At first the dr. thought my son had Tay-Sachs. Turned out to be Leigh's Disease. He died at 16 months. Same exact symptoms. There are a lot of diseases similar to this and very tough to treat. Thankfully, we had two more healthy children after my son died. Nathan has a purpose, we all do.
There are tears rolling down my eyes right now but the only consoling thing is knowing that this baby is blessed and will be in heaven, if God wills. I haven't met you, but I love you little Nathan. You are blessed to have parents who want to make this short journey in this world as comfortable for you - God bless them too.
Jaden Dodd Tay Sach’s is a genetic disorder to which there is not a missing chromosome nor trait. It is a Neurodegenerative disease to which lysosomes cannot break down a fatty substance called Gm2 gangliosides.
>Complex lipid, GM2 GANGLIOSIDE, is not broken down because of mutation in the HEXA enzyme gene expressing a non functional enzyme.. >GM2 GANGLIOSIDE accumulation causes neurodegenerative disease in infants - Tay Sachs. >Recessive mutation of HEXA gene means both parents must carry this defective gene to express tay sachs as the phenotype.
I often wonder how many they actually figure out… compared to how many children have mysterious deaths or failure to thrive where the doctors never figured it out? Or where the children are neglected and their parents don’t make an effort to get them medical help.
Many of these neurodegenrative diseases look alike is because they're related to sphinolipipds, thus they have similar clinical features but they all have distinct differences that we can use to differentiate between them.
So heartbreaking. I did a report on Tay-Sachs when I was a junior in high school & TH-cam didn't exhist then. But I was curious see what there was on here and this was the first story. So truly sad. But what is precious is this boy and the time you have with him. Even though it should be muc much longer!
Don't worry his legacy from this video and awareness raised through it is a huge accomplishment and he did enough in his few years of being alive to make the world just a little bit better. More than you can say for most adults. Rest easy young one.
Vaccines and GMOs are actually known not to cause autism; those claims have been disproven time and time again by accredited sources. Now, Tay-Sachs is purely an inherited disease with no known direct cause. Awareness for carrier rates must be heightened because if more of the population is aware of their risk of being a carrier, certain preventative measures can be taken to prevent having a child affected by Tay-Sachs. Also, the Irish population having relatively high carrier rates has nothing to do the 'the English' doing 'terrible things'. Please become informed before you make these incredibly false claims, thanks.
Wise Warrior's Path, I'm with you Dr Wakefield was hung drawn and quartered because his head appeared above all the other poppies. He was a threat to other reseatchers and other Dr's and most of all big pharma. This happens to Dr's with superior ideas or tallents in medicine all the time. The
more time you spend around Dr's the more evident the truth of this fact becomes. I have personal experience that this occurs frequently. I also have a friend who is a wholistic Dr, with conventional medical qualifications. That treats vaccine damaged patients frequently. The damage can be undone,
FIGHT HARD NATHAN! I WILL PRAY FOR YOU EVERYDAY! I feel blessed having to research about Tay-Sachs Disease for school, and I hope to change TSD in the future. GO NATHAN!!!
I can feel your pain ... My son who is diagnosed with Ataxia telangiectasia which is a genetic disease. Despite having everything, I can't do anything for my son. May God ease your pain.
I just learned about this horrible disease. We learned about genetic disorders in my biology class today and we had to look some of them up. When I read that people with tay-Sachs only have a life expectancy of 5, I started crying. I feel so fortunate because I am healthy and God has given me an amazing life that I take for granted. I will be praying for victims of this horrible disease and praying that they find a cure.
I would be holding and speaking to my baby all the time, just to let him know I was there, and that I love him, and will protect him always in any way I can.
What a beautiful little boy he was. You were so lucky to have him in your life no matter the length of time. He knew love and as parents you also knew love. I prey they soon find if not a cure but a-blocker to to help ward off the disease for progressing to fast, and hopefully the next step would be a cure.
This is breaking my heart. This was something that I thought only my people had. (Ashkenazi Jews) we would never wish this on anyone else. This is something that has hurt Jewish women and the fact that other women have to go through this is heartbreaking. I'm so sorry for your loss.
A lot of jews get tested nowadays before they married. If you're not though, it's unlikely you get tested before you have kids though. I do wonder if they have a decent chunk of carriers or if those two are just unlucky. While most carriers may be Jewish, there will have been people in the past that changed religions or had bastard children. And those two parents may just be really unlucky that they fell in love with another carrier.
@@alex73217 Boy are you dumb. It's not about religion. Ashkenazi Jews (I am one) are an ethnic group. We have common genetics, common history common language common environment common culture. T.S. is not about religion or changing religion, it's about genetics.
@alex73217 This is a disorder common to people of European Jewish descent. Just like sickle cell is common to people of African descent. European Jews are not semites. They're European and that's why this is common in people from that bloodline.
@@alex73217 while very unlikely, I'm sure it could happen. But the survival of my people has been possible because we don't stray from our group. That's why Tay Sachs happened. Even during forced conversion we still seek out other Jews. The tiny amount of Jewish people who procreate with non Jewish people and have these rare kids who then meet other rare kids like that is made even more unlikely to meet in Ireland. There just aren't enough Jewish ppl in Ireland for that to happen and stay localized.
