I don't have a feeding tube, but it is nice to learn how some people take care of their tube. Please take care of yourself. We will be here when you get better. Your health is definitely priority. Looking forward to seeing your new house.
I can just tell by seeing you in this video and just hearing your voice, compared to your other videos, you are absolutely worn out... I know it's hard for someone with such a large following but I promise you don't have to worry about uploading or editing as many videos. You can take all the time you need to take care of yourself and not have to worry about us, trust me, we understand.
I accidentally found you just by chance. Amy, I couldn't be more happy to have that happen. I only want to tell you that you are absolutely on of THE most incredible people I've ever seen in my life. Your attitude with this and willingness to show your life and share these things with us.. You are beyond an inspiration for anyone who sees you. Thank you. Stay safe and please do feel better soon.
I've seen many of your videos now, not knowing anything about this before. One of the coolest things you can do is share your experience. Even if I can't relate, I appreciate you and know others do as well. You're an absolute gem.
Hello from Baraboo Wi. USA. Happy to see you are still hanging in there. You're an extremely brave young lady. Thank you so much for sharing your life challenges with the world. I look forward to your next video.
It’s okay Amy . I understand, I love your outlook on life and you have helped me get through some really hard times with my own issues. You’ve inspired me to make my own channel , and wait for a good man like you have . Just focus on you , I make it through my worst times by watching your channel ❤️
Hi, I use to have a tube I had one from when I was born till I was 16 because I couldn't eat but I no longer have one now I'm 25. I just found your channel keep it up xxx
I’ve been trying to sleep for the past hour now i only checked my phone as it seemed i was awake for awhile, and see this notification, I love u and your videos. I don’t have a feeding tube but, i have a stomach condition that isn’t diagnosed yet..
@@Rose-bi4je Amitriptyline will help you sleep, has no tolerance issues either, been taking it for almost 20 years, just watch the toxicity with other meds, ask your doctor if it would be ok for you.
Well honey, welcome back! I’m sure I’m not the only one to say that we missed you! I hope your well and that things get better! Your definitively an inspiration!
You know i love watching your videos and like they are amazing cause your confident..and you know i haven’t seen you in a while which mad me worry did she die but i look more into it and see your fine,stay strong no matter what gets in the way.
Just wanna say that while on the one hand, I'm grateful for every single video of yours, no matter how short. You're just such a lovely person, I pretty much enjoy seeing you do anything :) On the other hand, please rest assured that no one worth thinking about is gonna give you a hard time about not uploading for a while for whatever reason! Lots of love to you and your wonderful man
Good to see you again. You're correct that short is better than nothing. I've had issues with low iron and I know how much it's no joke of a tiredness like no other. Also love the blue nails.💙
I just want to thank you for your videos and your channels. I have a lot of health issues, Crohn’s disease, Gastroparesis, lupus (SLE), Epilepsy, Interstitial Cystitis and RA just to name a few. I’m also having issues with my esophagus. I am going to be having quite a few surgeries coming up. I may be getting a tube in the near future as well. Also a colostomy bag. Your videos and such have really helped me get over the fear of it all. I just really wanted to say thank you. If you ever need to talk to someone else who understands feel free ❤️
We do call them QTips here in America, but their common name is Cotton tipped swabs. My wife had granular tissue around her G/J tube too. Yours truly cleaned it too. Her tube had about 10 inches (25 cm) beyond her skin. It had to be flushed at least twice daily and every other day site cleaning.
Yes, most Americans call them Q-tips, even though it's really a brand name, not an item description. :) Best of luck with your new home, very exciting!
First is you and your health second is your family and last is all the other junk and that includes this. I do love to hear healthy updates as I think of you often and pray for you often. If I don’t see uploads I know you are taking care of you and that makes me happy♥️ Love from Minnesota USA ❄️❄️❄️❄️
I know many times I have had low iron and had to get infusions with some it would leave a bad taste in my mouth. Also I have a ostomy and use a barrier spray to protect the skin for awhile. God bless and hope you get back to full strength well as much as you can.
