Spondyloarthritis Treatment & Research Presented by James Rosenbaum, MD
ฝัง
- เผยแพร่เมื่อ 30 พ.ค. 2024
- On November 9, 2019, the Spondylitis Association of America hosted a free Spondylitis Educational Seminar in Atlanta, GA. This is Rheumatologist James Rosenbaum, MD presenting Spondyloarthritis Treatment & Research Update: The Role of the Microbiome.
![[TH] VCT Masters Shanghai Playoffs DAY 1 // 100T vs FUT | FNC vs GEN](http://i.ytimg.com/vi/erQ7pGChzxA/mqdefault.jpg)
Not a troller but I actually had to send this to my wife to save it in case I lost it because I will have to watch it again this guy is extremely knowledgeable about the subject and most people know how vicious this can be to live with my daughter told me there was over 2.3 million people in the country that have this and no one knows about it
It can be very difficult to get a diagnosis, especially for women and it can take as long as 10 years!
@@srs3572 an Romania an câteva zile ai diagnosticul
You don't even have a word to say!
Awesome video and truthful ! Finally ! I like this gentleman as he doesn’t have a problem admitting to what is not known. Thank you for this information 👍🏻
There's a lot more that can be done, treat the cause and not only the effects: www.amazon.co.uk/dp/B09528XPSP
I asked my rheumatologist if my diet could be contributing to my pain he said no. Turns out I have many trigger foods. It's important to do the research yourself ❤️
really enjoyed this presentation! Exactly what science and scientist should be: curious, impartial, factual and always doubting the hypothesis and ready to improve the theory and confirm with practice. Thank you!!!
I've been officially diagnosed with AS in 2018 after more than a decade of a variety of doctors being either clueless or dismissive of the symptoms and complaints (which were, in hindsight, so clear and typical - recurring uveitis and a diligent ophthalmologist finally got me diagnosed)
Through the diet and lifestyle changes I am able to manage it, without relying on drugs but it does feel like a constant uphill battle.
Because of the late diagnosis and time it took me to find the right regiment I've lost a lot of flexibility due to fusions, but I am hopeful that I can continue managing the disease while the science catches up and offers not only side effect-free management but a cure).
What kind of changes you did in your diet
@@vishalg90 "anti-inflammatory" diet in a sense. Cut out processed foods, limit/exclude animal products/dairy, no added sugars, not too many fruits, no alcohol, no grains/gluten. On most days I am not super strict anymore, but I when I am, I feel great.
I would love to hear a follow up from this man since it’s been three years. A lot of good thought provoking info.
Dr. Rosenbaum makes an excellent point on the inconsistencies in evaluating imaging. It is important to seek a second opinion and obtain copies of any imaging that you have!
You can reverse your Ankylosing Spondylitis by changing your diet which involve stop eating gluten foods like wheat, rye, barley, stop eating grains like rice, corn, oath, stop eating night shades like pepper, white, red or yellow potatoe (you can eat sweet potatoe), stop eating vegetable oils, peanut, stop eating fried foods. stop eating processed foods, stop eating white sugar, stop eating pasta, bread, dairy (milk), eggs, chicken. You can make smoothies like blending green vegetables like kale, spinach, cucumber, you can also cook vegetables, eat a lot of vegetables, eat coconut, avocado, eat home prepared/made whole foods like sweet potatoes, yams and beans. You can also do exercise like walking, cycling
Well said
I agree
Reverse? Or do you mean 'manage'?
It is an autoimmune disorder!!! It has nothing to do with your diet 🤦♀️
Although it’s been years since this was posted, I really appreciate that it exists. Thank you so much
Best talk on AS that I have ever heard
Agreed
Dr. Rosenbaum is a top notch expert on AS.
This explains what is happening to me
I have all the points, symptoms including inflammatory bowel disease. But the the MRI Was negative.
I am not getting the right medical help here in Australia
I am currently using diet to heal the gut
this is what i'm trying to do. I just today may have gotten this diagnosis. they want me to do an colonoscopy and endoscopy for damage. but my symptoms suddenly started last august. at least these serious symptoms. I had mild muscle and joint stiffness on and off for years and with some massage and stretching I would be fine. now I suddenly have widespread inflammation from my head to my toes including organs. I think covid activated this disease in me because had changed my diet and was very active sports wise without major issues up until last year at 47 years old.
I find AIP helps, but I always mess it up 5-6 weeks into it because it is very restrictive and I do tend to socialize around food and drink. I might give it another go soon, I have to get organized and do menus, shopping list, etc. beforehand so I don't cheat. Look it up, there are lots of videos and blogs that explain it and give sample menus.
