m proud of you for standing up for yourself and being proactive about your own healthcare. ♥️
As a nurse, if a patient gives me any kind of helpful information I ABSOLUTELY listen. Why the hell would I want to make it harder on myself because who knows your body better than you? I don't like it when nurses or healthcare staff in general try to "take the reigns" and attempt to "show off" in essence. For me, listening to my patient is a priority. I'm sorry you had such a bad experience with your hospital. I hope that everything gets resolved soon and the facility takes it into account and fixes it. Good for you speaking up for yourself!!!! You go, girl!
Nurses are ok but doctors are so arrogant!!! It is like they lost touch with reality … they don’t listen, don’t care and be like suck it up… so so sad! Lives are lost and also quality of life.
My daughter's first time giving birth the head nurse sent her home in active labor after trying to start her labor, she was l overdue too. The nurse suggested she do things to slow it down, at midnight!!! The had to return 45 minutes later and he was born within 15 minutes after he got there. That nurse never listened to anyone, she thought SHE was a doctor!
Oh, Romee... as a retired nurse I stand here in California my heart is here for you. I worked with CCU and Hospice care as well for years, as well with my patients as well as my family. Staff needs to listen to you. LOL, as a Nancy, I laughed when you said "negative Nancy" I hear you, you need to be heard, all of our patients need to be heard. Please, file your complaint! As a nurse, I totally support you in reporting!!!! Health care professionals need to be held accountable!
Very inspiring. I also am the kinda girl that doesn't stand up for herself, always trying to be nice and accomodating. What you went through is not right and your complaint - if taken seriously - might really make a difference for other patients in the future. Bravo!
As a chronically ill person, I've had to work with so many medical professionals who refuse to listen to me. It's gotten to the point where if I can take care of myself at home, I will, regardless of pain level, regardless of others opinions, and sometimes even after I've called a nurse and they tell me to go to the hospital ( edit: don't do this). I'm not saying all medical professionals are bad or so proud that they won't listen to patients. All I'm saying is there is a lot of medial professionals who need to try to remember that there are people who have been ill for long enough of a time to accurately express something that is needed I'm their care (sometimes their whole lives). Some of us are totally willing to work with you, and aren't doubting your medical skills just because we voice our input.
Rome's I am so amazed by you and so proud of you for speaking up for yourself. I am a care taker to dad who has end stage kun Lung disease. Sadly I deal with this all the time. It's exhausting. I am his advocate. I'm also a former nurse. Nobody knows your body better that you do. I find it so irritating when I'm ignored. As a nurse I always valued ANY input. I think patients and family have a lot to offer. Patients feel scared and intimidated to speak up. That's a shame it's your body. You have right to guestion! It would make it so much better if we all valued each other and communicated. Good for you!
I have the same exact problems with my veins. When I was younger I put up with So many nurses and text thinking you knew my veins better than me. Now I'm in my 40s And a very firmly advocate for myself. Goodness you have too! Good luck to you.
Thank you for sharing your story and encouraging people. From my own personal experience this year, I have learned that it’s so important to learn to advocate for yourself because doctors don’t always listen. It’s frustrating especially when you’re dealing with something that’s so emotionally draining already like cancer. I’m sorry that you have to deal with incompetent medical personnel on top of everything else.
Romee, I really admire your maturity for a girl so young. I have followed all your journey, and you have been through so much and yet you found the strenght and willpower to finish your studies. You did very well in filing a complaint against the hospital, you are doing a favor to future patients and also you have every right to advocate for your health. As a mother myself, I just wished your parents were beside you in these hospital visits, if I was your mom I would not leave your side.❤️🌺
@@dianne.murielrobidoux9008 sorry but I am speaking like a mother myself. There should be nothing more important in the world for a mother than her children, this wonderful amazing girl should not rely only on her friends. She has been going through serious illness at a very young age and her mother should have been right beside her all the way since the beggining supporting her.
@@Olympicspirit remember that you only see what Romee shows in the videos. Based on that you don't really know where her parents are in this situation. And actually, Romee mentioned that her parents are supporting her.
Love you! You definitely deserved and still do deserve better care. Your life is important and theres no one better than the other. Proud of you for standing up to the hospital.
Now I can’t wait for part two. You are absolutely right that it is important to stand up for yourself. These problems will continue if someone doesn’t bring them to light. Thanks for being courageous!
There is nothing wrong with advocating for yourself. When I first got sick I never stood up to doctors and always thought they knew what was best. I ended up losing all but 3 percent of my stomach because a surgeon said it would cure my illness, turns out not so much, and has left me sicker and with less treatment options. Now, I am the first person to stand up when things aren’t right. It doesn’t matter if it’s a doc or a nurse I’m not going to let them do things wrong when it comes to me. And, sometimes you have to have an attitude because some of them have big heads and don’t listen. You speak up for yourself, this is about your life and body. I know things are super hard, but I pray they get better!
Sorry you had to go through this Andi. It took me a long time to advocate for myself. I always felt I was being pushy or that they knew best, but WE know our bodies best! My love and prayers to you on your health journey. 💚🙏🏼
I’m so sorry that happened to you. A doctor wanted the same, (somewhat). He wanted surgery and some exams I wasn’t ok with (I’m a minor, and the exams were very invasive and I felt uncomfortable). Long story short, the doctor was horrible, I was “cured” with antibiotics. (Not 100% but I am better). When I told the story (in another comment section) everyone was telling me I was in the wrong. I felt horrible. Thank you, for sharing :)
I was looking for you everyday so glad to see you and glad that you are sharing your frustrations with hospital ... Romee you are definitely doing the right thing.... You as the patient deserves to know everything about your medical status and communicating to you is absolutely a must! Lov walking this journey with you an even though I have never met you.. I am with you in Spirit!
Good for you! As a Nurse myself and also someone with horrible veins, I hear you loud and clear! I can not begin to tell you how many times I've not been heard and as a result been stuck over and over again. I try not to tell the person drawing my blood or putting in the Iv that i am a nurse because I've found it makes them nervous( I definitely don't need a nervous person who has a needle in hand headed my way lol). Because of my own health experiences I feel like it's helped me be a better nurse/caretaker, it's also helped me be a better advocate not just for myself but for my patients as well. I'm very glad that you had the courage to speak out because it may not seem this way but it really does make a difference 🤗🙏
I’m feeling so bad for all the disappointments you are going through. My parents have both had major surgeries, hospitalizations here in the US. My sister and I stayed with them 24/7 in the hospital and it was a real eye opener on how many mistakes are made, miscommunication regarding medications and changes made that in our case landed my mom into ICU all because medical staff didn’t listen. I learned that the patient often would benefit from a patient advocate which is what we did for our elderly parents. I had notebooks and everytime a new doctor came in I wrote down what he said, medication changes, etc.....and had him leave his card or sign his name and contact # if possible. I am so glad you are standing up for yourself!!! I just hate that you are having to fight this horrid cancer battle at such a young age. You are a beautiful person and I’m praying for complete healing for you! ❤️
Hey you, We are all so proud of you and send our love and thoughts. I made a complaint when I was in hospital. A doctor said if I wanted to stay while they worked out my pain management he could start amputating my toes!!!! My blood pressure went sky high because it's impossible to amputate my toes, you'd have to amputate my leg at the knee. I made a complaint and the senior nurse was so nice when she got back to me. Said the consultant was sorry and had a new baby and they'd keep an eye on him. So many people are scared to report a doctor or a hospital because of their status, and the consensus is that they know better or it might adversely affect their treatment. In reality, it's a good thing to make a complaint so that they can learn and improve. You go girl. We are all rooting for you. Sending you love.
I dont know where you get the strength to stand up for yourself in these hard circumstances, but thank God you are! I'm jumping out of my skin just watching you re-tell this ordeal, and I am so upset that you have had to go through all of this! Incompetency has no place in cancer treatment.
