Gastro issues faced by adults born with OA/TOF

Welcome to the TOFS Q&A session on gastro issues faced by adults born with OA/TOF. For this session, we were joined by Mr Nick Maynard, Consultant Upper GI Surgeon at Oxford University Hospitals NHS Trust. [Tip: Use the quick links below to jump to any part of the video]
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00:00 Start
01:57 Why may adults with OA/TOF develop silent reflux?
04:40 What are the long-term risks associated with aspiration caused by OA/TOF?
05:51 What are the risks and benefits associated with treating OA/TOFs for reflux?
08:09 Can you suggest anything for someone with out of control reflux although they're taking a high dose of Esomeprazole?
09:31 What options are there for adults with OA/TOF who have severe reflux and a poorly functioning oesophagus?
10:56 At what point would surgical intervention become an option?
12:10 Should an adult with OA/TOF be scoped regularly?
13:22 Is there anything that can help with a stomach not emptying?
15:34 Would you recommend an endoscopy for someone taking PPI's after having invasive procedures?
16:51 Should a child continue with PPIs if they have no reflux symptoms?
19:59 Are strictures mainly a childhood issue?
22:03 Does having eosinophilic oesophagitis increase the risk of Barrett's Oesophagus?
23:56 What is the risk of Barrett's Oesophagus if an OA/TOF does not take PPI's?
24:45 How often is an esophagram recommended?
26:03 Are you aware of anyone with experience of undertaking repairs of colon interpositions in the UK?
32:53 How can an adult get a referral to a consultant if they've not had any issues since leaving paediatric care?
35:23 Which medication is recommended to help adults with slow stomach emptying?
36:18 Should adult OA/TOFs be offered regular screening?
37:56 Where can adult OA/TOFs speak to others with the same condition?
38:13 Could a cytosponge be useful in treating OA/TOFs?
40:03 Would you recommend an endoscopy for a healthy looking 16 year old OA/TOF?
40:55 What are the best methods to investigate motility in terms of choking?
43:25 Is surgery an option for someone with a grumbling appendix and endometriosis?
44:15 What is the prognosis for a 55 year old with an oa long gap repair?
46:20 How common is extremely dilatated oesophagus and tracheo-bronchomalacia in adult OA/TOFs?
48:14 Would you recommend a manometry or surgery for someone diagnosed with an oesophageal shelf?
52:10 How often should medication be reassessed and when will dilatations end?
54:29 How do i know which upper GI surgeons have OA/TOF experience and how does someone get referred to you?
55:46 Are hiccups an ongoing sign of reflux?
About TOFS:
TOFS (Tracheo-Oesophageal Fistula Support) is a charity dedicated to improving the lives of people born with the OA/TOF condition and their carers. For nearly forty years we have been helping families through the challenges of bringing up a child with OA/TOF (also known as EA/TEF in some parts of the world), VACTERL and associated conditions.
Visit www.tofs.org.uk for more information and support.