Different doctor will be helpful. My diagnosis was late due to being female and a bad rheum that didn’t know enough or care enough.
someone turned me on to a doctor that deals with UCI or CI Upper cervical instability or cervical instability. Look up Dr Hauser on youtube or go to their site caringmedical.com
my colonoscopy and endoscopy came back clean and negative for ibs but i still keep losing weight and having more back pain. CT and ultrasound scans of my organs also came back clean in april. just did another CT a week ago. had x-rays of my neck and spine which shows osteophytes now on my cervical and thoracic spine. only had a cpl on my neck and lower thoracic spine up until last year but i was still flexible and active but that all changed in a few months
Fascinating! Very good explanation of AS and HLA-B27. Thank you!
The best presentation about AS that I ever saw. Thank you very much
Enbrel gave me 15 years of normal life. Hope its will continue
How many doses of enbrel you take ??
I have been taking etanercept injection for the last 3 months and I do not know how long it will take 😢
It worked for me from the first dose! 50mg , one syringe every week, but I often skip dose, I felt very well. This was for 15 years! But this year it looks like I’ve stopped responding ☹️
@@alexlitinskiy9821 how expensive is this? do u have insurance? and what were your side effects?
Thank you Dr. Rosenbaum for all you’ve done to further the understanding of AS and the field rheumatology. 🙏
Thank you sir 👍🏻
Excellent video
Thank you this is so helpful. So much new information.
Thanks for yuh our video.
This is a tremendous information video tremendously important thank u
Thanks so much for your time & knowledge, amazing work. Life changing
Much appreciated Dr. for your knowledge and helping me understand more about this disease I have.
Thank you so much dr. Rosenbaum! I so much appreciate your work towards understanding the condition I also live with. Thank you, thank you!!
When you people will let it cure daily people are suffering in immense pain without no treatment please find cure as early as posiible so people can lead normal lives
Right on! This disease is more prevalent than MS and most doctors are so clueless about it,especially in America!
For me I'm trying the following all at once. Sleep (Increase HGH the opposite of Cortisol which you want to reduce), Aerobic Excercise (Hormetic Stress) , No dairy (I'm just trying to remove any inflamatory inputs), Tumeric (Anti Inflammatory), Ice Baths (Decrease Sympathetic Nervous System effects), Guided Breathing (Wim Hoff)(Decrease Sympathetic Nervous System effects), No Refined Carbs/Sugar (Inflammatory) , 40,000 IUI of D3 (Anti inflammatory), B1, Probiotic (Prevent Gut Disbiosis), Stopping Coffee (Decrease Sympathetic Nervous System), Carnivore Diet (for PMGs), Potassium, Magnesium and Fermented foods (Reduce Gut Disbiosis). L-Glutamine for Gut repair. Going to use Visibiome sachets to add to good bacteria the microbiome (looks like gut has a huge role in this).
Please can you told me about antibiotic,which you think,for how long and how much? I think for a long time to start,but I don’t have enough information..Thank you!
@@motana8619 Actually I'm going to pause on that strategy for now. I was wondering whether I had an imbalance between good/bad gut bacteria. From digging deeper I think it is more likely Leaky Gut. So I'm just going to add Probiotics and stop eating foods that are making my guts shred them selves. I'm using Visibiome's 450Billion bacteria per sachet.
So far im feeling great after one week. My deep spine pains have gone. I'll keep going with my strategy and will make some videos covering my approach.
Okay,i understand and I’m happy for you because you have a result’s.I started from about a month to take probiotics,Synergize-your-gut-Good Routine,and from optibac S.Boulardii,because already I buy this probiotics to do treatment for three months..I feel a bit better,but I have results with mental and visual clarity,and I observed improvement after few days..My intention is to start with Visbiome’s/Vivomixx,after I will finish the treatment what I started already..Take care with bit.D,if you take 10.000 ui, is not any risk,but more then that,you have to not eat dairy,to do same specific blood analysis,at every two-three mouth,maybe you know about Protocol Coimbra,and if you know,that means you know what you do very well…About L-Glutamine,four years ago I did treatment,but I didn’t have results,also diet carnivore i kept for about 6 months,I felt bit better in that period,but not enough for what I aspect,then I stopped because I was travelling and was difficult to cook/or to buy..Thank you very much!
Excellent. Specific triggers vary. Eating a huge;y fish based diet high in omega-3 and low in omega-6 can help a lot! Calendula ointment helps a lot. Indian curries on a regular basis help a lot.
