Living with pilonidal sinus | Dylan's Story
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- เผยแพร่เมื่อ 24 ก.ย. 2024
- An ingrown hair at 19 changed Dylan’s life forever. Nine surgeries later, he’s healthier and wiser for the experience. Subscribe to ABC Science TH-cam 👉 ab.co/2YFO4Go BIG THANKS to Dylan @brothersandbooks for sharing his story.
Pilonidal sinus disease is a chronic skin infection that develops in the crease between the buttocks, near the tailbone. The infection is usually caused by ingrown or loose hairs which can become cysts and abscesses. For more information on pilonidal sinus disease, visit: www.healthdire...
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Hey guys I am all better now! As sad as it is to see so many people with similar stories to mine I hope that someone has found solace through this video that they are not alone.
❤ Thank you for telling your story. I know it took a lot of bravery.
I have had this disease for the last 3 years and had a surgery two years ago and just recently it has started to fill up with pus and has again been infected. It is a very rough and depressive phase of not being able to move around freely and feeling pain when doing so. Thank you for partaking in this video where you help increase awareness of this issue, so many people don’t know that it even exists. Great job Dylan, wishing you the best! Have you had any recurrences with the cyst after surgery?
@@gurshansingh6932wish you all the best. So many things to remind me, that my schizophrenia is not that bad. I'm still in the lucky zone. So many people without life changing problems play the victim. I must make sure I'm not one of those.
Has the appearance of your incisions healed better???? Do you feel comfortable with your butt??? Please 😭 I need hope
@@ChinStrapOfFat The incisions have healed and the back doesn't look the best but I am living normally once more!
I am female and had this age 25. Was told it was usually large men who got it. It took a year of doctor appointments before I finally got referred and had surgery. That was 30 yrs ago and I’ve never had a problem since. Good luck to all who are suffering
It sounds terrifying! If you don’t mind, could you tell me about your experience? I’m kind of lost on what exactly this is and the long form video won’t load for me for some reason
It's hair follicles that get infected, swells, and puss. It gets so bad moving isn't really an option. Because of the location there's not much to help relieve the pressure. It will come back again and again until the affected tissue is surgically removed. I'm a female had one from 13 years old to 22. I never heard about only big dudes getting it.
@@boobah2622 Ah, thanks for explaining. That sounds awful 😔
A lad I know had it, was only 17 and a small thing. Surgery didn't work for him the first 2 times and was constantly getting his dressings done.
Felt awful for him.
This is a gorgeous, sweet man! I wish all the best!!!
I love how I'm constantly finding new ways to be paranoid for my health.
lol same. The anxiety I’m feeling now after learning about this. 😅
Same here and I’m a guy do I’m even more worried now 😂
same
Make sure if your bum is....um juicy round...clean your crack tipping top very well😊
I know, me *ALSO!!*
I had a polinidal cyst below my lower back, at the top of my “crack”. I had no idea what it was. At first, it was just mild discomfort when sitting down. Eventually I couldn’t sit down or walk without major pain and discomfort.
I was at university, and went to one of the on-campus facilities where a nurse drained it. The relief was insane. I told that nurse.. “whatever they’re paying you, it’s not enough”. This video made me thankful that it hasn’t become a problem since then.
i had to be driven to the nearest ambulancy after i had the exact same issue, the pain was pretty rough. The doctor only used ice spray and did his incision, that was REALLY painful, but man afterwards was immediate relief. I had to wash that rather deep incision daily and keep it pristine. The wound healed from the inside out and i never had any issues since. since, then i never sit like an ape ever again.
they can be manually drained?? my doctor refused to drain mine
@@snakeace0 I think mine was as a result of sitting a certain way for too long too. I used to sit on my bed to play games on my laptop / study. I’d be sitting (half laying down?) in such a way that it would put pressure on my lower back / top of my butt. I would be in that position for hours on end over the course of a day. I’m convinced that that’s what led to it forming. Needless to say, I’m mindful of how I sit now too.
@@freddie8610 I’m no doctor, so I can’t say for sure. But what I *can* say is that for me, it was as simple as making an incision, draining it, applying some gauze, and keeping the area clean for a week or two. I’m sure it varies from case to case however.
@@freddie8610depends on severity I guess
"As a woman “24yo” I went through this experience about 7 months ago. I underwent open-method surgery, which kept the wound open to heal. Unfortunately, it didn't close for 6 months! They diagnosed it as a recurrence, and I had another surgery 20 days ago - the "Limberg flap" procedure. They removed everything, leaving me with a significant scar. But honestly, the scar doesn't matter to me; I just want to feel normal and healthy again. 💔 To anyone reading this, you're not alone. It's tough both mentally and physically, but we'll get through it."
Hope you recover well and be healthy again sis❤❤
I just posted my experience from the 70' s. I don't envy anyone having to deal with this.
HOPE YOU RECOVER WELL YOUR NOT ALONE
Same happened to me when I was just 14 again it grows back when I was 16 now I am 20y/o and sometime it hurts so much after seeing my scars
I had surgery to remove this twice - when I was 12 and when I was 13. For anyone reading this about to have surgery, do NOT let the surgeon sew up your wound afterwards. That has a higher rate of reoccurrence than just leaving the wound open but packed with gauze daily until it heals on its own from the inside out. My first surgery was with the sewing - it immediately came back within months. My second surgery a year later, the surgeon told me the first surgeon shouldn't have closed it like he did due to the reoccurrence rate. The second surgeon let the wound heal on its own from the I side out (packed daily with gauze ofc) and I've not had a reoccurrence since, and that was almost 2 decades ago. I have many issues with pain in my tailbone area because the way the first surgeon sowed me up, it pulls and pulls on my surrounding skin when I sit and leads to excruciating pain. Don't let a surgeon sew your wound up!! Just don't
I didn’t have an official surgery for mine but they did a lance and drain in urgent care. I’m SO thankful that she packed it from the inside. It was probably the worst pain I’ve experienced up to this point in my life. They numbed the area, but it still hurt like hell. I haven’t had it come back and it’s been nine years. It was so embarrassing because I was a 19 year old girl… and I’m told that burly hairy trucker type dudes get these. I’m so thankful it hasn’t come back.
I’m so confused does it only occur in a specific area? Like why only the butt or lower back area? Where is the hair coming from that’s causing the issue? Is it the literally butt hairs or hair from elsewhere getting in that area? And why does it only cause issues in this area?
@@Duhhh123its because your butt catches hair and theres a lot of friction in that area so it can drive fallen hairs into your skin causing infection
This. I had it first when I was 20ish and it recurred again three more times. The last two times they left it open and packed the wound.
Since this is an old surgery you may have restrictive scar tissue in that area. You can have it released if you go to a physician therapist who specializes in Myofascial Release. It works in moments. I am a physical therapist practicing for 35 years with a specialty in Myofascial Release.
Former surgical tech here. In school I was told pilonidal cysts were something that primarily effected middle aged, overweight people especially truckers & bus drivers but in the OR exactly 1 of the patients that had to have the tract surgically treated was a trucker. He was in his early 20's & had only been driving truck for about 2 years & wasn't overweight. The very first person I saw in the OR for a pilonidal cyst was a teenage girl who was an avid volleyball player. She had really dark hair & because of her heritage she had courser body hair so one if the little vellus hairs from her lower back had been irritated & pushed onward which is how almost all pilonidal cysts start though hair splinters can cause them. Every person we treated was different & some people unfortunately need repeated surgeries because the sinus tract can go in multiple directions. It's crazy how just a tiny hair on your lower back can cause you to be ass up on an operation table for major surgery that requires painful recovery
Terrifying, I had a minor one and healed it with oregano oil and epson salt sits, I know sounds silly but totally worked. I know they can tunnel but I don't think that's the case for mine. I just sit at a computer all day for work and I am worried that started it.