I'm Irish and according to my genetics results from 23andme I am a carrier of Tay Sachs. If i'm ever thinking of having children, I'll have to have the prospective mother tested also. Even if the chances of her also being a carrier were very small it would be foolish not to.
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
4 years ago I was diagnosed of TAY-SACHS DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including TAY-SACHS DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an TAY-SACHS DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from TAY-SACHS DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
Actually there's a video of two twin brothers who are carriers of Tay-Sachs and they both happened to marry women who are carriers of Tay-Sachs and so both their children suffered from Infantile Tay-Sachs and died before their third birthday. So if I were you I would either not have children at all or take every precaution to prevent my defective gene from being passed on
i am learning about many disease and so i had to study the Tay-Sachs disease( for medical school ). After seeing and studying diseases like this i almost cry every time.
We have the gene for Cystic Fibrosis in our family. I lost a cousin to it. He was in his early 30's. I have a nephew with it also. Thankfully none of my 12 grandchildren have it, but their fathers are not carriers. I'm so glad for awareness like this so people do know to get gene tested before having children. It wasn't offered until my youngest daughter got pregnant. She tested positive for the gene, but he tested negative and their two children do not have it.
Look into the work Dr. Joel Wallach has done with that. He is all over TH-cam. Supplementation can be gotten through his company Youngevity. Use ID # 100485548 for a discount. I use his products and have known about him over 20 yrs. Only doc to have sued AND WON against the FDA!!
Iam so sorry for them all my husband is a carrier of Tay- Sachs. he is Jewish and Scottish and Irish . he has had this in his family for years. but he thought it was from the Jewish side
+Henry Marcel, It amazes me that even after Hitler there are people that still think it's perfectly OK to scapegoat our Jewish friends. I note your channel name and the distinct likelihood that you may want to distance the French from any connecion with Tay-Sachs disease. As you may have noticed
while reading through the the Wikipedia article on this subject, which you later went on to misquote, while plagerising, ( you are very talented), There is plenty of talk of the French in it. There is actually one subgroup ( I will explain don't fret ) of Tay-Sachs that can actually be traced
all the way back to one secific couple, guess what nationality they were..............yes thats right, they were French. What you failed to do, is read the whole article. What you didn't pick up on is the fact that in that same Wikipedia article is that Tay-Sachs is not just one diease. There are
actually different subtypes, that are caused by different mutations in the Hexa gene. It seems you cannot blame the Jew's for all the mutations that cause Tay-Sachs disease. Sorry about that my French friend.
Do you honestly think any one cares what you PERSONALLY believe ? I don't ! Next time you get the chance to start on a rant, make sure you at least get the channel name of the person you are trying to brough beat, correct. Is there a limit to how far racism goes, your friend Hitler showed the whole
They're European. They're not semites. You only see this in people of European ancestry. You don't see it in indigenous Arabs. All of you need to be checked because it's a risk.
@franny5295 Do you know how European Jewd got to Europe? Same way Polynesian Jews got to the Polynesian islands. Through diaspora because of exilation. This is really odd that you talk so much about indigenous Arabs. If they are indigenousness then that means they stayed in the Arabian peninsula. Why bring up Arabs? I think the point you're really trying to make is that "European" Jews are white and we're not indigenous to the Middle East/Mediterranean area. That is not the case. In the same way African Americans are beginning to develop their own unique look generation after generation, Ashkenazi Jews have been exiled and lived in Europe for so long we developed our own look. If the really real point you truly want to make is that Ashkenazi Jews are really white people and should somehow lose a marginalization status that we never wanted anyway then explain why actual "Europeans" always know we aren't like them. If your definition of white is being of indigenous to Europe decent then Ashkenazi Jews are not white. Which is why we were picked out to near extinction by white Europeans during the Holocaust. I also saw that some of your comments deny the "semitic" status of Ashkenazi Jews. If that is the case why do we still speak the semitic language of our ancestors? Why do we still have many of the stereotypical semitic features? But my question is: why do you care? Why do you comment over and over on a TH-cam video about a horrific genetic wasting disease that kills babies slowly that is now affecting Irish people that you know more about what makes Jewish people Jewish and what standards you have set to make someone semitic but not a single comment about the people of Ireland having to live with this genetic tragedy? Franny is your username so I assume it's your actual name which I really like. It's very common in Ashkenazi women, I have an aunt with that name. Franny go and worry about your ethnic identity. Find your own ancestry through DNA tests. Ashkenazi Jewish people are not looking to steal the "glory" of marginalization as an ethnoreligion. We don't want it. We want to fit in to survive. It doesn't work, though. We are still identified by the only opinion that matters on whether we're white and white passing. The ones that make it dangerous for us to exist. The ones who wear white hoods and burn crosses that are taking our country over through politics. They also hate black people. They want you and I to be divided. If you trip me as we run from them they will still chase you when they've exterminated me. Worry about you and your history and your identity. Stop being weird in the comments section about Irish mothers giving birth to doomed babies who exist to suffer and die. That was the actual point of this video. Not for lost and disenfranchiseed minorities that fall prey to stupid and easily disapproveable conspiracy theories that are used by predatory extremist groups like the hate group Black Hebrew Israelites. They seek to place blame on Jews for all their problems bc they don't know any of us personally. That's what Hitler did and it didn't end well for anyone. While they try to convince you false facts about us big nose whities trying to steal the black isrealite identity (and for what? Why would we do that? Everyone hates Jews. Why would some random group of white Europeans decide the Isrealite identity is worth stealing and be so loyal to their appropriation that we were literally persecuted the entire time of our exile while we upheld the traditions and never ending Jewish laws? If they care so much about being Jewish why don't any of them keep kosher or observe Shabbat where you have to wile your ass with Kleenex or preportion your toilet paper the night before because from sundown on Friday to sun up on Sunday we can't TEAR anything. Why aren't they cooking Chollent in a crockpot bc they can't cook anything? Why are they not teaching themselves and their children their holy language if they are the true Jewish Israelites? Come on, think critically. Has being a Jew ever been a glamorous thing to be?) they decide and isolate black Americans even further. That allows yt supremacists to harm you further. We have always supported black Americans. Even when the History books left out civil rights photos with our Rabbis marching you while making damn sure to include the priests you can still find out support for black Americans in our art. If you look into the song "Strange Fruit" by Billie Holiday you'll find that the lyrics are a poem written by Abel Meeropol who was a Jewish civil rights activist. And for the record, I wouldn't do what you're doing if the tables were turned. I wouldn't trip you as we run from persecution. I hope you find your way.
