The Rarest Conditions Your Doctor Has Seen (Hospital Stories r/AskReddit)
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Doctor: we have bad news, u have a very rare disease
Me: how rare?
Doctor: you get to name it
Smitty Werbenjangermanjensen's Disease. I call dibs.
@@scottvelez3154 Makes you extremely greedy and sufferers can often be found going to graveyards to dig up bubble blowing hats.
Scott Velez yeah perfect name 😉😉
I call it Θανατηφόρα
Greek for death assured
YooFaakenDedBoi
The thumbnail isn't even a disease
It's just a person who was cupping
No, it was wenishikalwastlardfark disease
The most deadly of the noonelikeseatingpigions strain of hippo viruses
Shhhhh.....
Thinking that cupping works is a disease in of itself
Irongirltoni Close enough.
For those not getting the zebra references, a saying in the medical community goes “ *_when you hear hoofbeats, think horses, not zebras_* “ meaning to always suspect and then eliminate the most common causes of illness before moving on to the much more rare ones.
I do the same in IT when fixing issues on Servers/networks. A "shotgun" approach generally nails 95%+ of the issues very quickly. Not everyone who walks in the door is going to have that rare one-in-a-million disease.
Yep. I have Ehlers Danlos Syndrome and our symbol is the Zebra for the exact reference. I am a medical zebra. We definitely exist.
ktbear21 I have Ehlers Danlos as well. Hypermobility type
@@jennifertustin6629 same here! Hope you are doing well with it ❤
ktbear21 ❤️ I hope you are doing well with it as well ❤️
I don't understand half of the words said in this video
Same 😂
@UnknownDarkDragon we don't understand what the words *mean*
But your batman... how couldn't you....
I don't understand what they mean
Oh yeah, it’s big brain time.
Munchausen-by-proxy is literally the most heartbreaking thing ever I swear down
No, not really. People who hurt others for attention are criminals and should be locked up and forced to attend therapy or something to get that absolute clusterfu*ck of a brain back on the right track.
@Kat Murphy You do realize you're suggesting the death sentence for something I'm sure can be treated, right?
Fun fact, I'm actually one of the people with the rare disease!! I'm missing a part of my bicep- I have this thing called "congenital absence of the long head of biceps tendon" and apparently I'm around the thirty-sixth person in the world to ever be diagnosed. Not sure if it's bilateral tho
Bilateral means both sides. I'm sure you'd know if you have it in both arms.
@@chronic_payne5669 yeah I know- I only found out that I had it in the one arm because I dislocated that shoulder upwards of fifteen times and needed an MRI. The other one hasn't given me much trouble, maybe some instability, but that could be chalked up to hypermobility. I'm also super claustrophobic so I'm not really willing to go into another MRI to see if it's on both, so I'm prob not gonna know unless I screw up the other arm lmao
@@sushisox6438 I'm incredibly claustrophobic, as in have to do IV sedation for MRI's. It's awful. Hopefully you won't ever screw up your other arm.
I’m a zebra too! I have ehlers-danlos syndrome!
@@maiziedyer111 I had to look that up- rare conditions club!
6:07 They best be remembering what they put in that damn cocktail if that was the only case that the patient survived
For real!
They did, its documented
Yep, they used an interesting mix of stuff, including an experimental chemotherapy agent that has shown promise against amoeba. The girl's name is Kali Hardig, if you're interested in reading more about the case. There are lots of articles written about her.
You can find the cocktail of drugs they used in this article www.ncbi.nlm.nih.gov/pmc/articles/PMC4634363/ written about that case.
200th
Im quitting going to waterparks
Glad to see I’m not the only one who thought that when I saw that part
Me too!!
KarenBV Afred The odds are extremely low and they live in almost every other body of water on the planet what you really need to do is ware noseplugs as much as they suck they could save your life
@@demi-fiendoftime3825 well i cant really swim so i avoid lakes and ocean and every water body that are deeper then shoulder depth, i only swim in the pool my flat has... rarely.....
I already don't go but dont plan on going soon
"Allergy to red meat but not monkeys and humans"
Oh thank God, I can still eat humans 🤣🤣🤣
LMAO
I mean, I guess you could potentially become allergic to like your own blood and that would really really suck.
@@confuzedgraphite That's called autoimmune disease. Various degrees, but all basically mean that your body thinks it is wrong, and try to kill off all the wrong, making you miserable and sick, since there is nothing wrong with the attacked cells, before your immune system goes haywire.
Lmao
@Kaspar Kallau Disease called Kuru, not brain cancer but a fatal nervous system disease.
When I was a teen I had a cast on my arm up to my elbow. The doctor cut it to remove and when he lifted the top half away we both gasped and I thought the doctor might faint. There was a big green alien looking plant thing living and growing the full length of my forearm. I recalled that I fell into the ocean briefly trying to retrieve a surfboard in Santa Cruz, California. Apparently a piece of kelp got in my cast and grew, and grew.
Mike Btrfld Care to explain how it grew?
@@mason3461 yes I'm a biologist!
Mike Btrfld please do
It’s like a less extreme case of the pea growing in someone’s lung.
Similar thing here! Swimming in the ocean and sharp rock cut a thin layer of skin on my toe, but I didn't notice there was a cut because it only cut the top layer, so there was no bleeding and not much pain.
A few days later, I felt a pain in my foot while walking to school. By the time I got to class I was limping. After school I checked the toe where the pain originated from. A kelp leaf was sticking out of my toe. I could see the rest of the kelp leaf wedged between layers of skin (it was visible from the outside), and a bit of kelp sticking out. Used tweezers to pull it out, and it hurt.