Very interesting! I am from german, have darker and stronger hair too and I have curls. I had my first pro lems with it in my Arm pit at the age of 10. There was a huge infection ("abszess" as we say in german) and it caused a Sepsis, so I nearly died. I got into surgery where it was opened and had to heal by itself. It Tool three month. After that I have those infection on an on, but smaller and didn't need a surgery any more (I used a healing cream with eucalyptus). At the age of 21 I had a another infection at my lower back. It was opened too but healed with a "tunnel" (Fistel we say in germany) and thisnis what can cause infections over and over again. So I got another surgery where this Tunnel was taken put completely and the skin could stitched together. I was one week at the Hospital and never had Problems again at this point of my body. Is there a differences between the the therapies in the US and germany?
I got it when I was in the best shape of my life in the army
I love how this gets so little likes but the stupidest comment gets 10s of thousands
I red the same thing from my tech bible
I had no idea that this was such a problem. When I saw this story I went straight to the comments and there is so many people, men and women who have suffered and are suffering this right now and I've never heard of it. Thank you so much for spreading awareness about this and posting this video. You are very brave man and I hope you are doing much better.
Before working in general surgery, I had never heard of this either. This is, too 3, most painful things I’ve ever seen someone go through.
Hair dressers go home and pull hair out of their bellies from all the days cutting. It’s very serious if you don’t get them out.
Hair cutters get little hairs that enter their skin in between their fingers they have to check daily.
Couldn't agree with you more. I don't have the courage to share my story but thank GOODNESS this beautiful man does🙏
I had this surgery 7 years ago and since it was my first surgery in my life it was very traumatic and painful to be honest. Also the recovery is not that great and it takes a while, I had my period while recovering and it was the most uncomfortable experience because I could only sleep or stay on my bed on my stomach most of the time.
I'm a female, and I had one at 20 years old. I was in the Navy stationed on a ship at the time. We were going through sea trials, so I spent many, many hours sitting on steel decks (floors) during drills at sea. My "butt" pain was sudden and severe, and within days I could barely walk. The pressure was unbearable!! I was immediately diagnosed with a pilonidal cyst. I didn't lose the top of my butt like the guy in the video, but once the cyst was removed, the recovery was horrible. Since the "void" left by the cyst can't be closed, it has to be packed with gauze until it heals. As a 20-year-old, it was extremely traumatizing. I was told by the doctors that pilonadal cysts are very common with military personnel, and during my 20 years of service, I met many others who had had them as well. Luckily, my surgery was a success, and I've never had any more issues.
Same thing for me for the packing and not the military ! Except after my first surgery for removal they didn't get all of it and had to remove the rest in a second surgery. Now I am afraid to work out so I don't cause friction on my lower back and create a new one.
Over 50 years ago a surgeon sewed mine shut. It was a huge mistake.
It’s crazy how something seemingly so small can do so much damage. About 3 years ago I sat down on a couch the wrong way; I accidentally landed on the armrest. It HURT, but I quickly got over it and didn’t think much of it. Fast forward a few months and I was in agony down there, constantly. I finally went to the doctor and was misdiagnosed for 6 months because no body could figure out what was wrong. Finally a nurse listened to me and gave me an ultrasound where I directed her, and discovered a massive abscess deep in my perineum. I had surgery to drain it and my CRS said it was the worst infection she had ever seen. She couldn’t believe I was walking. Unfortunately because it took so long to get a diagnosis I developed a perianal fistula. I’ve now had 7 surgeries to correct it, and I still need more due to surgical complications. I deal with daily pain from scar tissue since there are so many nerve endings down there. It’s an embarrassing tale, but I share it with my family, friends and strangers online because I wouldn’t wish this on anyone. Fistulas can form anywhere in the body from a multitude of reasons. Mine was caused by an abscess that formed as a result of trauma to deep, soft tissue.
I also share what happened to me because being tossed around for 6 months by different specialists, being told my pain was due to sciatica or a pinched nerve in my back, or even anxiety… I just can’t say this enough, advocate, advocate, ADVOCATE for yourself. You know your body and how you’re feeling better than anyone. Being in pain is not normal. If a doctor won’t listen to you, it’s time to find a new one. It is EXHAUSTING, and don’t even get me started on the American healthcare system and insurance, cause that was a disaster to deal with too, especially while recovering from such intense surgeries. I wish it wasn’t this hard, but it is, so always advocate for yourself.
That's really awful! I hope you find healing and peace. What you said about traumatic injury really interested me. I always wondered if I ended- up with this from being kicked in the tailbone when I was very young. It wasn't one kick. It was a series of rapid kicks as I was being kicked from the back yard, around the house, into the front door and down the hallway. ( It was a very ugly incident) I had pilonidal surgery when I was about 17. It never really healed. I wish you relief.
P.s. I had nerve pain for decades but didn't know what it was and used to wonder if I was crazy
I’ve had this while being pregnant . Couldn’t walk , sit or do anything . My gp stated I was a fussy mother to be .
While visiting my beautician lady , she was horrified of the state I was in and called for paramedics .
Admitted to hospital , was operated on , nearly 2 litres of pus was drained .
The pain of having the packing changed daily was horrific . I sympathise with you . 35 years later I still bear a very nasty scar on my backside .
I’m so sorry what a mortifying experience! I had this twice while in college and can’t imagine having this during pregnancy!
UGH, I'm sorry. I've had six children and it's disgusting how dismissive practitioners are of a pregnant/postpartum woman's discomfort. I suffered from severe kidney colic for seven. months. and nobody even tried to diagnose it properly. They were all just like ah yes well pregnancy can cause irritable bowel issues and stuff, you'll be fine. 💀
Some GPs can be so frustrating and dismissive
@@Wonderer8889/10, in my experience. Even some hospital specialists are appalling at their jobs, to a degree that would shock the average middle class person.
I would have taken every bit of information back to that doctor who dismissed you.😡🤬
I'm so sorry you had to go through this while pregnant or at any time. These doctors who are not taught as much as people are made to believe, are arrogant and ignorant at the same time.
My son has this and I'm so glad you shared your story. People always want to downplay what he's gone through but it is a constant struggle and very painful. I hope you are able to heal and live your best life. ❤
Get a homeopath.
It is really painful. I wish all the best for your son.
Who’s downplaying your son’s condition?
I had this too, its really not that bad. Painful for a while but can be solved easily with surgery. The surgery for it now is about 10x more efficient and less painful/ destructive than when I and this guy got it though
@@FredTheBeard what type of surgery did you get and how much time does it take for you to fully recover??
I had this 29 years ago. The pain was excruciating, I had just finished work and tried to sleep but I couldn't due to the pain. I drove to the hospital in the wee small hours and they kept me in and operated in the morning.
The recovery was quite painful but nothing compared to the pain I was in before they removed it.
Thankfully I have not had a recurrence.
If you have a pilonidal cyst seek out medical attention early, do not let it fester.
My sympathies to all who are suffering from this horrible condition.
I’m 16 I got diagnosed with pilonidal sinus … there’s just 2 small holes and sometimes plus oozes out .. sometimes it pains but not always.. should I be worried or will it heal on its own ??
@@WhxFNPlease seek medical help from a doctor, for your own good
@@WhxFN Definitely get it checked out by a medical professional!
@@ABCScienceI did get checked out … looks like I need to get it removed surgically with a laser .. I’m kinda nervous .. I hope everything turns out well
@@WhxFN All the best with your treatment and recovery!
I suffered with this from 14 to 27 years old. After two surgeries where the wound healed from the inside out, I discovered a surgeon that performs the cleft lift procedure (Dr. Sternberg in San Francisco) and my life has been 100% back to normal ever since.
I've had this surgery 4 times in the span of 5 years. One of them 6 months after the other. It completely hindered anything physical I wanted or needed to do. Haven't had a recurrence in 7 years... Just hoping it never happens again.
Was that open surgery?
