Just for everyone's information... Trigeminal neuralgia is also a symptom of Arteriovenous Fistula so tell your doctor to do a cerebral angiography before going for open brain surgery.
Planet Ayurveda’s treatment has been life-changing for my trigeminal neuralgia. The intense facial pain has become much more manageable, and I’m able to go about my day without constant discomfort.
One of my friend had trigeminal neuralgia ..extreme pain in her left jawline...then she is having Planet Ayurveda Boswella Curcumin Capsules and now she feel so relaxed??
Sir muje bhi trigeminel neurolegia h mene nas me sui dal ke doc. ne opretion bhi kiya 4 mahine huye thik rha lekin ab ye usi jagh vahi same dard fir se shuru hua abhi 3 din se .... kya kru pls batao.. tab..uses bhi kr rha hu Oxymazetol 300 mazetol or Hifenic..Pregabalin pls kya ho skta h
Sir mai is bimari se bahut jyda pidit hun mujhe ye bimari 2 saal se hai Mai nurolugy me dikha Raha hun wo dawa de rahe trigabatin 300mg db or zen 200 tds ye dawa ek khurak bhi nahi khata to dard usi tarah ho jata hai sir bataye mai kya karu
Ye dipressn se h kya bcz aise hi pain mjhe h raat k time increase hota h mjhe last 10 days h. Na m mouth ko open kr skti na close burden feel hota h na ro skta na m hash skti baat b nhi kr skti
Telox 300mg tablet 2 times E gabica 50 mg 2 times.....ap unhe rice beef yougrt milk Spice bakery items b bnd krwa den pain me bht relief ho ga in shaa Allah
Hanhemann Chauraha,🎉🎉 Gomtinagar, Medical College Lucknow , UTTAR PRADESH me humari mata ji ka homeopathic Dawa se ilaaz hua, or Safal bhi rha (Ab dard nhi hota )🎉🎉. Age :58 hai unki And isse pehle 6 saal tk, kai-kai jagah pr ilaaz krwaya, pr koi fayda nhi mila tha... Aap sb bhi wahan pr dikhwa skte hai 🙏🏻
Sir my grandmother is 70 years old and she is suffering from trigeminal neuralgia I'm from Hyderabad ,can you please suggest a hospital or doctor she gets a lot of pain🙏
Trigeminal Neuralgia can be an extremely painful condition affecting the trigeminal nerve, causing sudden and severe facial pain. Planet Ayurveda Medicine is good for managing such discomfort.
Ear ki naso ma bi pain rhata ha jabi ki muja sound bilkul sonyai dati ha ent ka pas bi gyi m vo bolta ha ear thik ha ab muja kuch nhi smj aa rha kha jao kesa dhikao
@@yogeshsaini7699 bhai tumne kaise dikhaya hai vaha alchemist me aur mvd surgery to safe nhi hai aur recurrence bhi hoti hai boht logo ko uska kya kehna hai tumhe
मेराे बायें कान के बाहरी भाग में आसपास जलन महसूस होता है.जो कम टेम्परेचर 21 डिग्री सेल्सियस के आसपास ठंडी हवा चले तो कम महसूस होता है 28 डिग्री सेल्सियस पर जलन अधिक होती है.ठंड हो तो रात में ठीक लगता है पर जलन हमेशा ही होती है.क्या ये ट्राइजेमिनल न्यूराल्जिया है?अक्सर इस तरह के वीडियो में जवाब नहीं देते.शायद कम जानकारी होने से.पर आप तो बहुत जानकार लग रहे.इसलिये कृपया जवाब जरुर दें
youtube.com/@brainandspinesurgery?si=WnehAlmQytrqW0dD Pl consult Neuro Surgeon Dr. Jaydev Panchwagh, Pune. His expertise is in Trigeminal Neuralgia. He has done successful MVD (Micro vascular Decomposition) Surgeries on TN patients. For more details pl watch his TH-cam videos on TN especially. Link is mentioned above.
