How is it that doctors can miss this at about 99% percent of the time? It seems to be misdiagnosed until the person just dies...so sad that more doctors don't seem to know this stuff, or if they do they don't let on that they do.
I am genetic pyrrole and all 7 of my kids are too. Just found that out after 50 years of struggling. I was really deficient before a surgery and the pain meds barely worked on me. I was very anemic too. Kids have a variety of symptoms. No one is the same. my insomnia is off the charts. Sometimes i drink and can barely get drunk. labs have trouble taking my blood because my veins just disintegrate. i am also vey volatile. grey hair at 16 in all my kids and me. on supplements now 2 weeks. can’t wait to see the changes.
I know I have Pyroluria, but I feel totally turned off after hearing all the information, it is so complicated and no doubt will cost a small fortune, and I might not be better off, I know how these things go, I have found a good guy, I might pay him a visit, I just feel overwhelmed by all these if, buts and maybe's, I hate wasting my money! Sydney Australia!😂😂❤❤
Evening Primrose Oil is also wonderful for pyroluria. I take 5-6000mg a day. I've had amazing results adding epo to b6 and zinc.
what type of zinc do you take mate? have heard about evening primrose, will give that a try for sure. cheers.
Which brand please? What site?
Thank you Dr. Mensah. I appreciate your effort for helping us (Pyroluriacs).
Great presentation! Totally explains what I've been dealing with for 20 yrs .... In addition to mthfr
How is it that doctors can miss this at about 99% percent of the time? It seems to be misdiagnosed until the person just dies...so sad that more doctors don't seem to know this stuff, or if they do they don't let on that they do.
I am genetic pyrrole and all 7 of my kids are too. Just found that out after 50 years of struggling. I was really deficient before a surgery and the pain meds barely worked on me. I was very anemic too. Kids have a variety of symptoms. No one is the same. my insomnia is off the charts. Sometimes i drink and can barely get drunk. labs have trouble taking my blood because my veins just disintegrate. i am also vey volatile. grey hair at 16 in all my kids and me. on supplements now 2 weeks. can’t wait to see the changes.
Wow how are you all doing?
Did dr Mensah help you all ?
Fantastic you got the insight.
thanks so much!!! what type of zinc is needed, chelated with what? how do you know if you're taking enough?
1:00:52
1:26:11
I’m Irish and I have all these symptoms. To be honest, the booze does help.
Any correlation between pyroluria and social anxiety disorder??
Yes I had severe chronic anxiety and it got better by treating pyroluria
@@cassandragossen2412 thanks for feedback
@@rohitmehta3812 welcome(:
Cassandra Gossen can I ask how you treated it. I know it’s mostly b6 and zinc, but how much?
Zinc 20 mg twice with magnesium 100 mg .b6 100 mg twice with b 100.
I know I have Pyroluria, but I feel totally turned off after hearing all the information, it is so complicated and no doubt will cost a small fortune, and I might not be better off, I know how these things go, I have found a good guy, I might pay him a visit, I just feel overwhelmed by all these if, buts and maybe's, I hate wasting my money! Sydney Australia!😂😂❤❤
Fascinating
My doctor has never heard of this-and said it doesn't exist--He advises the only way to treat all these symptoms is with SSRI's
Don’t listen your doctor. Please take the test and supplements. Big Pharma sucks people’s blood and make money out of it.
Get a better doctor to address this for you. Someone willing to examine more information
see an experienced naturopath and RUN away from Pharmaceutical Poison Pill Pushing big pharma trained doktors.
Thank you. It’s a big toxic soup.