I wish you all the best, sweetie. I’m so glad you are so proactive and not letting anybody including the hospital business do wrong by you. Sending hugs from the Finger Lakes in New York.
I’m so sorry. The timing of this video could not be more appropriate for me and I want to thank you for giving me the push to advocate for myself more! I follow another youtuber recently diagnosed, and her latest video is sitting right below this one, with the title “Misdiagnosed” due to a faulty reading of her first PET scan. It’s not right that patients have to fight so hard for adequate care when all they should be focused on is healing. Big love to you. ❤️
You could really be changing someone’s life by speaking up, Romee. Thank you. Having the strength to speak up when you have so much else going on is highly commendable.
You're an advocate for all the patients. This journey asks so much of your mental health and I believe you have every right to make your voice heard. Hopefully they'll learn from this and change a few protocols.
Stand up for yourself, if you don’t who will. You did the right thing. Your health is the number one thing and the reason why you are at the hospital. If someone at the hospital does something wrong their supervisor needs to be notified. I have had to stand up for my Mother, and if I wouldn’t have done it she would have died many times before she did. You have to protect yourself in a hospital. Have someone with you if possible 24 hours a day. I can’t wait to hear the rest of your story. Thank you for being so vocal. God Bless You!
Well done for standing up for your own health. It's one thing having one issue but when your continuously having issues you have to complain to make changes happen. Hope your healing well x
I had this idea that the Dutch healthcare system would be better than in my own country, but seemingly not necessarily so. I hope you continue to fight for everything. You are a battler and a survivor! Xx
I’m a nurse myself and I think it’s important to also know when NOT to try. I’m not the best at IV’s, I atleast try each time to look for a good vein, but when there’s patients at our unit that are know for having hard/bad veins I ask one of my colleagues or call Holding and explain the situation. Putting in IV’s is never fun for patients and why harm them multiple times…
Totally agree with you. If I couldn’t site an IV within a couple of tries I would call up a friend in ICU or Emerg, they can do IVs on anyone! I also listened to my patients, she knew the procedure
So good of you to stand up for yourself. Everyone needs to advocate for themselves. Humanity is sometimes lost with healthcare because of the day in and day out. I’m sorry that you’re having to go through this.
So sorry to hear you had a worse experience with the new appointment! I remember being scolded by a nurse because she couldn't hit my veins with the IV needle. She thought the problem was me being scared so the veins would shrink, and she scolded me for being scared (before a surgery). Then she jabbed the needle so hard into my hand. It kind of worked, but it really hurt. She also insisted for a while that anesthesia wasn't necessary, even though it was planned. The surgeon was unexperienced and made some mistakes (and actually laughed at me when I told I was afraid because my friend had almost bled to death after having been send straight home alone, she was rescued by a stranger who saw her collapsed in front of her door, from a similar procedure and I asked to stay over night at the hospital) , but that's another story , and one of the post-op nurses was ridiculously angry when I wasn't able to answer her questions right after I woke up.
I do not have cancer but am disabled and have 2 major life threatening diseases and I’ve almost died almost like a dozen times, I’ve had over 60 surgeries, so god only knows how many admissions, tests, IVS and so my point is I’ve been through so many issues like this and even worse stuff. I’m glad you advocated for yourself.
Thank you for speaking up for yourself. Why do people have a hard time doing this with people in the medical profession. Several years ago my daughter had a chronic uncommon illness we were sent to the top hospital in California and one of the top in the country. My daughter was only 4 yrs. at the time but every time we went as the nurses were getting her changed and into her bed they would remind her that she could say “NO”. Don’t Touch Me”. To any dr. Or nurse who came into her room and tried to touch her with out first explaining what they were going to do and that they needed to ask for her permission. That was the very best thing they could have taught her . She always advocates for her self and doesn’t leave without all her questions being answered. This is your life Romee. So many people need to hear your story. It could save their life . I am so happy for you and how this will give you the control you need through your journey. 🥰🙏🏻💕
Good for you for speaking up. The one thing that I learned over 18 months of breast cancer treatment is that you need to be your own advocate and speak up loudly when something doesn't feel right or if there is something that you don''t understand. Keep asking questions until it makes sense and don't be afraid to be the squeaky wheel when it comes to anything to do with your own healthcare.
I feel people forget that a doctor - that’s just their job and they work for YOU. I tell my doctor no all the time since having stage 4 cancer. I think I shock the crap out of them when I say no because they always reply, What? 🤣 Look how unbelievably strong you are, didn’t know you had it in you, did you? You’re precious too. Sending lots of love and prayers your way!
This is completely unacceptable and you are totally right!! This isn't the first time, I remember when they forgot about you for another important appointment (also for a PET-scan if I remember correctly?). Working at a hospital must be very hard BUT it shouldn't excuse everything and in those situations communication is (more than ever) KEY. I hope your surgery went well and you feel better now. Stay strong💖
Way to go Romee!!👏👏👏So impressed you actually have the energy filing a complaint, most don't and it's important, because like you say, no one should have to go through what you did and many others unfortunately do, and in an already stressful situation, dealing with cancer. Communication is key AND actually listening to the patient, just don't dismiss their thoughts and points.!💕
Yes I'm with you stand up for yourself and your health care, let people know so they will stand up for the reserves, yes you are right. I always tell people to stand up for the thereselves.
So good to hear from you Romee, it pains me to know what your going through with-the medical field. I’ve worked in the field most of my life and am now retired and having health issues, mind you not as serious as yours but it’s unbelievable how many screw ups I’ve experienced with bad communication with hospitals and doctors. Please continue to advocate for yourself Romee it’s your life and your a most beautiful person that deserves only the best treatment. You will also hopefully help others with cancer to speak up if something isn’t right. I wish I was there to hug you. I’m praying the second part of this experience is a positive one but I’ll have to wait for your video because I’m not on Instagram 💪🏼💗🙏🏻
the professionals may or may not know their job or be any good at it but we as patients know our body we live in them, they should absolutely listen to our concerns because on this account we know better.
So young so beautiful and so intelligent!! You’re a god send to this earth Romee! Please continue being courageous and amazing because there are others out there who need u. Thank u and continue being great
You were totally right to file a complaint, this happened to many times to you and the hospital has to be accountable for its mistakes. Hope you'll be okay Romee, i'm sending you lots of positive energy! ❤💫❤💫❤💫
Hey girl, we love your inner beauty and tremendous self awareness, bright blessings to you from south Florida 🐊🐞 you are empowering yourself day by day, step by step. 🦋
Keep fighting. Keep living. Don’t be silenced. I know your intelligence is your strength, Romee. Understanding your situation is the first step to recovery. I went through my own cancer journey last year and I understand what you’re saying about being your own best advocate. I think that your decision to bring these issues to the attention of the hospital will help other patients avoid them. Helping others also helps me feel better and I am positive you feel the same.
Ugh I completely understand and thank you for posting this video about medical staff not listening to patients. I have very tiny veins and I tell them and they never listen and poke me three to four times always or try to put it in my hand and it hurts too much. Sorry you didn’t get your pet scan when you weee mentally prepared for it. That’s so frustrating. I’ve recently had two surgeries relating to my gallbladder and the IV issues are real here in the United States. I’m also young and no one pays me any attention and then they realize I was right but too late. I’m just now starting to feel comfortable to stand up for myself when it comes to my health.
I had a guy trying to get a vein and when I told him he’d have a better chance trying in my hand - I think he took it as a personal challenge to try my arms. By the 3rd try, with him getting angry, I told him to stop and I got up and walked out. I already have a problem with needles - I don’t need some joker poking around my arm. Good for you in standing up for yourself!!