Sir muja face ki naso ma jabda mind ma pain or soiya chubti ha dentist sa bi treatment krava 4 teeth nikal diya but koi aram nhi opg bi normal aa rhi ha dentist ka pas gyi to vo bolta neurology problem ha neurology ka pas gyi to ono na mind ka ct scan kiya vo normal ha but ono na kuch medicine di mana 10 month khaya koi aram nhi dard sa tadp rhi hu khana bi nhi khaya jata neurology wala bolta ha dentist ka pas jao pagal ho gyi ho ji to karta ha bnda jhar kha la esa acha to pls help me
Same mere sth yhi ho rha tha meri bhut janche hui report mkuch nhi aata tha fir neuro sergan ko dikhya aap bhi neuro sargan ko dikhye M.R.I. Krane pr pta chlta h
I have been suffering from literally 5 to 6 days, but till now I have not got relief, This feels me like going to hell staying on earth. Hope it will go as early as possible ☺️☺️☺️
try this www.ncbi.nlm.nih.gov/pmc/articles/PMC10382661/ Effects of Ayurveda interventions on acute pain and quality of life of a trigeminal neuralgia patient - A case report
This comment is to everyone asking questions about treatment AND to whomever made and posted the video. First I want to say: my Interventional Pain Management doctor had no clue what Trigeminal Neuralgia or Anesthesia Dolorosa even was. He had no idea what the meds or protocol was. He was 100% clueless. He's had to learn by trial by fire. He wanted to start me at the beginning after I'd been dealing with it for YEARS. I've had to be the one to ask or suggest a treatment option, such as the Botox. He was absolutely against it for months until I finally demand it. That's when I learned that he had no idea how to use Botox for ANY treatment, even migraines!! I told him he better quickly start learning some other treatments for chronic pain than just throwing narcotics at everything or I was going to report him!!! I DON'T want to be taking narcotics for the rest of my life and most people don't. I've had TN for almost 6 years now. I've had every treatment out there. THERE IS NO "BEST" TREATMENT. Each person is different and, for whatever reason, things that are currently working will suddenly stop working. Nerve damage is tricky and fickle and can progress with no warning. I'VE HAD TO ENLIST THE HELP OF OTHER DOCTORS MYSELF!!! I found a dentist who would help. A Rolfer (which helped soooooo much) for myofascial release in my head, face, neck and shoulders. A gastroenterologist. And a WONDERFUL primary care physician who is CONSTANTLY researching and asking me questions. I'm hoping the gastro doc will give me a referral to a dietitian or nutritionist, or both. I found a chiropractor who communicates with my primary physician, dentist, and Rolfer and the three plan treatments for me. Those treatments have been the most successful of all and no meds, other than lidocaine injections, are prescribed or used. Almost three years ago, my TN progressed into Anesthesia Dolorosa. I THOUGHT trigeminal neuralgia was horrible, the absolute worst pain imaginable, then the Anesthesia Dolorosa hit. For almost two years I suffered. I lost over 80lbs and at one point weighed 79lbs, I'm 5'4". The pain NEVER STOPPED!! Nonstop, 24/7 pain. Eventually I had an experimental brain surgery called a Nucleus Caudalis DREZ. Even though the hospital experience was brutal and traumatizing, the surgery helped relieve the pain on about 75% of my facial area. The only area still hurting is the left side of my lips down under my chin, the left half of my tongue & teeth and a small circle on my forehead. I still can't brush my teeth or eat but a few bites every few days. Currently I'm on four medications for the pain and I start Botox injections in 3 days. Here's a list of everything I've tried thus far: -Carbamazipine* -Oxcarbazepine* -Dilantin -Topomax -Gabapentin (helped tremendously) -Olanzipine -Hydrocodone (helped) -Fentanyl (helped the most-least side effects) -Methadone* (minimal help) -Cyberknife surgery (helped for about a year) -And my neurologist puts mass amounts of lidocaine up my nose about every 2 weeks. Everything with an * had such incredible side effects they rendered me non-functional. What works for me doesn't mean it'll work for you. My TN & AD is from Multiple Sclerosis and unique to me just as yours is unique to you. Finding the CAUSE is the first step. Usually TN is caused by the nerve and an artery rubbing over such an extended, long period of time that the throbbing of the artery eventually rubbed the myelin sheath away exposing nerve fibers (like what happens in the whole brain of people with Multiple Sclerosis or in the body in people with CIDP) except the person has neither. Most of the medicinal options are secondary use. There's just not many options. You and your neurosurgeon need to sit down and discuss all the treatment options and just start one. You'll know within a day if it's gonna work for you but you have to begin taking it to know. If you can find a trial, do it!! Soooooo much more research and development is needed for the "suicide disease"!!! You'd think there'd be an abundance of research happening for a disease that causes the literal "worst pain imaginable that's known to mankind", but there's just nothing. The entire medical community needs to do better because we just can't live like this for very long!!!