This a tragic condition and I hope research for better treatment, management and prevention continues. However- the caption should read "Irish-American", as Tay-Sachs is quite rare in Ireland.
It has nothing to do with WHERE you live. Many Ashkenazi Jews live in the USA but they didn't originate there. Many Irish live in the USA but they didn't originate there. It's a GENETIC disease.
4 years ago I was diagnosed of TAY-SACHS DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including TAY-SACHS DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an TAY-SACHS DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from TAY-SACHS DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
@@nancywalker-keay8361 What a hateful comment. Please don't use a terminal illness that primarily affects young children to spread mis-information. Perhaps you could ask Dr Joshua Ighalo for a cure for insensitivity.
4 years ago I was diagnosed of TAY-SACHS DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including TAY-SACHS DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an TAY-SACHS DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from TAY-SACHS DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
I don't know if people realize that if a culture is isolated for a long time, be it by religion or geography, these illnesses are more likely to surface. Diabetes is hereditary and that appears a lot in Jews and Irish as well--along w/most Pacific Island groups.
This condition is very rare on the Island of Ireland. And Ireland has never been a genetically isolated, as it has had constant migration, trade oh and eh raids from those friendly neighbouring Vikings
He is in heaven now. Please pray to God to heal all those DNA disease, heal and change the bad DNA in the parent. God will listen and God can change it. God bless this family.
kathy and aaron, he was such a beautiful boy! i know everyone say that, but i speak the truth! such a cutie! i am so sorry, i truly hope that what you went thru, and sharing it with the medical community, i sure hope it helps big time with tay sachs. i pray we beat this! love to you all from down here in tx! xoxox
my name is mitchell hillier i am 24 and i have a son with Tay-Sachs disease and he is 20 months old.. we has a g-tube and the doctors say he may live till 5 ... i would like to raise money for studies and for my sons chairs and stroller and the ridiculous expensive tools needed for his life.. i wish and would vary much like to do is bike accross canada and raise money so he may live longer and not suffer with the help of everyone.. not may know about tay-sachs , it will be my honnor to do this
I beginning to think any ethnic group can get any genetic illness in time. The groups don't even have to intermix with each other to get them. I think it is something in the environment or something we are eating or not eating or drinking or not drinking that are causing these genetic disorders. I think people all over the world should unite together and just maybe we can figure out a way to cure all these illnesses. This is much better than hating each other. Sometimes I believe it is hate/fear and the stress that it causes that is the final trigger for these diseases.
I feel so sorry for their son and what they have to go through each day it breakers my heart to see him like this I Will pray each and every day for Nathan and his family I hope he gets to live healthy and wonderful life like any other kid would he is unique in every way all the kids on this earth and each country they are unique they have different talents and different things to share some kids don't develop things as quick as others that is what makes in unique some people have trouble walking talking and sitting up well wishes.
What is similar in both groups? Historically both groups major food dependancy was on the potato. Eye color the same. Possible genetic similarity because both groups had a Roman genetic input.
Tay Sachs disease . It's a lysosomal storage disorder . The defect is in the enzyme beta hexosaminidase A which is required to convert Gm2 to Gm3 causing accumulation of Gm2 in lysosomes . The child presents with developmental delay , neurological deficits , Increased startle reflexes , cherry red spot in macula of eye. Thanksfully no hepatosplenomegaly and cardiac abonormalities .
God is with all the sick and he’s even with this little guy if it’s gods will it’s his way this little guy will reach the level of wisdom he needs gods with him and his family you have my prayers
Its Showing Up a lot more in None Irish and Jewish familys, I am Puerto Rican and African American and I am A Carrier . we Just found out my Daughter has it on January 2nd, 2015 Worse Day of My life.
princessaz79 you have no idea. They had no choice, they didn’t know. They are trying to raise awareness so other children do not suffer like their son. I lost my daughter to Tay Sachs too, my first born and I had no idea. You should try some compassion for others.
