A very refreshing non emotional take on managing end of life complications and decisions, how to construct a bucket list that satisfies that take it to the limit need; a couple of laps around the Nurburgring with Misha Charoudin might hasten it but with a smile.
It’s amazing how everyone thinks they know what’s going to help with your health situation, when they have no firsthand knowledge or medical expertise. I think they mean to be caring and helpful, but it mostly comes off as patronizing.
@@ericreither3666 there are so many well intended efforts by folks around me, but for someone like me who independently isolates to heal and cope, it def doesn't make things better, but i have to remember it's not easy for them either.
A very refreshing non emotional take on managing end of life complications and decisions, how to construct a bucket list that satisfies that take it to the limit need; a couple of laps around the Nurburgring with Misha Charoudin might hasten it but with a smile.
Well said. People say I'm morbid. LOL I'm just being real. Live life. After 30 years of being told "any time now" I'm prepared. I do the things I want and can do. It's just life. No one gets out alive. Nothing to be scared of.
thanks bro, and you're right. when you get the death sentence, it's just being pragmatic and let's us life a little fuller than others. deer i fear, death is just 1 last breath.
I’ve said it before and I’ll say it again - these videos are just so amazing. Like a master class. Thank you so much for sharing. My husband and I enjoy them IMMENSELY. Him - 11/2023 MVR Me - 8/2023 Double Mastectomy
Love your outlook and approach towards everything, brother! Hopefully I'll be rewatching these for decades after you're pushing daisies! You have no idea what a help you've been the last couple years ❤ 🤘
Appreciate it man, and really glad my experiences have been helpful to you going through your challenges. Much like yoda, i'll go stronger with the force (youtube channel) after i'm gone lol.
I love watching your videos, they are very interesting and helpful. Your very brave and it's very sad what you are going through right now. I wish you all the best.
much appreciate the words. i see it as just acceptance of facts and doing my best to accomodate them. No need to be sad. I caused the issue, i accept that, and it provides me an appreciation for life most ppl never realize until it's too late, and i feel very fortunate for that gift.
hell yeah, took a 'spirited pace' ride on the aprilia up the back roads to austin today that felt awesome, and better yet, no pissing blood even for a change!
i did, but the second valve is already tearing apart from the scar tissue around it, the heart is severely dialated, and the heart is in congestive failure. there are early videos with more detail, but that's the basics.
i've been assembling the script but haven't filmed it yet. I'll have it in the private part of youtube and my sisters will have directions to publish it upon my demise as well as they can use it to show at my service.
so far i've been told know. most transplant patients get so bad that they lay in the hospital for 2-3 months on a device waiting for a heart. For one, i'm not that bad yet to need that, but second, i've been opened up 3 times already and was told by multiple doctors that i'd be too high risk to open up for a transplant. reality is that the valve will continue to break away from the surrounding scar tissue and most likely one of those events will cause catastrophic failure.
A very refreshing non emotional take on managing end of life complications and decisions, how to construct a bucket list that satisfies that take it to the limit need; a couple of laps around the Nurburgring with Misha Charoudin might hasten it but with a smile.
putting the emotions aside makes this all so much easier to manage, but easier said than done for most. if i could make it happen, i'd love to do a few laps around the ring, but air travel may not be an option again. i'm pretty happy ripping through the Texas hill country though :)
My experience and approach after being told I'm terminal.
A very refreshing non emotional take on managing end of life complications and decisions, how to construct a bucket list that satisfies that take it to the limit need; a couple of laps around the Nurburgring with Misha Charoudin might hasten it but with a smile.
It’s amazing how everyone thinks they know what’s going to help with your health situation, when they have no firsthand knowledge or medical expertise. I think they mean to be caring and helpful, but it mostly comes off as patronizing.
@@ericreither3666 there are so many well intended efforts by folks around me, but for someone like me who independently isolates to heal and cope, it def doesn't make things better, but i have to remember it's not easy for them either.
A very refreshing non emotional take on managing end of life complications and decisions, how to construct a bucket list that satisfies that take it to the limit need; a couple of laps around the Nurburgring with Misha Charoudin might hasten it but with a smile.
Well said. People say I'm morbid. LOL I'm just being real. Live life. After 30 years of being told "any time now" I'm prepared. I do the things I want and can do. It's just life. No one gets out alive. Nothing to be scared of.
thanks bro, and you're right. when you get the death sentence, it's just being pragmatic and let's us life a little fuller than others. deer i fear, death is just 1 last breath.
I’ve said it before and I’ll say it again - these videos are just so amazing.
Like a master class.
Thank you so much for sharing. My husband and I enjoy them IMMENSELY.
Him - 11/2023 MVR
Me - 8/2023 Double Mastectomy
Thank you so much for the kind words. It gives my situation purpose in helping others. A happy healthy 2025 to you and the hubby!
Love your outlook and approach towards everything, brother! Hopefully I'll be rewatching these for decades after you're pushing daisies! You have no idea what a help you've been the last couple years ❤ 🤘
Appreciate it man, and really glad my experiences have been helpful to you going through your challenges. Much like yoda, i'll go stronger with the force (youtube channel) after i'm gone lol.
Thank you for taking the time to share. I find your advice very helpful.
thanks for watching and glad it's helpful.
I love watching your videos, they are very interesting and helpful. Your very brave and it's very sad what you are going through right now. I wish you all the best.
much appreciate the words. i see it as just acceptance of facts and doing my best to accomodate them. No need to be sad. I caused the issue, i accept that, and it provides me an appreciation for life most ppl never realize until it's too late, and i feel very fortunate for that gift.
Super insightful!
much appreciated and happy you enjoyed it.
Still riding motorcycles. Hell yeah!
hell yeah, took a 'spirited pace' ride on the aprilia up the back roads to austin today that felt awesome, and better yet, no pissing blood even for a change!
what exactly was the reason for terminal diagnosis? dint you have valve replacement?
i did, but the second valve is already tearing apart from the scar tissue around it, the heart is severely dialated, and the heart is in congestive failure. there are early videos with more detail, but that's the basics.
I’m curious….. Have you made a post death video….?
i've been assembling the script but haven't filmed it yet. I'll have it in the private part of youtube and my sisters will have directions to publish it upon my demise as well as they can use it to show at my service.
Is it not possible yor you to get a heart transplant?
so far i've been told know. most transplant patients get so bad that they lay in the hospital for 2-3 months on a device waiting for a heart. For one, i'm not that bad yet to need that, but second, i've been opened up 3 times already and was told by multiple doctors that i'd be too high risk to open up for a transplant. reality is that the valve will continue to break away from the surrounding scar tissue and most likely one of those events will cause catastrophic failure.
A very refreshing non emotional take on managing end of life complications and decisions, how to construct a bucket list that satisfies that take it to the limit need; a couple of laps around the Nurburgring with Misha Charoudin might hasten it but with a smile.
putting the emotions aside makes this all so much easier to manage, but easier said than done for most. if i could make it happen, i'd love to do a few laps around the ring, but air travel may not be an option again. i'm pretty happy ripping through the Texas hill country though :)