youtube.com/@brainandspinesurgery?si=WnehAlmQytrqW0dD Pl consult Neuro Surgeon Dr. Jaydev Panchwagh, Pune. His expertise is in Trigeminal Neuralgia. He has done successful MVD surgeries on TN patients. For more information, kindly watch his videos on TN especially.
Just for everyone's information... Trigeminal neuralgia is also a symptom of Arteriovenous Fistula so tell your doctor to do a cerebral angiography before going for open brain surgery.
Sir iska sahi ilaj kya he
Ooooooo. Every woman in my family has TGN
@@ratanburnwal4004 doctors hi bata sakte hain... Bhagwan sabka bhala karein
@@joankney8484 how are they being treated?
Sir my father is also suffering from this problem wt is th minimum coust for this surjery
Mane ye surgery karvayi he private me 1 lakh or Ayushman card me free hoti he
@@abdelivhora794 kya apki yeh problem thik ho gai a surjery krvake plz tell me mere mom ko yhi problem h 18years se
@@Sandhuartforever my mother have same problem bro.....how it reduces plz suggest
@@abdelivhora794 kya permanent aaram Mila aapko
sir plz send ur mob num .. ..
@@abdelivhora794
Can you plz tell the dosage of carbamazepine for a TN patient. And for how long it should be continued
Thanks
Aapse contact kaise ho sakta hai
Hey! You may instantly book a doctor's appointment online by visiting www.askapollo.com/book-appointment
Is there any medications/any treatment to rid of facial swelling?
hlo plz tell me best treatment for trigeminal neuralgia ??
@@devidaspawar6603 surgery
@@Sonu.pratihari720 sir r u trigeminal neuralgia patient???
@@devidaspawar6603nii mere papa t.n ka patient hai
@@Sonu.pratihari720 sir papa cure hogaya????
Me too. How can I be helped
Sir aapse khaa p Mila Jay pls batay
Hey Chaman! You may instantly book a doctor's appointment online by visiting www.askapollo.com/book-appointment
Salman Khan had the same disease and he got treated in the US. Now he's fine
Gamma knife krayi thi unhone
Sir aapse kha Mila Jay
Hey! You may instantly book a doctor's appointment online by visiting this link. www.askapollo.com/book-appointment
I am from Pakistan
My mother is suffering having this disease since 1996.
How can I find a treatment here
Rfa is good for this
My mother is facing the same. Can you please help what can be done. What is the procedure?
Hey Rohan! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
This is life threatening disease??
Because i feel too much pain on my face .
How is your pain
@@Arsalanmurtuzavlogs now feeling better
@@tanvikhandelwal9576 go to hear did you done surgery or normal medicine..how r u mam
I under gone r f a
@@manjulabhandary831 what is RFA
Mujhe ye problem h kaan k pas dard hota h kabhi jbde m kabhi aankh k niche m aapse kese contact kr skti hu
Hey Rajni! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
How are u now?
Ab aap kse ho or diagnosed krya aapne apna
Mai ye kis doctor ko dikhau neuro ko ya ent walo ko
Hi Bina, we are here to help. Please visit www.askapollo.com/ to consult our top doctors for any health concerns.
Planet Ayurveda’s treatment has been life-changing for my trigeminal neuralgia. The intense facial pain has become much more manageable, and I’m able to go about my day without constant discomfort.
