I’m grateful for this video and a neurologist explaining it to me. I have SFN and currently transitioning from the military. They have prescribed medication as informed by my neurologist for the past six years. The military does not want to acknowledge it any more citing the NCS and EMG are now negative. The systems persist. My pain is horrific; This is so hard. Sending anyone who is not believed well wishes. Look to god and advocate for yourself. We have an invisible illness.
panedole HEY! DO NOT TRY TO LEAD OTHERS WHO ARE VERY ILL TO CLICK BAIT FOR BOGUS PRODUCTS SO YOU OR OTHERS CAN MAKE MONEY! THAT WEBSITE IS CLASSIC INFOMERCIAL CRAP. BEAT IT! DO NOT BOTHER THESE PEOPLE! YOUR SIMILAR BAIT QUOTE IS ALL OVER THE INTERNET.
I HAVE TRIED SAVELLA IN THE PAST, BUT STOPPED IT BECAUSE I HAD HIGH CATECHOLEMINES. I BELIEVE IT DID HAVE GOOD BENEFIT, BUT NOT ENOUGH. GABAPENTIN & NEURONTIN DID NOTHING. TRULY ONLY PREDNISONE, FENTANYL, MORPHINE, DILAUDID OR LIDOCAINE HAVE BEEN SUCCESSFUL. IF YOU HAVE THIS DISORDER, IT CAN BE RELATED TO SODIUM CHANNEL DYSFUNCTION ON GENE SCN9A. THE RX CARBAMEPAZINE SHOULD HELP IF THIS IS A CAUSE. IT CAN ALSO BE AUTOIMMUNE. IN THIS CASE IVIG TREATMENTS HAVE HELPED. THIS DISORDER IS PATCHY! YOU CAN HAVE SOME SKIN BIOPSIES POSITIVE AND SOME NEGATIVE. IT DEPNDS ON WHERE THE BIOPSY WAS TAKEN. IT ASCENDS IN LEGS SO LOWER LEGS WILL BE POSITIVE FIRST. IT ALSO ASCENDS UP THE ARM IN THE SAME WAY. THE PERSON DOING THE SKIN BIOPSY MUST BE FAMILIAR WITH THIS PATTERN AND MUST DO THE TEST CORRECTLY.
James NO THEY DO NOT. THEY WERE ATTEMPTING TO SCAM YOU WITH SOME STUPID PRODUCT THAT READS LIKE AN INFOMERCIAL. BE CAREFUL OF THESE PEOPLE THAT LEACH OFF OF THOSE WHO ARE SICK. IT IS SO SHAMEFUL...
Valgerdur Lisa Gestsdottir OH I HATE TO HEAR THIS! PLEASE DO NOT GIVE UP! I HAVE HAD THIS FOR 14 YEARS, JUST FINALLY DIAGNOSED. THE KEY IS TO CONTROL THE PAIN. ARE YOU SEEING A PAIN MANAGEMENT DOCTOR? YOU HAVE TO SEE ONE TO GET YOUR LIFE BACK. YOU NEED A SUPPORT SYSTEM AND SOMEONE TO TALK TO THAT KNOWS WHAT YOU GO THROUGH. MAYBE THERE IS A FACEBOOK GROUP? CHECK FOR SMALL FIBER NEUROPATHY GROUPS. KEEP YOUR CHIN UP 😀 WE ARE ALL WITH YOU.
Dr. Zhou is brilliant! She was my doctor and did a skin punch biopsy which confirmed SNF. I believe she left the practice so I am looking for a doctor who has her level of expertise on SNF. Mine is autoimmune in etiology though the autoimmune disease is unspecified/unknown.
Ive been diagnosed for over 12 years... aware i was 'sick' for 30 years now.... after diagnosis i lost my dr... i saw over 12 neurologist and not a single one understood...qnd dismissed the evidence. Ive been put in the psych ward over the pain... when i insisted on answers not drugs.... Small fiber is no damn joke... i fear a heart attack at this point.... choking on my food was originally my biggest fear.... now its a secondary heart attack....