I have the same problem. I am seven surgeries in and I'm still not done. I have lost feeling in the area mostly minus the random nerve pain. I feel like I still haven't got my life back. It's hard to walk, bend, twist, sit or lay down. Most people take their health for granted until you no longer have it. Please me thankful that you even have the option to walk down the street if you wanted to. Not only is pilonidal cyst disease hard physically. It's also a mental game. I'm 23 years old and I have watched my peers lives evolve and grow while I'm stuck on the couch. Wouldn't wish this on anyone truly. Thank God this man found something that works. I'm still searching.
I pray to God for your good health and happiness 🙏
Keep up the spirit little girl, your difficulties will end soon ❤
Hang in there buddy. Hope things turn up for you ❤
You’re a wonderful person, I wish you the greatest luck but you don’t need it, you’re stronger than me and I’m sure you’ll persevere and exceed your peers!
Have you heard of cleft lift surgery?
So sorry your going through this..the correct surgeon knows exactly how to correct this issue the very first time
I had mine removed. It got infected. A few months later I had the area cauterized. The scar completely keeps anything from getting inside. Definitely worth it.
My father had it happen - then when I was 18, I had it happen also. Thank goodness, our good neighbor was a nurse, as I had to have the wound packed with gauze, so it can heal from the inside out. She had to pull out all the icky, smelly gauze & repack it with clean gauze. Took weeks to heal!😵💫
The key is to have the surgery… but not close the wound. My husband had this, and I had to change the dressings several times a day until it finally closed! No infections!
Yeah i had 4 cysts in my armpit from these ingrown hairs and my doctor injected each of them with a anesthetic i think and then cut them each open with a scalpel to drain them of pus and fluids. Most pain i have ever been in, it was so bad i was laughing like a lunatic while i could feel that the scalpel he was using wasn’t completely polished sharp
@@bongboi2831should of told him to get one of those obsidian scalpels that some surgeons actually use because metal can never become as sharp as obsidian
i had one the popped up a while ago it hasn’t been bothering me for a couple months but i want to get it removed with the whole process or the surgery bc i’ve seen some scary things it cauterizing it like the best option
I had this in my early twenties 😢 I’m a woman. It took 6 months to heal. It’s the worst pain (physical and mental) I’ve been through. I’m grateful that my surgery went well! ❤ Don’t give up!
I am a woman who also had this in my early teen years. It definitely is a hard pain both mentally and physically to describe to others. My mother actually let mine continue for 2 years before she ever took me to the doctors. After I had the surgery I was informed that they stitched it up which from my research they don't usually do. Well literally a week after they took the stitches out it tore open at my sisters wedding! I still carry so much mental pain over 8 years later.
I had mine when I was 20 the first time I didn't know what was wrong with me until it ruptured. The second time I needed surgery that took me 5 months to heal. I hate that they told me that it usually happens to large men. Because when I did my own research about 38% of the people this happens to are women. So no it doesn't usually happen to a female but it's not like they have to emphasize that this is a rare occurrence, it's not.
I’m female. At age 23 this happened to me. I was not over weight, a middle aged man or a trucker nor do I have thick or coarse hair. The pain was absolutely excruciating. I finally had surgery and the road to healing was just as painful as the wound must heal from the inside out. I had to have a foot long string gauze
stuffed into the wound and changed every two days. I wouldn’t wish this upon anyone.
Age 19-20. 2 surgeries. First was done with stitch recovery method. Infection and never healed fully. Second doctor didn’t mess around, essentially drilled hole in my upper butt (just where the crack starts). Left the cut to heal as an open wound. Wear a pump attached to butt for 4 weeks. 3 doctors visits a week to wound center for wrapping/clean out. Excruciating pain. Thankfully 7 years later and no signs since. My heart goes out to anyone dealing with this. I consider myself a lucky one. What it did to me emotionally and mentally for a few years will impact me for lifetime. This post all too relatable.
Is there anyway to avoid it or is it random?
@@makro117 YES. should’ve included in original. Wash your butt crack thoroughly every day in shower. (Sounds simple) but I recommend one of the detachable shower heads. It allows you to shoot water directly into areas otherwise not receiving full clean.
I feel your pain. I was out 8 wks after surgery. They found a 9" long red hair they said was probably there since birth. They made a hole near my tailbone that looked like it was dug out with an ice cream scoop. It sucked ass, literally.
Who did that long hair belong to?
@@JPMJPM too soon buddy too soon. Not really funny it fell flat.
@@JPMJPM I was genuinely curious myself, considering he said it was from birth, but the hair was super long
My sister in law had something like this, I don't know if it's exaclty the same thing. My heart goes out to anyone who has had to deal with this. It took away a good half a year of her life as she knew it away. I'm glad it never happened again.
@JPMJPM It was mine. I'm not a ginger, but I was born with red hair. Doc said it was connected to my tailbone, and it was probably there since birth. Weird ik.
This doesn’t change the fact that he’s very handsome and I’m sure he’s got a good heart!
Had this when I was 14. It came on suddenly over one day. My mother took me to the doctor and they sent me to the hospital that day. The doctor told me at the time it was a birth defect. He said he sewed up the cavity, but left the wound open to heal slowly. From reading some of the comments, I’m grateful he did it that way.
I wish I had had your luck!
Mine too, I remember a small piece of string coming out of it lol
Yup..that's the way its suppose to be done..
You got lucky. I had to have that done twice before I finally got surgery. That is supposed to be the first method of treatment but I wish I would have had it removed first instead of suffering for like 5 years.
@@oljimeagle I actually thought I had it again nearly 30 years later. They said it was unrelated. A perianal fistula. That was a 3 year, 3 surgery ordeal that put me in the hospital for a week with blood poisoning. Had one recurrence after the last fistulatomy and I’ve been fine since, but the fluoroquinolone antibiotics totally screwed me with seemingly permanent side effects from ruptured tendons to chronic hives. I totally understand the anxiety constantly worrying it may happen again.
Its insane how incredibly resilient and sensitive the human body can be.
I had a minor surgery for this condition yesterday. The surgery was quick like 20-30 minutes and they gave me recuperation time of two days at home with the big patch on, I can’t work for one month. I’m feeling fine, the pain is like 3 or 4 out of ten, Tylenol helps, this is my personal situation though, other people may have it different. They told me I was born with it, although I do have a lot of hair down there and I used to sit down for long periods of time. Before surgery the cyst got infected and accumulated mostly blood at times and bursted, it was super itchy, but it happened rather rarely mostly in summer, there has been a period of around a year in which didn’t got irritation, so I think my cyst is rather small. I hope the best for everyone with this condition, God bless you all.
Oh goodness, to all of you suffering... I hope you have a speedy recovery. My brother had one that burst during a class. They threw the chair away.
I’ve never heard of this condition and I’m really grateful that I know about it now, so I’m aware and I can help somebody if I’m in the position to. I’m so sorry for all the suffering and pain this is causing.
You’re lovely, most people say “so I know for myself/my own body” but the fact that your first thought was, “being aware of said information incase you meet or know someone who is suffering unknowingly” I adore good humans like you, not many out there in the world who are more selfless than selfish. Sending you lots of love ❤️ may you always be safe, happy and healthy
My sister had this. It got infected and formed a deep abscess, so she got emergency surgery for it. My mother is a nurse, a wound care specialist to be precise, but she couldn't handle changing the dressing because my sister was in so much pain. She's the person with the highest pain tolerance I know and she'd be screaming and crying while the massive hole of missing flesh was unpacked and packed.
There's a new surgical approach that avoids this nowadays. Hopefully that means fewer and fewer people will have to go through this.
(also, my dad also had it before we were born. My mom did his dressings back then, but I think she got a bit traumatised from it. She barely ever attempts to treat her family now: she asks colleagues for a favor and they do it instead.)
My ex had this I was the lucky one to pack and clean the wound for 6 months not for the weak.
Hats the new procedure called?
@@gracefultimes Google is telling me it's called Endoscopic Pilonidal Sinus Treatment (EPSiT). It matches the description I remembered, so I think it's it.