I can imagine the Dr. House episode while reading these
It's not Lupus
You beat me to my comment idea :p
@@memejirosano3350 It's never Lupus. Except that one time it actually was.
I thought of Dr. House the whole time while watching this.
@@Alinor24 if anyone's still writing fanfics about it, they should come here for ideas
The thumbnail isn’t a disease, it’s called cupping.
No its not but it is a therapy, used to help blood circulation which the bad blood flow could of been by a disease and so its kinda involved thats what i think from browsing google for 5 mins so dont go shout at me if im wrong also he couldve just used it for clickbait
"Therapy" please. It has no documented evidence that it actually does anything beneficial and can actually cause significant harm instead. DO NOT DO CUPPING!
@@pintpullinggeek "but it's Chinese tradition!" Actually my grandma was told to start cupping after a surgery complication. It was a knee replacement, and the muscle's scar tissue attached itself to the skin's scar tissue, and she was told to cup it to tear the layers apart. But otherwise I think cupping is mostly hype
You should refer to it as quackery. It can actually do a great deal of harm.
He must’ve looked up “disease” on google images and that’s what he got.
Cat's cry syndrome one: I thought it was going to turn out that the baby was a hairless cat. I guess I didn't really, but I was hoping for that absurd conclusion for some reason.
That'd be hilarious, but humans haven't jumped the species barrier in that way yet...
Hmm would be a funny ending I suppose, lol
I actually looked up cats cry syndrome! It’s caused by a damaged gene
Liuhuayue 😳
One of the 'joys" of training in Genetic Couselling (I don't work in the field anymore), is getting an idea of what could be the problem (for the In-born errors) before the description is finished.
Shout out to the emergency room doctor that did this for our family. When my sister was a toddler, my mother noticed she had a fever and a rash where the skin would blister and peel off. If you touched her, the skin would just die. She had not been sick prior or had taken any medications recently. She did not have any known allergies. The ER doctor literally told my mother that he did not know what was wrong with her but was not going to stop until he figured it out. He eventually diagnosed her with Stevens-Johnson syndrome. This is almost always triggered by an allergic reaction to medication, which is why it was so hard to diagnose my sister. (To this day we still don't know what triggered it.) She survived without any loss of sight or hearing because that man would not give up until he found a solution.
Lotus Song now that’s the way doctors should be
You know you have a chronic illness when you can understand most of the medical terms in this video but have attended 0 years of med school
lmaooooo same
Yep, or love reading and collecting medical textbooks.
0 years, 0 months, 0 weeks, 0 days, 0 hours, 0 minutes, and 1 second of med school. ;)
I don't have any kind of chronic illness (in fact, the closest thing I have is social autism but 1. It's neither chronic or an illness and 2. I'm so high functioning that honestly I didn't even meet the requirements to be diagnosed until they revised the requirements for a diagnosis--and even then I just barely qualified) and I'm only 17 (almost 18) and a senior in high school so I definitely have never been to medical school (although I do want to be a vet) but I do understand a very select few of these terms as I'm a klutz and constantly do research to make sure that I know what to do if I hurt myself (not that it would really help much since I'm so terrified of my own blood that I've literally passed out the second time I had my blood drawn because I remembered seeing my blood after they finished the first time and fainted despite them having already finished...), my grandmother is a nurse, *_AND_* I like writing fan fiction in which my OCs often either have some kind of mental illness or are healers (or both) so I'll look up ways to clean wounds, treat illnesses, diagnose certain things, common medical myths, ECT. because I'm so thorough and have even gone so far as to bring *_TWO ENTIRE_* medical text books to school *JUST* so that I could get a thorough understanding of how to clean wounds properly in case whenever a healer magically closes a wound and it doesn't get sterilized first that it would seal up with any debris that may be inside the wound causing it to get infected...I was only 16 and said text books only had about five pages on the subject but I *_HAD_* to make sure that I was 100% accurate and as detailed as possible...and that's not even the first time! I've been doing this kind of thing (albeit using google and not text books) since I was 14, all because I'm a perfectionist and if it's not perfect I feel like I didn't do my best! That being said I've been writing fan fiction/stories ever since I was around 5 or 6 (it started out as me writing stories about my cats where the Princess had to save the Prince because he was a cowardly pushover (as I said they were about my cats and they had their exact personalities) who always got catnapped with the help of a Fairy Catmother (yes, I called the character the Fairy Catmother...) all while she (the Princess) was complaining about how the Prince was supposed to be all heroic and not some coward and how she was going to have to lecture him once she saved him...) so I suppose my standards when it comes to my writing have gotten pretty high...
I can understand it. I am in middle school.
The moment it read, “they visited a water park-“ my heart dropped. I’ve read lots on Naegleria Fowleri, I was sad
N. Fowleri is from my state, pretty cool knowing that Arkansas Children's Hospital could do such incredible things
Waitt that was in Arkansas. I guess us Arkansans are known for something lmao
Wait Arkansas Is a state? Holy crap I forgot yall exsisted
6:05
Actually, the girl in that story was the _third_ survivor of PAM.
agentsilverlining correction 4th
Glitzy X4X 4th was a dude
The guy with the 2 platelets reminds me of my daughter. You should have about 300,000 platelets. She had 0 yes zero. She had to have the plasma exchange. She was lucky as she had been playing soccer and if she had been kicked she could have bled to death. The high school called me right after that when they noticed all the red spots and I immediately took her to the hospital. They sent her directly to ICU. They didn’t even take her off the ER stretcher as they were afraid if they moved her to a chair,etc. she might bleed to death. That was 25 years ago. She has been fine ever since.
