Hello, I'm from Brazil, I also have this syndrome, in my country there are very few studies on the disease and treatments, I would like to know if there is any type of modern treatment in the USA?
Sir i am suffering by alport syndrome since childhood I am 19 now I had by kidney transplant 1.6 years ago Is there any medicine available for alports syndrome😢😢
For more information, please join us for the Virtual UCLA CORE Kidney Health Conference on March 21st, 2021 from 11am-12pm PST! This event is free, virtual, global, and open to the public. This conference is focused on bringing you the very latest research information about the management of kidney disease at UCLA Health. Topics include COVID-19 and its impact, treating diverse communities, home dialysis, donation, transplantation, patient stories and much more. Please register by visiting the UCLA CORE Kidney Program website!
thank you so much this was the best explanation I've ever come across for this disease.
Hello, I'm from Brazil, I also have this syndrome, in my country there are very few studies on the disease and treatments, I would like to know if there is any type of modern treatment in the USA?
very informative and explained in a vwry easy manner..thanku
Got it been transplant now 19 years doing well but yes I’ve got it all hearing loss and eye sight problems as well
I got this problem too
But my hearing loss is improving now from 62% to 53%
Did you wear lens or specs
Sir i am suffering by alport syndrome since childhood
I am 19 now
I had by kidney transplant 1.6 years ago
Is there any medicine available for alports syndrome😢😢
Thank you
I have alport i am 41, having 3 biopsy. This is interesting video. My gfr is now 19, can i little bit delay dialysis?
@2:06 says things become leaky and unstructured...does that mean things everywhere or just in the kidneys?
Wherever there is collagen. The inner ear and the retina.
Useful
For more information, please join us for the Virtual UCLA CORE Kidney Health Conference on March 21st, 2021 from 11am-12pm PST! This event is free, virtual, global, and open to the public.
This conference is focused on bringing you the very latest research information about the management of kidney disease at UCLA Health. Topics include COVID-19 and its impact, treating diverse communities, home dialysis, donation, transplantation, patient stories and much more.
Please register by visiting the UCLA CORE Kidney Program website!