I am an autistic(rather Asperger’s) 13 year old and I used to be in a school where it had a very bad problem with tantrums and meltdowns(which are unfortunately my main triggers, since I’m sensitive to noise) and I remember that one time when 2 tantrums happened at the same time in my class and apparently they were so bad I ended up getting a meltdown, the teacher guided me to a room where I would usually go to calm myself down and I had stuff which I like, so I got the help I needed:)
She is so incredible comprehensive and sweet for her autistic children, should be more parents, teachers, caregivers and educators be like this, this should be so wonderfull. I'm on the spectrum and I also have Nld (non verbal learning disorder)
I have mild autism and since this video is about meltdowns, I might as well talk about my meltdown experience. So when I was 11 years old, A Tv channel was showing reruns of Full House at 5PM on weekdays and I would watch it everyday even after I had seen every episode. After Full House was over, the next show would be Growing Pains, I didn't usually watch it as it would be dinner time by the time Full House was over. So I became obsessed with the growing pains theme song and I felt like I always had to watch it. It had become a routine for me. One time I was at an Aunt and Uncle's house for a swim, and while I was there, I watched Full House, I was able to watch the whole episode. Then during the commercial break before growing pains, it was time to go home and my parents were not going to wait for the theme song to play, so I was forced to miss it, then I cried. My routine was pretty much disrupted which was causing me distress. My parents thought I was just crying over not getting what I want which in way I was, but I did not like missing a part of my routine. My parents did tell me I can watch it when I got home, I did have ways of watching it at home like I had it on a video cassette, or I did have the DVD set of Full House Season 1 which came with a bonus disk that features an episode of Growing Pains and Step By Step. Even though I was able to watch the theme song at home, I was still upset because like I said, my routine was disrupted. I only recently realized that it was a meltdown and my parents definitely did not give the right response, I'm not mad at them and it was a long time ago but I will be likely to bring it up when I go to an autism specialist. I am actually seeing the specialist about something else relating to my autism but I can talk about more than one thing.
I take a calm down backpack to work everyday. I have fidget/sensory toys, earplugs, sunglasses, cold water, a small stuffed animal and those mini mess free coloring books designed for kids. It's important to be prepared because people don't understand a sensory meltdown.
Hi Holly! My 3 year old son have diagnosed with autism spectrum. It was hard for me to know how I should do to help him, but luckily I’ve discovered your channel which really helps a lot for me to understand what my son needs. Your channel is really inspiring and helpful, please keep up the good content ❤ Love from Hong Kong 🇭🇰
In addition to not saying “I know what you are going through!” other phrases to avoid in this situation are “Get over it!”, “Grow up!” and “Don’t be such a baby!”. I know it’s common sense, but I have both been on the receiving end of these during autism meltdowns when I was growing up and I have seen other people on the spectrum in the same situation being told these things.
I have a 3-year-old boy and I suspect he has autism. We’re hoping to have him evaluated later this year. He had a major meltdown last night in a public place for the first time (his meltdowns usually happen at home). This video came into my feed at just the right time, as last night left me feeling very hopeless for how to help my son. Thank you for sharing these insights and helping someone like me who knows very little about ASD. You’ve got a new subscriber!
So happy to hear that you found the video helpful. This is the very reason we choose to share our life online. Your comment got me emotional. Please feel free to share what kind of videos you'd like us to make.
@@7Aheadfamily I’m sincerely thankful that you put yourself out there. I recognize that having your family on the internet can be challenging in a lot of ways, but it’s so nice to feel a bit of solidarity with someone who’s walking a similar path. This may be a bit niche for your audience, but I would LOVE a video on how you disciple your children with autism. I watched your video on the miracle God performed for Ezra. It sounds like you’re a fellow believer. I often worry about how I can best reach my son with the gospel if he struggles with communication. I’d love your insight, even if it’s just a comment. Thank you!!
That is a great question. It is often a challenge to share our beliefs with kids, but we sing songs to them, pray with them at night and over every meal. in the prayers at night we talk a lot about them, asking for God to help them in things that we know are important to them. We use books and pictures to teach Bible stories, and we also made a video here about going to church. It has been difficult, but we share our story in this video. th-cam.com/video/hERTYB-_jkg/w-d-xo.html
I'm so glad you made this video, it touched me deeply❤This is a topic that needs to be continued to be talked about and everything cannot possibly be covered in one video, but you cover many important points and give great advice. I feel like you are giving a voice to autistic people who may not be able to tell people this. Meltdowns are still the most misunderstood part of autism in my opinion, and believe me I would love to never have another meltdown ever again but, unfortunately it is not in my control and it is one of the most painful experiences ever. It is important people understand that we are in pain during meltdowns and we feel bad and vulnerable afterwards just like you described. I love that you end by saying we need to be met with unconditional love when the meltdown is over, no matter how many meltdowns we have or how bad they are, that unconditonal love and security means everything to us❤ All that said, would you be able to make a similar video discussing autistic shutdowns (Triggers and What To Do) and how they differ from meltdowns? I'm not sure if Ezra or Simon are experiencing those, but they are a part of autism for me and for a lot of others of all ages. Just an idea!
