What is Respite Care | How to get it | Why is it important for Autism Families
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- เผยแพร่เมื่อ 12 ก.ย. 2024
- What is Respite Care? How do you get it? And why is it important to Autism Families. Just a quick video on my two cents on the topic.
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YAY I helped one person! Video a success! But seriously if it helped at all April that’s awesome! 👍🏻
Respite care has been a Life saver for us. It can be hard sometimes to find caregivers that work well. we need more trained respite. we have an amazing care giver right now!
BOOM! See there ya go! Glad to hear someone posting they have a great care giver! And yes it for sure is hard to find a good match that is well trained but it's possible. Was trying to encourage a family that they are out there...just got dig and find them! lol Thanks for sharing Jana!
@@AutismDadda I have some questions about respite care and how it's paid for and billed for. Is there a limit to the number of caregivers and hours that can bill Medicaid or private insurance per visit? For instance, 2 caregivers go with a family on a vacation. Is there a maximum number of hours per day they can bill for? No idea why someone would take 2 caregivers, but they do and they have 2 caregivers at the home almost daily. The kid is not so much autistic - more servere IDD - with second autism diagnosis most likely - but the kid does not need 2 caregivers at the same time daily. Especially if both parents are there. Personally, I think it's laziness. I believe that the potential for fraudulent billing exists when there is so much respite and more than 1 caregiver. Daily respite billings to run errands and spend money seem like abuse of the system to me. I know things depend on certain states - but this is a pretty generic question. I hope you can shed some light on it for me. Thanks.
What a great vlog! This is very important to all of us. Thank you so much for sharing your experiences...
I have respite hours for my child. We are lucky we have it because my husband and I were able to quit working outside the home and stay home with her. We made a lot more money working outside the home but this way we know she's safe and she can be in her own home. Respite is not just for a break but also can be an income for families to take care of the child at home.
Do they take income to mortgage ratio into consideration? I’m a single mom struggling with an autistic child. I cut back on work but now struggle keeping up with the mortgage. This might be an option if it helps me find additional income and I still get time to be with my son.
@@cthpham no, it's just a regular job working 40 hours a week if you get enough hours in your budget. Your budget depends on the severity of your child's needs. Her needs are 24 hour care so we get 92 hours a week so my husband and I both work 40 hours and have 12 hours left for another worker to do weekly if we chose to use those hours. If you don't use the hours in your budget you lose them at the end of budget yearly. The job is considered working as a vendor for your state, you don't get healthcare or 401k. Now they finally started giving us sick leave this year per legislation.
Great vlog. We use respite as well to give my wife a break! :)
Balancing Autism Life Oh totally! With two kids on the spectrum she has to make sure she takes time for herself or she’ll go nutty! Lol funny but sadly true! Glad to hear she does!
2 kids and a baby! Don't forget how needy that baby is! Breastfeeding and naps every few hours, diapers etc. lol.
OMG how dare I forget the baby!!!!!!!! Shame on me. Yea you guys have your HANDS FULL!! Need her to grow up and start throwing down on her big brothers and helping you out! lol That will be a great season for you as parents! You guys are amazing parents juggling all of that though! Keep telling your story bro!
I wish I knew all this years ago. 👍🏼
Neil K Exactly! That’s why I wanted to put it out there that over time more and more new parents who have zero knowledge of it can take a some stuff from it. Worth a shot right? I get most experienced parents know about it but autism is growing so that means more parents in need of educational type videos.
BOOM knowledge dropped. Great informative video Kev.
Thanks Ambassador! I'm trying....but the talk with this family really made my heart melt. They had no idea what the the phrase respite care even was. They were a very young couple and once I heard that I was like...ok time to pull up the sleeves and help them out the best I can. lol Hopefully it finds other younger parents with similar questions
🙏🏾good looking out!
I will have to check out care.com! I thought it was only a site for "babysitters" not trained professionals. In Kansas it is also income based to get on the waiver, (and my son is just now 5 and you can't apply for the waiver until they are 5, and it is a 3-4 yr wait) but I know we exceed the income level. Regardless, it has been almost impossible to find someone we trust with our nonverbal son. Family has helped here and there, but rarely.