Did they figure out why it was so low?
I've had zero platelets many times but that's because I had cancer and was on chemo.
Meredith Grey They never did figure why it happened..she has been fine ever since the plasma exchange.
@@stezi51 oh that's no good.
@@stezi51 I'm just glad your daughter is doing well! It's terrifying to think that a simple scratch could have killed her.
I constantly get wounded on my arms and legs...
I cant imagine having 0 platelets..
My mother was diagnosed with Guillian-Barre’ syndrome, Miller-Fisher variant. 3 cases a year GLOBALLY confirmed. Causes paralysis of the eyes resulting in extreme vertigo.
That’s about as rare as it gets.
Ive heard a story once where a girl had a mysterious disease where in the morning shed be just fine but later in the day her leg would start cramping and her foot would rotate inwards, but she never got a doctor to see it (It would basically disappear infront of doctors) until she and her family went to a zoo and managed to catch it on tape. Turns out she had a rare condition wherein her body would underproduce some messenger protein or sth. Over night her body could build up a reserve, hence why she would be just fine in the morning, but over the day her brain couldnt keep up, but she could force it for a while when concentrating.
Another interesting one that stuck out to me was a man who constantly had trouble swallowing for some reason and would often nearly choke on things like mashed potatos. He went from doctor to doctor and they all told him he just had a narrow esophagus. It took decades for someone to notice that there was a little plastic thingy that had somehow made its way into his esophagus, got lodged there, and covered by tissue.
Yikes! I mean, an encased foreign object does look like regular tissue apart from an irregular shape, that's how they make plastic prosthetic ears and such. However, why did nobody check to see how big of a problem this was for the man? If he couldn't eat mashed potatoes, then surely he would be at great risk of malnutrition due to his condition, making it severe enough to warrant corrective measures.
@@PanthereaLeonis Well, thing is, he would go to a doctor, theyd just tell him to eat more slowly, and thats it. Nobody ever bothered to actually look into it.
@@Chrischi3TutorialLPs Ugh. If it was here, they'd try to insert a stent in his esophagus, or at least give him a feeding probe. Heck, one of those x-ray videos of him trying to swallow contrast fluid. They did all of that to my gramps. Too bad the stent tore a hole in his esophagus, and the issue was lung cancer wrapping around the esophagus. The trauma caused the thing to explode, essentially, and while he had had the cancer for maybe 20 years or more, and probably would have had at least 10 more years, if counting by the cancer, he was dead within the year, iirc. If it hadn't been cancer though, his throat would just have healed, and he would have been able to eat again.
@@PanthereaLeonis Yeah in germany the average doctor isnt smart enough to figure out that when someone says they cant swallow mashed potatos and hasnt been able to for decades the problem may be more complicated than them eating too fast.
So, fun fact, I'm actually one of the people who has had an extremely rare disease! When I was a baby, I contracted a relative of the chicken pox that is so astronomically rare that less than 100 cases had ever been reported. It was so rare that it didn't even have an official name. I luckily made a full recovery, and am immune to the chicken pox now.
Cool! Hope all is well
I had a similar experience.
spiritedaway0tutu I’m immune to cholera and algae toxins in water
I’m not a doctor yet but I work in a veterinary hospital and I got to assist a doctor with a procedure for a super rare condition. It was on this poor little kitten that had a rare autoimmune disorder where the body basically attacks the earwax and kills the skin around it. This cat’s ears were packed full of necrotizing tissue. The doctor had to use a laser cautery device to carefully remove the dead tissue without damaging the ear canal or getting too close to the brain. My job was to hold open the cat’s ear and angle a flashlight into the crevices of the ear to give the doctor the best field of view possible. The smell of burning, dead skin was horrendous. It took more than a half an hour per ear to clear out all the dead tissue and find the ear canal. The surgery was more than an hour long. I felt bad for this poor kitten. I couldn’t imagine how painful the disease probably was. It’s not deadly, just painful and a nuisance. The cat will need to be given medicine for it for the rest of its life, or else it would have to regularly go under anesthesia to have dead tissue removed from its ears.
One of the great things about interns and med students is all their knowledge is fresh and up to date.
Also teaching hospitals and universitys tend to be the better ones, between the best in their field Doctors and professors, to the cutting edge medical techniques and instruments.
6:00 Imagine being told that you are the only survivor of a certain disease to ever be recorded after nearly getting killed by it and suffering no long lasting side effects. A disease that literally eats people’s brains away, and kills practically 100% of the time, had no long term side effects on her. This is more than just luck this point.
Now imagine being one of the doctors who managed to cure a disease that has never been cured before. Every time you would talk about your achievements or your field you would bring this story up every. Single. Time.
I would literally flex on every doctor I would ever meet with this and I would’ve completely earned the right to brag about it.
"I don't know how many platelets a patient should have..."
With the scale and units that I'm 99% sure this guy is using, 150-450. 2 is... a tad low.
Once you hit below 20 you start bleeding spontaniously.
Yeah... Juuuuust a tad😛
I have a condition very similar to this. I have idiopathic thrombocytopenia purpura. I've been down in the 60s for ever and and only knew one person who got down to 13. And he was messed tf up. I can't even imagine what 2 would look like. That's like bleed out and die from a paper cut. Holy heck.