Yep. The 1st neurologist skipped this test and wrote off my other symptoms. Again. It's real and it's frustrating. After covid, there's more people with horrible small fiber nerve pain. Don't accept being dismissed for it! If someone doesn't understand and adds to your misery invite them to spend a while hooked up to a taser around the chest. That's what I experience sensation of 24/7. It's stolen my life.
I just got diagnosed with this today. He said you are constantly in pain aren’t you? I cried I felt heard . Now waiting for scans on the brain and spine and an EMG then further tests like biopsies I guess if available on the nhs. They think it’s an underlying condition from autoimmune disorders
The doctor says that the conduction velocity of small nerve fibers is too slow to measure with conduction velocity tests that are used for large nerve fibers. I would link it would be easier to measure the velocity of something that is slower. Could someone explain?
I was diagnosed with fibromyalgia, but is it possible that it is small fibre neuropathy? Or would this be a part of fibro? I’m always searching for possible cures or better treatments.
@@sathishkumarp7423 I like to geek out on stuff as well. In the past, it helped me to create my on treatment plan- Being pro active (when you are able) helps bring about a sense of control-
Good question I am in BC Canada.......basically I ve got no where with Drs here ! However if you look at several utube videos from Dr David Saperstein you will find a wealth of info .
She was my doctor...... before.....I asked what the prognosis was....she said it will get worse...and then just walked out the room......I have a new doctor....I can't walk more than a city block...can't shower with out help...I'm only 48......the pain meds do help big time but the state gets to decide how much my nurolagist can give me...... thanks to junkies and quack doctors.....it's the worst every waking moment you have pain...from just discomfort to body spamsms....and cry out pain........I have been prescribed medical marijuana... insurance doesn't cover it and it takes up to 2 months to get the state medical marijuana card......life sux..... future looks like it's going to suck.... not just for me but my family too.......am seriously looking to one day go to Switzerland to the didgitalis clinic.....there aren't really many options for this condition
Nice Video! Excuse me for chiming in, I would love your opinion. Have you heard about - Taparton Sturdy Nerves Takeover (do a google search)? It is a good exclusive guide for Getting rid of Neuropathy without the hard work. Ive heard some interesting things about it and my cooworker after a lifetime of fighting got cool success with it.
I had this for years.Thank God I found a Chiropractor that knows what to do.TENS is the answer.I had pain and numbness in top of feet and top of feet ,it let up after TENS over lower spine.Numbness and pain now lifting under feet putting TENS under feet.One pad on ball of foot ,one on heel.It regenerates the nerves.
Letter of medical necessity has to have the right diagnosis...CVID, CIDP etc...I have been to 118 doctors. I certainly have SFN and hypothyroidism...and a low normal platelet count. I'm getting nothing but a runaround.
Myofascial pain syndrome is alot more common and is actually treatable compared to fibromyalgia. It's actually the most common cause of chronic musculoskeletal pain. Look into dry needling
I have to say Dr. Z is a research type doctor with zero bed side manner....... years ago when I was first diagnosed she gave me a pile of meds.... with nasty nasty side effects......when we asked her what the prognosis might be.....she said oh it's not curable and will get worse..... with that she rushed out the door and said see you in 4 weeks......each time given me stronger meds..not pain meds....that's ok but the meds make you clumsy and short term memory shot to bits.....I would repeat sentences because I forget I had already told my wife the same thing less than five minutes before.....I'm lucky she is very patient and caring...I'm very lucky... unfortunately work wise not so good....I work on water I would repeat orders or instructions to the crew.....I was chief on passenger vessel great co-workers great job great friends But it became dangerous.... I would rather loose a foot or arm than have nuropathy
Sandy, im sorry to hear this. I was officially given the diagnosis a few days ago after a biopsy. However, my doctor has been over the top kind about all of this. Like you, he has prescribed meds to me that I just cannot take, gabapentin/neurons in being one of them, even at extremely low doses. It turns me into the most forgetful person ever. Seriously, when I take that stuff my short term memory is gone. As soon as I set to a task I forget what the heck I was supposed to do. Get better!