One reason that neurotypical people sometimes find an autistic meltdown to be embarrassing/humiliating to be around is that it can occasionally trigger wetting accidents (or even messes) (that can look a lot like “on purposes”) in kids who are in the middle of potty training or sometimes even in kids who have been trained for months or sometimes even longer if it is a severe meltdown. From my experience and observations this is fairly rare (when looking at the percentage of meltdowns that can lead to this) but it definitely can happen.
When I tried to explain to a person that I know some time back that autism meltdowns are not a person’s choice I was told that unless the person is having a psychotic break that he or she is in full control of his or her actions. And even then that a person has free will and must have some level of control.
When my sister and I were growing up my parents made the mistake of not warning my sister or me about upcoming transitions. No one (not even our doctors) ever told them that this was necessary. Needless to say we both had a number of meltdowns that were virtually always labeled as “temper tantrums” and treated accordingly. That’s how it was for people on the spectrum (level one or level two in our cases) back in the 1980s.
Another don’t is “Don’t set someone who is on the spectrum off on purpose for one own entertainment.” Again, this is common sense but I have seen several examples over the years of people doing this. Luckily I was not on the receiving end of this one all that much (I have mostly seen it happen to other people) but nevertheless there were at least one or two occasions that I remember from my own experience (mostly before adulthood).
This sounds very manipulative. It didn’t even a cure to me to add this in the video because I didn’t think of it, but you are right, I bet there are bullies out there in the world who would try try to do this at school or on n the play ground. It’s also good for teachers to be aware of this .
@@7Aheadfamily That’s bad but it’s even worse if a teacher, a teacher’s aide or another adult does it. I actually saw more of that growing up than more traditional bullying but things might be different now.
My older brother used to set me off on purpose when we were kids. He thought that me hitting my head off the wall and sometimes the floor, was funny. I wasn't diagnosed until I was an adult, but still.
Something that I have in place with my specialists and that you could have in place with the teachers to is a "Active Prevention Plan" (direct translation from french so, might not be the correct words). Basically, it's a sheet of paper that gives my specialists signs that tell them in what emotional state I am (green, yellow, orange or red), it tells them who is part of my support system and their role (psychologist for non-autism related mental health, educator for autism, etc) and tells them what not to do when I'm in a meltdown/red/dissociation (also includes what not to do in general). It allows includes things that help me go from, for example, orange to yellow. So, for example, in the yellow section, it might say "stimming with his leg, hyper active, struggles to stay still, should encourage a calming podcast/youtube video, should encourage the 5-4-3-2-1 breathing exercise, etc", in the "what to avoid" section, it might say things like "Don't touch him, avoid loud sounds, give longer response time to questions, etc". This allows all of my specialists, no matter their expertise, to know how to best interact with me and who to contact if I need help with something. My psychoeducator is the one who put it in place for me and it's helped a lot. I have it posted at home to remind me what to do to help me calm down and I give a copy of it to all of my specialists.
That sounds like an amazing idea. It's close to an IEP but has even more ways to communicate needs and moods and needs that particular day and time. Thank you fro sharing.
The need to rotate between different sensory toys is a result of a psychological phenomenon called habituation. I remember that from the Psychology 101 course that I had Freshman year in college with the course title General Psychology.
My meltdowns are caused by certain changes, mood dysregulation, anxiety, transitions, frustration and sometimes a sensory overload. I’m mostly sensory seeking, so I don’t get sensory meltdowns very often. During meltdowns, I wail, shout out phrases and demands, bolt and hide, blurt out offensive words and sentences, start mild violence, property damage, and I’m kinda vindictive and verbally aggressive. On the inside: it’s hard to breathe, I’m overwhelmed or irritated, my stomach hurts, it feels like nobody likes me, I need to escape from people who won’t give me space, and whatever the triggers are, really get to me. The times I get sensory meltdowns is when my clothes are bothering me, the lights are too bright, the sounds are too loud, it’s too cold, and if I’m washing myself, the soap mixed with water gets in my eyes. Meltdowns suck for both the caregivers and the people experiencing them, but trust me autism caregivers, it’s much worse if you’re the one experiencing the meltdown. When I have a meltdown, it gets worse when people do punishment like safety protocols, tell me I need to calm down, yell at me, cover my mouth, reason with me about why I should calm down, tell me that I’m scaring others, forcing me to apologize, tell me something isn’t a big deal, tell me not to cry, not allowing me to move, take away a privilege, use corporal punishment or payback aggression, saying “I know you’re upset, but you can’t/have to _________”, calling me names, tell me to be quiet, stare at me and stuff like that. It takes me 30 minutes to two hours in order to calm down. What helps is letting me move in some way as stimming or fidgeting can ease the meltdown, playing some music, filtering out annoying sensory input. If my meltdowns are caused by change, finding a distraction or alternatives to the change helps! What districts me during an adjustment meltdown or frustration meltdowns are my favorite activities, deep pressure therapy, and if it’s allowed then eating and drinking my favorite foods and drinks. Autistic meltdowns during a frustrating situation doesn’t have to be because of communication issues, it could also be because of interception difficulties, caffeine and my favorite flavors of stuff can actually calm me down.
thank you for being willing to be so vulnerable by sharing this with us. I am sure your descriptions of your meltdowns and what helps you, will help many parents who find this channel. These are some really good ideas. Thank you.