I had kidney failure last year and spent only 2 days in the hospital and was ready to go crazy. It was my own fault because too many years of bad habits. I admire your perseverance what you deal with daily. I'd like to ask though with the meds you take does that not effect your kidneys and or liver?
Hello, I'm from Germany and I love your channel, you have the best friend you can get. You are so strong and can motivate others with it. Stay as you are!
Good on you, Amy! Hoping that you and so many battling chronic diseases will be able to get the medical care and medical products essential to you. Here in New York State, not near NYC, we have COVID in our area, and so many shelves have been cleared bare repeatedly by selfish panic buyers. There really isn’t a lack of production of many goods, yet it’s like striking gold to find one package of toilet paper! The absence of medicines and medical supplies is a frightening part of this tragedy across the world. Thanks for speaking up! Good people across the world are speaking up. Hoping the rational voices are heard. Thinking of you a lot, hoping you’ll stay safe and stable. Happy your house is nearly done! Watch shows that give you a laugh! You two are terrific! ✨💖💙✨
I have had to have iron infusions done. The tired feeling before was horrible and the swelling I experienced after was very alarming at first. I just had a normal IV inserted and then removed post infusion. I couldn't stand the burning sensation and it caused me to bruise so badly 😥
I simply wish there was a cure, would be wonderful if you're life was easier, as everyone says take care of you first. You're an amazing person especially how you are in making the best of your situation.. It is wonderful to see someone like yourself being an inspiration to others :)
I’m so sorry you have so much going on. I would love for you to do a video on how you’re handling this pandemic and some tips. I’m immuno compromised and it’s been extremely difficult to find resources right now. Stay safe 💖
Hi Amy you should ask your doctor too put you on a 2 times daily liquid iron medicin that goes in your feeding tube like your other medcines. I'm on liquid iron and it helps a lot. Sense you have a hard time handleing the iron infusion
Sorry to hear about your health decline. I really hope that it will get sorted and not add on to the stress with housebuilding and all of that. Take care and big hugs to you both.
Its nice to see you again. My health has been horrible for awhile too. I hope that you are on the mend now. I hate granulation tissue! I never used to get it when I had a normal white feeding tube. But since Im allergic to those, I just have a red catheter & now I deal with gt constantly. I have been going in every week to have it burned off. I don't know how to stop it. Im thinking its because my tube is only held in by tape, so its moving a lot. Im allergic to the stitches as well. Im so tired of the pain from having it burned off. I keep it clean & as dry as possible. Its just so frustrating! Take care!
Granulation tissue is actually your immune system trying to protect you. It detects something foreign, tries to fight it off, but when you have something permanent like a tube there, it decides to encapsulate it instead so it doesn't spread. It's a defense used against some microbes (tuberculosis is one I think, but I'm not sure) that can't be killed off too, not just big objects. I learned about it in immunology class and it kinda changed my understanding of it.