It basically involves cleaning up and removing the cyst(s) by laparoscopic means then cauterizing the cavity and the sinus from the inside out so that there are no pockets left (infection prone) and minimal tissue loss.
Up until now, the wound was usually left open or left open with packing to allow the wound exudate (fluid) to leave, because pooling exudate would most likely get infected. There was also the option of closing the wound and leaving a drain in, but it's much more prone to infection (a wound drain next to feces is obviously risky) so most surgeons don't opt for it.
What is up with everyone? I had this and it didnt bother me a bit and i dont think of myself as someone who enjoys pain (unless im in the middle of really bad thoughts)
This type of infection take sometimes 3 to 24 weeks to heal and sometimes multiple debriding plus tissue sculpture secondary infection very high. May need iv meds.
I'm an 18-year-old female, and I developed a pilonidal sinus about two months ago. Initially, I didn't realize that was the issue-I thought it was just tailbone pain. When I went to the doctor, she briefly examined the area, prescribed a lot of medication, and told me I would need to use a donut pillow for the rest of my life. I was shocked when I heard that.
After finishing the medication, the pain was still unbearable. I couldn't sleep, and I was awake all night, unable to walk properly for weeks. I was in constant pain, crying every day. Eventually, I went to another doctor, where they took an X-ray and examined the cyst. I had to visit the doctor around eight times, and it was expensive.
it's still not healed, and I'm really worried. Please keep me in your prayers.may God protect everyone
Seeing so many comments i felt very happy to realize i am not alone,.i am 18 year old female and today it's 2 weeks post operation,it will take a lot time to heal completely. i have been going through emotional stress cuz it's one of the peak years of my career,but this video just made my day ❤
Get well soon mate you got this!
Thank you so much @@brothersandbooks
Get well soon dear same happen to me twice ..
You had open surgery?
I’m now 36, and thank goodness my parents advocated for getting this looked at and operated on when I was around 15/16. My “gluteal cleft” was sewn up and I never had to have the pain and discomfort of pilonidal cysts ever again.
My son had an infected polinidal cyst during lockdown. It was awful. A female friend has the disease like this gentleman, and my god, the surgeries she's been through are heartbreaking. My love and good health wishes to you ❤️🇬🇧
Use 2:1 THC:CBD lotion. I had one and had surgery to remove it. It came back and I didn’t have health insurance and just dealt with it for years. I used that lotion for a year and it’s gone.
Not many people know about this health problem. Thank You for sharing.
Oh my gosh I have never heard of this disease. I read a lot of the comments and feel so bad everyone who had to go through this. So glad to hear there is a less painful procedure now. And thank all of you who shared their experience, and the process of how to process, take care of the issue.
I had pilonidal cyst disease. The same type. But I had pockets in my bottom. I spent over 6 years worth of surgeries. My first doctor dropped my insurance because he didn't close me properly. I am now better thanks to a lovely surgeon who took me on.
Seriously, I've heard that this is one of the most painful things you can have. My heart goes out to him and anybody else who deals with this.
I didn’t have any knowledge of this until now. Thank goodness you posted this; it will help a lot of people to realize what’s happening.
So happy people are talking about this, I had four surgeries myself. I'm thankful it hasn't come back since I was nineteen. Sending healing vibes to those struggling now. For those suffering from HS like myself, you all are healing OGs!
Is the pildonal cyst and hs the same thing?
@@haiku2430 They can be related, from what I've been told.
It’s so interesting to see other people who have had this, since many do but never talk about it. I had three surgeries for my pilonidal cyst, which had become inflamed & infected. After my 1st surgery it reopened, then again for my second, and again for my third. I spent nearly 2 years lying on my side in bed covered in gauze and drainage. It was extremely difficult, especially since I was 13-14 years old, but it really gave me a new appreciation and admiration for all of the things that I could not do anymore. I mean, severe isolation like that will seriously unlock core passions and hopes. My scars are about a foot long down my lower back and cover nearly everything, and I will get sharp pain every once in a while, but it honestly does not bother me either. Why should I hate my scars? I’d much rather see them than the blood, drainage, and flesh I saw for so long. If anything, they make me happy. I still remember hearing so many people talk about going through the same thing as me, when it was something nobody had heard about before. So few people talk about Pilonidal Cysts and the effects they have on millions of people.
Male. This is how I cured my pilonidal sinus without surgery: I have had it since I was 19, I am 22 now. Initially it was something itchy then after itching it a lot it burst open and a bit of blood and puss came out, went to a doc and he told me about the surgery but I wanted a second opinion and this other doc told me to sit in clean warm water and try to push all the contents inside the sinus out into the water using a rubbing motion so that when the puss comes out the water rushes into the sinus due to the vaccum created by the puss exiting and it cleans the sinus, did it for 10-20minutes for 3 times a day. The effects were very immediate, after a couple of hours I could feel the itchiness go away and the pain subsided, after 2 days the sinus was completely healed. Although it came back two times but both times this hot water therapy did the trick. Now it's been 2 years and I have not had it flare up since then. The sinus/holes are still present but they are very tiny now.
I have that problem and it currently feels like it’s gonna flare up. I’ve had them twice and exactly a year apart from eachother. I’m already prepared for the next one but I’ll try your technique to see if it goes away for good.
@@twzylu3124 alright. Take a clean tub, i usually clean the tub with bleach to make sure it's really clean. Then i fill it up with warm/very-warm water and don't add anything into the water just make sure the water is clean. Then i dunk my a$$ in it deep enough that the pilonidal sinus is always under water. Then i massage the area around the sinus hole/sinus tract for 5 mins and then i do squeezing motion towards the sinus hole from all sides so all the puss comes out into the water(i do all this while the sinus is underwater), I do this squeezing the sinus for another 10mins, so all in all 15mins under pretty warm water and constantly massaging the sinus with a decent pressure, it's like squeezing the last bit of toothpaste out of the tube, you gotta use a decent enough pressure but make sure not to injure yourself and also don't burn your bum in the warm water. Finally i get up and clean the sinus hole and the area around it with soap, dry it and you are done. The doc told me to do this 3 times a day for 3 days but i only do it only once for 2 days because that seems to work for me perfectly well.
My daughter had a whole the size of an orange in her rear end at her second surgery. (They didn’t get it all the first time and it grew back.) She doesn’t even want to look at the pictures. She was in high school when she had the second one and has some PTSD from it. She will freak out if she feels something else in that region. It was just a horrible experience for her.
I had one at 19 and pregnant. Local anesthesia, I can still feel the shiver and heat from that cut. Thankful for my mom that kept it clean by packing it.
Do you mean you developed it?
I am so glad you are talking about this. I had this at the dreadful age of 12 as a female and a teenager. This was hell. I had 5 surgeries, and the pain was horrendous. It's more common than we think but socially people don't understand. I am now 35 and haven't had any surgeries since I was 13. The scar is still huge and the stress of it coming back is still there. This condition lead me to have to leave school and crippled me with depression and anxiety
And the saddest thing about this is that there is a super quick and easy surgery which is minimally invasive!! It’s called the “pit picking method” and prevents awful suffering from these horrible procedures showed in the video. I wish more people knew about this… I live in Germany and most doctors stick with the old method because it makes more money because of long hospital stays. With the pit picking method you are “ready to go” under 20 minutes, without anesthesia. Patients undergoing it can go back to work after a week.
20 minutes? What is the pit picking method and how does it work
Its not this easy
A cursory Google search suggests this method you mention has a 60% or so failure rate over 5 years, significant recurrence rates.
In a socialised healthcare system like Germany doctors are not incentivized to prolong patient stays so I'm not sure what you are trying to say. I work in the UK and want to get patients out as quick and safely as is reasonable. No one is interested in keeping you in hospital unnecesarily and people who think that have a real main character complex; no one wants you out of my ED more than me, trust me.
Extensive sinus disease like the poor gentleman in this video would not be manageable with a minimally invasive procedure.