My meltdowns are always very aggressive (mostly towards myself but I have kicked my parents at times) and every time, my mom just keeps saying "Oh that's no reason to cry! What's wrong?" and then just leaves me wherever I am. My dad makes fun of me and provokes me, or gets angry. That just makes things worse. During meltdowns I become unable to speak, when I was younger it was so bad I would fall to the floor and just scream and hit myself. Now it's gotten better because I can mostly notice that I'm getting overwhelmed, so I will go in my room and lie on my bed with my hands tucked under the pillow so I can't hit anything. I usually have stress related meltdowns over sensory ones, and when they happen they are very different. Stress related ones are usually more violent and loud, whereas sensory ones are definitely quieter and somewhat resemble a panic attack with a migraine. But they are still aggressive and all that. I haven't really found ways to calm down during sensory meltdowns, but for stress related ones I usually put on really loud music from my two favorite artists and just listen to the same song on loop for hours. It's difficult because my meltdowns can last anywhere from 30 minutes up to over 2 hours, I once nearly lost my voice because I screamed for hours. I wish my parents understood, but they really don't. And my therapist also thinks I could just control myself and all I need is to be ignored. Sorry this became long. I thought maybe if I shared, it could help someone else!
Thank you for this because I have my 5 yr old daughter who is level 3 autistic and non verbal. She's been pinching me and pushing me and I try to help her but her pinches and hair yanking really starts hurting me. I do walk away after half hour of pinches and hair pulling . I feel like I'm not doing anything helpful 😕
That is really difficult. I'm sorry. She may want to be left alone, if she is hurting you for that long of a time. Stay safe. Do you have a doctor you could ask advice from for your child? (Someone who has experience with Autistic kids?)
I have autistic meltdowns still at 34. To the point I bite my finger. Lack coordination and having no learning issues it is very frustrating knowing what to do and simply can't so I keep trying and like running and like an engine in mud where the tires spin the engine gets hot and blows very similar experience. Transitioning is difficult too for example I will take forever to get a swim suit and go to the beach but I also love it there and spend hours leaving is the same way a struggle but being home or there I enjoy it. Everything feels out of control and I feel like the world is moving at 100mph and I just can't keep up. My brother has his usually if he feels ignored. Listening to him he's usually good at joining in then. No 1 thing don't rationalize you will only make things worse.
I too bite my fingers, usually while driving. I'm thinking about getting a sensory steering wheel cover to see if that helps. I take a calm down bag to work and I don't go anywhere without at least one fidget toy.
In my case its one more thing, dont ask me how I feel because if I need to find words to describe it my brain will listen to my words and feel the anger, sadness etc even more. With me is the never ending trick to fool my brain to start thinking about anything else
Thanks for this video. Emmalina has been having alot of meltdowns this past week i dont know everything that has been setting her off. Im still figuring her out. Iwill say whenever anyone is in her face too much it seems to set her off like a day to 3 days later she pinches me and starts screaming. Sometimes i have to walk away after shutting tv and all lights so shes safe ans im not getting my hair pulled and pinched
On the subject of not telling people how to feel telling someone to “relax” or “calm down” virtually never works. By this point most people have probably heard that at least once. I’m not positive but I think that at some point Jerry Seinfeld mentioned something about that in his standup routine. If not, then it might have been in a Seinfeld episode.
it is a safety bed, www.rehabmart.com/product/haven-high-side-safety-bed-with-full-mesh-walls-47587.html?gclid=Cj0KCQjwiIOmBhDjARIsAP6YhSUCCD222Hs8NFtCly-5Rhj2B965f3e3GUk8iTMVnlb5wkbXoR7i4xwaAojoEALw_wcB
I havent been diagnosed with mild autism yet but me & my mom mainly dont have a good relationship when arguing with each other about topics / things we dont agree on ( Example - My mom says dont change the things i move in your bedroom & i say i like my room to look a certain way in my liking ) that then leads to a argument not ending well with me losing it having a huge sensory overload . These situations happened many times since 2017 i believe and only started to get worse in 2020 - now . My parents marrage isnt that great either because my dad cheated on my mom 12 years ago with another girl causing stress on my mom . Im only 17 almost 18 this November and my childhood was hard but thinking about all of those bad moments i tried to get the last word with my family members not just my mom & also other people in this world makes me question if i should get tested for ASD since i always struggled with social interaction & repetative interests . 7 ahead whats your honest advice ?