@@augustussohn893 Thank you for kind words....as an update...no more gabapentin including monthly blood work to insure kidney and liver functioning ok and at one point fentynal patches !!!!!.... Medical marijuana by pill and tincture... especially good at night for all those burning stinging sensations restless leg etc... really targets the nerves...a life changer and my memory is improving...... don't know your location if a is Dr able to write a Rx for medical marijuana.....but the biggest thing I found really is keeping busy it helps distracts from the symptoms...
I just diagnosed SFN by skin biopsy and neuromuscular anti body test found anti MAG positive. My symptoms started 2 months after booster. Neurologist said it caused by vaccine while he reviewed my countless neurological symptoms the first visit. He seeing other patients all over body numbness pain like me every day.
@@Yanjenniferart wow, Google just deleted my comments, f-ing disgusting. You will need IVIG, I have been on it for 9 months it's saved my life since the pfizzer poisoning. My neurologist office is also overloaded with v vicctums with full body neurological disease.
I don't know why I even clicked on this video. It doesn't even have a click-bait title like "how to get relief from neuropathy." This video is utterly pointless.
i just want some hope from the comments... watched many, many videos and i still haven't found anyone saying they got cured :( i don't know how to live with this...
@@Bendesho yup... all good except vitamine B complex. i'l already on folic acid and changing my diet, but i still don't know if that alone can cause this. what i want to know is if this has cure, really...
@@miragaiamaia8966 Did you get tested for vitamin B6 (pyridoxine)? Mine was very high so that's the current culprit. I've stopped eating many foods that I used to eat a LOT of. Hopefully that solves my problem.
@@Bendesho i know that B9 (folic acid) and B12 were too low, dunno about the others... i sure need more green veggies and cut on carbs. doctors are still studying my case, it's been 3 months since this started, 3 looong months. anyways, wish you well and hope there's a cure for this!
Many doctors can do the skin punch biopsy and then simply send it to Corinthian Labs, where it takes 2 weeks for them to tell you the type and pattern of the SFN. The biopsy takes about 20 minutes. It's easy. It's now a normalized procedure and done the same everywhere.
I had IgG infusions from 2002 to June of 2004, nearly a perfect 2 1/2 year span. The infusions were stopped when it was evident that the infusions were causing atrophy below the infusion site. Through intense research on my part I discovered this was possible when the veins started to collapse new collaterals grew and took the IgG on a different path through my arms which presented as hot infections. Over time, the infusions became more concerning so the doctor had a port put into the Vina Cava. After only four months, I developed large blood clots which caused blood to pool in my left arm and carotid artery with the Vina Cava Port in the middle. They had to do 8 Angioplasties in emergency surgery which was performed through a vein in my left arm. I am suffering long term effects of the damage to my entire vascular system. Currently my symptoms are as follows: red & hot knees, petechia (developing and spreading from foot to left knee), right leg is slowly developing the same as the left, small nerve fiber neuropathy, peripheral, but now developing in my face and arms, the list goes on but I really want more information about the red hot knees which has become acute as of 3/30/2017.
Very scary and very difficult to read all the problems you have been through. This condition affects sleep too have you noticed scary dreams and sensation of fear at night? If the IgG had helped you in any way you could be given subcutaneous that way no vascular side effects.
The dreams are familiar as I experienced real horror at a young age. I am an artist so those combined make my dreams so real. The subcutaneous wasn't fully realized when I started the treatment of IV. The Bushes can be blamed for that but that is neither here nor there. French scientists are decades ahead in the study of immune conditions, illnesses and diseases. I hope my country can tap into some of the direly needed research and I hope the FDA gets their hands out of the pockets of major drug manufacturers. I believe drug companies pay the FDA off for special favors. FDA has said they don't have the funding to test everything and so they grandfather drugs that worked on cows or other barnyard fare. The FDA needs to be The Federal Drug Regulations Committee and The Food Administration. Once they separate, things like what happened and continues to hunt my quicky failing body, well, I hope this doesn't happen to anyone else no matter how.
Not MS? I checked out crps and have every single symptom. Add a few more including Vasovagal Syncope with full on autonomic involvement and the disconnect includes hands acting on their own as if they are not in fact holding something. I drop twenty things a day and trip on my own shadow. Lack of coordination, fainting which isn't due to the diabetes...sigh. Too much to discuss. Thank you for the info though!