If it’s what I had done, is the doctor took about a 1/4 inch only way to describe was like an apple corer. Punched a large hole at the bump, took the chunk of skin out put gauze pads on for a week to drain the cyst and that was it. Flairs up every once in a while but not like before.
Thank you for your story. I had surgery for my pilonidal cyst just over a year ago and a still recovering. It helps to here about the others who have gone through this as well. I will never forget my months at university standing in the back of class because I can't sit. Nor the day may classmates cheered because I sat down for class for the first time in over two months. Each day is tough, but the stories of those who made it to the other side keep me going.
Thankyou for sharing and raising awareness.I have never heard of this condition.I hope you and all others suffering from this condition have a speedy recovery.
I had this surgery and I’m currently recovering. Although it was one of the worst pains I’ve ever felt in my life I didn’t think it hurt that bad😅. I’ve been unable to sit for a while now and I’m gonna need laser hair removal near the ingrown hair area. It’s frustrating but I never want this to come back ever again.
I’m getting one soon and I’m scared but I’m wondering if it deforms the area after?
@@battmatt88if you are doing the traditional method of basically cutting a massive hole in ur butt than it’s very painful from what I’ve heard. I just had a flap surgery however. They basically scoop out the sinus then sew the top of ur cheeks together. I was able to sit fully after about a week, some people can take 2 weeks though. Honestly the worst pain is the stitches poking you as well as the hair first growing back. It sucked until my stitches were out. It’s been about 2 and a half weeks now and I can do everything normally, just can’t strain the area or run.
@@seanrose5363interesting I jus had the same surgery been about a week since I had it done still have the stitches they are suppose to dissolve idk when but it’s not too bad jus can’t sit down lol
hey, did you go to the ED or just made an appointment's with ur doctor. mine is recurring, and i want to get ride of it for good.
I have this but it’s just 2 small holes .. should I go for surgery ? Is so which type (I’m 16) or can I avoid surgery
This is a really common disease in Turkey as we are all hairy 😂. I just had the surgery couple days ago. I don’t feel any kind of pain. I can walk and lay. In a week they will take off my bandages and I will go back to my normal life hopefully. What I can say is Turkish surgeons are experienced performing this surgery and they are using modern techniques which will minimize pain and time spent. If any of you has this condition think about having the surgery in Turkey. It might end up being cheaper and better.
Turkish surgeons are not all good. Memorial hospital is a well renowned hospital in Istanbul, i had a limberg operation for my pilonidal cyst there and it was a complete waste of money because the infection recurred again apparently. We met with so many surgeons in turkey most of them prefer using laser which didn't work before so you're wrong about this, Turkey is quite bad in the surgery aspect of medical services my dad also had a hemmorhoid operation in the same hospital and even he hasn't fully recovered yet despite all antiobiotics. So no, turkey is not the best option for this surgery there are better countries like India who have real specialists for these cases.
@@nassahrakim8136dude I am from India, I had my pilonidal closed surgery 2 months ago and it came back
I'm not sure why anyone would travel to Turkey for a surgery such as one like this, it's not like it's an organ transplant. I could legit go to my local hospital and get one done absolutely fine, better yet, it would be free.
@@maximusstorm1215 I live in the US and it is not free here :)
@@nassahrakim8136My guy, whilst you have a point, don't come at him with India. Sure, India may house some good surgeons, but all countries do. In terms of how healthy the population is & how good healthcare generally is, India is near the bottom of the list. Don't judge someone and their healthcare to come at the with a _far_ worse alternative, this is just bias for your own country.
I've been there, done that. 2 surgeries. In the second surgery the surgeon decided to leave the wound open and let it heal from the bottom up. It was 3 inches long and 4 inches deep.Took 2 half years for it to heal. It has also been explained as it the tail we humans evolved out of. Wherever it comes from, it truly hurts and makes you sick. It is a genetic thing. Both dad and mom side of family. Hits in late teens to early 20s. Mine got aggravated by 2 falls while playing volleyball in college. I am 65 now, and from time to time the area becomes painful
I just had pilonidal cyst operation March 3rd of Last year. Now my wound and scar is huge. They said my cyst pocket was around the size of a grapefruit almost under my whole butt. It was a horrific recovery...now Ive learned just a day ago. I have to get the same surgery again because it came back...its soul crushing.
I’m 22, I am female, I live in Canada, I also have PSD. I had to have them drain 6 inflamed cysts the size of a golf balls before they referred me not to proper surgery (which is a 6 month wait, but they cut out a chunk of your arse and you have to have a home nurse for up to 6 more months afterwards) but to get a “pit picking procedure” the doctor who came in gave me no pain medication and I have an extremely high pain tolerance and I was writhing in agony (I was quite literally branded and it was less pain).
Those procedures, the times I had to be given a medication to sedate myself (not anesthesia), the times I would have to damn near yell at incompetent doctors to bandage me up so I could go to a proper hospital. I have, sorry had, the upmost respect for our healthcare system. My problems/symptoms/disease flare ups started late 2020 quite literally in the midst of the pandemic panic pandemonium and lasted until earlier this year. im now the longest I’ve been with no flare up. i did have to drain the cysts myself many times, and after the last pit picking procedure I did drain it again, myself, and since then haven’t gotten another flare up.
I was told that mostly men experience this and it’s so embarrassing, it’s demoralizing as a woman to lay on a table exposed to so many people so many times. I have so much hospital trauma from this disease and even though it’s not my fault I still feel such deep shame about talking about it. I lied and told everyone I had tailbone issues, whatever that means… only those close to me know. So seeing this representation is extremely important and i thank you so so much for it. Listening to your story and reading everyone else’s has made me feel less alone. 🤍
Oh yes, I got the 'hairy sweaty men' comments too - but it can be a complication of childbirth so....🤷🏼♀️ Sorry you're going through this ❤
@@idkwhodos2840 huh? I didn’t get called that, sorry you did though.. also I’m 22, never had no kids… lol
When I got my cyst removed I was on my period. Arse up in the air and bleeding like a stuck pig. They wouldnt let me use a tampon. I apologized in advance. They were very professional and understanding. Moral of the story its okay to be a little ashamed, but don’t let that stop you from getting help. Best of luck.
@@toobeeornottoobee Oh sorry, didn't mean to imply that you were called that; you said it was embarrassing when they say it happens mostly to men and I got told that it's mostly men too - because they're hairy and sweaty!😱 Not exactly kind to the poor men who are suffering either but it's certainly not nice to be told that as a woman. Plus it's nonsense because it can happen to anyone!🤷🏼♀️
@@LadyAngela678 You poor thing, what an awful experience ❤️ Well done for taking it like a champ and getting help tho!👍
I learnt something new today.
And now I have a new fear
Omg I’m terrified now 😢
You and me both
Same like omg wth
It only happens if you have very thick hair between you but cheeks. And not everyone gets surgery, there are people who just get rid of it using medications.
@@humaarsh2285actually it happens because of your tail bone rubbing against the flesh under when you sit , it's more common in truck drivers .
Mine was not as severe as yours. However, after many years and repeated bouts of infections. They did finally go in and remove all the tissue that they felt needed to come out. Which turned out to be about the size of my fist. They were able to pack a whole bottle of packing strip inside. Which appeared to be about 10ft if not more. It’s sucked but I’m thankful I’ve never had a recurrence since.
exactly my husband had it done too I did dressing packing 2x a day as it heals from inside out it's amazing how much packing
Omgg 😲 I'm have this condition, I need to get surgery for it but I'm so nervous
You don't have to go through this getting infected over and over again. A pilonidal cyst abscess is different than a regular skin/soft tissue abscess; it will be recurrent. I generally referred patients to a surgeon after the first time they had an infection.
@@Ariex3D read my comment I just posted
@@Ariex3D read my comment I just posted
I'm a 28 year old female and I have had this, it's a pilonidal cyst so I don't know why they are calling it a disease...