It never hurts to get an assessment for ASD. If you end up finding out that you are or that you aren't it's good to know. I am sorry for your family situation and that it's difficult.
They know that they are Autistic, cause we talk about it at our house as a normal thing, we don't shame them by hiding it or pretend that they don't have it. but I don't know if they each fully understand what Autism is yet. Simon has a lot of friends who all have Autism. So he most likely thinks it's what most people have.
i hate the way my teachers used to treat me in primery school i was kicked out 10 times from the same school and they was prity much larfing the bum of and didnt explain anything to other kids and it went to the point wherer i ended up sleeping in a feeld
One reason why some people that I know view this strategy as “rewarding bad behavior” is that some people do not believe that autism exists. That view is probably fairly common given that the Autism Family uploaded a video a number of years ago on their channel explaining why autism is real (not fake) scientifically speaking. They also uploaded a video about “autism vs. bratty behavior” some years ago. That’s important because some people confuse autistic meltdowns with temper tantrums and by extension they confuse autism with bratty behavior (or “Having a behavior problem” or “Having behavior problems” (with all that that implies)).
My meltdowns are bpd an d autism level 1 mrlt downs are reslly triggerdd whrn people you deal with in everyday livfe don't do there job right its bern a massive volcano erupting . I think its bpd autism i know more of ttiggers i know if ive really nrlted down ctied im mortified as i discover ive forgotten my meds cyou can guarantee it
How can we help Children with Autism how can we control Meltdowns Parents and The Teachers need to be supportive to our Children out there! Students can't always get in The Way how about Teenagers?
I just can't get one think - if you already have an autistic child ,why do you make more kids ? What will happen with them when you are no longer around or God forbid you are not capable of taking care of them ?
We love our autistic children, just as much as are non-autistic children. We believe that each one of our children has a special place and important place in our family. If we decide to get pregnant again and have another child, we don’t know if they will be autistic or not, but if they are, we will support them and love them just the same.❤️
@@7Aheadfamily , hi there. The unconditional love of a parent to a child despite autistic , with any other issue or healthy is undeniable. Of course every child that is made with love has it's special place in the family and brings joy. My question was in a different direction. And you understand that very well as you are intelligent parents. What happens with those children when they grow up , when there is no mom or dad to satisfy their needs and protect them !? I have seen so many of them , incapable to coop with the live on their own . From this perspective I asked you why ...
I love watching your videos and I am by no means trying to be disrespectful but the fact that you repeat the moving in the av part in every video makes me want to stop watching.. for the viewers that watch your videos regularly it can sound like we are we watching old videos. Or videos on repeat if that makes sense.
I am an autistic(rather Asperger’s) 13 year old and I used to be in a school where it had a very bad problem with tantrums and meltdowns(which are unfortunately my main triggers, since I’m sensitive to noise) and I remember that one time when 2 tantrums happened at the same time in my class and apparently they were so bad I ended up getting a meltdown, the teacher guided me to a room where I would usually go to calm myself down and I had stuff which I like, so I got the help I needed:)
I'm so happy that your teacher was able to help you and give you support.
She is so incredible comprehensive and sweet for her autistic children, should be more parents, teachers, caregivers and educators be like this, this should be so wonderfull. I'm on the spectrum and I also have Nld (non verbal learning disorder)
Thank you so much!
I have mild autism and since this video is about meltdowns, I might as well talk about my meltdown experience. So when I was 11 years old, A Tv channel was showing reruns of Full House at 5PM on weekdays and I would watch it everyday even after I had seen every episode. After Full House was over, the next show would be Growing Pains, I didn't usually watch it as it would be dinner time by the time Full House was over.
So I became obsessed with the growing pains theme song and I felt like I always had to watch it. It had become a routine for me. One time I was at an Aunt and Uncle's house for a swim, and while I was there, I watched Full House, I was able to watch the whole episode. Then during the commercial break before growing pains, it was time to go home and my parents were not going to wait for the theme song to play, so I was forced to miss it, then I cried. My routine was pretty much disrupted which was causing me distress. My parents thought I was just crying over not getting what I want which in way I was, but I did not like missing a part of my routine.
My parents did tell me I can watch it when I got home, I did have ways of watching it at home like I had it on a video cassette, or I did have the DVD set of Full House Season 1 which came with a bonus disk that features an episode of Growing Pains and Step By Step. Even though I was able to watch the theme song at home, I was still upset because like I said, my routine was disrupted. I only recently realized that it was a meltdown and my parents definitely did not give the right response, I'm not mad at them and it was a long time ago but I will be likely to bring it up when I go to an autism specialist. I am actually seeing the specialist about something else relating to my autism but I can talk about more than one thing.
