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Brill Tom! Great to hear your story and creating awareness. After all the health battles faced you remain postive and carry on 💪 ❤

Amazing Tom! Keep doing what you do. ❤

I was deeply moved by this video, listening to Tom’s experiences of how OA affected him in childhood and hearing how his life’s mission is so positive. When such beautiful people in life look outwards to influence the world around them for the better, I truly believe the ripple effect is far far greater than we will ever see. I am a nani to a beautiful baby boy born with OA/TOF just a few months ago and am very new to the TOF community. Thank you TOFS for the wonderful support and comprehensive information you provide and thank you Tom for becoming an Ambassador for the TOFS charity. Totally loved the song that was playing and My eyes watered from the beginning to the end of this video !

This is a brilliantly thorough presentation in an exciting fieldb

These lectures are very helpful, thank you! 😊🙏

Do you have studies of children born 47 years ago.With no way to stretch the ends together.He had a part cut from his stomach to make his oesophagus. His problems now is like a diabetic but opposite . He has to carry a backpack with glucose sweets or juices to stop going into a fit.Would love to have someone with knowledge about this to help him. He has to give himself a couple of needles a day.

I knew 2 people who had died from Oesophageal Cancer , just days a part . I have Erosion Esophagus , I have an "EGD" test done , every 6 months. If I didn't have this done often, I wouldn't knew about Hiatal Hernia , I am Proactive . I am NO EXPERT on this at all , just learning as, I go along !!

What a beautiful kids room 😍

I have never classed as a disease but a condition 😊

Thank you for sharing this video, my son were born with asophagus atrisia (long gap)has anyone had experience this, and how many operacion need to fix the asophagus, thanks

Hi Heather, really well done for doing the video. I am so sorry that as there is so little understandng you denied the bed you definitely need. I'm also an adult with TOF/OA. Hopefully your video will change things for the better.

Dear Kate, thank you for your testimony. It is indeed a relief if you can speak about it out in the open and know you are not alone. I believe that with age, it becomes much more difficult to manage. I hope one day it will to be recognized as a real handicap. I feel still hurt today that so many doctors have absolutely no knowledge about ARM and have no concerns for our daily difficulties and pains. I wish you all the best and a lot of strength.

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Hi Amber, it was really good to see your video. I am also an adult tof. It's great that you're teaching, well done!

Hello How to survive with ARM, as A child how did u cope at school??

I want to talk about my 6 year old baby girl Congenital esophageal stenosis, or Gastroesophageal reflux causing esophagitis leading to Stricture ...how i can talk with you i m soo much worried

Great presentation explaining everything really well. Thank you

Mr Gossage installed the linx device into my oesophagus and it has completely cured my acid reflux + incessant coughing and other acid problems

Very informative, thanks for sharing.

TOFS~ omg.otustanding video,all the best,))

Thank you Dr. Emil for all the credit.Great interview!! I hope to keep working with you soon. Judy thank you also for the interview and for the diffusion of our work. Kind regards. Dr. Mario Zaritzky

It was a pleasure to know Mrs. Stephens personally at the internationally meeting in Rome. She's a wonderful person.