@@alexissmith169 that's probably like, bleeding by touching stuff or something... That's just too low for you to be alive for long at all
@@alexissmith169 I have the same thing came in for a follow up cbc two weeks after being discharged the first time and had a count of 0
I hate the fact that NONE of those stories explained what the disease they talked about was. They just say the name and expect us to know what it is.
yeah i had to Google half of these
Maybe if you're just listening to this in the background, but for some they explain the general condition of the patient beforehand which would lead them to the diagnosis. There's really nothing else to it and no need to repeat the symptoms of each diagnosis they mention. Example: N. Fowlery was the one with the person who got water in her nose. They mention that the amoeba attacks and basically eats the brain away. Another is the blood in the semen of the husband who's wife thought she was bleeding from her vagina. The symptom of blood in urine/urethra was from prostate cancer.
@@nemonobody6232 by none of them I meant most of them I was just exagerating. Plus the ones who explain the state of the patient aren't that specific and don't rlly explain what the desease itself does.
But they did explain it wtf XD especially the ameoba one, it explained exactly what happens, you get headache and fever, then it starts to swell the brain after eating away at it, causing death shortly after (what they dint say is that death is as fast as five days after symptoms occur, so she had like a day or two to live if they hadn't started when they did)
@@HiddenOcelot two out of all of them had the decency to explain
Haven grown up in Northern Ireland during the troubles, never ever just think the old lady in the flat above the IRA is crazy, call the police and get them to send for the army to go in and check. Sure there’s some risk to you if they find out you are the one who told on them, but if it is true it will literally save lives.
+Gabriel Badwolf aye but if ye do that the ra will cap you
Why didn't she call the police, though?
If a patient is saying "the terrorists next door to me are loud, got anything to help me sleep through their bomb planning sessions?" it doesn't seem unreasonable to think she's got a medical problem before thinking there are really terrorists.
What seems odd to me is that she hears her neighbor planning a bombing and goes to the doctor for sleeping pills so that they don't keep her up at night instead of calling the police.
Aye but then ye would get yer knees done in
me uncle was a Ra member and as he says quite a bit fucking proddies
Adam Perry ah but in this case it will be traced to the rambling old lady, not the doctor who was told all this in confidence so no one else would know you called it in. I mean sure they could shoot the old lady, but not as likely as someone younger, back then they did believe it or not have some moral standards, and deliberately shooting either kids or old people in the community was a no no. Both the IRA and the various Protestant paramilitaries could only exist with the support or at least the silence of the communities they live in, this is Northern Ireland after all everyone knows or is related to everyone in their area and consequently knows everyone’s business. Which is another reason you’d be safer in this case because you’re not a part of the same community.
Had toxic shock before. They didnt know what it was and I had to get transfered to a childrens hospital. They were shocked, but I survived
I work in a hospital laboratory. We diagnosed a case of Thrombotic Thrombocytopenic Purpura
a few months ago. Your platelet count definitely gets that low because the condition causes platelets to clump together and get stuck in your capillaries.
Elliarynn now many platelets should you have? How is it calculated? A micro millilitre on quadrons?
@@laurabonsell1597 Normal range in canada is 150-450x10^9/L.
Woow that's interesting but i want to ask for the last reddit story do you thibk that was typo? A platelet count OF 2??
@@heyimmary1876 It is possible to have a platelet count of 2, usually we see results that low in people on chemotherapy, as well as a few other things.
My sister had a platelet count of 5 before. Luckily the lowest mine has been is about 26
'Cannock, (a small inconsequential town in the West Midlands)' as a Cannock-dweller, this is accurate
I am the 4th person, in all of history, to have contracted a stranger's peanut butter allergy, when getting plasma aphoresis.
Oh, and the Plex (plasma exchange/aphoresis) was because I had been diagnosed three months prior, with a 2-10 in a million disease called TTP. WHICH I was luckily diagnosed with because a random doctor in the second ER I went to, happened to know someone with it. I nearly died, the diagnosis saved my life.
The following night, an older man came in to the hospital, same exact symptoms. Because I came through the night before, the doctors knew exactly what to do with him, and where to send him.
Now TTP can come out of nowhere, but for me, a previous autoimmune disease paved the way. I was born with Juvenile Rheumatoid Arthritis. Which is another, somewhat rare disease...
Since my second hospital visit for TTP, back in March, I've also been diagnosed with Hashimotos...
Edit: none of my doctor's have ever seen anything like me.
Edit 2: I also got a virus once that doctors couldn't identify. They put herpingina on their charts just so they could discharge me.
Edit 3: OMG I WROTE THIS BEFORE WATCHING THE WHOLE THING! If you want proof I'm not making this up, I'm @jirdannefuller on Instagram. Scroll down to November or March and you'll see my hospitalization and peanut allergy documented!
That thumbnail is a person who just went and got suction cups done.
ᗰᗩᖇᔕᕼIᔕᕼᑌ ᗷOOᗰ Thank you! I thought I was the only one who knew what that was.😂
isn’t it that Chinese placebo that it purged the blood or whatever and helped athletes before a performance?
HannaMartin google~~
@@hannamartin1356 Those two are similar but it has different effects based on the technique itself
That’s how you grammar right there
I'm literally crying over the girl who survived that amoeba infection...I guess that anything is possible...
My heart skipped a beat when I heard Marfan's Syndrome! My dad got diagnosed after he went to the hospital for chest pain, his aorta had ruptured due to the disease and he didn't drop dead only because the tissue tore in a weird way that kept his heart going. I was born around that time and was immediately tested and later diagnosed with Marfan's as well. Couple years later my little brother was born and diagnosed too. As the video says, you can live a normal life. Other than being legally blind, having chronic pain, physical restrictions, meds and doctors, life is normal.