You MUST be your own advocate!!!! I’m a 30 year hospital floor nurse and have seen enough. I too have a complaint on a doctor. However 15 years ago my cancer was misdiagnosed FIVE times which cost be a 14 hour surgery and half my neck. I’m so proud of you Ro!!!!
I was misdiagnosed with pre leukemia and ended up losing my hearing due to two unnecessary bone marrow aspirations and I got absolutely no where with legal action against the Dr who refused to listen to me and laughed when I told him I could barely hear anything 2 weeks after the aspirations. I now have a cochlear implant. Don't back down Romee.
So then when the doctor refused to listen to you why did you continue with that doctor? Did the doctor point a gun to your head and say if you don’t continue with me I am going to pull the trigger?
@@superEriccui you realise some people are stuck with certain docs right? due to area shortages of family doctors or specialist shortages. also you need to get referred so may not be able to move to a more or less specialist doc without permission from the first bad doc. atm im stuck with a shit gp (uk). cant move yet cos the waiting lists are so so long and private is way too expensive for minor shit
@@poppymason-smith1051 first of all if you live in an area that doesn’t have a lot of doctors. You should have considered that when you moved there and if the disease is life threatening it’s up to you to make the sacrifices to go and see a better doctor. Second of all referral is easy and every doctor will gladly do that why? One they get a referral fee and two they have too.
Good for you, girl. I was my mom's caregiver as she fought cancer. Even then some, not all, of her docs just shined her on and didn't listen to her. I am glad I came upon your channel. I'm praying and believing in total healing for you. 🙏🏽❤
Good for you, Romee! You absolutely have to stand up for yourself. I can’t imagine how that accessing your veins information was not in the front of your file.
Romee you have been VERY patient and forgiving during all this horror show. I remember all the times in videos you were waiting for a promised phone call and it never came, and you had to chase them down, yourself, while dealing with cancer! THAT was unforgivable! Sending healing prayers to you! I am glad you took action against the hospital, and your unselfish desire to save others from the same issues. God bless you, Romee💖
I’ve unfortunately had to file complaints against my hospital MULTIPLE times in regards to miscommunication and mistreatment/misguidance towards me by staff... it’s really unfortunate and sad but the health care system and its workers have a lot of flaws all over the world, regardless of which country you’re in. And I’m in Canada 🇨🇦 Lots of love and prayers are being sent your way and I’m soooo sorry that you had to experience this. ❤️
you're a wonderful person for making this video. Like you have no idea how many folks you've helped just knowing they aren't alone, so thank you on their behalf, and mine, cos honestly, you're inspiring
Girl…..I am with you…. My veins collapse or roll away….I always tell them and they luckily always listen! If the person who tries does not get it, they call someone else. Great you stick up for yourself!!
I know that must have been insanely frustrating... I pray the Lord will strengthen you and your faith stays strong and that these crappy situations dont effect u too much. 🙏🏿❤️
Omg. I feel so bad for you. I hope you get justice for the crap they did to you. God bless you and I hope you are doing well despite everything you've been thru.
After chemo my veins were wrecked . I still go for immunotherapy every three weeks and I ALWAYS tell whoever is sticking me that my veins suck. The more hospital/procedure experiences I have, the less patience I have for medical staff not listening to me. I’m the patient, I know my body, and I’m not going to be a pin cushion. I used to keep quiet but no more. I’ve fired nurses during hospital stays because they were indifferent or didn’t listen to me. Even had a complaint filed against the on call oncologist because he was a total a hole to me and quite literally said “You didn’t need to come in for this…” (pulmonary embolism…thanks for the empathy doc). So yeah, my patience is zero when it comes to patient care nowadays. I’m so proud of you for being your own advocate! Ask for the charge nurse or whoever is in charge of that unit if you ever have problems. No need to be mean about it, but being stern and telling them that the care they’re giving is unacceptable is a place to start. As long as they’re willing to have that conversation, that’s a start. You go girl. Hang in there. 🦋
I wish you luck on your journey! It can be exhausting and difficult to get them to listen to you, but keep at it. You must advocate for yourself! It is so important, and the only way most times you will get the answers you need for what is going on. I personally have had several surgeries, hospitalizations, seen many many doctors of all kinds, and dealt with insurance companies,etc. most of my life. It can be difficult but keep at it! Best Wishes!
I’m so truly sorry for all your struggles. A few years ago, after an accident, I was in rehab where they had complete control over my life. One morning I collapsed at breakfast, despite my repeated cries that something was very wrong with me. Long story short, they messed up my meds and near killed me. Not only did I file a formal complaint, I left their facility, with help from my family, against medical advice. I was too sick and weak to bother with a medical malpractice case, buy did that ever create a ruckus. God bless you and continue doing what you need to do for you!!!
This hits really close to home for me. I am so sorry to hear about your experience and I can only imagine what else you have to tell. Even though I live in a different country, me and my family had similar experiences in hospitals. My mum was just recently diagnosed with cancer and while that particular diagnosis is horrible enough, what really scarred us was they way we were treated at the hospital. My mum had several days (!) where she was told to fast in preparation for procedures that never came. She was operated on and while the doctor promised to give us a quick call, nobody came to check on her or tell us how it went. We had to infer that the procedure was unsuccessful from the fact that she was under for only 2 hours and that she did not go to the ICU. Nobody else attempted to talk to us. We had to literally hunt down a doctor. It got worse however. My mum does not advocate for herself and she is not very good at dealing with things because she is an anxious person, so she always requests for one of us to be with her when they have important news. This was communicated several times. Still one doctor came to her room in the morning and without any preparation told her that there was no chance of healing her cancer. My mum had a nervous breakdown and was inconsolable. Mind you, we knew this already because we had actually had had that conversation together with her and a doctor days prior. Afterwards, when we arrived to console my mum, the doctor cried in front of my dad and told him that my mum "didn't like her". I mean, we just wanted to never ever step foot in that place again. And that's just the tip of the iceberg of what you experience as a patient in a hospital. I also know that most hospital staff means well. So there definitely is something wrong with the system in general.
That doctor should definitely undergo a new psychological evaluation. It seems she had a break down and is not the right person for the job. And I hope you made a written complaint against the doctors. At least that would start an internal evaluation that might wake her up. Believe me, doctors are in competition with each other, such a situation will not just be ignored.
I’m a hard stick too- I’ve always come out of surgeries with my arm looking like I got beaten up. I’ve warned people so I’ve asked for the IV nurse. Our hospital has a dedicated IV nurse on call for hard sticks for this reason. It’s definitely a gift and a special talent required for difficult sticks like ourselves!
Hi, I hope you had a good weekend, I had a quiet one myself. I am glad you did make a complaint about their irresponsibility towards you or for any person under their care. Listening should be in the top three for taking care of a patient. May this help them with a better understanding on how to listen. I know I've had good and bad experiences within the same hospital I have to go to so I can understand everything you thought and felt as I thought and felt the same. I hope you're doing better, I wish you a great week and you are in my thoughts. Take care of yourself and blessings.
You have to be your own advocate. No one is going to stick up for you more than yourself.. you ABSOLUTELY did the right thing. You had no other choice but to do what you did. 💕💕💕💕
Your video just popped up and I am so thankful you have shared this information about an I .V. and finding a vein through ultrasound. I had no idea!! My son was 9 and hospitalized with a serious infection. They made a dozen attempts before they finally knocked him out with ketamine and were able to place it. He had become hysterical for obvious reasons. I wish I had known this at the time!! Just that fact you've shared I'm certain has helped so many people. Thank you and I wish you all the best. You've got a strong voice and presence. Hugs.