So sorry for your loss. This is such a horrendously cruel disease. People of Irish decent are spread so far and wide all over the world how are they ever going to find out about this. I am Irish decent and we have more than our fair share of genetic diseases. One of them is also a disease that is
said to only happen in Ashkenazi Jews too. We don't appear to have any Jewish ancestry going back 10 generations on my mothers side of the family. My fathers side had German an Irish, my husbands side has a Hitler youth graduate Prussian, and Latvian/ Russian. There, ofcourse, could have been Jews
It always breaks my heart when a child is born with something disabling. It's so unfair. They couldv'e been a scientist that cures the very thing disabling them, you know? It also kind of makes me want to never be a parent. If my child was anything but normal, I would not want them.
Djangus Roundstone How am I a faggot when I am a female? And what a clever retort! Instead of petty childish namecalling, why not actually say something intellectual with those brain cells you have?
+Theresa Tran Please never have children if you would say something as awful as "If my child were anything but normal, I would not want them". I'm almost afraid to ask what you would consider normal. Would you disown a gay child? By the way, there's a vast difference between a child with a disability and a child who is terminally ill.
This disease is missing a functioning hydrolytic enzyme normally presented in Lysosomes without this function in your organs they can deteriorate inside-out and it means all organs including the brain. For example, hydrolytic enzyme recycles human liver macromolecules each week without this accumulation of lipids begin to occur and decompose everything.
linda karina arroyo tobar hola siento mucho lo que has pasado estoy en algo similar con bebe de 8 meses lo diagnosticaron con gaucher tipo 2 y me dicen que posiblemente alcance los 2 años de vida
It comes from the Jewish side. It is said that centuries ago Christian Jews traveled spreading the Gospel and many of them ended up in Ireland. (lost tribe?)
At first the dr. thought my son had Tay-Sachs. Turned out to be Leigh's Disease. He died at 16 months. Same exact symptoms. There are a lot of diseases similar to this and very tough to treat. Thankfully, we had two more healthy children after my son died. Nathan has a purpose, we all do.
Its immense suffering, that could have been prevented, by not bringen them into existence
@@Almgandin shut up you miserable loser. whats wrong with you?
He's so gorgeous I'm so sorry for your loss, RIP little one.
There are tears rolling down my eyes right now but the only consoling thing is knowing that this baby is blessed and will be in heaven, if God wills. I haven't met you, but I love you little Nathan. You are blessed to have parents who want to make this short journey in this world as comfortable for you - God bless them too.
Brave and dignified Mom and Dad. I send my most sincere best wishes to your family. From Dublin, Ireland
I had testing for Tay Sachs when I was pregnant 35 years ago. I had never heard of it before then. My heart breaks for your loss of sweet Nathan.
We love you Nathan, Aaron,and Kathryn!! Stay strong. Just believe!
i am about to cry, i appreciate them sharing their information
Thank you both for sharing your story. My heart goes out to y'all. 🙏♥️
So many degenerative diseases. A lot of them sound and look alike. It's amazing how the doctors can figure out which one.
alyssa caeytano most of them especially ones that can be traced like this one have genetic markers like a missing chromosome or a missing trait
Jaden Dodd Tay Sach’s is a genetic disorder to which there is not a missing chromosome nor trait. It is a Neurodegenerative disease to which lysosomes cannot break down a fatty substance called Gm2 gangliosides.
>Complex lipid, GM2 GANGLIOSIDE, is not broken down because of mutation in the HEXA enzyme gene expressing a non functional enzyme..
>GM2 GANGLIOSIDE accumulation causes neurodegenerative disease in infants - Tay Sachs.
>Recessive mutation of HEXA gene means both parents must carry this defective gene to express tay sachs as the phenotype.
I often wonder how many they actually figure out… compared to how many children have mysterious deaths or failure to thrive where the doctors never figured it out? Or where the children are neglected and their parents don’t make an effort to get them medical help.
Many of these neurodegenrative diseases look alike is because they're related to sphinolipipds, thus they have similar clinical features but they all have distinct differences that we can use to differentiate between them.
What special memories you all must have! He will always hold a special place. 5h as no you for sharing your story. Bless you!
Learning all those skills just to lose them...jeezus I'm so sorry about your loss.
So heartbreaking. I did a report on Tay-Sachs when I was a junior in high school & TH-cam didn't exhist then. But I was curious see what there was on here and this was the first story.
So truly sad. But what is precious is this boy and the time you have with him. Even though it should be muc much longer!
W
Doing a report right now, you are right. It is very sad.
RIP Nathan 💖 Thank you for bringing awareness to us Irish. Always thought this was exclusively Jewish.
It’s also in Cajuns
@@krisgriffen6969and French Canadians
Don't worry his legacy from this video and awareness raised through it is a huge accomplishment and he did enough in his few years of being alive to make the world just a little bit better. More than you can say for most adults. Rest easy young one.
Vaccines and GMOs are actually known not to cause autism; those claims have been disproven time and time again by accredited sources. Now, Tay-Sachs is purely an inherited disease with no known direct cause. Awareness for carrier rates must be heightened because if more of the population is aware of their risk of being a carrier, certain preventative measures can be taken to prevent having a child affected by Tay-Sachs. Also, the Irish population having relatively high carrier rates has nothing to do the 'the English' doing 'terrible things'. Please become informed before you make these incredibly false claims, thanks.