I was given IgG infusions. They infiltrated below the site after about a year. I kept telling the doctor that it was happening, showing the station nurses and the swelling got so bad one day they finally saw it. My body had started growing new collateral veins and they had been inserting the needles into leaking veins. All said and done, I had a port put in to accommodate the infusions. This occluded and I went to a hospital on Thursday, a doctor on Friday and Saturday I was being watched by my mother when she needed to go to the post office. In the short time she was inside, my neck popped out in a huge bulge. The blood had clotted in the Vena Cava. They did 8 angioplasties after arriving with my frantic mother to the ER. I got lucky, the third doctor was the charm and it saved my life. I was never able to tell him how much I appreciated the chance to continue living. The angioplasties were done through my left arm. They tried to put a stint in but the glue let loose and it shot through my heart and lodged in my leg. Again, I was saved with more emergency surgery. I got very lucky that day but when it was all over, the immunologist said I couldn't get the infusions any longer. The IgG was corrosive to my body. He left me with six months of normal life before I became the bubble lady. Since then, I have worn a mask in public, not worked, avoided the dangers of the outside world until about 8 months ago when a test showed I had started making IgG and IgA on my own. It was short lived, I have now had a sinus infection for the last four months and several flu's and colds. I am back to square one, minus the chance of any doctor doing the sub q. No one will touch it. So, back to the home, back to constantly dealing with destroyed veins, collaterals, spider sob's and worse, hardening. My leg valves don't work anymore and I have chronic and acute vasculitis. Sigh. Thanks for the suggestion though. Blessings.
There are a few components to treating neuropathy at home. One place I discovered which successfully combines these is the Gabs Neuro Guide (google it if you're interested) it's the best blueprint that I have ever seen. look at the amazing info .
I saw her in Dallas last year and it was a very disappointing experience. I had two prior biopsies which were positive. She did a 3rd, which was normal. End of story....wouldn't do anything else.
@@SusanDayz3912 That was what she wanted to do. She ran the lab at Mt. Sinai in NYC. It's an easy test, so I was not averse to having it done again. She was unfortunately working at UTSW Dallas. They really suck over there. It's all about ego's and clinical specialties.
TheDimachaerus I became very ill two years ago and was diagnosed with fibromyalgia. I’ve never seen a neurologist; I had the emg test on my wrists and it was normal, but now I see that just tests big fibers. I have a bulged c5 c6 disc that is touching my spinal cord, but the surgeon who looked at my file won’t operate. It’s affecting my upper arms and wrists. I can no longer do graphic design work. So I wonder if I should be tested for SFN to see if anything at all can be done.
![MV วิถีชีวิตใต้ - ผา อัยย๊ะ [Official MV HD]](http://i.ytimg.com/vi/nODlkOUu9B0/mqdefault.jpg)
I’m grateful for this video and a neurologist explaining it to me. I have SFN and currently transitioning from the military. They have prescribed medication as informed by my neurologist for the past six years. The military does not want to acknowledge it any more citing the NCS and EMG are now negative. The systems persist. My pain is horrific; This is so hard.
Sending anyone who is not believed well wishes. Look to god and advocate for yourself. We have an invisible illness.
would a nerve biopsy i the ankle pickup nerve damage in the foot
I think I can´t live with this disease any longer, it´s way to painful
Have you tried Gabapentin or cymbalta?
panedole HEY! DO NOT TRY TO LEAD OTHERS WHO ARE VERY ILL TO CLICK BAIT FOR BOGUS PRODUCTS SO YOU OR OTHERS CAN MAKE MONEY! THAT WEBSITE IS CLASSIC INFOMERCIAL CRAP. BEAT IT! DO NOT BOTHER THESE PEOPLE! YOUR SIMILAR BAIT QUOTE IS ALL OVER THE INTERNET.