I have a strange disease where lemon and sunlight on my skin gives me sever rashes and blistering-the dermatologist i went to turned out to be writing a book about it so i ended up in a medical book
Citrus and the sun don't mix. I've seen that bartenders who work with limes a lot have to wash their hands raw before stepping into sunlight or they'll blister. My husband had melanoma 2 years ago and he avoids citrus like the plague.
I called the Munchausen by proxy right away. I also called rat bite fever just from rash on feet and pain in joints.
The description for Cannock being "a small inconsequential town in the west midlands" is depressingly accurate. As this is probably the only time I've heard my hometown mentioned outside of local news.
My cousin was hit on the back of her head once and got a weird kind of brain damage, it was a very rare kind of damage (i don’t know the name anymore, but it was very long). since there where only 30 cases ever registered in the world, it was unsure if she could heal from it. Luckily she healed and didn’t die because the chances of that happening was really high.
11:38 Reminds me of a video I saw once on a girl who was an art prodigy. She was deeply religious as well but that might’ve just been her upbringing. Still, interesting to hear about.
God, I work in hospital nutrition. We are seeing a rise in lone star tick bites. Its nuts.
Time to convince myself I have every one of these.
lunareclipse0629 wow didn’t realise my ocd had a TH-cam account . Guess it’s time to go and read up on all of these all night.
i kept having to stop and look stuff up..... omg im being educated and entertained at the same time.. lol
I have a Treacher-Collins patient! He's 6 years old now but we've cared for him since birth. He's the greatest kid, I just love him! He LOVES his doctor (the one I've worked as a nurse for for over a decade) and would start calling out for him as soon as he saw me - every single time! So cute!
my grandfather died from progressive supranuclear palsy last year, it was really tough on him
So I watch so many medical shows and documentaries I guessed the diagnosis of naegleria fowleri, meat allergy due to tick bite and the cri du chat before they said it lol yay me! If only medical school wasn’t so damn difficult!! Lmao
I have really severe trypophobia
Your Thumbnail triggered it, Lol.
Ruby Atneta same🤢
My skin Crawled
those aren't holes
same here i shuddered
But.....there're no holes? And a true phobia causes more than just some chills and slight discomfort.
Fun fact about the last story:
If a patient had a platelet count of 2, the doctor would not call us to check if it’s accurate because we would be calling them.
Any results that require immediate action are called panic values and are verbally told to the patient’s provider as well as release electronically.
EDS isn't necessarily rare but one of my doctors had literally never heard of it so 🤷♀️🤷♀️🤷♀️
get ready for a world of that 😑 my docs have googled it in the office more times than I could count
Liv my l i f e. Same with POTS and cervicogenic headaches.
Oh felt that
Only 2 of my doctors knew what it was sorta but i still had to explain it lol
The lone star tick isn't all that uncommon where I'm from. I've known several people who developed red meat allergies from tick bites including my little brother
What? I've heard you could get Lyme's disease from ticks, but never develop an allergy against meat. I'd hate that so much. I'm quite the carnivore. Does this include all mammalian meat, or just red meat? Is fowl affected?
@@PanthereaLeonis Yeah it's really strange! I'm not a doctor so I don't know all of the specifics, but when my brother got diagnosed with the allergy he had to stop eating beef, pork, and dairy
I would really hate giving up meat.
18:12 wait hold on, a platelet count of 2?
2?!
and the guy (who clearly didn't look well at all) was written off to be seen the next day after being given some prednisolone?? i'm really happy to hear that the person who diagnosed the condition did what they did, that's absolutely terrifying
I live literally a few miles from Cannock, really glad that lady said something about the terrorists.
I live kind of near there too
I have two really rare muscle conditions called Familial Periodic Paralysis and Paramyotonia. You should Google it because the websites explain it way better than I can, but basically when I get cold, don't eat, or move for a while, I become paralyzed. My motor muscles contract and freeze there. I am then unable to move, rendering my temporarily paralyzed, and it is extremely painful. You try to move and you can't, but you can feel your muscles straining. It doesn't always happen to every muscle all at once though. Sometimes it's just my legs, my arms, my face, my hands, my feet, my toes, my stomach, my thigh, one of my eyes, my tongue, my cheeks, my mouth, etc etc etc. Yes, my eyes freeze. They freeze shut and I physically cannot see anything.
I live in a very cold part of Canada so this can happen year round. I can eat loads of food and constantly move and bundle up into a huge ball, and I could still become paralyzed. We usually just refer to it as being stiff. My grandpa, dad and two out of my three siblings have it (it is genetic). I forget his many people in the world have it. I'll go check and the come back and edit this with the answer. But yeah.
Edit: familial periodic paralysis is 1 in 200, 000 people and Paramyotonia is less than 1 in every 100, 000 people
@Kat Murphy my grandparents live here, and all of their other kids moved away. My dad wanted to be around to help out with my pops dwindling health. He's the one with the same muscle condition, and he also has Alzheimer's and Parkinson's. He and my nan refuse to pit him in a home, but he needs 24h care. He used to be a carpenter, and while working on the roof of a house be was building, he fell off and broke his back. He had lots of surgeries that helped, and he could still walk and function normally for a while. Now that he's 74, it's caught up to him and he can barely move. We used to live in Saskatchewan, but moved to where we live now when I was little to be with these grandparents. My dad grew up here, so he's always wanted to come back. But he's said continuously that if it weren't for his parents living up the road from us, we'd be living somewhere else.