Wise Warrior's Path autism is genetic cancer can be genetic but it is NOT caused by vaccines and gmos
John Baker
Wise Warrior's Path, I'm with you Dr Wakefield was hung drawn and quartered because his head appeared above all the other poppies. He was a threat to other reseatchers and other Dr's and most of all big pharma. This happens to Dr's with superior ideas or tallents in medicine all the time. The
more time you spend around Dr's the more evident the truth of this fact becomes. I have personal experience that this occurs frequently. I also have a friend who is a wholistic Dr, with conventional medical qualifications. That treats vaccine damaged patients frequently. The damage can be undone,
I feel so bad for this kid
FIGHT HARD NATHAN! I WILL PRAY FOR YOU EVERYDAY! I feel blessed having to research about Tay-Sachs Disease for school, and I hope to change TSD in the future. GO NATHAN!!!
Hi! How did your career go on?
He died. Your prayers didn't do anything. God doesn't exist
again thanks for putting this up for knowledge.. sorry for the loss of your son... god bless
Thank-you for this powerfully informative video. RIP Nathan 😥
I can feel your pain ... My son who is diagnosed with Ataxia telangiectasia which is a genetic disease. Despite having everything, I can't do anything for my son. May God ease your pain.
Thank you for sharing this brought tears to my eyes.
This is heartbreaking. I’m so sorry 😭
The poor thing's little cry at the end, if that doesn't crush your heart, than I don't know what will. That is enough to tell the whole story!!!!
I cried watching dis
I knew of the French Canadian link to Tay-Sachs but was unaware there was an Irish link. Thank you.
rosieoutlook it’s becoming more prevalent in exclusive and isolated communities. I’m a carrier I’m French Canadian
So sad children and parents have to go through things like this :((
I just learned about this horrible disease. We learned about genetic disorders in my biology class today and we had to look some of them up. When I read that people with tay-Sachs only have a life expectancy of 5, I started crying. I feel so fortunate because I am healthy and God has given me an amazing life that I take for granted. I will be praying for victims of this horrible disease and praying that they find a cure.
Me too 🥺🥺💔💔
I would be holding and speaking to my baby all the time, just to let him know I was there, and that I love him, and will protect him always in any way I can.
What a beautiful little boy he was. You were so lucky to have him in your life no matter the length of time. He knew love and as parents you also knew love. I prey they soon find if not a cure but a-blocker to to help ward off the disease for progressing to fast, and hopefully the next step would be a cure.
This breaks my heart. I’m so sorry this is the hand you all were dealt, I pray he is at peace and happy back with the stars 🧡
Beautiful baby I'm sorry for your loss
This is breaking my heart. This was something that I thought only my people had. (Ashkenazi Jews) we would never wish this on anyone else. This is something that has hurt Jewish women and the fact that other women have to go through this is heartbreaking. I'm so sorry for your loss.
A lot of jews get tested nowadays before they married. If you're not though, it's unlikely you get tested before you have kids though. I do wonder if they have a decent chunk of carriers or if those two are just unlucky. While most carriers may be Jewish, there will have been people in the past that changed religions or had bastard children. And those two parents may just be really unlucky that they fell in love with another carrier.
@@alex73217 Boy are you dumb. It's not about religion. Ashkenazi Jews (I am one) are an ethnic group. We have common genetics, common history common language common environment common culture. T.S. is not about religion or changing religion, it's about genetics.
It is unique to people of European Jewish descent. You don't see this in indigenous Arabs.
@alex73217 This is a disorder common to people of European Jewish descent. Just like sickle cell is common to people of African descent. European Jews are not semites. They're European and that's why this is common in people from that bloodline.
@@alex73217 while very unlikely, I'm sure it could happen. But the survival of my people has been possible because we don't stray from our group. That's why Tay Sachs happened. Even during forced conversion we still seek out other Jews. The tiny amount of Jewish people who procreate with non Jewish people and have these rare kids who then meet other rare kids like that is made even more unlikely to meet in Ireland. There just aren't enough Jewish ppl in Ireland for that to happen and stay localized.
I'm Irish and according to my genetics results from 23andme I am a carrier of Tay Sachs. If i'm ever thinking of having children, I'll have to have the prospective mother tested also. Even if the chances of her also being a carrier were very small it would be foolish not to.
That's so sad to hear you are still suffering from this same disease. Am feeling for you right now, I know of a doctor who can help you get rid of this. He also help me from this same disease, He can also help cure yours permanently
4 years ago I was diagnosed of TAY-SACHS DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including TAY-SACHS DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an TAY-SACHS DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from TAY-SACHS DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
Actually there's a video of two twin brothers who are carriers of Tay-Sachs and they both happened to marry women who are carriers of Tay-Sachs and so both their children suffered from Infantile Tay-Sachs and died before their third birthday. So if I were you I would either not have children at all or take every precaution to prevent my defective gene from being passed on
Rest well little guy 🙏🏼 Thanks for sharing
My 3 year old is named Nathan, this was so hard to watch, but good on these parents for trying to make a difference in their little boys name.
i am learning about many disease and so i had to study the Tay-Sachs disease( for medical school ). After seeing and studying diseases like this i almost cry every time.