I HAVE TRIED SAVELLA IN THE PAST, BUT STOPPED IT BECAUSE I HAD HIGH CATECHOLEMINES. I BELIEVE IT DID HAVE GOOD BENEFIT, BUT NOT ENOUGH. GABAPENTIN & NEURONTIN DID NOTHING. TRULY ONLY PREDNISONE, FENTANYL, MORPHINE, DILAUDID OR LIDOCAINE HAVE BEEN SUCCESSFUL. IF YOU HAVE THIS DISORDER, IT CAN BE RELATED TO SODIUM CHANNEL DYSFUNCTION ON GENE SCN9A. THE RX CARBAMEPAZINE SHOULD HELP IF THIS IS A CAUSE. IT CAN ALSO BE AUTOIMMUNE. IN THIS CASE IVIG TREATMENTS HAVE HELPED. THIS DISORDER IS PATCHY! YOU CAN HAVE SOME SKIN BIOPSIES POSITIVE AND SOME NEGATIVE. IT DEPNDS ON WHERE THE BIOPSY WAS TAKEN. IT ASCENDS IN LEGS SO LOWER LEGS WILL BE POSITIVE FIRST. IT ALSO ASCENDS UP THE ARM IN THE SAME WAY. THE PERSON DOING THE SKIN BIOPSY MUST BE FAMILIAR WITH THIS PATTERN AND MUST DO THE TEST CORRECTLY.
James NO THEY DO NOT. THEY WERE ATTEMPTING TO SCAM YOU WITH SOME STUPID PRODUCT THAT READS LIKE AN INFOMERCIAL. BE CAREFUL OF THESE PEOPLE THAT LEACH OFF OF THOSE WHO ARE SICK. IT IS SO SHAMEFUL...
Valgerdur Lisa Gestsdottir OH I HATE TO HEAR THIS! PLEASE DO NOT GIVE UP! I HAVE HAD THIS FOR 14 YEARS, JUST FINALLY DIAGNOSED. THE KEY IS TO CONTROL THE PAIN. ARE YOU SEEING A PAIN MANAGEMENT DOCTOR? YOU HAVE TO SEE ONE TO GET YOUR LIFE BACK. YOU NEED A SUPPORT SYSTEM AND SOMEONE TO TALK TO THAT KNOWS WHAT YOU GO THROUGH. MAYBE THERE IS A FACEBOOK GROUP? CHECK FOR SMALL FIBER NEUROPATHY GROUPS. KEEP YOUR CHIN UP 😀 WE ARE ALL WITH YOU.
Dr. Zhou is brilliant! She was my doctor and did a skin punch biopsy which confirmed SNF. I believe she left the practice so I am looking for a doctor who has her level of expertise on SNF. Mine is autoimmune in etiology though the autoimmune disease is unspecified/unknown.
HOw do you know it's auto immune?
Ive been diagnosed for over 12 years... aware i was 'sick' for 30 years now.... after diagnosis i lost my dr... i saw over 12 neurologist and not a single one understood...qnd dismissed the evidence. Ive been put in the psych ward over the pain... when i insisted on answers not drugs....
Small fiber is no damn joke... i fear a heart attack at this point.... choking on my food was originally my biggest fear.... now its a secondary heart attack....
Yep. The 1st neurologist skipped this test and wrote off my other symptoms. Again. It's real and it's frustrating. After covid, there's more people with horrible small fiber nerve pain. Don't accept being dismissed for it! If someone doesn't understand and adds to your misery invite them to spend a while hooked up to a taser around the chest. That's what I experience sensation of 24/7. It's stolen my life.
I just got diagnosed with this today. He said you are constantly in pain aren’t you? I cried I felt heard . Now waiting for scans on the brain and spine and an EMG then further tests like biopsies I guess if available on the nhs. They think it’s an underlying condition from autoimmune disorders
How do I get an apt? This is something I need very badly. I got the nerve study and they sent me away after it came back normal
The doctor says that the conduction velocity of small nerve fibers is too slow to measure with conduction velocity tests that are used for large nerve fibers. I would link it would be easier to measure the velocity of something that is slower. Could someone explain?
I was diagnosed with fibromyalgia, but is it possible that it is small fibre neuropathy? Or would this be a part of fibro? I’m always searching for possible cures or better treatments.