I actually get it from my own hairs growing in on themselves. I treated it myself as per doctors recommendations, extra showers, kept the area extra clean with antibacterial washes, and treated it with anticeptic creams/tea tree remedies.
He's not wrong though, it bloody hurts!
it can heal itself if its small? you don't need surgery?
@@abdulwahab7135 yes it can. If you pay attention to your body and take precautions as soon as you feel the pain around your tail bone, it can be treated at home. Antibacterial washes, antiseptic creams and/or local herbal remedies.
I’m 27 and just got it for the first time been doing the same as you
@@victoravila5802 ohh girl, sorry it's happened to you too. I sometimes notice increasing how much I'm standing also helps, try to avoid sitting on it
You’re a good man don’t give in, you are better than your disease. GOD BE WITH YOU.
I’ve had this happened to me as a 15 yr old girl. I couldn’t sit, I couldn’t sleep. The pain was too much to bear. At the hospital they opened the cyst, removed as much pus as they could and packed it. They never used anesthetics on me to open it. I felt every cut and every scrape. Once done they had me walking back to the lobby and fill out some paper work. I was in so much pain I passed out in front of everybody. My experience was bad because I was in a US military hospital and they are never as good as a civilian hospital.
Same thing happened to me at 15..2 times besides the passing out.. finally I had surgery to remove it. Thank Gd . Hasn't come back🙏
Comment got deleted for some reason...
You have to be put under for surgeries like that, local anesthesia doesn't work on infected areas because the pH nullifies it somehow.
Hey, same here! I never went to the doctor for it because I was scared to tell my parents. I felt it rip open every time I sat and I wore a pad to keep it bleeding through my pants. Not my smartest move.
@@shaniawilkinson7620 Im so sorry you had to go through that. I know what you mean. I also waited forever to tell my parents. I was one of those kids who always tried not to complain to my parents for anything. How did you resolve your issue? I’m always afraid it’s going to come back lol
@@anonymousYC Such a traumatic experience isn’t it? So sorry you went through that. It’s horrible! Glad you are ok now.
Have had 5 surgeries for this starting in high school. The last surgery in the late 80’s took so much flesh and scar tissue that all that’s left covering my tailbone is scar tissue. I’m heading to 60 now but haven’t had an issue since
I had this as well about a year ago. I never had the surgery, it healed on its own after lots of medications. I haven’t had an issue since, I’m praying to god it never comes back. Worse pain I’ve ever been through. I used to be an avid bath taker, ever since I stopped taking baths I stopped having the issues. I would take baths daily and it lead to the infection I believe. I keep the area clean and avoid sitting as much as possible. I hope to not have the surgery , I have kids and can’t take time off like that.
I had this, my doctor ignored it for 10 years I had a lance here or there for drainage. After it swelled massive I finally got to see a surgeon, she freaked and put me up for surgery immediately. Commuting 4 hours a day working construction the sweating and then sitting for that long caused it to get so much worse.my healing time had been almost a year over a ingrown hair ! They tunnelled from where my butt crack is about 8 inches up my back where the hair had infected the tissue and had a huge mass removed. I love hearing that your up and about again I am now able to enjoy my life a lot more now !
You could maybe sue the doctor for negligence
Fortunately, I have a less severe case. But it still is a very painful condition.
Wan you people get monthly wax or laser to reduce hair itself... Can it help ?
IS IT LIKE CLUSTER OF INGROWING HAIR, ONE IS PAINFUL ENOUGH 😬. THIS IS MY FIRST TIME HEARING ABOUT THIS.
@@Oneirics9yes that is one of the treatments. But, it is not covered by insurance. But do not let it deter anyone from having the removal. It has great benefits.
In my experience it's from leaning back on my tailbone that did it. I don't think it matters if you have excessive hair or thick hair as I do not. I was told once a flair up happens the best course of action is to remove the infected tissue. Also the surgery for this is much better after a flair up when the skin isn't inflamed. As long as someone learns from this it's worth lowkey putting this embrassment on blast.
@@boobah2622 THANK YOU FOR SHARING WITHOUT BRAVE PEOPLE LIKE YOU WE WOULD REMAIN IGNORANT 🙈
My son had this in his teens. The cut out much of his butt crack all the way down to bone. He was on his stomach for months and had to be home schooled. He’s fine now TG.
I keep seeing these comments. Was he not shown how to properly clean his body? How does hair sit there for SO long that that happens?
@@corablah9809shit happens dude
@@corablah9809 Pilonidal cysts usually occur when hair punctures the skin and then become embedded. It’s a skin condition.
@corablah9809 the tip of human hair is, microscopically, incredibly sharp, and it very easily can get lodged and pierced into the skin. You could have the best hygiene in the world, and still get this.
@@Itsmbp2394 I've had dog hair imbed in my foot before and it was impossible it seemed to get out, worse than glass honestly:( that makes sense*
must have been so painful, you are so brave for sharing your journey to help others, hope it heals well
I lived with pilonidal sinus for more than 20 years.. recently I went through a operation.. I am very happy now..
Had one of these a week ago. He’s not over exaggerating whatsoever. I couldn’t drive, sit, lay down on my back, walk, or do anything without EXTREME levels of pain. Luckily my girlfriend was super supportive even tho it’s embarrassing. She drove me around, helped me sit, and cuddled me in ways that wouldn’t hurt as much.
I lost so much confidence in 3 days. Mine was super deep and progressed from nothing to extremely painful in 2 days. I didn’t wanna go out, talk with friends, do anything besides lay down in ways that didn’t hurt as it was the only relief i got from the pain.
Hopefully it won’t flare up again, but my heart goes out to him, i only had to deal with it for 4 days, while he’s been dealing with it for way longer. In those 4 days i just couldn’t handle life. Hope he gets better and relief from this pain
Make sure you wash that area very well, don’t sit down for very long periods if you can. Wax (don’t shave) or laser hair removal. It sounds stupid but these things are so unbelievably painful. Stay healthy friends❤️
That's crazy, I've never heard of this before. Glad you're feeling better
The pain was so intense I couldn't sleep and got real freaking sick and naseaus. I thought I was just being a wimp, but holy hell the pain was intense. I'm glad I didn't need surgery, but my doctor did have to make some incisions, then a couple of days later he had to dig in there and cut some stuff out. The 2 procedures were freaking intense...but 4 days after the second procedure and I'm just about pain free!
So happy for u🥹 I feel your pain
Laser hair removal helped significantly!!! I haven’t had it come back in years, think I did 3 sessions
Did you do surgery as well or just laser hair removal ?
I’m a a 31 year old woman who had one of these when I was around 23-24. I was thinking I had just hurt my tail bone. I was camping at a river, skiing and tubing so I didn’t inspect it in a mirror or put much thought in to it as I may have done if I was home. The day we were leaving, it became so painful that I couldn’t go out on the boat. Driving back (as a passenger) was so intense I had to sit on my side, I couldn’t sit on my bum. Every bump in the road was torture!
That same night, I woke up with some of the most excruciating pain I’ve ever felt. It was so bad that I crawled to my mums bedroom sobbing/crying for help and as she helped me back into bed, my legs gave out and I fell on the floor next to the bed. My mum helped me up and she gave me some really strong painkillers, that’s all I remember from that night. Thank goodness I was staying over night at my mums!
Basically what happened was that level of pain was the cyst ..erupting? The most disgusting, lumpy, smelly pus drained from this thing non stop, soo much nastiness came out of this hole. I went to a doctor with so much gauze in my bum crack but I was too embarrassed to actually show him. He told me what it was based on my description and I did some research - I was terrified at the thought of this operation/aftercare. I was also so embarrassed, I thought people would assume I have a reallyy hairy bum or that I’m unclean.
I’m a ‘bury my head in the sand’ type person when I am scared of something (not proud of it) so I’m actually not sure what the healing process looked like, I just kept it clean and wouldn’t look at it. I never went to another doctor about it and I never considered surgery.