We have the gene for Cystic Fibrosis in our family. I lost a cousin to it. He was in his early 30's. I have a nephew with it also. Thankfully none of my 12 grandchildren have it, but their fathers are not carriers. I'm so glad for awareness like this so people do know to get gene tested before having children. It wasn't offered until my youngest daughter got pregnant. She tested positive for the gene, but he tested negative and their two children do not have it.
Look into the work Dr. Joel Wallach has done with that. He is all over TH-cam. Supplementation can be gotten through his company Youngevity. Use ID # 100485548 for a discount. I use his products and have known about him over 20 yrs. Only doc to have sued AND WON against the FDA!!
Iam so sorry for them all my husband is a carrier of Tay- Sachs. he is Jewish and Scottish and Irish . he has had this in his family for years. but he thought it was from the Jewish side
+Henry Marcel, It amazes me that even after Hitler there are people that still think it's perfectly OK to scapegoat our Jewish friends. I note your channel name and the distinct likelihood that you may want to distance the French from any connecion with Tay-Sachs disease. As you may have noticed
while reading through the the Wikipedia article on this subject, which you later went on to misquote, while plagerising, ( you are very talented), There is plenty of talk of the French in it. There is actually one subgroup ( I will explain don't fret ) of Tay-Sachs that can actually be traced
all the way back to one secific couple, guess what nationality they were..............yes thats right, they were French. What you failed to do, is read the whole article. What you didn't pick up on is the fact that in that same Wikipedia article is that Tay-Sachs is not just one diease. There are
actually different subtypes, that are caused by different mutations in the Hexa gene. It seems you cannot blame the Jew's for all the mutations that cause Tay-Sachs disease. Sorry about that my French friend.
Do you honestly think any one cares what you PERSONALLY believe ? I don't ! Next time you get the chance to start on a rant, make sure you at least get the channel name of the person you are trying to brough beat, correct. Is there a limit to how far racism goes, your friend Hitler showed the whole
I'm not Jewish but my great grandma came from Ireland and I'm Irish on my other side too. I've never heard of this disease. :(
we love you nathan ! Stay blessed !
I am sorry for your loss.
Taylor Sachs is normally associated with Ashkenazi Jewish people. Never heard of this in other groups.
They're European. They're not semites. You only see this in people of European ancestry. You don't see it in indigenous Arabs. All of you need to be checked because it's a risk.
@franny5295 Do you know how European Jewd got to Europe? Same way Polynesian Jews got to the Polynesian islands. Through diaspora because of exilation. This is really odd that you talk so much about indigenous Arabs. If they are indigenousness then that means they stayed in the Arabian peninsula. Why bring up Arabs?
I think the point you're really trying to make is that "European" Jews are white and we're not indigenous to the Middle East/Mediterranean area. That is not the case. In the same way African Americans are beginning to develop their own unique look generation after generation, Ashkenazi Jews have been exiled and lived in Europe for so long we developed our own look.
If the really real point you truly want to make is that Ashkenazi Jews are really white people and should somehow lose a marginalization status that we never wanted anyway then explain why actual "Europeans" always know we aren't like them. If your definition of white is being of indigenous to Europe decent then Ashkenazi Jews are not white. Which is why we were picked out to near extinction by white Europeans during the Holocaust.
I also saw that some of your comments deny the "semitic" status of Ashkenazi Jews. If that is the case why do we still speak the semitic language of our ancestors? Why do we still have many of the stereotypical semitic features?
But my question is: why do you care? Why do you comment over and over on a TH-cam video about a horrific genetic wasting disease that kills babies slowly that is now affecting Irish people that you know more about what makes Jewish people Jewish and what standards you have set to make someone semitic but not a single comment about the people of Ireland having to live with this genetic tragedy?
Franny is your username so I assume it's your actual name which I really like. It's very common in Ashkenazi women, I have an aunt with that name.
Franny go and worry about your ethnic identity. Find your own ancestry through DNA tests. Ashkenazi Jewish people are not looking to steal the "glory" of marginalization as an ethnoreligion. We don't want it. We want to fit in to survive. It doesn't work, though. We are still identified by the only opinion that matters on whether we're white and white passing. The ones that make it dangerous for us to exist. The ones who wear white hoods and burn crosses that are taking our country over through politics. They also hate black people. They want you and I to be divided. If you trip me as we run from them they will still chase you when they've exterminated me.
Worry about you and your history and your identity. Stop being weird in the comments section about Irish mothers giving birth to doomed babies who exist to suffer and die. That was the actual point of this video. Not for lost and disenfranchiseed minorities that fall prey to stupid and easily disapproveable conspiracy theories that are used by predatory extremist groups like the hate group Black Hebrew Israelites. They seek to place blame on Jews for all their problems bc they don't know any of us personally. That's what Hitler did and it didn't end well for anyone. While they try to convince you false facts about us big nose whities trying to steal the black isrealite identity (and for what? Why would we do that? Everyone hates Jews. Why would some random group of white Europeans decide the Isrealite identity is worth stealing and be so loyal to their appropriation that we were literally persecuted the entire time of our exile while we upheld the traditions and never ending Jewish laws? If they care so much about being Jewish why don't any of them keep kosher or observe Shabbat where you have to wile your ass with Kleenex or preportion your toilet paper the night before because from sundown on Friday to sun up on Sunday we can't TEAR anything. Why aren't they cooking Chollent in a crockpot bc they can't cook anything? Why are they not teaching themselves and their children their holy language if they are the true Jewish Israelites? Come on, think critically. Has being a Jew ever been a glamorous thing to be?) they decide and isolate black Americans even further. That allows yt supremacists to harm you further.