I have spent months researching reducing neuropathy naturally and found a fantastic website at Nats Neuro Site (look it up on google)
Fibro is similar to SFN, but it isn't the same. Fibro is a "wastepaper basket" diagnosis. When they don't know what you have, Fibro is your diagnosis.
You can have both. I do. I have fibro and SFN. They both started at the same time.
@@happytrails699 do you feel emotional stress was a part of it? Did the diseases kick off after a stressful event?
@@sathishkumarp7423 I like to geek out on stuff as well. In the past, it helped me to create my on treatment plan- Being pro active (when you are able) helps bring about a sense of control-
Can Canadian see doctors here, if they pay?
Good question
I am in BC Canada.......basically I ve got no where with Drs here !
However if you look at several utube videos from Dr David Saperstein you will find a wealth of info .
Can SFN heals ?
Any body knows where en nj to find a good dr to treat neuropathia non diabetic.please
Good video, but how did it help those people dealing with small fiber neuropathy? It didn't.
She was my doctor...... before.....I asked what the prognosis was....she said it will get worse...and then just walked out the room......I have a new doctor....I can't walk more than a city block...can't shower with out help...I'm only 48......the pain meds do help big time but the state gets to decide how much my nurolagist can give me...... thanks to junkies and quack doctors.....it's the worst every waking moment you have pain...from just discomfort to body spamsms....and cry out pain........I have been prescribed medical marijuana... insurance doesn't cover it and it takes up to 2 months to get the state medical marijuana card......life sux..... future looks like it's going to suck.... not just for me but my family too.......am seriously looking to one day go to Switzerland to the didgitalis clinic.....there aren't really many options for this condition
I see her next week in Dallas.
It is merely an advertisement.
Meaning?
Nice Video! Excuse me for chiming in, I would love your opinion. Have you heard about - Taparton Sturdy Nerves Takeover (do a google search)? It is a good exclusive guide for Getting rid of Neuropathy without the hard work. Ive heard some interesting things about it and my cooworker after a lifetime of fighting got cool success with it.
I had this for years.Thank God I found a Chiropractor that knows what to do.TENS is the answer.I had pain and numbness in top of feet and top of feet ,it let up after TENS over lower spine.Numbness and pain now lifting under feet putting TENS under feet.One pad on ball of foot ,one on heel.It regenerates the nerves.
What do u mean by tens?
@@rickrivera9786TENS UNIT MACHINE SEARCH IN GOOGAL
Very impressive after the diagnosis IVIg can help reverse the small fiber symptoms and disease
Incorrect. You can't get IVIG unless the cause is autoimmune mediated. The cost of each infusion is $10,000.00. I have been denied three times.
I have helped several people with small fiber get IVIg , you need a good LMN , letter of medical necessity
Letter of medical necessity has to have the right diagnosis...CVID, CIDP etc...I have been to 118 doctors. I certainly have SFN and hypothyroidism...and a low normal platelet count.
I'm getting nothing but a runaround.
Correct terminology is the way , and medical references help the most.
Where do you practice?
I am a small fiber Neuropathy peasent please help me very poor family
Myofascial pain syndrome is alot more common and is actually treatable compared to fibromyalgia. It's actually the most common cause of chronic musculoskeletal pain. Look into dry needling
I have to say Dr. Z is a research type doctor with zero bed side manner....... years ago when I was first diagnosed she gave me a pile of meds.... with nasty nasty side effects......when we asked her what the prognosis might be.....she said oh it's not curable and will get worse..... with that she rushed out the door and said see you in 4 weeks......each time given me stronger meds..not pain meds....that's ok but the meds make you clumsy and short term memory shot to bits.....I would repeat sentences because I forget I had already told my wife the same thing less than five minutes before.....I'm lucky she is very patient and caring...I'm very lucky... unfortunately work wise not so good....I work on water I would repeat orders or instructions to the crew.....I was chief on passenger vessel great co-workers great job great friends But it became dangerous....
I would rather loose a foot or arm than have nuropathy
Sandy, im sorry to hear this. I was officially given the diagnosis a few days ago after a biopsy. However, my doctor has been over the top kind about all of this.
