Treatment for Myxoid Liposarcoma | Laini's story

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  • เผยแพร่เมื่อ 17 พ.ย. 2024

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  • @sprout3215
    @sprout3215 4 ปีที่แล้ว +22

    My father passed away in July of 2019 from Myxoid Liposarcoma that originated in his leg and ended up spreading into his spine and bones. He was my best friend and the best father, he even allowed the hospital to use his tissue and medical information for studying this type of cancer in hopes to improve treatment and maybe even a cure one day.
    Love you dad, miss you so much.

  • @egunami
    @egunami 3 ปีที่แล้ว +8

    I was diagnosed with myxoid liposarcoma in my right pelvic region and thigh. I had the same surgery you had. It hasn't reoccurred, but I still don't have feeling in my right thigh. You are an amazing young woman, keep going strong survivor, and I will too.

    • @Crypto_ki_duniya1-j8v
      @Crypto_ki_duniya1-j8v ปีที่แล้ว +1

      How are you mam

    • @angelaa8285
      @angelaa8285 7 หลายเดือนก่อน

      How are u doing now? I have a lump being biopsied next week, it’s in my right grown/inner thigh area and I get pain in the back of my thigh. I’m really worried.

  • @bishakss
    @bishakss 4 ปีที่แล้ว +9

    I had myxoid lyposarcoma in my right leg when I was 12. I went under surgery when I was 13 and it reoccurred when I was 16. So then again I had to undergo a surgery when I was 16 and had to cut out my major artery and replace it with vein. I used to be very athletic but I’m not anymore because the second surgery made my leg very weak. I find this story really inspiring! And I pray for everyone who’s going through this phase.

    • @thevilkids
      @thevilkids 4 ปีที่แล้ว

      How are you now ? 🙏🏻🙏🏻🙏🏻

    • @Ninza2fact
      @Ninza2fact ปีที่แล้ว

      How are you bro

  • @pretendingGodess
    @pretendingGodess 4 ปีที่แล้ว +12

    Stay strong, I had liposarcoma too. Mine was in my abdomen and my 1st one was 30lbs, 2nd surgery this year and it was 15lbs.

    • @ezout1996
      @ezout1996 4 ปีที่แล้ว +2

      I pray for you I just found my husband has it and didn’t know nothing about this cancer trying to learn

    • @AshishKumar-kv4hr
      @AshishKumar-kv4hr ปีที่แล้ว +1

      It keeps coming back? Anyway to prevent that?

    • @AshishKumar-kv4hr
      @AshishKumar-kv4hr ปีที่แล้ว +1

      And how are you now?

    • @Crypto_ki_duniya1-j8v
      @Crypto_ki_duniya1-j8v ปีที่แล้ว +1

      How are you

    • @Ninza2fact
      @Ninza2fact ปีที่แล้ว

      ​@@AshishKumar-kv4hrhow are you bro

  • @shirinsadeghi5567
    @shirinsadeghi5567 ปีที่แล้ว

    I’ve just been diagnosed with myxoid liposarcoma in my left thigh and it’s been really frightening journey so far. I’m waiting to get a surgery date, but I just wanted to thank you for sharing your journey and this video. It gave me a lot of hope and positivity that I needed to hear.

  • @souyang1
    @souyang1 3 ปีที่แล้ว +1

    Thank you for sharing your experience! I was just diagnosed with grade 2 Myxofibrosarcoma 3 days ago. I never heard of this cancer before. I have learned so much about sarcoma from google and youtube within last 3 days.

    • @fw6942
      @fw6942 2 ปีที่แล้ว

      Hi souyang, I just received the result I got liposarcoma last week, I still have no idea what I can do, how about your right now?

    • @Ninza2fact
      @Ninza2fact ปีที่แล้ว

      @@fw6942 how are you

    • @Ninza2fact
      @Ninza2fact ปีที่แล้ว

      How are you bro

    • @Crypto_ki_duniya1-j8v
      @Crypto_ki_duniya1-j8v ปีที่แล้ว

      ​@@fw6942how are you bro

  • @heatherstub
    @heatherstub 5 ปีที่แล้ว +1

    way to go, Mom! And you both are so much better off for what you did together. I wish you both well, because you went through it together. Laini, you're a cancer conquerer! I went through it with three all at once, and I had two Basal Cell and a Squamous Cell Carcinoma. The Basal Cell carcinomas were removed with no other treatment needed, but the Squamous Cell Carcinoma was already itchy and bloody and watery, so I asked them to not even wait after they removed it to perform radiation which I knew would cause some side effects, but I didn't want even one cell to remain after they operated on my nose. Thank God the insurance covered both, and I did suffer through eleven months of side effects from the radiation. I used alternative therapy with heavy doses of Vitamin C which helped even more, and that was back in 1988. I'm still cancer free, and I pray that I'll remain free of it for the remainder of my life. God's Will be done.