We have always supported black Americans. Even when the History books left out civil rights photos with our Rabbis marching you while making damn sure to include the priests you can still find out support for black Americans in our art. If you look into the song "Strange Fruit" by Billie Holiday you'll find that the lyrics are a poem written by Abel Meeropol who was a Jewish civil rights activist. And for the record, I wouldn't do what you're doing if the tables were turned. I wouldn't trip you as we run from persecution. I hope you find your way.
This a tragic condition and I hope research for better treatment, management and prevention continues. However- the caption should read "Irish-American", as Tay-Sachs is quite rare in Ireland.
It has nothing to do with WHERE you live. Many Ashkenazi Jews live in the USA but they didn't originate there. Many Irish live in the USA but they didn't originate there. It's a GENETIC disease.
absolutely heartbreaking, thank you for sharing your story, my wife is a carrier, now I need to find out if I am a carrier.
4 years ago I was diagnosed of TAY-SACHS DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including TAY-SACHS DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an TAY-SACHS DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from TAY-SACHS DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
@@nancywalker-keay8361 What a hateful comment. Please don't use a terminal illness that primarily affects young children to spread mis-information. Perhaps you could ask Dr Joshua Ighalo for a cure for insensitivity.
my older sister was ill with this terrible disease and unfortunately she died in three and a half years ..
It would nice to see medicines to combat these horrible diseases once and for all
4 years ago I was diagnosed of TAY-SACHS DISEASE and I have tried all I can to get cured but all to no avail, until i saw a post in a health forum about a herbalist man who prepare herbal medication to cure all kind of diseases including TAY-SACHS DISEASE , at first i doubted if it was real but decided to give it a try, when i contact this herbalist via his email and he prepared an TAY-SACHS DISEASE herbal cure and sent it to me via UPS delivery company service,when i received this herbal cure, he gave me step by directions on how to apply it, when i applied it as instructed, i was totally cured of this deadly disease within 1 months of usage, I am now free from TAY-SACHS DISEASE ,all thanks to Dr Joshua Ighalo. you can also reach this great herbal doctor for help . He can help get rid of yours permanently.. Also specialize in treating all kinds of illness, HERPES VIRUS, HEPATITIS B, CANCER, BRAIN DISEASE, INFERTILITY, DIABETES AND MORE. ....
I just checked out your channel, dopeeeeeee, stay blessed !!!
I'm so sorry for your loss, RIP little one.
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I don't know if people realize that if a culture is isolated for a long time, be it by religion or geography, these illnesses are more likely to surface. Diabetes is hereditary and that appears a lot in Jews and Irish as well--along w/most Pacific Island groups.
What do you mean?
D. Garbato yep, it’s called Founder Effect
This condition is very rare on the Island of Ireland. And Ireland has never been a genetically isolated, as it has had constant migration, trade oh and eh raids from those friendly neighbouring Vikings
He is in heaven now. Please pray to God to heal all those DNA disease, heal and change the bad DNA in the parent. God will listen and God can change it. God bless this family.
Alice Ng god had nothing to do with this. It's science
not only irish people have the gene . i am sudanese(african-arabian) and my son is diagnosed with the same disease
Ayman Hammad I am so sorry. I'm praying for comfort for your son and also you.
but most common found in ashkenazi jews as well
i'm sorry you have to go through that
That’s so rare in your ethnicity sir. Most common in Irish, Jewish and French Canadian
@@coralrain6332 And Cajuns. For everyone else it's about 1 to 250 or so.
It is very unfortunate the disease my nephew also has it comes very difficult moments we only have to be strong.... very strong
kathy and aaron, he was such a beautiful boy! i know everyone say that, but i speak the truth! such a cutie! i am so sorry, i truly hope that what you went thru, and sharing it with the medical community, i sure hope it helps big time with tay sachs. i pray we beat this! love to you all from down here in tx! xoxox
my name is mitchell hillier i am 24 and i have a son with Tay-Sachs disease and he is 20 months old.. we has a g-tube and the doctors say he may live till 5 ... i would like to raise money for studies and for my sons chairs and stroller and the ridiculous expensive tools needed for his life.. i wish and would vary much like to do is bike accross canada and raise money so he may live longer and not suffer with the help of everyone.. not may know about tay-sachs , it will be my honnor to do this
mitch11334 you’re French Canadian? I’m a carrier as well
Beautiful Nathan❤❤❤
I beginning to think any ethnic group can get any genetic illness in time. The groups don't even have to intermix with each other to get them. I think it is something in the environment or something we are eating or not eating or drinking or not drinking that are causing these genetic disorders. I think people all over the world should unite together and just maybe we can figure out a way to cure all these illnesses. This is much better than hating each other. Sometimes I believe it is hate/fear and the stress that it causes that is the final trigger for these diseases.
It's genetic, not environmental.
I HAD THIS TEST DONE AND I DONT HAVE THIS DISEASE AT ALL TIMES.