Oh my sweet Romee!! I am so sorry you had to go through this!! Good for you for filing this well deserved complaint. When I get my IVs for my MRIs the technician will place a tourniquet around my arm and see what veins pop up. They will point out 2 or 3 veins that look promising. Then I apply a blob of EMLA numbing cream on those areas and then they place tegaderm bandage to keep the cream in place. The cream needs about 20-30 minutes to work. This strategy has really helped me as I have tiny/problematic veins as well. Maybe you can incorporate this process in your next pet scan. Thank you for sharing story with us. Praying for a smoother pet scan process this second go around and for positive results. 💖
Yep, I have certainly experienced times when I felt health professionals did not respond well to my concerns. I admire your effort to be heard! Sending ❤ and prayers for healing.
💞❤💞 I pray you make a difference. I believe everything happens for a reason. Apparently you are the chosen voice for many people. I know you will do an amazing job. God Bless you Romee.
My mom went a year whit a malignant tumor in her leg (from her lungs) because her stupid doctor did not belive her and said she had to work out more. Offcourse a diagnosis like that would mean she would die, since she was a heavy smoker, but her doctor could have done a way better job and she could have been saved from so much pain. So I am a big fan of you taking charge! I am ALL for it! Go for it! You got my full support!
I’m glad u filed that complaint! When you’re sick u have to be your own advocate and voice, loud and clear! Some doctors and nurses think they know everything better bc the schooling they had and stuff. But in the end you’re the only one who knows your boddy and when things are wrong. When I was 15 I had a really bad stomach pain. My home doctor told me it was just a bug and would wear off in a week with some meds, it didn’t and after 2 weeks I went back and she just sended me home with the same treatment, she kept doing this for 6 months. My dad got sick of it and said she had to prescribe me a scan and echo. She did and I went to get them en got called home from school that day, i needed to be admitted to the hospital bc my galbladder was full with stones. Sadly this was not the end my liver stats were verry high a month after my galbladder got removed. And doctors were brushing this off again! I was a healthy, sporty 16 year old at that time. I got more and more sick over time, when I was 17 they dicided to do a biopsy, they misdiagnosed me then. When I was 18 they did one again bc the meds were not working. By the age of 20 I had a right diagnose but it was all a little late bc my body already payed the toll. I have and auto-immune Hepatitis its treatable with meds and stuff when found and diagnosed on time. Now I have a lot of other health problems bc of it. If this all would happened now I would deff files complaints now I’m older! So u go girl, wishing u all the best! Hou je sterk Romee! En je kan dit!!
Oh Romee, how difficult it must have been for you!!! Looking forward to the pet scan results plus everything else!. I love the way you explain things, I just love listening to you... You are helping me in ways you can't even imagine....
I am proud of you for speaking up. I am the same way. I don’t normally speak up. I’ve had issues with doctors and hospitals one after another. They don’t listen. They always think they know better. When you know your body the best.
Good for you for standing up, it's you who knows your body better than any "experts" good Dr's will listen and work with you, praying for your journey stay positive and strong, God bless.
So sorry you went through that my friend but I'm so glad you are standing up for yourself and I hope you are doing well from surgery. Sending prayers my friend God bless
Romee, I think it so important that you speak up for yourself as you are fighting the most important battle ever - cancer. You need to keep asking why, how, when and and most importantly of all ask them to listen. My brother had brain cancer and I feel they did not always listen to him. It's hard when you feel so weak to keep strong. Sen56ding you a big hug and positive thoughts 💓
Thank you for being brave enough to share your experience with us. I wish this had not happened to you but, I am glad you are bringing awareness to this issue and standing up for yourself. It is a real problem that happens way too much when the patient isn't listened too and it goes down from there.
Same thing happened with me with my CT scan. I skipped counting after thirty tries. The managed to trash the tiny little veins I had left. I got them back by vomiting over them and fainting. I have no viable veins left. I understand your pain. Hugs
![struggling with my cancer diagnosis... [weekly vlog.]](/img/n.gif)
As a retired nurse, I say you go girl. You are 100% correct. Not only should they listen to you, they need to take action & fix it for you & others. Hope you are doing well. Much love from Florida
I hope they finally made your difficult IV starts part of your chart now. From my nurse's experience, hospitals listen closely to complaints. Let's hope this one does.
one of the stage 4 cancer patient that doctor gave up curing cures cancer with this methods in korea.
1.1600mg-2400mg mebendazole(fenbendazole albendazole) with 200mg-400mg cimetidine 50ml olive oil 1500mg meriva curcumin 2000mg omega 3 per day. she take these for 4days in a a week and then
2 20g(20000mg) liposomal vitamin c 100mg doxycyclin 500mg arzithromycine per day. she take these 3 days in a week.
and everyday 2400mg quercetin. 400mg egcg .600mg pterostilbene .probiotics.betaglucan. 3mg natrexon(LDN).vitamin d5000iu.20mg melatonin.
she cured the stage 4 cancer within 6 months...in korea. she ate tofu garlic onion beans beefs and vegetables..
15 people that doctors gave up curing because there are no anti cancer medicines any more cured cancer with these methods......
Agree with Jo 100% As a NP in Mississippi, this is a major problem everywhere. And you are so right that talking about this problem is so important!!
Jo-thanks for being an advocate. You are right. Glad you advocate for patients.
@@kimbobby3046 always. Thank you
It's good to speak up. I work in a major US hospital and many years ago a child died because the staff was not listening to the parents. Afterwards they negotiated with the hospital and the outcome was that a special protocol was set up for anyone who feels they are not be listening to by the staff and they can call a number and get immediate assistance and that all new employees hear the story of this family when they are going through orientation. You can make a difference.
What’s the story don’t leave me hanging lol
Thank you for supporting the patient in this situation
We definitely had a major story like that here in the Seattle area----I wonder if it's the same one?....
As a parent, I had that happen in a hospital in Santa Fe. I should preface my post by saying my first son passed of SIDS and my second had severe allergies. When we arrived in the Santa Fe area, it triggered him. We landed in the ER and as a mother I just knew something was off with his cough. A young ER doctor tried to talk down to me, pass me off as a nervous mother who was uninformed. He even went so far as to tell me he had 3 kids and therefore understood kids better than me and was ready to release him. Well, I wouldn't have it. I demanded to see a pediatric doctor. The head of peds came down, took one look down is throat and saw that the esophageal flap was swollen. He looked at the ER doctor and said "What were you thinking? This is an automatic admit!" I believe had I not advocated for my son things could have ended tragically. We are raised not to question "authority" and sometimes we must. They are only human after all.
@@racheljay9963 Most likely parents came with a small child to the ER, the doctor who saw them dismissed their concerns as new parents overreacting and in this case, it wasn't just an overreaction.
Ever since I got sick badly, I realized how messed up the whole hospital system really was...
I used to be innocent and think that I could blindly trust doctors and also thought that I would be listened to if something went wrong.
They made many mistakes with prescribing the wrong medication and blaming side effects on me, while it was clearly written on the notice, mind you! I had to fight with so many of them just to avoid being shoved aside and ignored. That medication mess up lasted for 3 years, until one of them finally ready more than two lines of my medical file, I guess -_- I'm still upset to this day, especially because I was really sick and really didn't have the energy to fight against people for something so obvious.
You're very courageous, keep it up!!!
As a Phlebotomist/Medical assistant we are taught to try 3 times and get a different special phlebotomist. I worked with people who didnt listen to the patient when they say I am a hard stick, I listen and try the easy way first, why make the person be in pain? Stand up for your self as a patient you have the right to demand proper care.
I have always been a hard stick since I was a kid. I've had so much hate from nurses and medical assistants blaming me for it. They will tell at me and laugh and say do you ever drink water or work out?? You have no veins! I had one wrong nurse try to put the iv in my neck! Because she couldnt find a vein in my arm and it wasnt not urgent at all. I had some swelling in my feet but my vitals were stable. Crazy!!
good job , God bless you,,,❤️👍👍
Same as a Medical Lab Scientist. After 3 tries we have to step away and get a phlebotomist. I had to advocate for my sister while she was in labor because the nurse kept sticking and couldn’t find a vein. It left her with so many bruises and in pain.