Thank you for sharing with us about your experience. I remember watching all those shows as a kid too. -Holly
I take a calm down backpack to work everyday. I have fidget/sensory toys, earplugs, sunglasses, cold water, a small stuffed animal and those mini mess free coloring books designed for kids. It's important to be prepared because people don't understand a sensory meltdown.
Thank you for sharing! Those are some great things to have!💕💕
Hi Holly! My 3 year old son have diagnosed with autism spectrum. It was hard for me to know how I should do to help him, but luckily I’ve discovered your channel which really helps a lot for me to understand what my son needs.
Your channel is really inspiring and helpful, please keep up the good content ❤
Love from Hong Kong 🇭🇰
Thank you so much for watching and sharing. We’re glad we can help! ❤️
In addition to not saying “I know what you are going through!” other phrases to avoid in this situation are “Get over it!”, “Grow up!” and “Don’t be such a baby!”. I know it’s common sense, but I have both been on the receiving end of these during autism meltdowns when I was growing up and I have seen other people on the spectrum in the same situation being told these things.
Thank you for sharing this. Common sense isn’t very common, sometimes.
I have a 3-year-old boy and I suspect he has autism. We’re hoping to have him evaluated later this year. He had a major meltdown last night in a public place for the first time (his meltdowns usually happen at home). This video came into my feed at just the right time, as last night left me feeling very hopeless for how to help my son. Thank you for sharing these insights and helping someone like me who knows very little about ASD. You’ve got a new subscriber!
So happy to hear that you found the video helpful. This is the very reason we choose to share our life online. Your comment got me emotional. Please feel free to share what kind of videos you'd like us to make.
@@7Aheadfamily I’m sincerely thankful that you put yourself out there. I recognize that having your family on the internet can be challenging in a lot of ways, but it’s so nice to feel a bit of solidarity with someone who’s walking a similar path.
This may be a bit niche for your audience, but I would LOVE a video on how you disciple your children with autism. I watched your video on the miracle God performed for Ezra. It sounds like you’re a fellow believer. I often worry about how I can best reach my son with the gospel if he struggles with communication. I’d love your insight, even if it’s just a comment. Thank you!!
That is a great question. It is often a challenge to share our beliefs with kids, but we sing songs to them, pray with them at night and over every meal. in the prayers at night we talk a lot about them, asking for God to help them in things that we know are important to them. We use books and pictures to teach Bible stories, and we also made a video here about going to church. It has been difficult, but we share our story in this video. th-cam.com/video/hERTYB-_jkg/w-d-xo.html
I'm so glad you made this video, it touched me deeply❤This is a topic that needs to be continued to be talked about and everything cannot possibly be covered in one video, but you cover many important points and give great advice. I feel like you are giving a voice to autistic people who may not be able to tell people this. Meltdowns are still the most misunderstood part of autism in my opinion, and believe me I would love to never have another meltdown ever again but, unfortunately it is not in my control and it is one of the most painful experiences ever. It is important people understand that we are in pain during meltdowns and we feel bad and vulnerable afterwards just like you described. I love that you end by saying we need to be met with unconditional love when the meltdown is over, no matter how many meltdowns we have or how bad they are, that unconditonal love and security means everything to us❤
All that said, would you be able to make a similar video discussing autistic shutdowns (Triggers and What To Do) and how they differ from meltdowns? I'm not sure if Ezra or Simon are experiencing those, but they are a part of autism for me and for a lot of others of all ages. Just an idea!
Thank you for sharing! That is a great idea! We'll keep note of that!😉🩷🩷
One reason that neurotypical people sometimes find an autistic meltdown to be embarrassing/humiliating to be around is that it can occasionally trigger wetting accidents (or even messes) (that can look a lot like “on purposes”) in kids who are in the middle of potty training or sometimes even in kids who have been trained for months or sometimes even longer if it is a severe meltdown.
From my experience and observations this is fairly rare (when looking at the percentage of meltdowns that can lead to this) but it definitely can happen.
Good point. Thank you for sharing.
When I tried to explain to a person that I know some time back that autism meltdowns are not a person’s choice I was told that unless the person is having a psychotic break that he or she is in full control of his or her actions. And even then that a person has free will and must have some level of control.
Hmmmmm, has that person ever experienced an Autistic meltdown? If they haven’t, I think they shouldn’t be speaking for others. What do you think?
@@7Aheadfamily As far as I know this person is not autistic and has therefore never had an autistic meltdown.
hmmmm. Interesting.
When my sister and I were growing up my parents made the mistake of not warning my sister or me about upcoming transitions. No one (not even our doctors) ever told them that this was necessary.
Needless to say we both had a number of meltdowns that were virtually always labeled as “temper tantrums” and treated accordingly. That’s how it was for people on the spectrum (level one or level two in our cases) back in the 1980s.
Warning children about transitions is important even if you’re child’s not autistic
Another don’t is “Don’t set someone who is on the spectrum off on purpose for one own entertainment.”