Ya hospital kha pr ha
Isme toh appollo Hospital ka Address Navi Mumbai likha hai
One of my friend had trigeminal neuralgia ..extreme pain in her left jawline...then she is having Planet Ayurveda Boswella Curcumin Capsules and now she feel so relaxed??
Mohali mein h unka
Frk h abhi bhi unko
Sir muje bhi trigeminel neurolegia h mene nas me sui dal ke doc. ne opretion bhi kiya 4 mahine huye thik rha lekin ab ye usi jagh vahi same dard fir se shuru hua abhi 3 din se .... kya kru pls batao..
tab..uses bhi kr rha hu
Oxymazetol 300
mazetol or
Hifenic..Pregabalin pls kya ho skta h
Hey Anil! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
Nose. Me. Current. Je. Sa. He. To. Kya. Ye. Trigeminal. Ho. Sakta. He???
Sir mai is bimari se bahut jyda pidit hun mujhe ye bimari 2 saal se hai Mai nurolugy me dikha Raha hun wo dawa de rahe trigabatin 300mg db or zen 200 tds ye dawa ek khurak bhi nahi khata to dard usi tarah ho jata hai sir bataye mai kya karu
Hey Rahul! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
Hello mei bhi trigeminal patient hu ab aap kya treatment kra rahe ho
Ye dipressn se h kya bcz aise hi pain mjhe h raat k time increase hota h mjhe last 10 days h. Na m mouth ko open kr skti na close burden feel hota h na ro skta na m hash skti baat b nhi kr skti
Hey! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
आप ठीक हो गाई
Hello apne diagnosed kraya apna
Dr iski surgery hoti hai kya
Yes MVD
Sir ji mere mata ji ko ye problem kya kre btao
Hi Loki, We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
A.O.A sir i am Nadir Hayat from pakistan . Sir my mother suffered in this diseased. Plz sir kindly told me about treatment and about some medicine.
Hey Nadir! You may instantly book a doctor's appointment online by visiting www.askapollo.com/book-appointment
Telox 300mg tablet 2 times E gabica 50 mg 2 times.....ap unhe rice beef yougrt milk Spice bakery items b bnd krwa den pain me bht relief ho ga in shaa Allah
Is this pain reduce face fat
Sir mujhe bhe yahe problam haiii maine abhe rct karwaya but koi relif nahe haiii
Rct koi fayde nhi hoga mujhe bhi yhi problem hai
I have same pain
I m chronic patient of trigeminal neuralgia pleas guide me
Hey! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
Hanhemann Chauraha,🎉🎉 Gomtinagar, Medical College Lucknow , UTTAR PRADESH
me humari mata ji ka homeopathic Dawa se ilaaz hua,
or Safal bhi rha
(Ab dard nhi hota )🎉🎉.
Age :58 hai unki
And isse pehle 6 saal tk, kai-kai jagah pr ilaaz krwaya, pr koi fayda nhi mila tha...
Aap sb bhi wahan pr dikhwa skte hai 🙏🏻
Kya iska koi aisa tareeka jo long time rahat de ske
Hey Rajesh, we are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concern.
Help me sir
Hello sir
Hi Shilpa, we are here to help. Please let us know how can we help you.
Plz sir Mara husband ne boht medicine use ko koi aram ni aya ky kre ab
Have you tried lamitor dt 100
gabapin nt 400?
Sir my grandmother is 70 years old and she is suffering from trigeminal neuralgia I'm from Hyderabad ,can you please suggest a hospital or doctor she gets a lot of pain🙏
Hi Ranjith, we are here to help. Please visit www.askapollo.com for consulting our top doctors for any health concerns.
Sir mera kan ke upar sir me dard hota hain..kan ke upar ek bar halcal korta he or Dard 1mint tak reheta he..iska Kiya krn hain
Sr Im 66 yrs old & I am suffering
From trigimal nurulgia since 2016 kindly advise.
I take tegretol n i have ms as well
It helps
Jyada tym medicines kam nhi krti 😮
If a child of 10 years can have the same disease then what is the treatment plan for the child ?