I am a hard stick for IVs and I give someone two chances to get it in. If they can’t do it I ask or insist on getting someone else to do it.
The nurses at the hospital where my orthopedic surgeries are so rude when I tell them I am a hard stick. They like to do it in my arm when it’s easier to do it in my hand. They get nasty and rude towards me. I hate that they don’t listen to me. I might see if they will be willing to call the pediatric iv team who are more patient and can usually get the iv in on the first try.
As someone who is also in and out of hospitals: I would not have had my life-changing surgery without filing a complaint. Medical staff are, rightly, proud of what they do but sometimes at the expense of patients. DEFINITELY advocate for yourself.
I don’t have cancer but with multiple diseases I know how you feel about medical professionals not listening. I am so sorry you went through this. I’m proud of you for standing up for yourself and being proactive about your own healthcare. ♥️
It is about time medical staff start listening to patients. Good for you Romee! I am proud of you!
As a nurse, if a patient gives me any kind of helpful information I ABSOLUTELY listen. Why the hell would I want to make it harder on myself because who knows your body better than you? I don't like it when nurses or healthcare staff in general try to "take the reigns" and attempt to "show off" in essence. For me, listening to my patient is a priority. I'm sorry you had such a bad experience with your hospital. I hope that everything gets resolved soon and the facility takes it into account and fixes it. Good for you speaking up for yourself!!!! You go, girl!
Nurses are ok but doctors are so arrogant!!! It is like they lost touch with reality … they don’t listen, don’t care and be like suck it up… so so sad! Lives are lost and also quality of life.
Hi
My daughter's first time giving birth the head nurse sent her home in active labor after trying to start her labor, she was l overdue too. The nurse suggested she do things to slow it down, at midnight!!! The had to return 45 minutes later and he was born within 15 minutes after he got there. That nurse never listened to anyone, she thought SHE was a doctor!
God bless you
You are one in a thousand, believe me.
Oh, Romee... as a retired nurse I stand here in California my heart is here for you. I worked with CCU and Hospice care as well for years, as well with my patients as well as my family. Staff needs to listen to you. LOL, as a Nancy, I laughed when you said "negative Nancy" I hear you, you need to be heard, all of our patients need to be heard. Please, file your complaint! As a nurse, I totally support you in reporting!!!! Health care professionals need to be held accountable!
Very inspiring. I also am the kinda girl that doesn't stand up for herself, always trying to be nice and accomodating. What you went through is not right and your complaint - if taken seriously - might really make a difference for other patients in the future. Bravo!
Well done speak up for yourself always.
I also have trouble standing up for myself! Was taught not to rock the boat growing up! I
Me too...Nd it never goes well.
I used to be nice and accommodating but I’m not now! I am the child of an alcoholic. You don’t rock the boat. Then after a time, you explode!
I am in the medical field and had also been a patient. Always speak up you know your body better than anybody. You have the right to refuse.
As a chronically ill person, I've had to work with so many medical professionals who refuse to listen to me. It's gotten to the point where if I can take care of myself at home, I will, regardless of pain level, regardless of others opinions, and sometimes even after I've called a nurse and they tell me to go to the hospital ( edit: don't do this). I'm not saying all medical professionals are bad or so proud that they won't listen to patients. All I'm saying is there is a lot of medial professionals who need to try to remember that there are people who have been ill for long enough of a time to accurately express something that is needed I'm their care (sometimes their whole lives). Some of us are totally willing to work with you, and aren't doubting your medical skills just because we voice our input.
Someone who finally done it. These fools at my hospital handle my cancer terribly
Rome's I am so amazed by you and so proud of you for speaking up for yourself. I am a care taker to dad who has end stage kun
Lung disease. Sadly I deal with this all the time. It's exhausting. I am his advocate. I'm also a former nurse. Nobody knows your body better that you do. I find it so irritating when I'm ignored. As a nurse I always valued ANY input. I think patients and family have a lot to offer. Patients feel scared and intimidated to speak up. That's a shame it's your body. You have right to guestion! It would make it so much better if we all valued each other and communicated. Good for you!
I have the same exact problems with my veins. When I was younger I put up with So many nurses and text thinking you knew my veins better than me. Now I'm in my 40s And a very firmly advocate for myself. Goodness you have too! Good luck to you.
Thank you for sharing your story and encouraging people. From my own personal experience this year, I have learned that it’s so important to learn to advocate for yourself because doctors don’t always listen. It’s frustrating especially when you’re dealing with something that’s so emotionally draining already like cancer. I’m sorry that you have to deal with incompetent medical personnel on top of everything else.
Romee, I really admire your maturity for a girl so young. I have followed all your journey, and you have been through so much and yet you found the strenght and willpower to finish your studies. You did very well in filing a complaint against the hospital, you are doing a favor to future patients and also you have every right to advocate for your health. As a mother myself, I just wished your parents were beside you in these hospital visits, if I was your mom I would not leave your side.❤️🌺
Come on ! Don't try to shame the mother. Be positive
@@dianne.murielrobidoux9008 sorry but I am speaking like a mother myself. There should be nothing more important in the world for a mother than her children, this wonderful amazing girl should not rely only on her friends. She has been going through serious illness at a very young age and her mother should have been right beside her all the way since the beggining supporting her.
@@Olympicspirit remember that you only see what Romee shows in the videos. Based on that you don't really know where her parents are in this situation. And actually, Romee mentioned that her parents are supporting her.
Love you! You definitely deserved and still do deserve better care. Your life is important and theres no one better than the other. Proud of you for standing up to the hospital.
Now I can’t wait for part two. You are absolutely right that it is important to stand up for yourself. These problems will continue if someone doesn’t bring them to light. Thanks for being courageous!
There is nothing wrong with advocating for yourself. When I first got sick I never stood up to doctors and always thought they knew what was best. I ended up losing all but 3 percent of my stomach because a surgeon said it would cure my illness, turns out not so much, and has left me sicker and with less treatment options. Now, I am the first person to stand up when things aren’t right. It doesn’t matter if it’s a doc or a nurse I’m not going to let them do things wrong when it comes to me. And, sometimes you have to have an attitude because some of them have big heads and don’t listen. You speak up for yourself, this is about your life and body. I know things are super hard, but I pray they get better!
Sorry you had to go through this Andi. It took me a long time to advocate for myself. I always felt I was being pushy or that they knew best, but WE know our bodies best! My love and prayers to you on your health journey. 💚🙏🏼
OMG I'm so sorry this happened to you! 😱💔 I hope your health will be improving inspite of that... 🤗
God bless you dear.
I’m so sorry that happened to you. A doctor wanted the same, (somewhat). He wanted surgery and some exams I wasn’t ok with (I’m a minor, and the exams were very invasive and I felt uncomfortable). Long story short, the doctor was horrible, I was “cured” with antibiotics. (Not 100% but I am better). When I told the story (in another comment section) everyone was telling me I was in the wrong. I felt horrible. Thank you, for sharing :)
I was looking for you everyday so glad to see you and glad that you are sharing your frustrations with hospital ... Romee you are definitely doing the right thing.... You as the patient deserves to know everything about your medical status and communicating to you is absolutely a must! Lov walking this journey with you an even though I have never met you.. I am with you in Spirit!