  • @pattyiwamoto7163
    @pattyiwamoto7163 4 หลายเดือนก่อน

    My son’s best friend has this type. They told us it had already spread. He was only 19. He is now 20 and was given 3-4 months. His ended up being very aggressive. He has had multiple types of chemo and radiation. We need more research on this type.

  • @TriggerRidesEverything
    @TriggerRidesEverything 9 หลายเดือนก่อน

    Diagnosed with Liposarcoma (Myxoid round cell) last year after surgery to remove what was originally thought to be an epididymis cyst.
    I'm doing fine , remaining optimistic and upbeat enjoying life.
    No obvious signs of metastasis and in good hands with Royal Marsden.

  • @lukenachos2096
    @lukenachos2096 4 ปีที่แล้ว +4

    Just got diagnosed with myxoid liposarcoma 6 weeks ago. 9.8 cm high grade. Just got my ct. tomorrow is mris

    • @zozansinde9610
      @zozansinde9610 4 ปีที่แล้ว

      What kind off tast to do to find out if I have it

    • @darkl3ad3r
      @darkl3ad3r ปีที่แล้ว

      How are you doing today, Luke? Hope you are well my friend.

    • @Crypto_ki_duniya1-j8v
      @Crypto_ki_duniya1-j8v ปีที่แล้ว

      @@darkl3ad3r how are you dear

  • @skyqueen2035
    @skyqueen2035 5 ปีที่แล้ว +7

    I hope you stay strong for ever, I wish you the best of luck and the best in life 💞💪

  • @mogotecoyote
    @mogotecoyote ปีที่แล้ว

    Diagnosed with liposarcoma in right retroperitoneal region. Had surgery, recovering now. Now I just wait for a CT scan to establish baseline.

  • @madelyndennis371
    @madelyndennis371 5 ปีที่แล้ว +4

    One of my favorite videos for sure keep going

  • @hirakpatel612
    @hirakpatel612 ปีที่แล้ว +1

    My father has the tumor removed from abdomen couple of days ago and it was 1.7kg. The round cells are

    • @darkl3ad3r
      @darkl3ad3r ปีที่แล้ว

      Much love to you and your father. I hope all is still well with him 6 months on.

    • @Crypto_ki_duniya1-j8v
      @Crypto_ki_duniya1-j8v ปีที่แล้ว

      How are your father now

  • @raoulngokaba1704
    @raoulngokaba1704 7 หลายเดือนก่อน

    Je voudrais savoir si après une opération, on pourra guérir de Lyposarcome myxoide ?

  • @samibeachboysandfullhousef8765
    @samibeachboysandfullhousef8765 2 ปีที่แล้ว

    My dad is diagnosed with prostate cancer 😔 😟

  • @veronicag2302
    @veronicag2302 2 ปีที่แล้ว +1

    Yo también tuve liposarcoma mixoide. Me gustaría encontrar a alguien con mi misma enfermedad ya curada para compartir la experiencia. Pero no encuentro o no se dónde buscar a alguien que hable español. Soy española
    Gracias por vuestra atención 🙏

    • @enriquegonzalez4856
      @enriquegonzalez4856 2 ปีที่แล้ว

      A mí me acaban de quitar un liposarcoma mixoide en muslo derecho y estoy asustado

    • @AshishKumar-kv4hr
      @AshishKumar-kv4hr ปีที่แล้ว

      @@enriquegonzalez4856 how have you been ?

    • @Ninza2fact
      @Ninza2fact ปีที่แล้ว

      ​@@AshishKumar-kv4hrhello bhai how are you

    • @AshishKumar-kv4hr
      @AshishKumar-kv4hr ปีที่แล้ว

      @@Ninza2fact I'm good

    • @Crypto_ki_duniya1-j8v
      @Crypto_ki_duniya1-j8v ปีที่แล้ว

      ​@@AshishKumar-kv4hrwhich type cancer you have bro