From then on, and still to this day, if I ever feel that tender feeling (same tender feeling you feel with a blind pimple), I get straight in there with undiluted tea tree oil. I’ve never again experienced that same level of infection since and I hope it stays that way. It’s been quite a while since I’ve even felt any tenderness or any sign of it being ‘active’ again. From what I can see and feel now, it left some type of scarring like a pot hole and discolouration like acne scarring and it’s like there’s a really big .. pore? That’s what it feels like anyway, I’ve never gone up close enough with a mirror 😅
Watching this video and reading comments makes me realise that one of my most physically painful moments in life so far could have actually been soo much more extreme than it was. My heart goes out to all of the people who didn’t have any other option than to go through with the surgery and to anyone else who has experienced this condition - horrific what our bodies can do!
Had this too, it’s typically recurrent but luckily I haven’t had any issues since my Cystectomy surgery a few years back! I’m careful to wash thoroughly and regularly grab hairs out in the shower, and I use a manscaped shaver to keep hair to a minimum. Sucks being born with such thick body hair but it keeps me warm in the winter I guess 🤷🏽
Im gonna be having mine removed in 3 weeks. Ive had it for over 3 years now. Imagine that sort of pain, but compound it on the pain of having Fibromyalgia aka body wide pain, aching, muscle spasms etc...
Needless to say, getting one source of pain removed has me more excited than i was as a kid on christmas eve!
Go for the laser man never not agree for the big surgery it's been a year to my surgery and it hurts still
@faisalsolanki321 I ended up getting the surgery. It's healing well and the pain is nothing compared to what my fibromyalgia feels like. I'm a happy camper!!
I hope yours feels better my man!
Fibroease multi (by biospec nutritionals)...mega mag and 40,000 volts (by trace minerals). They help alot, give them a google. 😉
How you feeling now brother ?
@victoravila5802 its fully healed now! They ended up removing a section that was 4.0 cm x 0.7 cm (1 9/16" x 9/32") and 2.7 cm (1 1/16" deep).
Sadly it's coming back again, but in all honesty, I think that was my fault for not keeping the area shaven at all times 😕. But it's super shallow, so hopefully it'll be easy to fix lol
Wow this is shocking. I had a pain in my foot; it got really sore and I just could not work out what it was. Felt like a splinter but I could not see anything. Then one day after it had become just too sore to put any pressure on the pad of my foot, I armed myself with nail clippers, tweezers and a scalpel and my magnified visor (which I use for crafting) and I was shocked to see something really small just under my skin. It turned out to be a dog hair from our Labrador. I just could not believe how something so flexible and soft could a) get into my skin in the first place and b) be so damn annoying. I presume it had transferred off my sock or when walking barefoot. I know this pales into comparison with what you and others here have suffered, and based on my very insignificant experience the pain must have been excruciating for you. It’s still something I find hard to believe despite it happening again recently for my partner but I was able to tell him what to check for and he removed the hair before it got really sore.
Podiatrists see this all the time, especially in people who work in hair salons who wear open toed shoes and in people who own shedding pets.
My husband came home one day telling me his buddy told him about "hair splinters", I thought huh that's wild and went on with my day. Literally the next day I was doing a home workout in my living room and felt something poke my foot, I kept trying to finish my exercise but finally it hurt enough to stop. I got some tweezers and pulled it out and it was a dang hair! I could not believe that lol. I'd NEVER heard of that until my husband told me.
hair splinters are so painful for something so small
As a RN I often took care of young men with this in their home. Deep wounds needed washing and packing daily as it slowly healed from the wound bed up to skin level. Very painful looking and many were so embarrassed.
Why help them? I was doing this at home and it wasnt bad at all. It looks painful, youre afraid the shower is going to hurt you, but it was nothing like that.
@@FayeFaye- RN means Registered Nurse, meaning they did this for a living. Or were you asking why help someone with that at all? Perhaps their condition was worse than the one you faced?
@@ryanhorton3248 Idk, i dont enjoy pain but this was super painless.
Unlike this nurse i at least changed twice a day though.
Worst thing was when i tried sending my sibling to get me medical tape from the store and in all seriousness they were like "just use a regular tape" and im like :I
ofc they went and brought it later after a short explanation.
But y, i dont see how anyone couldnt do this themselves, unless if they somehow cant reach back there. Its totally doable on your own.
@@FayeFaye-Why are you so desperate to prove that this is "no big deal"? This is a complex condition with varying degrees of severity. I'm a pretty hardy guy and I couldn't walk for a week leading up to and following my surgeries. Just really bizarre behavior to pull the tough Tony act and try to downplay how much this stuff sucks.
@@flurpoid Did you just report me? I left a comment to that other person replying to me, saying that yes, i have been easily patching myself.
The only slightly painful experience was the car ride back home but only when we hit the bumps.
But i guess something must be wrong with me - because i headed out for night walks when no one could see me without asking my doc for permission (got it some time later) and there wasnt any pain.
Im sorry for downplaying it but its just so bizzare to me that i didnt feel any pain, when usually i avoid it. Im just super concerned about my pain receptors rn because it was a big open wound.
The one thing that was super painful to me was having gallstones - it was like a spiked ball rolling in my plexus area.
I named it "The seed of Chaos!"
My husband had one of those cysts in high school. It was awful. His poor dad would gag while draining it. So glad it was OK before I met him!
For anyone who may doubt this, my father had the same and used to have Emergency Operations and has had giant spherical holes left in him
Thank you for bringing awareness to this and being brave enough to talk about it. I suffered a long time with this and don’t really talk about it. Thank u for sharing.
I was 18 and had one. After going to the doctor, they gave me antibiotics and scheduled surgery to remove the surrounding tissue to make sure it didn't happen again. It was small and a simple surgery. More often than not, if you take care of it right away, it won't get to this point, or worse. A 14 year old kid had one and refused to tell his mom because he was afraid of going to the doctor. It got so bad he ended up paralyzed from the waist down.
So this is now my third breakout of this happening… the first time I just left it and dealt with the pain, cleaned and hot pressed and tried to stay healthy and it went away on its own. Second time I went to the er and she told me no surgery necessary gave me steroids and antibiotics and it eventually went away. This is time number 3. I want the damn surgery but don’t have health insurance. It is so painful I wince every time I sit down.
omg... you are living my pain now. this is my third time its occurring and i just want it to stop forever. Surgery to get it done is the only way. I took antibiotics last time but ohh well it has return......
I’m so sorry you’re going through this 😢 if it’s not too much to ask, I’m confused about what exactly this is? Is it caused by ingrown hairs? Sounds terrifying!
You can go to your US County's ER or city hospital for indigents or perhaps Planned Parenthood to get treated.
@@LivingDeadBabyDoll It can be caused by ingrowing hairs, or hairs that get caught there, for example, after a shower. They form a cyst, which can become infected. It can happen after a broken coccyx or similar injury. Please don't worry unnecessarily, it's quite an unusual thing!
@@idkwhodos2840 Thanks for the info! I’m not exactly worried about it per say, I’m just one of those people who likes to find out as much as possible about things lol, sometimes to a fault.
For anyone who has lived with this…..may god be with you. I lived with this for 10 years then had the surgery and it changed my life.
How long does it took to heal properly?
I had this for around 2 years before I decided to get surgery. At first I ignored it, continued to lift weights, rock climb, do martial arts. Eventually it got to the point where it would hurt to sit down. I got misdiagnosed and prescribed antibiotics that didn’t work. It kept getting worse to the point that it was a large grape sized cyst that hurt to the touch and constantly broke open upon impact. Ran through so many pairs of underwear because of the blood. Eventually went to a couple surgeons and finally got the surgery done where a chunk of flesh was removed and a drain pipe was inserted in my lower back where I had to drain the fluid each day. Wasn’t allowed to do any physical activity for months and being an active person, I got restless and my wound reopened. It was ugly. Fortunately it eventually healed and I couldn’t care less about the scar because now I can do all the activities I love to do. It does make you think though, if it weren’t for good surgeons this could have eventually took my life 😮
I'm convinced my phone is reading my thoughts. Ive been recently getting in grown hairs in my armpits. I currently have 2 in the right one. I haven't spoken about it to anyone and i haven't researched anything about it. And now this pops at 4am. His problem is very scary . I hope he well
You need to go to Urgent Care or a Dermatologist ASAP.