Again, this is common sense but I have seen several examples over the years of people doing this. Luckily I was not on the receiving end of this one all that much (I have mostly seen it happen to other people) but nevertheless there were at least one or two occasions that I remember from my own experience (mostly before adulthood).
This sounds very manipulative. It didn’t even a cure to me to add this in the video because I didn’t think of it, but you are right, I bet there are bullies out there in the world who would try try to do this at school or on n the play ground. It’s also good for teachers to be aware of this .
@@7Aheadfamily That’s bad but it’s even worse if a teacher, a teacher’s aide or another adult does it.
I actually saw more of that growing up than more traditional bullying but things might be different now.
That is appalling.
My older brother used to set me off on purpose when we were kids. He thought that me hitting my head off the wall and sometimes the floor, was funny. I wasn't diagnosed until I was an adult, but still.
We are very sorry that you went through such a hard time❤️❤️
Something that I have in place with my specialists and that you could have in place with the teachers to is a "Active Prevention Plan" (direct translation from french so, might not be the correct words). Basically, it's a sheet of paper that gives my specialists signs that tell them in what emotional state I am (green, yellow, orange or red), it tells them who is part of my support system and their role (psychologist for non-autism related mental health, educator for autism, etc) and tells them what not to do when I'm in a meltdown/red/dissociation (also includes what not to do in general). It allows includes things that help me go from, for example, orange to yellow. So, for example, in the yellow section, it might say "stimming with his leg, hyper active, struggles to stay still, should encourage a calming podcast/youtube video, should encourage the 5-4-3-2-1 breathing exercise, etc", in the "what to avoid" section, it might say things like "Don't touch him, avoid loud sounds, give longer response time to questions, etc". This allows all of my specialists, no matter their expertise, to know how to best interact with me and who to contact if I need help with something. My psychoeducator is the one who put it in place for me and it's helped a lot. I have it posted at home to remind me what to do to help me calm down and I give a copy of it to all of my specialists.
That sounds like an amazing idea. It's close to an IEP but has even more ways to communicate needs and moods and needs that particular day and time. Thank you fro sharing.
This is an amazing idea
The need to rotate between different sensory toys is a result of a psychological phenomenon called habituation.
I remember that from the Psychology 101 course that I had Freshman year in college with the course title General Psychology.
Good to know. Sounds like you know your stuff. Thanks for sharing
This is exactly the video I needed! Thanks!
So glad it was helpful!😊😊
My meltdowns are caused by certain changes, mood dysregulation, anxiety, transitions, frustration and sometimes a sensory overload. I’m mostly sensory seeking, so I don’t get sensory meltdowns very often. During meltdowns, I wail, shout out phrases and demands, bolt and hide, blurt out offensive words and sentences, start mild violence, property damage, and I’m kinda vindictive and verbally aggressive. On the inside: it’s hard to breathe, I’m overwhelmed or irritated, my stomach hurts, it feels like nobody likes me, I need to escape from people who won’t give me space, and whatever the triggers are, really get to me. The times I get sensory meltdowns is when my clothes are bothering me, the lights are too bright, the sounds are too loud, it’s too cold, and if I’m washing myself, the soap mixed with water gets in my eyes. Meltdowns suck for both the caregivers and the people experiencing them, but trust me autism caregivers, it’s much worse if you’re the one experiencing the meltdown. When I have a meltdown, it gets worse when people do punishment like safety protocols, tell me I need to calm down, yell at me, cover my mouth, reason with me about why I should calm down, tell me that I’m scaring others, forcing me to apologize, tell me something isn’t a big deal, tell me not to cry, not allowing me to move, take away a privilege, use corporal punishment or payback aggression, saying “I know you’re upset, but you can’t/have to _________”, calling me names, tell me to be quiet, stare at me and stuff like that. It takes me 30 minutes to two hours in order to calm down. What helps is letting me move in some way as stimming or fidgeting can ease the meltdown, playing some music, filtering out annoying sensory input. If my meltdowns are caused by change, finding a distraction or alternatives to the change helps! What districts me during an adjustment meltdown or frustration meltdowns are my favorite activities, deep pressure therapy, and if it’s allowed then eating and drinking my favorite foods and drinks. Autistic meltdowns during a frustrating situation doesn’t have to be because of communication issues, it could also be because of interception difficulties, caffeine and my favorite flavors of stuff can actually calm me down.
thank you for being willing to be so vulnerable by sharing this with us. I am sure your descriptions of your meltdowns and what helps you, will help many parents who find this channel. These are some really good ideas. Thank you.
My meltdowns are always very aggressive (mostly towards myself but I have kicked my parents at times) and every time, my mom just keeps saying "Oh that's no reason to cry! What's wrong?" and then just leaves me wherever I am. My dad makes fun of me and provokes me, or gets angry. That just makes things worse.
During meltdowns I become unable to speak, when I was younger it was so bad I would fall to the floor and just scream and hit myself. Now it's gotten better because I can mostly notice that I'm getting overwhelmed, so I will go in my room and lie on my bed with my hands tucked under the pillow so I can't hit anything.