Like you, he has prescribed meds to me that I just cannot take, gabapentin/neurons in being one of them, even at extremely low doses. It turns me into the most forgetful person ever. Seriously, when I take that stuff my short term memory is gone. As soon as I set to a task I forget what the heck I was supposed to do.
Get better!
@@augustussohn893 Thank you for kind words....as an update...no more gabapentin including monthly blood work to insure kidney and liver functioning ok and at one point fentynal patches !!!!!....
Medical marijuana by pill and tincture... especially good at night for all those burning stinging sensations restless leg etc... really targets the nerves...a life changer and my memory is improving...... don't know your location if a is Dr able to write a Rx for medical marijuana.....but the biggest thing I found really is keeping busy it helps distracts from the symptoms...
Seeing a large increase in SFN from covid vaccines?
Have you been able to find any answer? I am almost 3 months into this after my shot.
@@coachyenny976 not yet but im actually about to start my first round ivig in 1 hour...
@@nickf9024 best of luck 🤞🏽 I just had a skin biopsy done last week.
I just diagnosed SFN by skin biopsy and neuromuscular anti body test found anti MAG positive. My symptoms started 2 months after booster. Neurologist said it caused by vaccine while he reviewed my countless neurological symptoms the first visit. He seeing other patients all over body numbness pain like me every day.
@@Yanjenniferart wow, Google just deleted my comments, f-ing disgusting. You will need IVIG, I have been on it for 9 months it's saved my life since the pfizzer poisoning. My neurologist office is also overloaded with v vicctums with full body neurological disease.
I don't know why I even clicked on this video. It doesn't even have a click-bait title like "how to get relief from neuropathy." This video is utterly pointless.
i just want some hope from the comments... watched many, many videos and i still haven't found anyone saying they got cured :( i don't know how to live with this...
@@miragaiamaia8966 Have you gone to the doctor and had your blood tested?
@@Bendesho yup... all good except vitamine B complex. i'l already on folic acid and changing my diet, but i still don't know if that alone can cause this. what i want to know is if this has cure, really...
@@miragaiamaia8966 Did you get tested for vitamin B6 (pyridoxine)? Mine was very high so that's the current culprit. I've stopped eating many foods that I used to eat a LOT of. Hopefully that solves my problem.
@@Bendesho i know that B9 (folic acid) and B12 were too low, dunno about the others... i sure need more green veggies and cut on carbs. doctors are still studying my case, it's been 3 months since this started, 3 looong months.
anyways, wish you well and hope there's a cure for this!
How does the Mt Sinai Lab where Dr Lan Zhou interprets the Punch Skin Biopsy compare to Therapath Neuropathology Lab?
No difference.
Many doctors can do the skin punch biopsy and then simply send it to Corinthian Labs, where it takes 2 weeks for them to tell you the type and pattern of the SFN. The biopsy takes about 20 minutes. It's easy. It's now a normalized procedure and done the same everywhere.
@@Jadae thank you for this info
Wonderful video...with a very good explanation...;)
*@Prathmesh D* If you want some great treatment options for peripheral neuropathy go here now: www.ZootPain. xyz
great viedo
I had IgG infusions from 2002 to June of 2004, nearly a perfect 2 1/2 year span. The infusions were stopped when it was evident that the infusions were causing atrophy below the infusion site. Through intense research on my part I discovered this was possible when the veins started to collapse new collaterals grew and took the IgG on a different path through my arms which presented as hot infections. Over time, the infusions became more concerning so the doctor had a port put into the Vina Cava. After only four months, I developed large blood clots which caused blood to pool in my left arm and carotid artery with the Vina Cava Port in the middle. They had to do 8 Angioplasties in emergency surgery which was performed through a vein in my left arm. I am suffering long term effects of the damage to my entire vascular system. Currently my symptoms are as follows: red & hot knees, petechia (developing and spreading from foot to left knee), right leg is slowly developing the same as the left, small nerve fiber neuropathy, peripheral, but now developing in my face and arms, the list goes on but I really want more information about the red hot knees which has become acute as of 3/30/2017.
