Mila's Story - Collaboration and Hope
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- เผยแพร่เมื่อ 27 ก.ค. 2024
- Behind every patient stands thousands of scientists and researchers, all working together to develop life-saving drugs. As you may have seen, many employees were involved in developing personalized medicine for Mila, just over a year from her diagnosis. This amazing achievement, racing through the holidays to get Mila her drug, showcases the dedication of our employees. bit.ly/2BabGcv #EveryLife
- วิทยาศาสตร์และเทคโนโลยี
I learned from personal experience how important research is to children's health care. Researchers are the unsung heros of medicine. I am grateful for all of you, who find the answers and figure out how to make them work 🙏🏼❤️ I am so grateful for you
As a child who was clumsy like Mila who had to learn to walk to talk to speak and communicate while living with permanent disability and struggles who spent her entire childhood and adulthood in the hospital I pray she finds the cure for her disease and the disease of many others like her and me I think it’s worth fighting for the lives of all sick people
I hope they find the cure and I've watched all the videos about her and she's amazing
same here
She past away ..rip mila xx
Bless mila and her story
I saw that we had the same name and I had to click , I couldn’t think of anything like this happening to me she’s so strong and amazing
God blessings upon you.
I hope they find a cure for this beautiful little girl. I really hope she's doing good now thanks to the medicine that they gave her
S-she died 😢☹️😞😖😣
@@lilianaportuondo5298 yh sadly...
I hope and pray she gets better.shes such a beautiful little girl.god bless mila and her family.
She passed away ...
@@musfirah.kamran_how do you know
God bless her! I hear mila died at the age of 10. I'm am so sorry for her and her family!
So the treatment didn't work after all, it sounded so hopeful like she was getting better in the videos about her
RIP Mila.💔
Did she pass away?
@@1398go yes, in 2021
Mila ur so sweet. May Jesus send more angels to get well soon. Beautiful family. Stay strong amen.
Eres una campeona! Me sorprende que Aya niñas con esa fuerza y valentía todos estamos contigo princesa desde luego yo te yevo siempre en mi corazón💜❤ un abrazo muy fuerte para ti y tu familia siempre contigo Mila!
Sono in lacrime; non solo la bimba , ma anche questi suoi genitori, Mi hanno preso il cuore!
it would be nice to get to a point in science where a normal test for ALL newborn is checking their genome, and then applying a therapy right away.
Why is it always babies & children suffer & there are really bad people out there have the best health & life ?
no one should have to go through it, period
@@avapenis7994 bad people yes
Mary Pevitt no, you’re basically wishing death on people. they can change
Mary Pevitt You must be a Christian lol
@@avapenis7994 no reread it again,
Lovely story all around. Bless Mila, her parents and her doctors
THIS BROUGHT CHILLS.....
Thanks for sharing your story! I will keep praying for your family. Blessings to you.
Amen praise God. I know that Mila is making progress and is getting better everyday.
Amazing beautiful little girl. What an amazing doctor to help her, very clever people.
The Little girl is so cute I hope the find a cure soon
There really is so much good in the World we just dont see it. This story made me feel great.
Mila is beautiful and kind caring smart strong bright loved loving and she is very lucky to have a great mom and dad that care and love Her she will always be in my heart and head I love you Mila
A beautiful child.
And she’s a soldier and her mom
I knew 2 brothers that passed from Battens years ago in the 90's
Amazing
Bless you sweetheart ❤️
My nieces had a disease called lafural
At adolescents they started dropping things then next came seizures then they lost movement
Then they were bedridden then they died
They were the sweetest and young ladies my heart broke for the younger sister because she knew what was going to happen to her..Hoping they find cures for the children.
I hope a cure is found she is so strong and I hope she will be ok
She died in 2021 😢
❤️❤️❤️😔😔🙏🙏🙏🙏🙏❤️❤️❤️
She passed in Feb 🙏🙏🙏
So sad for her… a great loss for mother and father. I’m so sorry.
Update please ??
She's not doing well. She's declining. There is a group on Facebook for her. She's at the end of her life, unfortunately.
She passed away.. Feb 12😔
I am so so sorry
Terrible God bless the parents,
Mila's Miracle Foundation channel: th-cam.com/channels/T1UN-7SW0HZA0-qdDj-vAw.htmlfeatured
Rest well, sweet girl. 🖤🤍
Mila died February 2021.
it's Science Fiction!!! .... no more! Awesome! Also, it made me laugh.
I wish I could find some help for my daughter. She was diagnosed with RETT disease and doctors tell me there’s no hope. It’s a dead end disease 🥺
Mila passed away feb. 2021
NOOOO.....Ive been sitting here for the past hour watching videos of her, hoping the best and now this?
I just want to know what happen to her
Mila passed away February 2021.
Mila's Miracle Foundation channel: th-cam.com/channels/T1UN-7SW0HZA0-qdDj-vAw.htmlfeatured
Rest well, sweet girl. 🖤🤍
Sadly , she passed away
Wicked disease and to rob Mila of her eyesight too. Makes me so angry