Synovial sarcoma: Encouraging others to trust their instincts
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- เผยแพร่เมื่อ 5 ม.ค. 2022
- Jo Georgiou was diagnosed with synovial sarcoma in 2021 after finding a lump on her leg in 2016.
In order to get rid of the cancer, the 31-year-old from north London now has to have her leg amputated.
Jo wants her story to inspire others to trust their instinct and push for care. She said: "I always feel like, if in your gut you know something is wrong with your body, something is wrong."
Soft tissue sarcomas make up 1% of all cancers. Synovial is one of the rarest subtypes of soft tissue sarcoma - making up about 0.02% of the soft tissue sarcomas diagnosed in England. About 80 people a year are diagnosed with synovial sarcoma in England.
Source: Sarcoma UK
Video by Gem O'Reilly and Nicola Ford
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Continuing to pray for all sarcoma patients. My poor wife is battling stage 4 epithelioid Sarcoma. Please pray for us all.
How is your wife now
@Gareeb_B_S_vlogs my beautiful wife has past away at age 43 5/14/23 miss her so much.
@@rockk973 ohh my god sorry to hear
@@rockk973 bro you from ??
@@rockk973 my sister also battling myxoid liposarcoma
rest in peace, Jo. A loved one in my life has this cancer. Hoping for a lot more support towards this illness.
I hope Jo Georgiou and everyone battling sarcoma is doing alright!!
I am so sorry you're going through this, Jo. I have never heard of this type of cancer and you have done a very brave and important thing by raising awareness. Wishing you everything of the best as you go through treatment and surgery, and a positive outcome for your life ahead.
Your amazing never forget that from one sarcoma warrior to another. We are strong 💪 and we chose life just like you said. I am so blessed to have seen this video. Thankyou for being brave and sharing your story ❤ and hugs x
What a brave young lady and such an inspiration.
Omg how brave to share such pain you are going through what a brave beautiful woman you are under all what you have gone through ❤️ so many medical people get it wrong xxxx
Oh Jo... Keep strong and continue to be amazing. My best wishes are all yours!
✌️💚👊
Wow, holding space for you.
All of us who face this or the possibility.
Synovial sarcoma is often misdiagnosed. Because of this,
I especially appreciate you sharing your experience, your process and awakening instincts.
Thank you for inviting all of us to acknowledge our own awareness in healthcare.
I am in the process of an unusual diagnosis currently.
Not the first.
I find the beauty each day, includingin amazing people like you.
Authentic, candid, compassionate and aware supporting everyone in this holistic practice.
Wishing you the best of luck in surgery and in treatment.
You are strong Goddess.
Thank you so much for sharing your story.
Please keep us posted.
Bright blessings
Luna
What a lovely young lady. Wishing you the best out of this
All the best, you are a brave soul! God bless.
I can't afford to go private and the doctors keep dismissing me
Keep going to the hospital....i had an experience where they said i was healthy. I was dying of Endometriosis & Sepsis. Doctors would have let me die. ❤💜
That’s socialized medici r for you
Thats so scary thanks for making us aware of synovial sarcoma. Wishing you all the best.
Wishing you the best
I have this in my ankle. Just found out last week. I'm older and Drs thought it was fluid. It started to hurt when i walk so i went to an orthopedic. After x ray, an MRI,then another MRI with contrast, i was preferred to an orthopedic oncologist. Haven't got an appointment yet. They are suppose to call me. So in the mean time i did make an appointment with an oncologist near by. The orthopedic oncologist is 120 miles from my home. I will go if i have to. But I'm hoping i can get treatment closer to home. My lump is large,but nothing compared to hers. But mine is in a compact area. I was told it's slow growing so you can have it many years before it starts to csuse you trouble. I myself thought it was just my age. I understand it's a rare cancer an is usually found in younger adults. I'm seventy,an it it has spread, i just don't know if my tired body can handle all the chemo and radiation. An if that won't do me in also. A lot to think about in the coming weeks.😢
God bless you❤ I just had a Lipocoma removed from my inner thigh today and I’m researching liposarcoma. My doctor brushed it off and I had to be very aggressive to get it seen and removed. Researching liposarcoma with the hopes that I won’t have to say that word in real life.
I was also diagnosed with synovial sarcoma. I was lucky that my leg could be saved. My tumor was 10 cm big. Good to hear your tumour could be operated as well.