New viewer with a noobie question: If you go to such great lengths to keep ur tube hole clean, how do you shower? Is it: do normal clean and cover it like you would a broken arm or leg.. Or: just shower and do normal clean after? Also, sorry if this has been addressed.. but I'm interested in learning about basic stuff we take for granted vs. someone with alot of physical ailments..🖤 much love from cali
Yes, most Americans do call it a Q-tip. Q-tip is actually a brand name for the cotton swab, but everybody calls them Q-tips. Kind of like how people call facial tissue "Kleenex" which is a brand name. But thank you for the update, I feel bad that I didn't notice it sooner. The last two days have been horrible for me, I couldn't get out of bed at all yesterday because of my multiple sclerosis. And the fact that I've got a cold or something that gave me a low-grade fever. 99.1°f (37.27°c)
Your vid was great. I have feeding tube, 2 years (enfit) Not like yours, a long one. I"m 76, thats me as a baby at 1 year. Very informative vid. THANKS
Hi amy! My name is Rakel i'm from iceland. I just found your channel a few days ago and i love it. I am disabled, my disability is cerebral palsy or cp for short. A few days ago i saw one of your videos where you talked about a heating pad you use. now i can't find it again. I have bad back pain. I am hopeing that your red heating pad might help me too. The problem is i do not know where i can buy it. Hope you can help me. Rakel
Hiya, sorry for commenting again on the same video and also on a video with a non-related topic but I don't know if you read comments to your older videos... Aaanyway, I was wondering if when you speak of seizures that you have you always mean epileptic seizures (and if yes, it sounds like you would be describing grand-mal seizures with loss of consciousness) or always mean an attack of your hypokalemic paralysis or if you use the word to describe both. I'm from a medical background myself, but not exactly an EDS specialist; you're motivating me to educate myself more on that topic. From the little I've found on this, I have only read that EDS is associated with some anatomical "abnormalities" in the brain (cortical heterotopia) that can cause focal epileptic seizures. I know that focal seizures can become generalized and thus also lead to loss of consciousness, just your descriptions of your seizures didn't sound that way. Sorry for the very long message and sorry if you explained this somewhere, I haven't watched every single one of your videos yet, but I'm working on it :) Thanks so much for all the wonderful education and entertainment and love you spread!
Eds is either caused by a copper deficiency or a vitamin c deficiency or both deficiencies at the same time. Both nutrients are essential for collagen production and healthy metabolism. Both the symptoms of either deficiency go hand in hand with Eds symptoms. Pots, gastroparesis ect.... Also copper deficiency will cause your iron levels to drop significantly as your body needs copper to use iron. If u ever get the chance ask your doctor to test your copper levels. Eds is just a blanket term for collagen disorders that doctors are unable to diagnose the cause for.
That’s not true at all? Not even close? EDS is a genetic disorder, caused by a genetic mutation. Not because of low vitamin levels. EDS is not a blanket term, there are many different types, all genetic
I wish I could have a button tube. I've got this 20 french ballon rig set up , it's a nightmare with granulation and because itsca dirty site with the nature of where the tube is. For ever getting infections, why are you only on a single lumen I've got a double lumen hickman one for tpn and other for iv medication and morphine for pain
Hopefully you are able to stay as healthy as possible with all this crazy pandemic insanity. It's just now becoming an issue here in Wisconsin. People are hoarding all the medical supplies, making it difficult for the ones who truly need them! Positive thoughts and good vibes for you and yours!
I let the warm soapy water run down mine in the shower. Then I use a wet q tip to wipe around it, and dry it with the dry end of the q tip and apply anti-fungal cream. Thankfully I don’t have any granulation tissue, and my dr always comments that my tube is the cleanest he’s ever seen
It doesn't matter if you have not been posting on this channel Amy it matters about your health stay safe.
Stay safe Amy and everyone else.
I don't have a feeding tube, but it is nice to learn how some people take care of their tube. Please take care of yourself. We will be here when you get better. Your health is definitely priority. Looking forward to seeing your new house.
As a new nurse, I so appreciate your videos. Your strength, positivity and knowledge are amazing. Thank you for sharing❤️
Glad to see you. Hope your health comes back around. Take care of yourself first. TH-cam last.
I can just tell by seeing you in this video and just hearing your voice, compared to your other videos, you are absolutely worn out... I know it's hard for someone with such a large following but I promise you don't have to worry about uploading or editing as many videos. You can take all the time you need to take care of yourself and not have to worry about us, trust me, we understand.
T4eTurtleC1ub thank you my love! I am worn out and exhausted to be honest but I want to try my best to upload and edit occasionally! ❤️❤️❤️
@@amyleefisher52 You should look into German New Medicine
Amy Lee Fisher What is EDS?
@@tylerz5499 She most likely has a video on the subject or there is another video on youtube...
