Adults and Fragile X syndrome - Health issues | webinar, Dr Jonathan Cohen, July 2022
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- เผยแพร่เมื่อ 27 ก.พ. 2023
- Dr Jonathan Cohen, Medical Director of Fragile X Alliance Clinic, joined us to discuss health considerations for adults who have Fragile X syndrome. The webinar was intended for parents, other family members or support teams who have an adult living with Fragile X syndrome in their care.
The discussion covered:
* Developmental, emotional and behavioural characteristics associated with Fragile X syndrome
* Medical conditions commonly present
* Care Plan Summary for regular health checks - its importance for continuity of care
* Conditions treated in Fragile X syndrome (eg: anxiety, ADHD, aggression & self-injury, mood disorders, OCD, epilepsy, enuresis, sleep disorders) and outline of some medications which may be indicated
Webinar IT platform/ video production by AlbaPrime www.albaprime.com/
Thanks to all the specialists and parents that work hard to present this great information for parents with adults with FXS. Never too late to learn I like that thought, for me and for the bes care for my dearest son. My son is 24 years old with no speech , severe learning disabities and severe autism,