So yeah. The weather here does NOT help with my condition, but I like it here. It's really pretty when it's not pouring rain or foggy like it normally is lol
|-/
As someone who gets cold very easily, I've found that an electric blanket is very nice to be wrapped up in.
I am a zebra and it took years for doctors to look for the zebra. I now several diagnosis that are becoming more common than doctors think but still don’t get correctly diagnosed often.
The thumbnail was just a person who got cupping done on them.
The waterpark one seems like something from House
Isn't the N. Fowleri the same thing that foreman and the cop got?
Yes it is
Well, House is constantly looking for zebras. That's what makes the show so entertaining. It's not 20 cases of regular pneumonia, and some bed sores.
pretty sure it was
Omfg my aunt died from Creutzfeld Jacob and doctors thought it was alzheimers
@James Huffman interesting, and thank you ❤
My mom amd 2 uncles died from Creutzfeld-Jacob like Gerstmann-Sträussler-Scheinker syndrome. We are one of the few families in the world to have the mutated gene. My brother, sister and I were tested and I'm the lucky one to have the mutation too.
@@aulolaa6 I have the mutated gene that will cause Gerstmann-Sträussler-Scheinker syndrome. The way my doctor explained it, it's the inheritable version of Creutzfeld-Jacob..
@@skyebeest omg that's so unfortunate, i hope everything goes well in your family's life and yours :(❤
@@aulolaa6 Thank you.I'm okay, try to live my life the fullest. I consider myself the lucky one because I know I will not pass it on to future generations..
Anyone else’s watching this thinking they got a rare condition, just me ok
Good news, Hypocondria isn't all that rare 😂
I mean..yes? but that's because I have one. 😐😂
Well, I thought that I did, until I compared the odds, turns out that I should just keep quiet and be grateful.
The case study for the N. fowleri patient is available in NCBI. Really interesting read.
The carpenter made me laugh out loud.. I like that dude
Me: Watch’s this knowing I will think I have every single one
My parents: plz stop
Platelet count should be between 150 and 300
Source: me and my sister have a rare blood condition and have to see haematologists about it!
Yup mine is around 110 right now and I'm definitely happy about it way better than when I was at zero
This is why I love this R/AskReddit TH-camr, because he doesn't put a f*cking ads in the middle of a serious story.
18:32 my uncle had this condition a few months back. he survived, thank god, and is doing so so much better now. they used a trial drug on him and he recovered in weeks, not months. modern medicine is incredible
I actually went to the same high school as the girl who survived the amoeba
As a person with a rare disease (gastroparesis) this is awesome!
I have it too. Sucks, I hate it and I miss eating normal food I once took for granted. But I also have another rare neurological one called Syringomyelia, so I'm just double lucky I guess.
@@chronic_payne5669 I have hydromyelia! I know your pain :)
@@chronic_payne5669 do you alsp have chiari malformation?
@@miriamw.8673 we've explored the possibility of Chiari zero, but as of now I haven't been diagnosed with Chiari malformation.
@@Kiraniin I'm sorry, it really is awful and you look so young. That makes it even that much worse.
i’m not a doctor but as a cf patient i’ve been in hospital a lot, and once in the room next to mine there was this guy who has a condition of which there is literally not one other single case in the world or in history.
they have no idea how it will evolve, what hidden symptoms there may be, what the future holds... they just treat whatever happens without knowing what’s next.
As soon as they said they had visited a waterpark, my mind immediately said: “please say its not naegleria”
I'm most likey wrong in this but that thumbnail is a form of massage (Thailand I think) where they heat a glass to put on your back to make they circle shape.
Yeah! I thought it looked familiar. It looks pretty weird and narly though.
zolli21 that’s called cupping lol
We have it in Indonesia too
You can get it anywhere that you can find some one who does cupping
*Fun Fact:* About 7,000 people die every year due to doctor's poor handwriting c:
Well thanks for that.whenever I go to the doctors I’ll scream “PERFECT HANDWRITING” like a teacher xD
I absolutely love your voice, and sense of humor.
Thumbnail frigging triggered my trypophobia and i've been permanently scarred
TH-cam has a rare condition
It's called no view itis. The ability to like without views
Its a very serious condition caused by coding mistakes and people liking before watching.
Apparently its because after about 300 views youtube updates it in batches verifying each view.
This rare condition also may be a little more common, after all the research I've done. You see I think it may also happen when TH-cam is drunk. That also may be the cause of a few a other mess up like when I click on a my video and it only has one video.
I’ve done research, and I believe I’ve figured out what this dilemma is!
When a person begins to watch a video, it is not counted as a “view”, because you have not watched half the video, but likes go through immediately!
TL;DR: you didn’t finish the video!
It would be no view osis though, because it’s a state of being, not an inflammation of views
“Solar urticaria (SU) is a rare condition in which exposure to ultraviolet or UV radiation, or sometimes even visible light, induces a case of urticaria or hives that can appear in both covered and uncovered areas of the skin.”
That. On my face. At random times legit I can go out into the sun for weeks and be fine and then one day nooooo hives everywhere all over my face.
When I got diagnosed with it the skin specialist I went to said that it’s so rare that in the 10 or so years (don’t remember exactly how long she said) that she’s been in practice she’s only ever seen 2 people with it. I was the second.
I was 15 and sobbed in the car on the way home.
I also have very sensitive skin so I am also allergic to sunscreen.
Current DX is that I've got some weird cross between cold urticaria and contact urticaria. It's weird. It sucks. My meds help though.