Very scary and very difficult to read all the problems you have been through. This condition affects sleep too have you noticed scary dreams and sensation of fear at night? If the IgG had helped you in any way you could be given subcutaneous that way no vascular side effects.
The dreams are familiar as I experienced real horror at a young age. I am an artist so those combined make my dreams so real. The subcutaneous wasn't fully realized when I started the treatment of IV. The Bushes can be blamed for that but that is neither here nor there. French scientists are decades ahead in the study of immune conditions, illnesses and diseases. I hope my country can tap into some of the direly needed research and I hope the FDA gets their hands out of the pockets of major drug manufacturers. I believe drug companies pay the FDA off for special favors. FDA has said they don't have the funding to test everything and so they grandfather drugs that worked on cows or other barnyard fare. The FDA needs to be The Federal Drug Regulations Committee and The Food Administration. Once they separate, things like what happened and continues to hunt my quicky failing body, well, I hope this doesn't happen to anyone else no matter how.
sounds like crps....
Not MS? I checked out crps and have every single symptom. Add a few more including Vasovagal Syncope with full on autonomic involvement and the disconnect includes hands acting on their own as if they are not in fact holding something. I drop twenty things a day and trip on my own shadow. Lack of coordination, fainting which isn't due to the diabetes...sigh. Too much to discuss. Thank you for the info though!
I was given IgG infusions. They infiltrated below the site after about a year. I kept telling the doctor that it was happening, showing the station nurses and the swelling got so bad one day they finally saw it. My body had started growing new collateral veins and they had been inserting the needles into leaking veins. All said and done, I had a port put in to accommodate the infusions. This occluded and I went to a hospital on Thursday, a doctor on Friday and Saturday I was being watched by my mother when she needed to go to the post office. In the short time she was inside, my neck popped out in a huge bulge. The blood had clotted in the Vena Cava. They did 8 angioplasties after arriving with my frantic mother to the ER. I got lucky, the third doctor was the charm and it saved my life. I was never able to tell him how much I appreciated the chance to continue living. The angioplasties were done through my left arm. They tried to put a stint in but the glue let loose and it shot through my heart and lodged in my leg. Again, I was saved with more emergency surgery. I got very lucky that day but when it was all over, the immunologist said I couldn't get the infusions any longer. The IgG was corrosive to my body. He left me with six months of normal life before I became the bubble lady. Since then, I have worn a mask in public, not worked, avoided the dangers of the outside world until about 8 months ago when a test showed I had started making IgG and IgA on my own. It was short lived, I have now had a sinus infection for the last four months and several flu's and colds. I am back to square one, minus the chance of any doctor doing the sub q. No one will touch it. So, back to the home, back to constantly dealing with destroyed veins, collaterals, spider sob's and worse, hardening. My leg valves don't work anymore and I have chronic and acute vasculitis. Sigh. Thanks for the suggestion though. Blessings.
There are a few components to treating neuropathy at home. One place I discovered which successfully combines these is the Gabs Neuro Guide (google it if you're interested) it's the best blueprint that I have ever seen. look at the amazing info .
Covid vaccines gave me this
I saw her in Dallas last year and it was a very disappointing experience. I had two prior biopsies which were positive. She did a 3rd, which was normal. End of story....wouldn't do anything else.
Why did they do three tests and not just accept the results from the first test?
@@SusanDayz3912 That was what she wanted to do. She ran the lab at Mt. Sinai in NYC. It's an easy test, so I was not averse to having it done again. She was unfortunately working at UTSW Dallas. They really suck over there. It's all about ego's and clinical specialties.
@@TheDimachaerus Geez, I'm sorry to hear that!
@@SusanDayz3912 Have you had better luck? This disease is very problematic.
TheDimachaerus I became very ill two years ago and was diagnosed with fibromyalgia. I’ve never seen a neurologist; I had the emg test on my wrists and it was normal, but now I see that just tests big fibers. I have a bulged c5 c6 disc that is touching my spinal cord, but the surgeon who looked at my file won’t operate. It’s affecting my upper arms and wrists. I can no longer do graphic design work. So I wonder if I should be tested for SFN to see if anything at all can be done.
Got this dumb shit after removing my tattoos!