I feel so sorry for their son and what they have to go through each day it breakers my heart to see him like this I Will pray each and every day for Nathan and his family I hope he gets to live healthy and wonderful life like any other kid would he is unique in every way all the kids on this earth and each country they are unique they have different talents and different things to share some kids don't develop things as quick as others that is what makes in unique some people have trouble walking talking and sitting up well wishes.
What is similar in both groups? Historically both groups major food dependancy was on the potato. Eye color the same. Possible genetic similarity because both groups had a Roman genetic input.
So heartbreaking....
Tay Sachs disease .
It's a lysosomal storage disorder . The defect is in the enzyme beta hexosaminidase A which is required to convert Gm2 to Gm3 causing accumulation of Gm2 in lysosomes .
The child presents with developmental delay , neurological deficits , Increased startle reflexes , cherry red spot in macula of eye. Thanksfully no hepatosplenomegaly and cardiac abonormalities .
Rest in peace - little angel!
what a beautiful little prince! I wish him the best!
When I was younger, my parents and doctors thought I had this disease but I was really just autistic. They were shitty doctors looking back.
Where did you get your strength? Day heartbreak. Sorry for your loss.
Is he still alive?
I don't believe so, but I could be wrong. Sadly he will be...😞
I pray for you baby
I wish hear a good news about your health.
Ruth here, how do you prevent it,
dont be a jew
God is with all the sick and he’s even with this little guy if it’s gods will it’s his way this little guy will reach the level of wisdom he needs gods with him and his family you have my prayers
I want to give that baby boy a cuddle....😢😢😢😢😢😢😢😢💔💔💔
Poor little mites. Does it seem there are more genetic problems now than there used to be or is it because we know more?
My baby girl Priscilla has the same disease she past away when she was 2 months and we both parents are the carriers
Rest in peace baby ❤
Poor baby! GOD is watching over this Angel
is he still alive😥?
Sadly, he passed away at the age of 4 in 2014.
Its Showing Up a lot more in None Irish and Jewish familys, I am Puerto Rican and African American and I am A Carrier . we Just found out my Daughter has it on January 2nd, 2015 Worse Day of My life.
I know I could never handle or do what these parent do.
thanks for sharing...
This must be so hard to watch!
This isn't living. Why make him go through this?
princessaz79 you have no idea. They had no choice, they didn’t know. They are trying to raise awareness so other children do not suffer like their son. I lost my daughter to Tay Sachs too, my first born and I had no idea. You should try some compassion for others.
You’d rather get him euthanized?
It is an extremely cruel disease. Why does God allow it ???
French Canadians/Cajuns with origins from Eastern Quebec are prone to Tay-Sachs and Sicle Cell Anemia.
Ouf I now understand why genetic testing is so critical in my home village
So sorry for your loss. This is such a horrendously cruel disease. People of Irish decent are spread so far and wide all over the world how are they ever going to find out about this. I am Irish decent and we have more than our fair share of genetic diseases. One of them is also a disease that is
said to only happen in Ashkenazi Jews too. We don't appear to have any Jewish ancestry going back 10 generations on my mothers side of the family. My fathers side had German an Irish, my husbands side has a Hitler youth graduate Prussian, and Latvian/ Russian. There, ofcourse, could have been Jews
among them who knows.
It always breaks my heart when a child is born with something disabling. It's so unfair. They couldv'e been a scientist that cures the very thing disabling them, you know?
It also kind of makes me want to never be a parent. If my child was anything but normal, I would not want them.
Theresa Tran then make sure you never will be a parent.
Djangus Roundstone How am I a faggot when I am a female? And what a clever retort! Instead of petty childish namecalling, why not actually say something intellectual with those brain cells you have?
Skarlet79 I am :)
+Theresa Tran Please never have children if you would say something as awful as "If my child were anything but normal, I would not want them". I'm almost afraid to ask what you would consider normal. Would you disown a gay child? By the way, there's a vast difference between a child with a disability and a child who is terminally ill.
+Theresa Tran soory
so do they have normal mental capacity do they understand things but their body doesn't let them?
This disease is missing a functioning hydrolytic enzyme normally presented in Lysosomes without this function in your organs they can deteriorate inside-out and it means all organs including the brain. For example, hydrolytic enzyme recycles human liver macromolecules each week without this accumulation of lipids begin to occur and decompose everything.
Thanks so much for getting back to me hope he's doing ok wherever he is!
Daks no they don't they are in a vegetative state can't swallow blind and deaf and paralyzed.
Gave me tears
Brave little man.
Devastating illness!!
Did he lived
lo siento en el alma mis dos hijos murieron de tay-sachs y me gustaría compartir mi historia
linda karina arroyo tobar hola siento mucho lo que has pasado estoy en algo similar con bebe de 8 meses lo diagnosticaron con gaucher tipo 2 y me dicen que posiblemente alcance los 2 años de vida
RIP Little Nathan !!!
He soon cutie.. Rip 🙏🙏
It comes from the Jewish side. It is said that centuries ago Christian Jews traveled spreading the Gospel and many of them ended up in Ireland. (lost tribe?)
It's funny you should say that, because this condition is very rare in the Island of Ireland...
Peace be with you.
Sweet little boy
is he still alive?.....
Miss Marmalade no
Miss Marmalade death in three years
Marie Vermette oh
aweeeeee #I
thts crazy becuz every child in my family is healthy so i cant even process this its like a joke to me
My condolences hes and angel
This is sad.