Good for you! As a Nurse myself and also someone with horrible veins, I hear you loud and clear! I can not begin to tell you how many times I've not been heard and as a result been stuck over and over again. I try not to tell the person drawing my blood or putting in the Iv that i am a nurse because I've found it makes them nervous( I definitely don't need a nervous person who has a needle in hand headed my way lol). Because of my own health experiences I feel like it's helped me be a better nurse/caretaker, it's also helped me be a better advocate not just for myself but for my patients as well. I'm very glad that you had the courage to speak out because it may not seem this way but it really does make a difference 🤗🙏
I’m feeling so bad for all the disappointments you are going through. My parents have both had major surgeries, hospitalizations here in the US. My sister and I stayed with them 24/7 in the hospital and it was a real eye opener on how many mistakes are made, miscommunication regarding medications and changes made that in our case landed my mom into ICU all because medical staff didn’t listen. I learned that the patient often would benefit from a patient advocate which is what we did for our elderly parents. I had notebooks and everytime a new doctor came in I wrote down what he said, medication changes, etc.....and had him leave his card or sign his name and contact # if possible. I am so glad you are standing up for yourself!!! I just hate that you are having to fight this horrid cancer battle at such a young age. You are a beautiful person and I’m praying for complete healing for you! ❤️
Hey you, We are all so proud of you and send our love and thoughts. I made a complaint when I was in hospital. A doctor said if I wanted to stay while they worked out my pain management he could start amputating my toes!!!! My blood pressure went sky high because it's impossible to amputate my toes, you'd have to amputate my leg at the knee. I made a complaint and the senior nurse was so nice when she got back to me. Said the consultant was sorry and had a new baby and they'd keep an eye on him. So many people are scared to report a doctor or a hospital because of their status, and the consensus is that they know better or it might adversely affect their treatment. In reality, it's a good thing to make a complaint so that they can learn and improve. You go girl. We are all rooting for you. Sending you love.
I dont know where you get the strength to stand up for yourself in these hard circumstances, but thank God you are! I'm jumping out of my skin just watching you re-tell this ordeal, and I am so upset that you have had to go through all of this! Incompetency has no place in cancer treatment.
I wish you all the best, sweetie. I’m so glad you are so proactive and not letting anybody including the hospital business do wrong by you. Sending hugs from the Finger Lakes in New York.
I’m so sorry. The timing of this video could not be more appropriate for me and I want to thank you for giving me the push to advocate for myself more! I follow another youtuber recently diagnosed, and her latest video is sitting right below this one, with the title “Misdiagnosed” due to a faulty reading of her first PET scan. It’s not right that patients have to fight so hard for adequate care when all they should be focused on is healing. Big love to you. ❤️
You could really be changing someone’s life by speaking up, Romee. Thank you. Having the strength to speak up when you have so much else going on is highly commendable.
You're an advocate for all the patients. This journey asks so much of your mental health and I believe you have every right to make your voice heard. Hopefully they'll learn from this and change a few protocols.
Stand up for yourself, if you don’t who will. You did the right thing. Your health is the number one thing and the reason why you are at the hospital. If someone at the hospital does something wrong their supervisor needs to be notified. I have had to stand up for my Mother, and if I wouldn’t have done it she would have died many times before she did. You have to protect yourself in a hospital. Have someone with you if possible 24 hours a day. I can’t wait to hear the rest of your story. Thank you for being so vocal. God Bless You!
Well done for standing up for your own health. It's one thing having one issue but when your continuously having issues you have to complain to make changes happen.
Hope your healing well x
I had this idea that the Dutch healthcare system would be better than in my own country, but seemingly not necessarily so. I hope you continue to fight for everything. You are a battler and a survivor! Xx
I’m a nurse myself and I think it’s important to also know when NOT to try. I’m not the best at IV’s, I atleast try each time to look for a good vein, but when there’s patients at our unit that are know for having hard/bad veins I ask one of my colleagues or call Holding and explain the situation. Putting in IV’s is never fun for patients and why harm them multiple times…
Totally agree with you. If I couldn’t site an IV within a couple of tries I would call up a friend in ICU or Emerg, they can do IVs on anyone!
I also listened to my patients, she knew the procedure
🎯🎯🎯
You are being a patient advocate for yourself. So important to do and you will not only help yourself you’ll help someone else ❤️Well done!
So good of you to stand up for yourself. Everyone needs to advocate for themselves. Humanity is sometimes lost with healthcare because of the day in and day out. I’m sorry that you’re having to go through this.
So sorry to hear you had a worse experience with the new appointment!
I remember being scolded by a nurse because she couldn't hit my veins with the IV needle. She thought the problem was me being scared so the veins would shrink, and she scolded me for being scared (before a surgery). Then she jabbed the needle so hard into my hand. It kind of worked, but it really hurt. She also insisted for a while that anesthesia wasn't necessary, even though it was planned. The surgeon was unexperienced and made some mistakes (and actually laughed at me when I told I was afraid because my friend had almost bled to death after having been send straight home alone, she was rescued by a stranger who saw her collapsed in front of her door, from a similar procedure and I asked to stay over night at the hospital) , but that's another story , and one of the post-op nurses was ridiculously angry when I wasn't able to answer her questions right after I woke up.
I do not have cancer but am disabled and have 2 major life threatening diseases and I’ve almost died almost like a dozen times, I’ve had over 60 surgeries, so god only knows how many admissions, tests, IVS and so my point is I’ve been through so many issues like this and even worse stuff. I’m glad you advocated for yourself.
Thank you for speaking up for yourself. Why do people have a hard time doing this with people in the medical profession. Several years ago my daughter had a chronic uncommon illness we were sent to the top hospital in California and one of the top in the country. My daughter was only 4 yrs. at the time but every time we went as the nurses were getting her changed and into her bed they would remind her that she could say “NO”. Don’t Touch Me”. To any dr. Or nurse who came into her room and tried to touch her with out first explaining what they were going to do and that they needed to ask for her permission. That was the very best thing they could have taught her . She always advocates for her self and doesn’t leave without all her questions being answered. This is your life Romee. So many people need to hear your story. It could save their life . I am so happy for you and how this will give you the control you need through your journey. 🥰🙏🏻💕
Good for you for speaking up. The one thing that I learned over 18 months of breast cancer treatment is that you need to be your own advocate and speak up loudly when something doesn't feel right or if there is something that you don''t understand. Keep asking questions until it makes sense and don't be afraid to be the squeaky wheel when it comes to anything to do with your own healthcare.
I feel people forget that a doctor - that’s just their job and they work for YOU. I tell my doctor no all the time since having stage 4 cancer. I think I shock the crap out of them when I say no because they always reply, What? 🤣
Look how unbelievably strong you are, didn’t know you had it in you, did you? You’re precious too. Sending lots of love and prayers your way!
This is completely unacceptable and you are totally right!! This isn't the first time, I remember when they forgot about you for another important appointment (also for a PET-scan if I remember correctly?). Working at a hospital must be very hard BUT it shouldn't excuse everything and in those situations communication is (more than ever) KEY. I hope your surgery went well and you feel better now. Stay strong💖
They like never called her about the results. It took over a week!
Way to go Romee!!👏👏👏So impressed you actually have the energy filing a complaint, most don't and it's important, because like you say, no one should have to go through what you did and many others unfortunately do, and in an already stressful situation, dealing with cancer. Communication is key AND actually listening to the patient, just don't dismiss their thoughts and points.!💕
Yes I'm with you stand up for yourself and your health care, let people know so they will stand up for the reserves, yes you are right. I always tell people to stand up for the thereselves.
So good to hear from you Romee, it pains me to know what your going through with-the medical field. I’ve worked in the field most of my life and am now retired and having health issues, mind you not as serious as yours but it’s unbelievable how many screw ups I’ve experienced with bad communication with hospitals and doctors. Please continue to advocate for yourself Romee it’s your life and your a most beautiful person that deserves only the best treatment. You will also hopefully help others with cancer to speak up if something isn’t right. I wish I was there to hug you. I’m praying the second part of this experience is a positive one but I’ll have to wait for your video because I’m not on Instagram 💪🏼💗🙏🏻
Yes, when it comes to your health and life you must stand up for yourself.
the professionals may or may not know their job or be any good at it but we as patients know our body we live in them, they should absolutely listen to our concerns because on this account we know better.