Hey Gohar! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
मेरी मां को है सर जी यह बीमारी क्या करे कोई दवाई काम नहीं कर रही है कृपया कुछ उपाय बताए
Bhai apka no dena
Can I child of 10 years suffer from trigeminal neuralgia ?
My 18 years old brother has TN😢
@@Collecting_memories8go for rfa surgery , Dr Ravi Suman Reddy -yashoda hospital somajiguda
really suicide disease.i also suffer this pain😢
Mara name Geetu ha ma yamun nagar sa hu age 29 ha pls help me
@@yogeshsaini7699 la rhi hu but koi aram nhi Monday ko 300 mg ho jaygi kiya aap muja apna contact number send kroga
@@yogeshsaini7699 pls contact number
@@geeturani3889 hi apko relief mila kya
No
@@geeturani3889 kaise ho ab aur mvd surgery se bhi aram nhi Mila suna hai meine logo ko boht
Sir mughe same aisa hi six month se chehre par dard ho raha hai jaise curent lag gaya ho please iska ilaj batade to mehrbani hoti please please
Medicine from Neurologist, agar us se dard chala Jata he to theek he Varna Gamma knife surgery karva lijiye
@@mdkashifkhan kitna kharcha aa jayega aur ye india me hoti h kya
Apko relief mila kya plz reply, am facing same problem
Trigeminal Neuralgia can be an extremely painful condition affecting the trigeminal nerve, causing sudden and severe facial pain. Planet Ayurveda Medicine is good for managing such discomfort.
Ear ki naso ma bi pain rhata ha jabi ki muja sound bilkul sonyai dati ha ent ka pas bi gyi m vo bolta ha ear thik ha ab muja kuch nhi smj aa rha kha jao kesa dhikao
Alchemist panchkula chle jao vha neuro k doctor hai available.
Ab tum keso ho
Muje bhi hua hai
Not fine
@@yogeshsaini7699 bhai tumne kaise dikhaya hai vaha alchemist me aur mvd surgery to safe nhi hai aur recurrence bhi hoti hai boht logo ko uska kya kehna hai tumhe
Pls sir help me m hath jhood rhi hu help krdo
My father is also suffring from this disese....plz suggest the best therphy...
Hi, please visit www.askapollo.com for better assistance with this.
Aap mujh se baat kro m elaaj bta dung mere papa ko thi 8Year se unka elaaj karvaya h 4 month phle
@@SunilJAT60. Hi.. kya elaaj hai , mujhe bhi yehi problem hai, ek saal hogya.
@@SunilJAT60. aap kha se hai??
@@SunilJAT60. Mujhe bhi hai brother bus mai 14 y ka hu plz bta do nnnn
,eta surgical koto kharag
मेराे बायें कान के बाहरी भाग में आसपास जलन महसूस होता है.जो कम टेम्परेचर 21 डिग्री सेल्सियस के आसपास ठंडी हवा चले तो कम महसूस होता है 28 डिग्री सेल्सियस पर जलन अधिक होती है.ठंड हो तो रात में ठीक लगता है पर जलन हमेशा ही होती है.क्या ये ट्राइजेमिनल न्यूराल्जिया है?अक्सर इस तरह के वीडियो में जवाब नहीं देते.शायद कम जानकारी होने से.पर आप तो बहुत जानकार लग रहे.इसलिये कृपया जवाब जरुर दें
Hey! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
Mara Maa ka kan, gal aur gala me dard rahta hai sir....
Mujhe bhi hai last 2 yrs.se
Ab tum keso Ho muje bhi hai problem hai
@@sanketvarandule6532 Bhai mujhe bhi hai yeah problem
Best treatment for trigeminal neuralgia???
Surgery finely solution myself experience 👍
@@abdelivhora794 which surgery did you do? Balloon compression or mvd?