Sounds like hidragenitis supperitiva
Ditto the last post - it's HS. If these are your first cysts you can probably get relief from changing to a lighter, aerosol deodorant and using a body wash that's designed for the condition (like ones containing tea tree) Active sores will often heal much better and faster if you use ointments marketed for bedsores, like Terrasil wound care. Definitely see a dermatologist if you can - they have some decent tips and tricks - but know that it's not a curable condition and successful treatments are highly individual. Good luck!
Please see a doctor, I hear this quite a painful condition and you deserve relief.
@maryannkom299 Sorry, I didn't say I have his condition. I am fine but thanks for your concern
It turn me into a happy 19 year old into a depressed ,lost person...got a surgery 1 year ago and it still scares
Same brother, it turned into a hell rid as mine took over a year to heal
I have a solution for this sinus it will take 6 to 8 months to cure it's own
I'm in my early 20s, and I had these cyst growing a couple days ago... thankfully I didnt need surgery and I was able to get rid of it by using a hot towel but I hope they're not reoccurring.
Hey Just wanted to ask do you still feel numb in that area coz i do
@@karunakarreddy9533please tell the solution
He has a wonderful view of life right there!! Accepting what happened, accepting what he looks like and realizing what matters is enjoying life!
Dylan is really *CUTE!* I hope he finds more confidence with time because I sense a brilliant future ahead for Dylan. While my health concern differs, I easily relate to Dylan's precarious and wavering self esteem when it relates to health changes and remembering oneself in better days.
I had this too from age 17 to 23 and after 6 surgeries it finally healed. Terrible thing to experience spent years waiting for it to heal. I feel the pain that everyone else went through
Things like this make me more grateful to be me
Until they dont
@@rottentomaatos yep.. at some point it starts feeling like self-deception lol
Yup I had 4 surgeries & iv been unable to work for 3 or 4 years now & even now I’m still in chronic pain every single second of every day I wouldn’t wish this upon my worst enemy. I had complications after my first surgery/ an infection that the aftercare nurses total ignored & ended up having a tennis ball size chunk of flesh literally fall off my tailbone area & left a cavity right down to my spine & tailbone. I’m on methadone for the pain but I’m coming off that stuff atm due to it no longer working & just preying I can find a dr who can prescribe me medicinal cannabis oils but yeah that’s not as simple as it sounds here in Australia even in Victoria where I live it’s accessible but so many hoops to jump through iv basically given up on ever even finding a dr who can help me with my chronic pain due to the chronic depression I am under 24/7 😞
I don’t know what to say, but i hope your recovery goes well. If possible, i hope you can sue the hospital for the aftercare too. Im so sorry you have to go through so much unnecessary stress besides the cyst itself
@@bonitobonita9263 apparently the hospital is liable for a % of lost wages it’s really tricky tho as iv always worked casual working in the power stations & mines for 6 or so months per year and would earn what you’d earn working a normal paying job 12 months a year so I have to be able to prove that id definitely have been hired every 6 months of each year going forward type thing if that makes sense but yeah obviously hospitals have a lot more money to fight legal cases than you or i or the average person so just got to hope for the best =]. Really appreciate your kindness and understanding, means a lot more than you could imagine especially since iv been basically isolated & have become a recluse for the past 3 - 4 years (not by choice) and lost all my hobbies I used to enjoy and don’t get to see my work buddies anymore. Thank you 🙏
That’s CRAZY!!!!
Is this a genetic issue where some people are more susceptible to it than others?
What do you mean you can’t get medicinal cannabis is Australia? Me and all my colleagues work in construction and every one of us have prescriptions for medicinal cannabis. Not because we need it but just because if we test positive to weed at work we want to be able to say it’s medicinal! It was extremely easy to get and the doctors will write scripts for any one of hundreds of cannabis products.
@@NineNineOne I live in country Victoria and there are no prescribers out here. They have made it easier recently most can do it over the phone now so that's changed things.
I have my surgery coming up in a few months, I can't wait for it to be gone. It has caused me so much pain in the last 3 years. Ive had 3 infections in the past 3 months.
Oh man😢😢 These infections are hell. You’ll feel less pain after the surgery I do too. Got it done abt 2 weeks ago. I commented somewhere how it was (a reply on my comment). Take a look if you’d like 😊😊
Good luck Dylan. I'm so glad you're feeling better. ☮️
I have this too; surgery wasn't bad but the healing process is HORRIFYING . Like I can't even begin to express the pain and agony and feelings of disgust that come with packing it over and over , literally daily
Disabilities can be very hard for others to notice
He is Not disabeld , that can be cured...Not a life long expect you have very stupid doctors or you live in Amerika without insurance and any money. Iam a nurse ...
He had an ingrown hair. It's not that serious
@@jessicasmith6873it's way more serious than that. Look up more on it before making uninformed comments. I believe there's even a longer video of this guy specifically
@@jessicasmith6873have you had an ingrown hair result in a half-ass-ectomy? Did you even watch the video?
@@jessicasmith6873Pilonidal sinuses are not ingrown hairs. It’s a much more complex issue.
My daughter has this and has had minor surgery before she was 18yrs old very confronting. Thanks for sharing
I had this surgery 2 times. Both of them were minor compared to this. My doctor suggested washing that area often. So I started doing that every other day and tried not to dry it with a towel because its threads can get under the skin, too. I haven't had the same disease again after I made that a habit.
I had surgery for this three times and the issue went on for a year, I stopped healing and the wound was still 3cm deep they still continued to pack the wound and left me with no help. It was the most miserable year of my life, couldn't bathe without help, couldn't sit, couldn't lie on my back, couldn't walk. I started smoking weed heavily at the tome because it was the only thing that brought me joy at the time. Im a year sober and two years free of surgery but stoll get pain from where the skin was removed
I also had one at the center of my butt crack. Had it drained and came back with vengeance. Surgery was done, had to heal from the inside out. Took almost 10 weeks to heal. Now 100% no lasting effects.
My sister had this and she too had countless surgeries. It took years to recover and the only thing that worked was a wound vac cauterizing it every week to stop the bleeding wound. I still remember how deep the gauze was with her second surgery. It made me so nauseous and I’m not a squeamish person. She has a good 7-8 inch scar down her back to this day and it’s still pretty raised. She is still the toughest person I know.
Both my now-husband and my sister had this when they were young. I was at college with my husband at the time and can remember how miserable he was until it burst. A short, simple doctor's office surgery was all that was required to resolve his case, and my sister's resolved with just oral antibiotics (no surgery). So don't let this poor fellow's experience freak you out TOO much - these are fairly common and they often resolve easily.
I needed this lol! These comments are scary !!
So glad this man is doing better!
I had a pilonidal cyst removed after it kept getting infected. Best decision ever, I never get sick anymore. When my body was constantly fighting the infection, I easily picked up every bug going around.
As someone who suffers from this. I had a major issue with it and then hsd it surgically removed. Luckily they didnt sew it shut. However I do still suffer flare-ups from the scar tissue that formed in it's place, but luckily nothing in the last half decade that was anything like the first time. This is a major issue that needs to be more publicized. It took me months the first time to realize anything was actually wrong and this was while the sinus was several inches into my lower back. It luckily only remained a surface infection, and didn't present with full body infection symptoms. Taking care of yourself and clearing your buttocks and lower back of hair, although strange sounding, can save you many of these issues. If you already present with this, talk to your doctor about laser hair removal. It's truly a lifesaver.
OMG! Who would have thought? Prayers to all involved!