Bravo 👏🏼 please upload part 2 soon! Thank you for sharing Romee
So young so beautiful and so intelligent!! You’re a god send to this earth Romee! Please continue being courageous and amazing because there are others out there who need u. Thank u and continue being great
Happy you are standing up for your treatment. Looking forward to hear what else has been happening.
Love, fr Canada❤️
Hi Romee! Glad to see you're well after surgery ❤ you're in my thoughts
You were totally right to file a complaint, this happened to many times to you and the hospital has to be accountable for its mistakes. Hope you'll be okay Romee, i'm sending you lots of positive energy! ❤💫❤💫❤💫
Hey girl, we love your inner beauty and tremendous self awareness, bright blessings to you from south Florida 🐊🐞 you are empowering yourself day by day, step by step. 🦋
Keep fighting. Keep living. Don’t be silenced. I know your intelligence is your strength, Romee. Understanding your situation is the first step to recovery. I went through my own cancer journey last year and I understand what you’re saying about being your own best advocate. I think that your decision to bring these issues to the attention of the hospital will help other patients avoid them. Helping others also helps me feel better and I am positive you feel the same.
wow. not only lack of communication, but lack of compassion. Keep on talking Romee.......we love you, from California...
Ugh I completely understand and thank you for posting this video about medical staff not listening to patients. I have very tiny veins and I tell them and they never listen and poke me three to four times always or try to put it in my hand and it hurts too much.
Sorry you didn’t get your pet scan when you weee mentally prepared for it. That’s so frustrating. I’ve recently had two surgeries relating to my gallbladder and the IV issues are real here in the United States.
I’m also young and no one pays me any attention and then they realize I was right but too late. I’m just now starting to feel comfortable to stand up for myself when it comes to my health.
Kudos to you for using your negative situation to create a positive for other people...that's very courageous 👌
I had a guy trying to get a vein and when I told him he’d have a better chance trying in my hand - I think he took it as a personal challenge to try my arms. By the 3rd try, with him getting angry, I told him to stop and I got up and walked out. I already have a problem with needles - I don’t need some joker poking around my arm. Good for you in standing up for yourself!!
You MUST be your own advocate!!!! I’m a 30 year hospital floor nurse and have seen enough. I too have a complaint on a doctor. However 15 years ago my cancer was misdiagnosed FIVE times which cost be a 14 hour surgery and half my neck. I’m so proud of you Ro!!!!
I was misdiagnosed with pre leukemia and ended up losing my hearing due to two unnecessary bone marrow aspirations and I got absolutely no where with legal action against the Dr who refused to listen to me and laughed when I told him I could barely hear anything 2 weeks after the aspirations. I now have a cochlear implant. Don't back down Romee.
So then when the doctor refused to listen to you why did you continue with that doctor? Did the doctor point a gun to your head and say if you don’t continue with me I am going to pull the trigger?
Don’t depend on someone else for your life. Doctors are ultimately not gods.
@@superEriccui you realise some people are stuck with certain docs right? due to area shortages of family doctors or specialist shortages. also you need to get referred so may not be able to move to a more or less specialist doc without permission from the first bad doc. atm im stuck with a shit gp (uk). cant move yet cos the waiting lists are so so long and private is way too expensive for minor shit
@@poppymason-smith1051 first of all if you live in an area that doesn’t have a lot of doctors. You should have considered that when you moved there and if the disease is life threatening it’s up to you to make the sacrifices to go and see a better doctor. Second of all referral is easy and every doctor will gladly do that why? One they get a referral fee and two they have too.
@@poppymason-smith1051 second of all uk’s health care is absolutely garbage so.
Good for you, girl. I was my mom's caregiver as she fought cancer. Even then some, not all, of her docs just shined her on and didn't listen to her. I am glad I came upon your channel. I'm praying and believing in total healing for you. 🙏🏽❤
I am a nurse and I think you are doing the right thing. This is the way change happens! Proud of you for standing up for yourself
Good for you, Romee! You absolutely have to stand up for yourself. I can’t imagine how that accessing your veins information was not in the front of your file.
Romee you have been VERY patient and forgiving during all this horror show. I remember all the times in videos you were waiting for a promised phone call and it never came, and you had to chase them down, yourself, while dealing with cancer! THAT was unforgivable! Sending healing prayers to you! I am glad you took action against the hospital, and your unselfish desire to save others from the same issues. God bless you, Romee💖
I’ve unfortunately had to file complaints against my hospital MULTIPLE times in regards to miscommunication and mistreatment/misguidance towards me by staff... it’s really unfortunate and sad but the health care system and its workers have a lot of flaws all over the world, regardless of which country you’re in. And I’m in Canada 🇨🇦 Lots of love and prayers are being sent your way and I’m soooo sorry that you had to experience this. ❤️
I'm proud of you Romee, you got this❤ trust your instinct, you know you better than anyone!
you're a wonderful person for making this video. Like you have no idea how many folks you've helped just knowing they aren't alone, so thank you on their behalf, and mine, cos honestly, you're inspiring
You are taking the right actions. Change will only happen with speaking out and making them aware. I so admire you!
Girl…..I am with you…. My veins collapse or roll away….I always tell them and they luckily always listen! If the person who tries does not get it, they call someone else. Great you stick up for yourself!!
Here in Brisbane I have had the same issue - well done standing up yourself
I know that must have been insanely frustrating... I pray the Lord will strengthen you and your faith stays strong and that these crappy situations dont effect u too much. 🙏🏿❤️
Omg. I feel so bad for you. I hope you get justice for the crap they did to you. God bless you and I hope you are doing well despite everything you've been thru.
Oh I'm so sorry this has happened, it's totally unacceptable x Hope you are doing ok xxx
So glad you filed a complaint because they need to be held accountable for what they have done so far. Also praying that your pet scan went well. ❤️
After chemo my veins were wrecked . I still go for immunotherapy every three weeks and I ALWAYS tell whoever is sticking me that my veins suck. The more hospital/procedure experiences I have, the less patience I have for medical staff not listening to me.
I’m the patient, I know my body, and I’m not going to be a pin cushion. I used to keep quiet but no more. I’ve fired nurses during hospital stays because they were indifferent or didn’t listen to me. Even had a complaint filed against the on call oncologist because he was a total a hole to me and quite literally said “You didn’t need to come in for this…” (pulmonary embolism…thanks for the empathy doc). So yeah, my patience is zero when it comes to patient care nowadays.
I’m so proud of you for being your own advocate! Ask for the charge nurse or whoever is in charge of that unit if you ever have problems. No need to be mean about it, but being stern and telling them that the care they’re giving is unacceptable is a place to start. As long as they’re willing to have that conversation, that’s a start.
You go girl. Hang in there. 🦋
You are your best advocate! You go girl!! You have choices. Screw their feelings. Xoxo
I wish you luck on your journey! It can be exhausting and difficult to get them to listen to you, but keep at it. You must advocate for yourself! It is so important, and the only way most times you will get the answers you need for what is going on. I personally have had several surgeries, hospitalizations, seen many many doctors of all kinds, and dealt with insurance companies,etc. most of my life. It can be difficult but keep at it! Best Wishes!
I’m so truly sorry for all your struggles. A few years ago, after an accident, I was in rehab where they had complete control over my life. One morning I collapsed at breakfast, despite my repeated cries that something was very wrong with me. Long story short, they messed up my meds and near killed me. Not only did I file a formal complaint, I left their facility, with help from my family, against medical advice. I was too sick and weak to bother with a medical malpractice case, buy did that ever create a ruckus. God bless you and continue doing what you need to do for you!!!
