What have you lost or found because of epilepsy? - Epilepsy Action

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  • เผยแพร่เมื่อ 16 พ.ย. 2020
  • Pre-lockdown we asked a few wonderful volunteers what they felt they had lost, or found out about themselves, since their epilepsy diagnosis.
    Web: www.epilepsy.org.uk
    Twitter: / epilepsyaction
    Facebook: / epilepsyaction
    Instagram: / epilepsyaction

ความคิดเห็น • 23

  • @astrid3313
    @astrid3313 ปีที่แล้ว +1

    It’s so difficult for me to accept that I have epilepsy. Even writing the word or saying it I hate. But the feeling that I will always have to fight this alone alters my brain

  • @stevie-jaynenorton8697
    @stevie-jaynenorton8697 ปีที่แล้ว +4

    My biggest goal for a decade has been getting my licence back. Almost made it to 11 months seizure free and three days ago I had a seizure. 11 months were wasted because of 5 minutes

    • @markhyland1398
      @markhyland1398 ปีที่แล้ว +1

      It is the worst feeling in the world. Had my license for 5 months and all of a sudden started having seizures.. i was 8 months seizure free. Then boom… annoying!!

  • @UNCLE401
    @UNCLE401 ปีที่แล้ว +1

    Hiding it for me is the hardest

  • @davidgallegos4187
    @davidgallegos4187 ปีที่แล้ว

    Interesting reading & listening to others for me Listening to different types of music helps me through all the emotions that come along with this and the fact that I'm still here fighting through all the BS that comes with it shows that I can be independent, stronger, and not have it define me

  • @graceoldham6285
    @graceoldham6285 2 ปีที่แล้ว +1

    I am 15 and I have never tried to figure out why, but in school I used to freeze and have a seizure, sometimes I would fall in the middle of the hallway and people would stare because I wouldn't be able to move for a couple seconds. Mine are stress induced and I'm scared anywhere I go that it's going to happen and that someone will freak out and draw all attention to me or something. I definitely relate to some of these peoples' stories.

    • @Karen-pk3uv
      @Karen-pk3uv 2 ปีที่แล้ว

      (For the record: I struggle with word choice, so i am deeply sorry if I come across as dismissive, disrespectful or offensive in anyway. 💜) Who told you that your seizures are stress induced? Basically, was it your doctor, family member, or Google.
      If it was your doctor, talk to him about benzodiazepines. If it was a family member, tell them to take you to an appt, so you can talk to your doctor about Benzodiazepines. If it was Google, walk to your doctor's appt as a self-punishment for not verifying what Google said with your doctor before a decision was made (lol)

  • @11Conet
    @11Conet 4 หลายเดือนก่อน

    that's life

  • @kellychick7647
    @kellychick7647 3 ปีที่แล้ว +1

    I have elplesy so many tablets I am on it gets me down I cant go outside by myself so frightened love Kelly 💜

  • @rjvowels
    @rjvowels ปีที่แล้ว +2

    Definitely 100% lost.

    • @stevie-jaynenorton8697
      @stevie-jaynenorton8697 ปีที่แล้ว

      I feel your pain. I've lost everything to seizures, managed to gain some things back and then lost it all again. Never done anything to deserve this.

    • @rjvowels
      @rjvowels ปีที่แล้ว

      Life is a p.o.s. , I contemplate suicide regularly...

  • @edwardjoy918
    @edwardjoy918 3 ปีที่แล้ว

    Hi
    Epilepsy is divided into two types and this is compatible with it
    The first type that appears in the tests with problems in the brain, I do not know if there is a treatment or not.
    As for the second type that does not show anything with the tests, this has a very simple treatment and treatment.

  • @faithd3807
    @faithd3807 2 ปีที่แล้ว

    Had my first fit when I was 10, diagnosed when I was 11, 5 years later all my friends are meeting up and I can't because mine don't have any visual triggers so it can happen with everything
    I have had to be hospitalised before which is scary but I feel like it helped my career too, I want to teach and the fact kids deal with this and parents don't alway know what they're dealing with all the time and as an experienced person I want to help

  • @jakkyte5733
    @jakkyte5733 3 ปีที่แล้ว

    The medication re: my epilepsy, has been the cause of my life in the wilderness .
    Too much too young
    (aged 8) with no review until 50 years later.
    Much too late !
    So who do you sue for loss of life ?

  • @debajitsen9640
    @debajitsen9640 3 ปีที่แล้ว

    I m 28 yrs old...last 15 yrs i take medicines..but still its come out...i m frastrated😟 pls suggest wht shd i do

  • @janawilcox5984
    @janawilcox5984 3 ปีที่แล้ว +1

    My name is jana i have seizuers an i cant think after words

  • @udumaanaga94
    @udumaanaga94 ปีที่แล้ว

    #DrObahistoricalherbs