@@abdelivhora794 which surgery mvd ya gamma knife
@@abdelivhora794 give your number please
@@abdelivhora794
Which surgery u do and how many years before have ur pain please tell
ट्रायजेनल न्युराल्जीया ये आॅपरेशन के बाद कान से खुन जैसा पानी आ रहा है
Aapne kb oprestion krya tha ab aap ko drd to nhi hota plz plz reply kriyega mbhut presan hu is drd se😭😭
@@shilpigupta7414 आॅपरेशन के बाद दुसरे दिन ही राहत मिली किंतु कान से थोडा खुन जैसा पानी आ रहा था अब एक महीने के बाद
अब राहत ह
@@rajeshatale3383 operation me dard hota hai kya
@@shilpigupta7414 hi dear plZ reply apko relief mila kya ,or Kitna time ho gya apko is problem se
आप के दोनो साईड दर्द होता है ना मुझे भी रिप्लाय करो मुझे भी दानो side
Mujay Nirologiya 2sal Sy hy
My younger brother has TN from last 2 years😢
Mere bhai ko hua ye head me chot lgne se
Sir mere papa ka 3 baar operation ho chuka hai
Can u please share more details? Aapke papa ka kaun kaun sa surgery hua hai Trigeminal ka? Aur unka recovery surgery ke baad bhee nahi hua kya?
Brother ap papa ko perhez b Kray sath.....I suffered this deseas
Meri mata ji ko ye bimari h jiski wajah se vo bahut taklif me h
Hey! We are here to help. Please visit www.askapollo.com/ for consulting our top doctors for any health concerns.
Bubble ....compression
ڈھائی سال سے ٹیگرال ٹیبلٹس ۔اور دیگر جی بیکس۔انفلیٹیکس۔کھا رھا ھوں۔اب درد شدید ھورھا ھے
Hi, please visit www.askapollo.com to consult our top doctors for any health concerns.
Pls help
youtube.com/@brainandspinesurgery?si=WnehAlmQytrqW0dD
Pl consult Neuro Surgeon Dr. Jaydev Panchwagh, Pune. His expertise is in Trigeminal Neuralgia. He has done successful MVD (Micro vascular Decomposition) Surgeries on TN patients. For more details pl watch his TH-cam videos on TN especially. Link is mentioned above.
पुणे सह्याद्री हॉस्पिटल खर्चा 300000 आया है
Aapne ye operation karwaya hai kya aur ab Puri tarha thik hai ya koi problem huwa hai abtak
Replay jaroor kare
किस जगह कौन आये दिखाने आप लोग अपना पता नही बताते।कितने लोग परेशाब है।
जबाब नही देते
Sir muja face ki naso ma jabda mind ma pain or soiya chubti ha dentist sa bi treatment krava 4 teeth nikal diya but koi aram nhi opg bi normal aa rhi ha dentist ka pas gyi to vo bolta neurology problem ha neurology ka pas gyi to ono na mind ka ct scan kiya vo normal ha but ono na kuch medicine di mana 10 month khaya koi aram nhi dard sa tadp rhi hu khana bi nhi khaya jata neurology wala bolta ha dentist ka pas jao pagal ho gyi ho ji to karta ha bnda jhar kha la esa acha to pls help me
Same mere sth yhi ho rha tha meri bhut janche hui report mkuch nhi aata tha fir neuro sergan ko dikhya aap bhi neuro sargan ko dikhye M.R.I. Krane pr pta chlta h
Pgi walo na likha mri but ak tablet likhi ha osa aram nhi ha
@@shilpigupta7414 pls you contact number
@@yogeshsaini7699 ya hospital private ha kiya
ab tum kesi ho
Please tami sir
I have been suffering from literally 5 to 6 days, but till now I have not got relief, This feels me like going to hell staying on earth.
Hope it will go as early as possible ☺️☺️☺️
Soo trueee
How are u now?
Hlep me
Help me
Help me
try this www.ncbi.nlm.nih.gov/pmc/articles/PMC10382661/ Effects of Ayurveda interventions on acute pain and quality of life of a trigeminal neuralgia patient - A case report
This comment is to everyone asking questions about treatment AND to whomever made and posted the video.