I usually have stress related meltdowns over sensory ones, and when they happen they are very different. Stress related ones are usually more violent and loud, whereas sensory ones are definitely quieter and somewhat resemble a panic attack with a migraine. But they are still aggressive and all that.
I haven't really found ways to calm down during sensory meltdowns, but for stress related ones I usually put on really loud music from my two favorite artists and just listen to the same song on loop for hours. It's difficult because my meltdowns can last anywhere from 30 minutes up to over 2 hours, I once nearly lost my voice because I screamed for hours.
I wish my parents understood, but they really don't. And my therapist also thinks I could just control myself and all I need is to be ignored. Sorry this became long. I thought maybe if I shared, it could help someone else!
This is very helpful to many parents and caregivers to hear your point of view. Thank you for choosing to explain what meltdowns are like for you.
Thank you for this because I have my 5 yr old daughter who is level 3 autistic and non verbal. She's been pinching me and pushing me and I try to help her but her pinches and hair yanking really starts hurting me. I do walk away after half hour of pinches and hair pulling . I feel like I'm not doing anything helpful 😕
That is really difficult. I'm sorry. She may want to be left alone, if she is hurting you for that long of a time. Stay safe. Do you have a doctor you could ask advice from for your child? (Someone who has experience with Autistic kids?)
When will the book be ready? I placed an order and asked that question through email, but i didn't get a response.
Sorry, just missed that email. Responding now. 😊 We’re hoping within a few months depending on how things go with publishers. Thanks for your support!
Thanks for the great ideas to help
You are so welcome!🩷🩵🩷
I have autistic meltdowns still at 34. To the point I bite my finger. Lack coordination and having no learning issues it is very frustrating knowing what to do and simply can't so I keep trying and like running and like an engine in mud where the tires spin the engine gets hot and blows very similar experience. Transitioning is difficult too for example I will take forever to get a swim suit and go to the beach but I also love it there and spend hours leaving is the same way a struggle but being home or there I enjoy it. Everything feels out of control and I feel like the world is moving at 100mph and I just can't keep up.
My brother has his usually if he feels ignored. Listening to him he's usually good at joining in then.
No 1 thing don't rationalize you will only make things worse.
Thank you for watching and commenting🩷🩷
I too bite my fingers, usually while driving. I'm thinking about getting a sensory steering wheel cover to see if that helps. I take a calm down bag to work and I don't go anywhere without at least one fidget toy.
In my case its one more thing, dont ask me how I feel because if I need to find words to describe it my brain will listen to my words and feel the anger, sadness etc even more. With me is the never ending trick to fool my brain to start thinking about anything else
Thank you for sharing💕💕
Thanks for this video. Emmalina has been having alot of meltdowns this past week i dont know everything that has been setting her off. Im still figuring her out. Iwill say whenever anyone is in her face too much it seems to set her off like a day to 3 days later she pinches me and starts screaming. Sometimes i have to walk away after shutting tv and all lights so shes safe ans im not getting my hair pulled and pinched
That is hard. I'm sorry she is having such a hard time. You got this! Do warnings help? Does she understand them?
@@7Aheadfamily she doesn't listen at that point. I do leave room she just comes at me
You could offer her a safe space to have a break, or maybe a toy could help.❤️
@@7Aheadfamily thank you 😊
Of course! Hope this helps!💕💕
On the subject of not telling people how to feel telling someone to “relax” or “calm down” virtually never works.
By this point most people have probably heard that at least once. I’m not positive but I think that at some point Jerry Seinfeld mentioned something about that in his standup routine. If not, then it might have been in a Seinfeld episode.
That sounds like something he would write an episode on.
i have a question about, I saw in the video that you have a special room for you son when he is having a meltdown, how you build that room i need one
it is a safety bed, www.rehabmart.com/product/haven-high-side-safety-bed-with-full-mesh-walls-47587.html?gclid=Cj0KCQjwiIOmBhDjARIsAP6YhSUCCD222Hs8NFtCly-5Rhj2B965f3e3GUk8iTMVnlb5wkbXoR7i4xwaAojoEALw_wcB
@@7Aheadfamily I'm talking about the room in the minute 49 and 50 of the video how you build this room
That room is not ours. It was an unfinished basement in our cousins house. 😊❤️
I havent been diagnosed with mild autism yet but me & my mom mainly dont have a good relationship when arguing with each other about topics / things we dont agree on ( Example - My mom says dont change the things i move in your bedroom & i say i like my room to look a certain way in my liking ) that then leads to a argument not ending well with me losing it having a huge sensory overload . These situations happened many times since 2017 i believe and only started to get worse in 2020 - now . My parents marrage isnt that great either because my dad cheated on my mom 12 years ago with another girl causing stress on my mom . Im only 17 almost 18 this November and my childhood was hard but thinking about all of those bad moments i tried to get the last word with my family members not just my mom & also other people in this world makes me question if i should get tested for ASD since i always struggled with social interaction & repetative interests . 7 ahead whats your honest advice ?