Oh yeah low iron tiredness is no joke! thats always my indication that it's low again. Glad to see you are doing okay! You inspire me every single day
Caitlin Cook
Iron tired is the WORST
need dat heme
I accidentally found you just by chance. Amy, I couldn't be more happy to have that happen. I only want to tell you that you are absolutely on of THE most incredible people I've ever seen in my life. Your attitude with this and willingness to show your life and share these things with us.. You are beyond an inspiration for anyone who sees you. Thank you. Stay safe and please do feel better soon.
You will be an inspiration to others. Your bravery makes me feel humble.
Nice to see you posting again.
I've seen many of your videos now, not knowing anything about this before. One of the coolest things you can do is share your experience. Even if I can't relate, I appreciate you and know others do as well. You're an absolute gem.
I agree 100%!
Hello from Baraboo Wi. USA. Happy to see you are still hanging in there. You're an extremely brave young lady. Thank you so much for sharing your life challenges with the world. I look forward to your next video.
:)
..dont skip ad no matter how long it takes..its one way of helping her such a beautiful soul indeed..😍😍😍
Sad watching this after she passed. :(
It’s okay Amy . I understand, I love your outlook on life and you have helped me get through some really hard times with my own issues. You’ve inspired me to make my own channel , and wait for a good man like you have . Just focus on you , I make it through my worst times by watching your channel ❤️
Hi,
I use to have a tube I had one from when I was born till I was 16 because I couldn't eat but I no longer have one now I'm 25.
I just found your channel keep it up xxx
I’ve been trying to sleep for the past hour now i only checked my phone as it seemed i was awake for awhile, and see this notification, I love u and your videos. I don’t have a feeding tube but, i have a stomach condition that isn’t diagnosed yet..
So now i have hit the two hour mark yay 🙄
wait three lol
i didn’t end up sleeping the whole night
@@Rose-bi4je Amitriptyline will help you sleep, has no tolerance issues either, been taking it for almost 20 years, just watch the toxicity with other meds, ask your doctor if it would be ok for you.
Thanks 🙏🏼 i will mention it at my next doctors appointment which is tomorrow actually
Well honey, welcome back! I’m sure I’m not the only one to say that we missed you! I hope your well and that things get better! Your definitively an inspiration!
Take your time. We'll be here for you. Love you 💓
You know i love watching your videos and like they are amazing cause your confident..and you know i haven’t seen you in a while which mad me worry did she die but i look more into it and see your fine,stay strong no matter what gets in the way.
Rest in Peace
Rest in peace Amy, can't believe you're gone x
Just wanna say that while on the one hand, I'm grateful for every single video of yours, no matter how short. You're just such a lovely person, I pretty much enjoy seeing you do anything :) On the other hand, please rest assured that no one worth thinking about is gonna give you a hard time about not uploading for a while for whatever reason! Lots of love to you and your wonderful man
mouse in a microwave 👍🏻
Good to see you again. You're correct that short is better than nothing. I've had issues with low iron and I know how much it's no joke of a tiredness like no other. Also love the blue nails.💙
Hello from Melbourne, it’s exciting moving into a new place. We did a lot of IKEA trips. Hope all is well and your okay stay strong Amy. 💕
I just want to thank you for your videos and your channels. I have a lot of health issues, Crohn’s disease, Gastroparesis, lupus (SLE), Epilepsy, Interstitial Cystitis and RA just to name a few. I’m also having issues with my esophagus. I am going to be having quite a few surgeries coming up. I may be getting a tube in the near future as well. Also a colostomy bag. Your videos and such have really helped me get over the fear of it all. I just really wanted to say thank you. If you ever need to talk to someone else who understands feel free ❤️
Ashley Jentzsch 👍🏻👍🏻
💓💓💓💓
So happy you are OK. you are so gorgeous. No need to be sorry for not posting. You are a very busy gal caring for yourself.