This hits really close to home for me. I am so sorry to hear about your experience and I can only imagine what else you have to tell. Even though I live in a different country, me and my family had similar experiences in hospitals. My mum was just recently diagnosed with cancer and while that particular diagnosis is horrible enough, what really scarred us was they way we were treated at the hospital. My mum had several days (!) where she was told to fast in preparation for procedures that never came. She was operated on and while the doctor promised to give us a quick call, nobody came to check on her or tell us how it went. We had to infer that the procedure was unsuccessful from the fact that she was under for only 2 hours and that she did not go to the ICU. Nobody else attempted to talk to us. We had to literally hunt down a doctor. It got worse however. My mum does not advocate for herself and she is not very good at dealing with things because she is an anxious person, so she always requests for one of us to be with her when they have important news. This was communicated several times. Still one doctor came to her room in the morning and without any preparation told her that there was no chance of healing her cancer. My mum had a nervous breakdown and was inconsolable. Mind you, we knew this already because we had actually had had that conversation together with her and a doctor days prior. Afterwards, when we arrived to console my mum, the doctor cried in front of my dad and told him that my mum "didn't like her". I mean, we just wanted to never ever step foot in that place again. And that's just the tip of the iceberg of what you experience as a patient in a hospital. I also know that most hospital staff means well. So there definitely is something wrong with the system in general.
When I was about two months old, they told my parents I wasn’t allowed to eat for 22 hours, for a very unnecessary procedure.
That doctor should definitely undergo a new psychological evaluation. It seems she had a break down and is not the right person for the job. And I hope you made a written complaint against the doctors. At least that would start an internal evaluation that might wake her up. Believe me, doctors are in competition with each other, such a situation will not just be ignored.
I’m a hard stick too- I’ve always come out of surgeries with my arm looking like I got beaten up. I’ve warned people so I’ve asked for the IV nurse. Our hospital has a dedicated IV nurse on call for hard sticks for this reason. It’s definitely a gift and a special talent required for difficult sticks like ourselves!
Me too! Even getting blood drawn is a struggle. My record is having 5 people in the room trying to find SOMETHING 😂
Hi, I hope you had a good weekend, I had a quiet one myself. I am glad you did make a complaint about their irresponsibility towards you or for any person under their care. Listening should be in the top three for taking care of a patient. May this help them with a better understanding on how to listen. I know I've had good and bad experiences within the same hospital I have to go to so I can understand everything you thought and felt as I thought and felt the same. I hope you're doing better, I wish you a great week and you are in my thoughts. Take care of yourself and blessings.
Glad that your surgery went well. You look fabulous . It is a nightmare dealing with doctors and hospitals. Prayers , hugs and love. 🙏🙏❤❤
You have to be your own advocate. No one is going to stick up for you more than yourself.. you ABSOLUTELY did the right thing. You had no other choice but to do what you did. 💕💕💕💕
Your video just popped up and I am so thankful you have shared this information about an I .V. and finding a vein through ultrasound.
I had no idea!! My son was 9 and hospitalized with a serious infection. They made a dozen attempts before they finally knocked him out with ketamine and were able to place it. He had become hysterical for obvious reasons. I wish I had known this at the time!!
Just that fact you've shared I'm certain has helped so many people.
Thank you and I wish you all the best. You've got a strong voice and presence. Hugs.
Oh my sweet Romee!! I am so sorry you had to go through this!! Good for you for filing this well deserved complaint. When I get my IVs for my MRIs the technician will place a tourniquet around my arm and see what veins pop up. They will point out 2 or 3 veins that look promising. Then I apply a blob of EMLA numbing cream on those areas and then they place tegaderm bandage to keep the cream in place. The cream needs about 20-30 minutes to work. This strategy has really helped me as I have tiny/problematic veins as well. Maybe you can incorporate this process in your next pet scan. Thank you for sharing story with us. Praying for a smoother pet scan process this second go around and for positive results. 💖
Yep, I have certainly experienced times when I felt health professionals did not respond well to my concerns. I admire your effort to be heard! Sending ❤ and prayers for healing.
We love your honesty and yes they ignored your informations! So go girl...take care
I’m so sorry for what happened to you. Thank you for sharing your experience with us, and for using your voice to make a change!
💞❤💞 I pray you make a difference. I believe everything happens for a reason. Apparently you are the chosen voice for many people. I know you will do an amazing job.
God Bless you Romee.
Ik ben echt heel trots op je en blij voor je dat je voor jezelf op bent gekomen!!!
My mom went a year whit a malignant tumor in her leg (from her lungs) because her stupid doctor did not belive her and said she had to work out more. Offcourse a diagnosis like that would mean she would die, since she was a heavy smoker, but her doctor could have done a way better job and she could have been saved from so much pain. So I am a big fan of you taking charge! I am ALL for it! Go for it! You got my full support!
I’m glad u filed that complaint! When you’re sick u have to be your own advocate and voice, loud and clear! Some doctors and nurses think they know everything better bc the schooling they had and stuff. But in the end you’re the only one who knows your boddy and when things are wrong. When I was 15 I had a really bad stomach pain. My home doctor told me it was just a bug and would wear off in a week with some meds, it didn’t and after 2 weeks I went back and she just sended me home with the same treatment, she kept doing this for 6 months. My dad got sick of it and said she had to prescribe me a scan and echo. She did and I went to get them en got called home from school that day, i needed to be admitted to the hospital bc my galbladder was full with stones. Sadly this was not the end my liver stats were verry high a month after my galbladder got removed. And doctors were brushing this off again! I was a healthy, sporty 16 year old at that time. I got more and more sick over time, when I was 17 they dicided to do a biopsy, they misdiagnosed me then. When I was 18 they did one again bc the meds were not working. By the age of 20 I had a right diagnose but it was all a little late bc my body already payed the toll. I have and auto-immune Hepatitis its treatable with meds and stuff when found and diagnosed on time. Now I have a lot of other health problems bc of it. If this all would happened now I would deff files complaints now I’m older! So u go girl, wishing u all the best!
Hou je sterk Romee! En je kan dit!!
Oh Romee, how difficult it must have been for you!!! Looking forward to the pet scan results plus everything else!. I love the way you explain things, I just love listening to you... You are helping me in ways you can't even imagine....
I am proud of you for speaking up. I am the same way. I don’t normally speak up. I’ve had issues with doctors and hospitals one after another. They don’t listen. They always think they know better. When you know your body the best.
Good for you for standing up, it's you who knows your body better than any "experts" good Dr's will listen and work with you, praying for your journey stay positive and strong, God bless.
So sorry you went through that my friend but I'm so glad you are standing up for yourself and I hope you are doing well from surgery. Sending prayers my friend God bless
Awe girl, so sorry for what you went through, but very proud of how you are handling it! Be blessed 💜💜💜
Romee, I think it so important that you speak up for yourself as you are fighting the most important battle ever - cancer. You need to keep asking why, how, when and and most importantly of all ask them to listen. My brother had brain cancer and I feel they did not always listen to him. It's hard when you feel so weak to keep strong. Sen56ding you a big hug and positive thoughts 💓
You go girl!!!!! Stand up and advocate for yourself! 💜💜💜💜💜 I never used to...but I learned to do it.
Thank you for being brave enough to share your experience with us. I wish this had not happened to you but, I am glad you are bringing awareness to this issue and standing up for yourself. It is a real problem that happens way too much when the patient isn't listened too and it goes down from there.
Same thing happened with me with my CT scan. I skipped counting after thirty tries. The managed to trash the tiny little veins I had left. I got them back by vomiting over them and fainting. I have no viable veins left. I understand your pain. Hugs
so nice to see you back hope everything goes good for you in your tests in the hospital a bit of good news is well over duex