Yea Dawn, I totally understand and relate with leaving your son(who is non verbal) alone with someone. Just have to interview people and go with your guy Mom instincts! You can normally tell who has a true heart for our kids during the interview. And if they've been doing it a long time that determines a lot...or that was important to my wife. If they stick with it that shows again they love it. But ours was CPR certified and everything and great experience. So after a while we felt so comfortable. But we did start with her watching Jai in the house while I was working to test things out first. Allowed me to keep busy and she would occupy Jai. So maybe you can try that first. And sorry to hear about long wait but it makes sense! Least you are on the list! You did your part! 👍
I have a question.. what are your expectations of a respite provider? Do you expect them to make them exercise? Introduce them to new things? Teach them? Play with them kind of like a playmate? Take them outside often? Help with homework? Or are they more simply a babysitter/helper for their needs? I am confused on the specific function of the provider, but I am one myself and often feel exerted trying to achieve all of the above. I would like to also mention I don’t have special qualifications. I hope to receive a reply :)
When I'm hiring someone I look for someone who can do anything I do. Cook, clean, play, go out on the yard to play in pool, transport to Drs appts, to the park or zoo. This can include all hygiene and dressing... Whatever you are comfortable with.
@@Five0Five thank you so much! I was being taken advantage of and was really trying to gauge it. I was told to do things I’m not qualified for/did not agree to upon the job like physical therapy or speech therapy along with a whole host of inappropriate requests like working while sick or wiping client who is capable. I was working for my in-laws caring for their SN 8yr daughter.
@@mrsanonymous414 oh no! I always make sure the caregiver is comfortable with a chore. Some things I won't even ask like taking care of animals or cleaning a toilet. It's just basic household cleaning no spring cleaning or moving furniture. If a client is capable of wiping their behind then definitely they should be doing that! The law should be set on not working while you or your client is sick! Working for family is hard though, they always expect more than what they would for a stranger. I wish you the best!
@@Five0Five thank you so much for understanding, and I’m sure you’re a pleasure to work for :) my husband took over for me, they’re very relaxed with him. He just plays games with her the whole time haha. Working for family is different for sure!
@@mrsanonymous414 I've worked with the disabled since I was 18. I'm 42 now and take care of my niece who is 29, she lives with us. She has CP and Autism, she's nonverbal and is in a wheelchair. I've had amazing clients and their families and I've had terrible ones so I know what to do and not do with my employees. I'm glad I've found someone I can trust with her but I still have cameras up in my house just to keep everyone honest and polite. They are nicer with your husband because they don't expect as much from him. That's a compliment to you but also very telling of what kind of people they are to do what they did. Glad you didn't allow them to take advantage of you anymore once you realized what was happening. Are you still doing this kind of work or did you only do it as a favor for them? Families of disabled adults and children are always looking for good caregivers especially now after covid, the industry took a big hit and many people just don't want to work anymore. I hope if you enjoyed it you will stay in the business. We need more compassionate workers. It is very rewarding when you work for the right family I guarantee it.
Do they have to clean the patients behind..?
Do you have a Medicaid waver? In many states if your over income you can use the waver. It payes for respite and many other things. But a lot of states have a waiting list.
What "if" you live in a certified family home? how does respite work then?
Thanks for the info! ;o)
Laura Miranda You bet!!! But and so glad I’m able to help even one person with a video like this. Hope it helped even a little! 👍🏻
Also- what did/do you do for childcare for Sebastian while Jai has a respite worker?
Great question! We lucked out! She had a child the EXACT same age as Seb so they just hung out while she watched Jai. And then like I mentioned after she gained our trust she would take Jai and Seb to the pool and parks. she was truly amazing! I would ask that during the interview process. If you have a child who is some what independent a lot of caregivers don't mind. Some will be blunt and say NO and others will be totally fine with watching both if you set up everything nicely for them.
Autism Dadda good to know! We have a younger daughter who is 2 (she is neurotypical), so I have always been curious if we would have to get two separate caregivers or not
Again, all depends. But a two year old with a nonverbal child might be tough BUT never say never. That's why it's important to check out site and read up on their profiles and simply ask. Worst they can say is no. Good luck and let me know how it goes!