Our Little Ironman - An LGS Story

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  • เผยแพร่เมื่อ 9 พ.ย. 2024
  • Life is not a sprint, it’s a marathon. Little Charles’ family views LGS the same way. Nearly ten years after the family received an LGS diagnosis, Little Charles’ parents have done everything possible to find a cure. This year, his dad is participating in an Ironman competition to raise funds to #SolvetheMysteryLGS.
    Learn more about his story at www.lgsfoundat...
    #LennoxGastautSyndrome #RareDisease #Epilepsy

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