Ankylosing Spondylitis Update, No medication at the Moment

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  • เผยแพร่เมื่อ 14 ต.ค. 2024
  • Hey guys! I have not made a video for a while but this is just a little update on how I have been doing. I have not been on medication for 6 months now so its back to the symptoms again! All those other issues I was concerned about in my recent videos I uploaded (that aren't so recent lol) have thankfully gone away and I I hope it stays that way!

ความคิดเห็น • 4

  • @Baharigak
    @Baharigak 6 ปีที่แล้ว

    How do you remain so calm & upbeat? That’s awesome!

    • @asjourney1612
      @asjourney1612  6 ปีที่แล้ว

      Being negative won't change anything

  • @SaturatedCat
    @SaturatedCat 7 ปีที่แล้ว +1

    Why don't you take NSAIDS?
    I can't imagine being off of enbrel again. I recently had to stop due to an infection under a tooth, the symptoms came back very quickly, within 10 days of stopping they were already becoming quite intense. It's amazing how quickly enbrel made me forget how hard everything was before, the morning stiffness sabotaging my attempt to brush my teeth etc :D
    Could you explain how much enbrel or humira are costing you? I'm not from the States and I'm kind of curious how it's handled over there.
    I pay around €15 for a pack of 4 injections, the full price is like €920.
    It's heavy on my conscience that I'm costing society this much money, probably more than I pay in taxes.
    Glad you uploaded another video tho!

    • @asjourney1612
      @asjourney1612  7 ปีที่แล้ว

      Haha no problem man. I'm still waiting on the humira. I do take ibuprofen occasionally but i try to just eat a clean diet. Definitely miss the enbrel days (besides the infection I had lol). Your pain came back that quickly? When I got off it i was good for I 6 weeks. Crazy how physiology differs between different people! Do not even remind me of morning stiffness, main reason I wake up in the mornings haha. Well I hope your infection got better/is getting better! I do not know how much humira will cost me but my enbrel was free due to my insurance lol so you're not the only one! I also have a buddy that was on enbrel for a supposed ankylosing spondylitis. He went into remission after 3 months and is perfectly fine now without meds (reason I'm skeptical of his Dx). Anyways the point of my story is that his insurance would not pay for it and it would have cost him like a grand a month. Long story short, he gave amgen, creator of the med, a call telling them of his situation and they ended up paying for the entire thing.