Paul's story - after a stem cell transplant
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- เผยแพร่เมื่อ 21 ส.ค. 2024
- Paul talks about his experiences of recovering after a stem cell transplant. Have you or a loved one been affected by a bone marrow (or stem cell) transplant? Find out how Anthony Nolan’s patient experience team can support you at www.anthonynolan.org/patientinfo or email patientinfo@anthonynolan.org
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my husband just had his allogenic stem cell transplant today for secondary plasma cell leukemia. please keep him in your prayers
Today is my 16th year post Stem Cell Transplant I had my transplant at just 19 years old. Proud to be here the most important thing I learnt from having Cancer is ‘Perspective’
Where did u do this?
Who did this
What is the cost sir
Pls reply
God bless you. I’m going into my second year post transplant. Feels great to have life back doesn’t it my friend❤
@@RedPillDrugs how did you feel after the transplant? How long did you stay in the hospitals after the transplant?
I have a SCT in two days. Due to my Hodgkins Lymphoma not going away after 6 months ABVD + 10 sessions of radiation. Now I'm on GDP awaiting the transplant.
They're harvesting my own cells and reinfusing them 2 weeks later. So I'll be my own donor. That means there's a chance that some cancer cells make it back into my body during reinfusion and that scares me. The whole thing scares me really. I'm more afraid now than I was to receive chemo.
It's a daunting procedure but here's hoping it gets rid of my cancer for good.
Wish me luck.
Reading this helped. I’ve got mine in 5 weeks and I’m having the same feelings and doubts. I’m glad I’m not the only one, hope you’re feeling better.
I'm on my first year after stemcell transplant and feeling better. Two years from first diagnose AML, but I wish the best to all those who are going through this. It's not easy, but you know what they say. Keep it positive and keep it going strong. ❤🙏
So happy to see you doing well. My husband is going thru this currently. Very motivating to see you!
How is he doing today?
To anyone out there who’s going through this (or something similar) be brave, stay positive Never lose your sense of humour and plan something to do with your loved ones next year… it REALLY helps
My support network was constantly chatting with my family and mates about life the universe and anything else that came up
They were great and without them recovery would have been much harder
Well done Paul
Well done Paul’s family and friends
It’s a long road but
You’re getting there 😬
Today i got a letter to say im a match for someone needing a transplant. I registered 3 years ago and thought no more of it until today. I called DKMS who im registered with (and Anthony nolan) and they said im the best match so far and if i would be willing to do a blood test to see if im 100% compatible. I said yes. So tomorrow i do bloods. In 3 months we will have the results if im the one to save this person.....surreal feeling to know i potentially could save this unknown person
hope it worked out well!
Good luck! I had a transplant in 2014.
Then my MDS came back in 2019.
So I had my second. It's been a year an 6 months .everything is good. I had a problem with my lungs .pneumonia. I'm on oxygen now. Hopefully I can kick this ass too.
Good luck in the future.
My husband was diagnosed in May with MDS and high risk to AML. He had a transplant in October and relapsed few weeks ago with AML. NHS won’t pay for another transplant since he relapsed within 6 weeks. Just very hard for us at the moment. We’re looking into going to Kings college hospital for his treatment to fix it.
After how much time a person is able to do daily tasks (walking cooking and all) after stem cell transplant.. my father just had his at 62 years old
I've been registered as a potential donor for a few years now but never got a call so far. It's actually comforting to think my "genetic twin" as we call them here is healthy :) Although I must say this story was very uplifting and motivating. Great job.
ZosiaSamosiaOo please contact me 03406302047
i went through this in 2012.excellent to hear.
How are you doing today Paul? I didn't get a BMT. I did go through the chemo induction + 5 more chemo sessions. I've been AML free since January 2015.
What risk your aml?
I am about to have a stem cell transplant. I enjoyed your story! Hope your house renovation is going well or went well!
Keyo Curry how are you ?
Finally managed to get and send my sample today. Trying to get registered as a possible donor.
Got green light for donating blood just less than a year ago as well. Now at 30yo I'm doing my all to be as helpful as I can be.
Hi Paul . I would suggest wearing a mask so you are not breathing in all that dust, good luck on your health and your reno jobs. God Bless
May God heal and protect all of you in Jesus name 🙏
Venetoclax cured my mother of AML thank God!
Venetoclax cured ? Could you please explain bit more Aml
While on venetoclax the aml will stop followed by a low level chemo shot! It's called targeted therapy ....
Much more mild treatment
Then a stem cell transplant and your cured
Got Hodgkin's lymphoma, mom had to drive me to sperm bank before my stem cell transplant (haven't gotten it yet) and it was pretty awkward
Hi Jack Hey we have the same last name. I was diagnose with MF1 in June but prior ET Dr. took me off Hydrea. now going thru blood trans due to Anemia and blood tests bone marrow biopsys to see where the levels teardrop cancer cells are at. I will know in 2 weeks when I have to take Epex shots . It is very important to get as much info on our diseases. God Bless .Be strong from Canada Eh !
Hello! Do you know where i can find an online self-help-group for patients with aml and stem cell transplantation?
congrats, I had a trans in 2011 for PNH disease.
Just found out I have relapsed i have acute lymphoblastic leukaemia and I had under a year finished of treatment, I relapsed on the 22nd of December and will now be needing a stem cell transplant and I can’t lie I’m paranoid.
Venetoclax 👊 look it up pass it on!!!!