It never hurts to get an assessment for ASD. If you end up finding out that you are or that you aren't it's good to know. I am sorry for your family situation and that it's difficult.
@@7Aheadfamily Well I know anxiety is very common in Autistic people
True
Poor boy 😢you are a great mom
Thank you💕
My grandson is 30 months ,he was diagnosed with ASD April of this year.
Happy to have you here!
hi I have a question. Do Ezra and Simon know that they are autistic and what that means??
They know that they are Autistic, cause we talk about it at our house as a normal thing, we don't shame them by hiding it or pretend that they don't have it. but I don't know if they each fully understand what Autism is yet. Simon has a lot of friends who all have Autism. So he most likely thinks it's what most people have.
@@7Aheadfamily thanks, I’m happy that Simon has friends ❤
😊😊😊
Hi i have a question. Have u took any of youre kids to the dentist the autistic ones and if u have how did they react ?
Yes we take our kids to the dentist twice a year. Ezra and Simon both have very interesting experiences. You can see more about it in this video here…
2 Autistic Brothers' Trip to the Dentist
th-cam.com/video/lmXOJgx3wBU/w-d-xo.html
It's difficult because for me when I am in meltdown, I panicked and I can't hear anything.
We are very sorry that you go through that❤️❤️❤️
i hate the way my teachers used to treat me in primery school
i was kicked out 10 times from the same school and they was prity much larfing the bum of and didnt explain anything to other kids and it went to the point wherer i ended up sleeping in a feeld
We are so sorry that happened to you❤
One reason why some people that I know view this strategy as “rewarding bad behavior” is that some people do not believe that autism exists.
That view is probably fairly common given that the Autism Family uploaded a video a number of years ago on their channel explaining why autism is real (not fake) scientifically speaking. They also uploaded a video about “autism vs. bratty behavior” some years ago. That’s important because some people confuse autistic meltdowns with temper tantrums and by extension they confuse autism with bratty behavior (or “Having a behavior problem” or “Having behavior problems” (with all that that implies)).
That is a good point. 👍🏻
I am autistic and I do TH-cam videos too on cooking.
that's great!
It can be practical if you look after children who have accident put the in size 7 diaper
Thank you for your feedback😊
My meltdowns are bpd an d autism level 1 mrlt downs are reslly triggerdd whrn people you deal with in everyday livfe don't do there job right its bern a massive volcano erupting .
I think its bpd autism i know more of ttiggers i know if ive really nrlted down ctied im mortified as i discover ive forgotten my meds cyou can guarantee it
Thank you for watching and sharing!❤❤
How can we help Children with Autism how can we control Meltdowns Parents and The Teachers need to be supportive to our Children out there! Students can't always get in The Way how about Teenagers?
Not sure I'm following you❤
I just can't get one think - if you already have an autistic child ,why do you make more kids ? What will happen with them when you are no longer around or God forbid you are not capable of taking care of them ?
Mean and ignorant comment.
We love our autistic children, just as much as are non-autistic children. We believe that each one of our children has a special place and important place in our family. If we decide to get pregnant again and have another child, we don’t know if they will be autistic or not, but if they are, we will support them and love them just the same.❤️
@@7Aheadfamily , hi there. The unconditional love of a parent to a child despite autistic , with any other issue or healthy is undeniable. Of course every child that is made with love has it's special place in the family and brings joy. My question was in a different direction. And you understand that very well as you are intelligent parents. What happens with those children when they grow up , when there is no mom or dad to satisfy their needs and protect them !?
I have seen so many of them , incapable to coop with the live on their own . From this perspective I asked you why ...
I’m Autistic
Thank you for sharing! What country do you live in?
@@7Aheadfamily USA 🇺🇸
🩵🩷🩵
I love watching your videos and I am by no means trying to be disrespectful but the fact that you repeat the moving in the av part in every video makes me want to stop watching.. for the viewers that watch your videos regularly it can sound like we are we watching old videos. Or videos on repeat if that makes sense.
Very good feedback. Thank you for sharing. We will do better. :)
I suspect that Ellie Ava has ADHD
There are many people I love and who I am related to, who have ADHD.
I notice your haircut Holly, looks like you took off a few inches. I like it, do you cut your own hair??
Thank you, Great question! I do not cut my own hair😊🩵
So basically what you’re saying is. That when someone leaves he gets a little overwhelmed would Ezra do that
Ezra seems to like being alone, he often runs away. but Simon is the opposite. He is scared to be alone
@@7Aheadfamily does Simon help Ezra with things
Great question! Yes! He helps him all the time. He gets toys for him. He helps him get his food. He will get a drink for him. They are buddies.❤️❤️❤️
@@7Aheadfamily aww your kids are just so nice to help you
Thank you so much!🩷🩷🩷