We do call them QTips here in America, but their common name is Cotton tipped swabs. My wife had granular tissue around her G/J tube too. Yours truly cleaned it too. Her tube had about 10 inches (25 cm) beyond her skin. It had to be flushed at least twice daily and every other day site cleaning.
Yes, most Americans call them Q-tips, even though it's really a brand name, not an item description. :) Best of luck with your new home, very exciting!
When I'm out, say at a restaurant, and have to catheterize (that is, urinary catheter), I use two of the alcohol pads to clean my hands.
So glad you’re doing alright Amy. You are so strong. It always makes me happy when I see you upload but your health comes first of course!! ❤️
Happy Birthday Amy Lee! Sorry for the delay!
First is you and your health second is your family and last is all the other junk and that includes this. I do love to hear healthy updates as I think of you often and pray for you often. If I don’t see uploads I know you are taking care of you and that makes me happy♥️ Love from Minnesota USA ❄️❄️❄️❄️
I know many times I have had low iron and had to get infusions with some it would leave a bad taste in my mouth. Also I have a ostomy and use a barrier spray to protect the skin for awhile. God bless and hope you get back to full strength well as much as you can.
So happy to see you in each and every vid. Lots of Love from Poland!
As a medical type, I find this nifty. I do trauma, so I don't really do feeding tubr stuff. Hope you feel better.
You don’t need to explain or be sorry for anything. We get it. ❤️ hope you are feeling better 💕💕💕
No need to apologize for not posting for a while. Your health comes first :)
Glad to see you uploading again though :D
I had kidney failure last year and spent only 2 days in the hospital and was ready to go crazy. It was my own fault because too many years of bad habits. I admire your perseverance what you deal with daily. I'd like to ask though with the meds you take does that not effect your kidneys and or liver?
yeah we do all call them Q-tips. cotton swab/cotton bud could refer to a cotton ball by American estimation so Q-tip is preferred.
It so nice to see you back sending my love from the uk
Your so brave, Your videos inspire me so much..
Soo surprised it was a video of yours that is exiting 🥰
I am so glad you are ok! We were all concerned as we have not heard from you in months. Gods speed!!
Hello, I'm from Germany and I love your channel, you have the best friend you can get. You are so strong and can motivate others with it. Stay as you are!
U help me so much with dealing with having a feeding tube for so many years 💗💗💗! I the peg same as u 💪🏻🔥❤️! Thanks so much Amy😊✨ U are a star ⭐️ !
Méabh _ 1357 that’s awesome !
Please don't apologise! You have to put you first, take care x
Don't worry about uploaing so much. Take time to relax too. I'm sorry life is like this for u. Sending u lots of love and hugs and prayers.
Exciting news about the house, so happy for you and Tom!!
Good on you, Amy! Hoping that you and so many battling chronic diseases will be able to get the medical care and medical products essential to you. Here in New York State, not near NYC, we have COVID in our area, and so many shelves have been cleared bare repeatedly by selfish panic buyers. There really isn’t a lack of production of many goods, yet it’s like striking gold to find one package of toilet paper! The absence of medicines and medical supplies is a frightening part of this tragedy across the world. Thanks for speaking up! Good people across the world are speaking up. Hoping the rational voices are heard. Thinking of you a lot, hoping you’ll stay safe and stable. Happy your house is nearly done! Watch shows that give you a laugh! You two are terrific! ✨💖💙✨
Good to say you back again! Take it easy and don’t be to hard on yourself. X
Just Gil x 👍🏻
I have had to have iron infusions done. The tired feeling before was horrible and the swelling I experienced after was very alarming at first. I just had a normal IV inserted and then removed post infusion. I couldn't stand the burning sensation and it caused me to bruise so badly 😥
we will miss you and always love you. fly high angel
I simply wish there was a cure, would be wonderful if you're life was easier, as everyone says take care of you first. You're an amazing person especially how you are in making the best of your situation.. It is wonderful to see someone like yourself being an inspiration to others :)
Nice to see you back I was hoping you were ok!