May I ask what line of treatment you followed?
@@melissasandoval7975 mine was 4.5cm on my left waist. did 5 weeks of radiation. 1.5 month later., removal of tumor + skin graft surgery. 5 days bedrest, total 9 days in hospital. still recovering
What tests did they do that diagnosed you? I have a growing bone lump that didn’t show a lesion on a CT.
@@ps2elfaree you ohkkk now?
@@flyhigh6452 im still alive. my wound is healing up. i have ct and xray scans in october
How disturbing is this story for patients without private health insurance. The sicker you the less likely you are able to afford it as in my case.
I had to call an ambulance last week in Australia where I now live and had to wait for a nurse call back to assess if I was critical enough to warrant an ambulance and that they'd send to A&E by taxi instead. Then she asked me another raft of questions to ascertain if I was well enough to go by taxi. WTF!
Having only been out of hospital for a week with a very low hemoglobin level, living with just my wee dog, my sister overseas, my brother way up north I felt so lonely, desperate, sad and very breathless, but I was not short of breath enough to warrant an ambulance but almost too sick to take a taxi. I was more worried about my dog being looked after as all his support systems were away as well. As usual A&E was a nightmare! I wasn't seen by a doctor for over six hours!
I hope your surgery went well. You have an amazing attitude with great support, which is a blessing. I wish you well.
I have had problem and everyone just shrugged me off. I just went to a new Podiatrist and I have a large tumor in my left ankle and smaller one in right ankle now going for MRI when I can get it scheduled. Took me 6 months to get an appointment with the podiatrist. Your right you know your body and doctors should listen. Seems they are called practicing physicians cause they are practicing on me 😢
❤❤❤my daughter is going through this right now....
I have a painful lump on my shin bone. I just got over nasopharyngeal cancer little over a year ago. And this been recently I notice this lump. Not painful at first and painful when I walk. I hate to get this checked out.
I'm truly sorry my friend - it is really terrible.
At least in the UK you don’t have to worry about a medical bill. The bad part is socialized medicine can delay a diagnosis and treatment.
This is so sad. I hate cancer.
I have tumors on my sides/ribs, abdomen and some on my legs. Been told it's lipomas but it's hard to trust that, I've been getting worse and this just scares the living day lights out of me.
❤
I also have lumb on my thighs. I found it in 2015 . I went to see doctor and he told me that it's not that serious if you want we can operate it and if you don't want it's ok but maybe it will become something serious in my future. He also said that it's not a cancer. After hearing about surcoma cancer I'm in doubt. I don't know what to do. I love to dance . Dance is my soul. That is the only thing that keeps me worried
may i know what is the size of your lump and also, does it hurt? cos i have mine also :(
@@bryandelariva3531 The size is quite big and i have pain sometimes
UK “health care”. How do you like socialized medicine now? Prayers and all the best to you.
I had the exact same problems she had, and I live in the U.S. and pay for my health insurance. I've been complaining for many years about pain in my body and leg. I was told it was all in my head and then tossed from Doctor to Doctor. I finally found someone who believed me a few months ago and sent me to the correct doctors. They did an MRI and found a large mass in my leg. I still have to wait until the end of June to see the orthopedic oncologist for more testing. I also have a lot of other stuff going on that if I had gotten proper medical care sooner, it wouldn't be as bad now. I ended up having to have a hysterectomy and might need reconstruction of my large bowels all because none of my doctors believed me about the pain in my stomach. It should have been treated long before I needed the hysterectomy. My husband and I pay out our asses for health insurance and co pays and medications. At this point, we're about ready to get divorced so I can get on medicaid. It's so expensive. I'm hearing these same complaints from other patients I've talked to. And the wait time to get in to see a specialist is months.
You're so lovely ı hope you're gonna get over
Her story starts off like mine but I’m still doing chemo
How are you now?
She passed
@@Nfjfjfjfnffjjfjffjwhy
@@Ambuj_kumar08 the cancer killed her. she had a gofundme and that was the last update from her mother.
@@Nfjfjfjfnffjjfjffj which stage cancer dear
Update please!❤
She passed
@@Nfjfjfjfnffjjfjffjaw😢
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She's a babe ...
She was. She didn’t make it.
Was this a fake news or propaganda made in BBC 😅
And the winner for the most stupid comment is....