First I want to say: my Interventional Pain Management doctor had no clue what Trigeminal Neuralgia or Anesthesia Dolorosa even was. He had no idea what the meds or protocol was. He was 100% clueless. He's had to learn by trial by fire. He wanted to start me at the beginning after I'd been dealing with it for YEARS. I've had to be the one to ask or suggest a treatment option, such as the Botox. He was absolutely against it for months until I finally demand it. That's when I learned that he had no idea how to use Botox for ANY treatment, even migraines!! I told him he better quickly start learning some other treatments for chronic pain than just throwing narcotics at everything or I was going to report him!!! I DON'T want to be taking narcotics for the rest of my life and most people don't.
I've had TN for almost 6 years now. I've had every treatment out there. THERE IS NO "BEST" TREATMENT. Each person is different and, for whatever reason, things that are currently working will suddenly stop working. Nerve damage is tricky and fickle and can progress with no warning.
I'VE HAD TO ENLIST THE HELP OF OTHER DOCTORS MYSELF!!! I found a dentist who would help. A Rolfer (which helped soooooo much) for myofascial release in my head, face, neck and shoulders. A gastroenterologist. And a WONDERFUL primary care physician who is CONSTANTLY researching and asking me questions. I'm hoping the gastro doc will give me a referral to a dietitian or nutritionist, or both. I found a chiropractor who communicates with my primary physician, dentist, and Rolfer and the three plan treatments for me. Those treatments have been the most successful of all and no meds, other than lidocaine injections, are prescribed or used.
Almost three years ago, my TN progressed into Anesthesia Dolorosa. I THOUGHT trigeminal neuralgia was horrible, the absolute worst pain imaginable, then the Anesthesia Dolorosa hit. For almost two years I suffered. I lost over 80lbs and at one point weighed 79lbs, I'm 5'4". The pain NEVER STOPPED!! Nonstop, 24/7 pain. Eventually I had an experimental brain surgery called a Nucleus Caudalis DREZ. Even though the hospital experience was brutal and traumatizing, the surgery helped relieve the pain on about 75% of my facial area. The only area still hurting is the left side of my lips down under my chin, the left half of my tongue & teeth and a small circle on my forehead. I still can't brush my teeth or eat but a few bites every few days.
Currently I'm on four medications for the pain and I start Botox injections in 3 days.
Here's a list of everything I've tried thus far:
-Carbamazipine*
-Oxcarbazepine*
-Dilantin
-Topomax
-Gabapentin (helped tremendously)
-Olanzipine
-Hydrocodone (helped)
-Fentanyl (helped the most-least side effects)
-Methadone* (minimal help)
-Cyberknife surgery (helped for about a year)
-And my neurologist puts mass amounts of lidocaine up my nose about every 2 weeks.
Everything with an * had such incredible side effects they rendered me non-functional.
What works for me doesn't mean it'll work for you. My TN & AD is from Multiple Sclerosis and unique to me just as yours is unique to you. Finding the CAUSE is the first step. Usually TN is caused by the nerve and an artery rubbing over such an extended, long period of time that the throbbing of the artery eventually rubbed the myelin sheath away exposing nerve fibers (like what happens in the whole brain of people with Multiple Sclerosis or in the body in people with CIDP) except the person has neither.
Most of the medicinal options are secondary use.
There's just not many options. You and your neurosurgeon need to sit down and discuss all the treatment options and just start one. You'll know within a day if it's gonna work for you but you have to begin taking it to know. If you can find a trial, do it!! Soooooo much more research and development is needed for the "suicide disease"!!! You'd think there'd be an abundance of research happening for a disease that causes the literal "worst pain imaginable that's known to mankind", but there's just nothing.
The entire medical community needs to do better because we just can't live like this for very long!!!
Iska Gama knife surgery permanent aram mil jata h kya
Thanks for the info.
0:37
Maine bhi do bar rfa ek bar nerve block botox mvd sb krwa lia kisi se aram ni h kuch bhi teen saal se preshn hu bhut is tn se
youtube.com/@brainandspinesurgery?si=WnehAlmQytrqW0dD
Pl consult Neuro Surgeon Dr. Jaydev Panchwagh, Pune. His expertise is in Trigeminal Neuralgia. He has done successful MVD surgeries on TN patients. For more information, kindly watch his videos on TN especially.