I also have issues with sunscreen. I burn when I wear it. However I've found quite by coincidence that while I cannot use the sensitive skin kind, I can use the tan-without-self-tanner kind. So random, but I'll take it.
You can also get urticaria from exercise or cold weather
My grandma Jacobs had Cretzfled Jacob Disease. It’s sad to see someone who had so much energy, was happy, and taking care of everyone go to looking miserable and having to be taken care of. Towards the end all she could do is lay in her bed. My grandpa did an amazing job taking care of her, but I know it was hard for him to see her wither away like she did. She also forgot pretty much everyone, except my grandpa. I hope they find a cure for CJD one day. I love and miss you grandma and grandpa, I know you’re both in a better place.❤️
My dad got in a car accident in collage. He broke his collar bone, and while he was in the hospital, he got very sick. Every single test came back negative, and at this point, they thought he was going to die. But one of his doctors did a huge amount of research, and discovered that he had an extremely rare illness that only had like 9 recorded cases. I forget it's name though
Nobody ever believes me when I inform them I have cold urticaria - even some doctors XD
What? They don't believe you? I feel you though. I used to work at a flower shop, and the flowers are kept in buckets in the fridge, to keep them fresh. You might see where this is going. The fridge keeps about 4C. Now, this isn't usually a big problem. My hands are somehow not very affected by this, probably from some sort of hardening or whatever, so I can grab cold things without turning into Mrs. Sausagehands. However, this one time my boss told me to fetch a bucket of roses from the fridge for an order, but when I came back, she asked me to hold on a sec, since she didn't have room to place it right away. I casually rested the bucket of frigid, 4C water against my abdomen, right above the pelvis, to take the load off of my arms while I waited. After a little while, I could feel some sharp pain on my stomach, as if someone was crushing snow against my skin, and I just knew what I would get. I took the bucket off of my belly, but it was too late. When I left for the day a little while later, I checked, and I had this line of urticaria spots going along my skin in a crescent, the shape of the bucket's "corner". When I got home, I had a hot, swollen sausage of urticaria rash in the same spot, about an inch wide.
Less of a detailed story, but once when riding my moped I got cold. It was raining, and I was only wearing a pair of jeans on my legs. Naturally, I got wet. I needed to get home though, so I rode the moped home. When I got home, i realized my ass was itchy. Not really an issue, since I've had rashes all my life, but this just got worse. I checked myself out in the mirror, and I had one, solid patch of urticaria the size of a decent lemon on my right cheek, with tiny satellites around the edge. It keop on growing, and at its worst the blister was the size of an avocado, and I could feel it being swollen about an inch both over and under the regular skin-line. It was hell. After that I sought out a dermatologist, and got my diagnose: Chronic urticaria. I'm essentially on a medication regiment that includes 10mg Cetrizine every day, even if there are no allergens in the environment. It helps though. I can walk down the street with confidence, now that my face doesn't look like croc skin from all the blisters. And more blessedly, is the lack of itching.
k but if i were a doctor i may consider looking into a statement about a bomb/terrorism
Seriously, I recall "if you see something, say something" being drilled into me at various times and points in my career. Not "If you see something say something and spend a week making popsicle houses in a paper gown whilst we decide how best to keep you sedated."
To be fair, if an old lady come in to the doctor's (rather than the police) saying "The terrorists below me are being noisy. Can I have something to help me sleep?" it is much more reasonable to assume she's confused than that there really are terrorists next door to her.
The saying doesn't go "see something, ask for Ambien so that it doesn't keep you up at night!"
@@sandpiperr well, we don't know if she reported it to the proper authorities. She may have reported it 100 times and some lazy police officer got annoyed and said "We can't help you lady, go ask your doctor for some ambien and quit bothering us.🙄"
Now imagine living in a time pre 9/11.
@@damenwhelan3236 I remember it vividly. It makes me sad my children never will. I imagine in 50 years it'll be looked upon like Pearl Harbor.
its so fascinating to hear about this stuff even if you dont know what a couple things mean. you can hear the triumph in the way they talk about it lol. wish more doctors put that much thought into their work!
18:20 Oh this one hits home. About six years ago, I was having terrible periods over a course of three months. At the end of the third month I could feel it was getting to a point where I was becoming anemic (my OB-GYN sent me for all sorts of hormone tests, ultrasounds, etc., never found anything weird aside from maybe PCOS, but never did the one obvious test that would have diagnosed me a lot sooner). Well, one morning I almost black out, so after I rested for a bit, I drove myself to the ER (I know, I know, that was stupid of me). ER doc started consulting with my OB-GYN about getting me in for a D+C (basically scraping and cauterizing the inside of the uterus to stop the bleeding), but then ran the basic CBC to see how anemic I was. And according to him, he actually went all the way down to the lab himself to look at the microscope to see, and I quote, "the two or three platelets that were waving back at me". My platelet count was 5 (or 5000; in this story, the patient's 2 is actually 2000. Normal range is at least 100,000). I was literally bleeding to death from my nether regions. Diagnosed with ITP (idiopathic thrombocytopenic purpura, basically the same thing as TTP except that ITP is diagnosis with unknown cause). For those not in the know, once platelet count reaches 30,000, it's danger zone. Anything below 10,000, and even a sneeze can kill. My treatment was ultimately a regiment of a drug called Rituximab, enough steroids to shock an elephant, and birth control to regulate my periods (First time I'd ever been on it). Platelet count stabilized after a month......and then a few weeks after that, blood clots in my lungs from the birth control. It wasn't a fun year. Thankfully, my platelet count has not deviated since.