Glad your doing okay. Good to see you.
Glad to see you! Stay safe! 💛
I used to have a feeding tube as a baby, it's interesting to know some of the things that most likely happened when they cleaned it
I’m so sorry you have so much going on. I would love for you to do a video on how you’re handling this pandemic and some tips. I’m immuno compromised and it’s been extremely difficult to find resources right now. Stay safe 💖
You ate honestly amazing!!💞
❤️❤️❤️ can’t wait to see you’re house 🏡
Good to see you back. Sorry that you have been having a lot of problems. Post when you can xx
Nice to see you. I'm so sorry you are having a set back in your health. Keep taking care of yourself first. That's most important.
Chris Crow 👍🏻
Hi Amy you should ask your doctor too put you on a 2 times daily liquid iron medicin that goes in your feeding tube like your other medcines. I'm on liquid iron and it helps a lot. Sense you have a hard time handleing the iron infusion
Sorry to hear about your health decline. I really hope that it will get sorted and not add on to the stress with housebuilding and all of that. Take care and big hugs to you both.
I missed you!!! Love you so much
Its nice to see you again. My health has been horrible for awhile too. I hope that you are on the mend now.
I hate granulation tissue! I never used to get it when I had a normal white feeding tube. But since Im allergic to those, I just have a red catheter & now I deal with gt constantly. I have been going in every week to have it burned off. I don't know how to stop it. Im thinking its because my tube is only held in by tape, so its moving a lot. Im allergic to the stitches as well. Im so tired of the pain from having it burned off. I keep it clean & as dry as possible. Its just so frustrating!
Take care!
Granulation tissue is actually your immune system trying to protect you. It detects something foreign, tries to fight it off, but when you have something permanent like a tube there, it decides to encapsulate it instead so it doesn't spread. It's a defense used against some microbes (tuberculosis is one I think, but I'm not sure) that can't be killed off too, not just big objects. I learned about it in immunology class and it kinda changed my understanding of it.
New viewer with a noobie question:
If you go to such great lengths to keep ur tube hole clean, how do you shower?
Is it: do normal clean and cover it like you would a broken arm or leg..
Or: just shower and do normal clean after?
Also, sorry if this has been addressed.. but I'm interested in learning about basic stuff we take for granted vs. someone with alot of physical ailments..🖤 much love from cali
I am really inspired by you ...... really love you for being so powerful from inside ..
💓💓💓💓💜💜, I hope u willl get better soon Amy big hugs
Glad your back missed you sorry you had so much going on hope you better now my prayers go out to you glad your house is almost done love you Amy ❤️
Ruthann Bowman 👍🏻
Hi from Japan. I'm so glad to watch your video again!!! Thank you for shooting wonderful video. I didn't know that.
r k 👍🏻
You are doing excellent Amy! Keep enjoying life to the fullest! :D
You look fantastic! I think you should do more ads! We’re here to support you 💗👍💗
Yes, most Americans do call it a Q-tip. Q-tip is actually a brand name for the cotton swab, but everybody calls them Q-tips. Kind of like how people call facial tissue "Kleenex" which is a brand name.
But thank you for the update, I feel bad that I didn't notice it sooner. The last two days have been horrible for me, I couldn't get out of bed at all yesterday because of my multiple sclerosis. And the fact that I've got a cold or something that gave me a low-grade fever. 99.1°f (37.27°c)
I have chronic iron deficiency anemia and always have low iron and have had many infusions. No fun. Tiredness from anemia is no joke
We love you Amy and your health is more important, your videos have been so educational for me. ❤️💕💓💖😍
I have a feeding tube. But I think it’s kinda pointless to put the bio oil on after you put the barrier spray on.
Loving the intro
Stay strong every day 🙏
Your vid was great. I have feeding tube, 2 years (enfit) Not like yours, a long one. I"m 76, thats me as a baby at 1 year. Very informative vid. THANKS
Thank u Amy ! Blessings from Ct. USA! ✝🙏🏻💜
Hi amy! My name is Rakel i'm from iceland. I just found your channel a few days ago and i love it. I am disabled, my disability is cerebral palsy or cp for short. A few days ago i saw one of your videos where you talked about a heating pad you use. now i can't find it again. I have bad back pain. I am hopeing that your red heating pad might help me too. The problem is i do not know where i can buy it.
Hope you can help me.
Rakel
hi i dont know if this will help you now but the brand of heatbag she was using is called HotPod
I just got my gtube 3 weeks ago, it’s still a learning curve. I love your tubie pad, can you post where you got it from? 💛
Ann Mathis I hope your recovering is going well!
My Asterisk Life, Thank you very much! It was a scary decision to make but I’m so glad I did!
Yes we all call them q-tips lol. Ear buds to me are what u wear in your ears when u listen to music on your phone 😂
I love you! You teach me so much💞❤
Hiya, sorry for commenting again on the same video and also on a video with a non-related topic but I don't know if you read comments to your older videos... Aaanyway, I was wondering if when you speak of seizures that you have you always mean epileptic seizures (and if yes, it sounds like you would be describing grand-mal seizures with loss of consciousness) or always mean an attack of your hypokalemic paralysis or if you use the word to describe both. I'm from a medical background myself, but not exactly an EDS specialist; you're motivating me to educate myself more on that topic. From the little I've found on this, I have only read that EDS is associated with some anatomical "abnormalities" in the brain (cortical heterotopia) that can cause focal epileptic seizures. I know that focal seizures can become generalized and thus also lead to loss of consciousness, just your descriptions of your seizures didn't sound that way. Sorry for the very long message and sorry if you explained this somewhere, I haven't watched every single one of your videos yet, but I'm working on it :)
Thanks so much for all the wonderful education and entertainment and love you spread!
Eds is either caused by a copper deficiency or a vitamin c deficiency or both deficiencies at the same time. Both nutrients are essential for collagen production and healthy metabolism. Both the symptoms of either deficiency go hand in hand with Eds symptoms. Pots, gastroparesis ect....
Also copper deficiency will cause your iron levels to drop significantly as your body needs copper to use iron.
If u ever get the chance ask your doctor to test your copper levels.
Eds is just a blanket term for collagen disorders that doctors are unable to diagnose the cause for.
Not true.
That’s not true at all? Not even close? EDS is a genetic disorder, caused by a genetic mutation. Not because of low vitamin levels. EDS is not a blanket term, there are many different types, all genetic
Yes, Americans always call them Q-tips. Earbuds are wireless earphones. 😊
Love the intro 😘
Brandi Paez I know right!
is it pain? you're very strong for this.
Nice to see you on this channel stay safe ❤️❤️
I wish I could have a button tube. I've got this 20 french ballon rig set up , it's a nightmare with granulation and because itsca dirty site with the nature of where the tube is. For ever getting infections, why are you only on a single lumen I've got a double lumen hickman one for tpn and other for iv medication and morphine for pain
Hopefully you are able to stay as healthy as possible with all this crazy pandemic insanity. It's just now becoming an issue here in Wisconsin. People are hoarding all the medical supplies, making it difficult for the ones who truly need them! Positive thoughts and good vibes for you and yours!
What causes the drainage/crusty skin around your tubes?
I have a feeding tube too :)
I let the warm soapy water run down mine in the shower. Then I use a wet q tip to wipe around it, and dry it with the dry end of the q tip and apply anti-fungal cream. Thankfully I don’t have any granulation tissue, and my dr always comments that my tube is the cleanest he’s ever seen
I loved this video! And it's ok if you don't post it, we're still be here when you come back! Lots of love 💖
We understand you needing time, was good to see you though 😁. Hugs!
Finally a new video!!!
You just take care you need quiet time 🐱💐