Jesus Christ
I have trypophobia
And that thumbnail made me so uncomfortable
•Pxmpkin Gacha• yep same
But doesn't trypophobia get triggered with multiple groups of holes? I'm sorry I'm just curious
Anyone else watching this wondering if their rare illness is gonna show up?
😶 guilty
Yep! 😂
Thankfully, I don't have any rare illnesses, And I am blessed to not have any, and I wish the best for anyone who has one.
6:09
For anyone wanting to know,
The girl’s name was Kali Hardig, and this occurred in Little Rock, Arkansas
I was diagnosed with Kaposifrom Lymphangiomatosis Type B about 4 years ago, I'm one of like 15 people in the world with KLA, and one of 3 in the world diagnosed with the Type B classification. Type B is completely treatment resistant, in the past 4 years I've gone from running a mile a day or more with my dog, dancing, and biking, to now being almost completely bedbound. My lungs are scared from repeated pneumonia bouts, and I've had viral and bacterial meningitis about 3 times each. Even a small cut can lead to my immune system attacking that entire area and breaking down all the muscle and tissue in the area.
Can you please link the reddit thread in the description?
I'm trying to find the N. fowleri post
I know the time stamp for this was 6 months ago and you've probably found it already, but that post was about the third survivor in Arkansas in 2013. You can Google articles about it.
The thumbnail dude stole Fugo's outfit apparently
When i was about 15 I developed a rare secondary infection after a strep throat called Erythema nodosum. I had large red lumps over my shins. The swelled so much they bruised. My dr said mine was a better example that the textbook and took pictures for the record (don't worry. it was my family gp and my mum was there and gave permission)
My youngest brother has TTP, he would get cuts and they wouldn’t heal, and Bruises that would appear seemingly out of no where. We took him to the doctor after finding a large bruise that persisted for weeks. After a blood test we found out his platelet count was 9. He spent a week in the hospital, this was when he was about 3 years old, he’s 11 now and hasn’t had any issues and is a very healthy guy.
Just on a side note - Cannock is in Staffordshire, not the West Midlands.
Also, with regards to the first story - this is what happens because nowadays, whenever someone reports something out of the ordinary, the assumption is always "mental illness"! The terrorists could have blown someone up by the time the lady got taken serious - I have been in similar situations and encountered the same assumption of "mental illness", and the result is that to this day, certain criminals are doing some serious harm to vulnerable members of society!!!
Maybe it's time to work the other way round and first make sure there is no threat to anyone before the lame old line of "mental illness" gets dropped!
That doctor needed a big smack on his head and the words:
"YOU IDIOT! Dozens of people could have gotten killed because of YOUR stupidity!
And your last statement of yours is even worse than the Dr. Watson goes camping joke."
If it is mental illness then you leave the person at risk of harming themselves though ?
@@dm7626 and if it isn't mental illness, lots of people might get harmed!
Little Kitty yes so instead of just running with one possibility both should have been investigated at the same time imo
I had Alice in the Wonderland Syndrome(AiWS) when I was younger, look it up
Me too! I still have it tho. I'm 17 now and it sucks
My aunt was diagnosed with Creutzfeldt-Jakob disease, which was listed in the video. Essentially, it's a neurological degenerative disease, and one typically dies in about a year of it rearing its head. She went from a powerful, elegant woman to one with dementia that couldn't speak, and took to holding a baby doll to comfort herself before slipping into a coma and dying in a matter of months.
Me and a group of friends did a project back in middle school on naegleria fowleri. I remember being so paranoid that any water I drank or swam in would infect me and I'd die. I was thinking about this just a few days ago too and it's always popped up into my head every now and then. When I got to the part where the lady had mentioned they had gone to a waterpark I thought "ha wouldn't it be crazy if it was that one thing I did a project on"
Why is the thumbnail of someone having cupping therapy???
"platelet count: 2"
google says that anything below 10k is really bad, and 450k is about average
idk if i trust this, but if thats correct, how the hell was that guy alive
I mean..
As long as you dont bleed out you're _probably_ okay
@@julien4305
Paper cut: "I'm about to end this mans whole life"
@@julien4305 no when you are under a count of around 30 you can spontaneously bleed that's what's scary about TTP and ITP I am currently fighting ITP and had a count of zero it really is scary also normal is between 150-400
Not a doctor but a vet at my school told my class this story. She drove out to a farm to examine a horse who presented with constant nosebleeds. After the exam, she was pretty certain it was something called guttural pouch mycosis, a rare disease where fungus grows in an area of the horse’s head damages important structures there, including nerves and blood vessels. Left untreated, the horse will eventually bleed to death. Unfortunately the owners didn’t want to do diagnostic testing. The vet never heard anything about it but apparently that horse wasn’t there the next time she visited the property.
feeling pretty lucky that i never had any extravagant medical stories
The thumbnail is not a disease it is called cupping therapy
Can you translate the video to english next time please?
...it is in English
Frances Atty If you look up, you may see the joke.
My uncle and all of his siblings had Marfan syndrome, unfortunately people can’t just be treated then live a normal life as the video said. Him and all his siblings died before 60, most before 50.
That old lady in the first story saved a bunch of people. ~ I remember hearing about that girl with the bacteria in her brain. It wasn't a popular water park either. I've been to water parks before and the water is always pretty much moving in them, from the slides and wave pool, and it says this bacteria survives in stagnant water. I think the water park where it happened got shut down as well. It's amazing she was able to survive it. Amazing doctor on that case.