@@last-life learning how long my natural sleep cycle is (usually about 90 minutes) and sleeping some multiple of that, and -not- breaking a cycle was hugely helpful. Doing deep meditative things is extremely helpful. Eating ginger when neck pain (stress) happens is hugely helpful for me, calendula too. Topical magnesium chloride hexahydrate spray, aka magnesium oil can be very helpful. Figuring out what foods were triggering was important. Flu virus and flu vaccines can trigger anterior uveitis. So can adenovirus virus infections. So too can bright lights. Especially LED lights. Peony root extract, California poppy extract and yan hu sun extracts have all be extremely helpful for pain. These are powerful herbal pain killers with no apparent side effects. They do not stop the underlying inflammatory process. DMSO has been very helpful when a flare was in progress. Using it requires understanding not to use it at full strength until I knew that it was safe for me was important. And then only applying it to scrupulously clean skin using pure clean cotton swabs was important. DMSO is a powerful solvent. It can and does transport things directly through the skin.
Currently going through AS diagnosis, I've had neck/back pain since I could remember and also sacrolitis for over a decade but never knew what it was until recently and it has gotten worse. I'm hoping for a light at the end of the tunnel.
None of these doctor presentation videos on youtube talk about cannabis (let alone cbd) in treatment options - why?
Because it is an unregulated industry and federally unlawful. How could you possibly generate unbiased research under such circumstances???
Have you found it to be helpful for you?
There hasn't been a single conclusive study proving the statistically significant benefit of canabis for AS, unfortunately. Not yet. Some is of course due to lack of funding. Additionally, although canabis can be helpful with the autoimmune conditions, it would not in fact address the main cause, which this video discusses.
I laughed out loud when he was talking about stress reduction techniques. He mentions going to church and playing bridge.... but not marijuana.
He says earlier that AS will begin before a person turns 40.... how many under 40s are playing bridge?
Leaky gut is a huge issue in AS. NSAIDs make that vastly worse. The leak is bidirectional. Proteins and DNA move into the blood triggering immune reaction and response. At the same time, blood and other factors (vitamins …) leak out leading to anemia and vitamin deficiencies. B6. Is important.
Might it be possible for a flare to be initiated by the consumption of cheese, particularly when a patient had salmonella poisoning in the past?
I had my first pains of AS after I got salmonella ❤️ I was 9
What about LDN low dose naltrexone? Anyone have any experience using is for AS?
I have recently been diagnosed but I am HLA-B27 negative. Started after the vax
Me too! After vax cov
why spondyloartritis occurs in hla b 27 is negative cases
one environmental factor that triggers axSpA is Electromagnetic fields (EMF) which i think should be considered/researched now with G5.
Earth wouldn't have gravity without EMF 😂
Also, HLA-B27 came from Neanderthals. The bacteria had hundreds of thousands of years to adapt to the Neanderthals. Overall it codes for an incredibly capable immune function.
Adopting a plant based diet greatly reduces inflammation in the body. This helps with everything especially AS.
Starting tomorrow 🙏💝
i was already on a plant based diet for almost 10 years before my sudden onset of debilitating pain and inflammation. something triggered it or turned it on
I am vegitarian since birth
Someone said turning off the Gene moght help in the future? Is that true?
This is how Anti-TNF biologics work, and are currently prescribed depending on a patient's needs.
Daily aspirin does seem to help reduce it - if you can stomach it.
Very risky for the gut. I had stomach cancer so none of that stuff for me. Gonna try to heal my leaky gut & stop inflammation & pain another way.. I hope it will work anyway
Indocid supposatarys were good a very good anti inflamatary these kept me working for over ten years in the 70s but also i needed a large dose of aspirin as well at times I am now 72 and just use naproxin and cocodamol painkillers i was put on embril some 10 years ago and had to come off them due to a bad infecton that put me in hospital for over a month the embrol worked great for about 3 years
@@12presspart if u don't mind telling what kind of infection did you have?
@@bondjane007 Cycling, walking, and sweating are very important. And eat high-sulfur foods which wipe out E Coli that leaks out. Chicken, garlic, and cabbage/kale are all high in sulfur.
If somebody is recovered from major symptoms of AS and though doing good then please reply 🙏
Research No Starch Diet. Thousands of people with AS control their symptoms this way (including me). Good luck
I m 33 years old and diagnosed before six month has 2 kids ...totally help less ...then I start to do exercise in sunshine ...plant based diet ...avoid animal protein...nd take lot of green vegetables...in your diet ...cut sugar ..add natural sugar ...you feel great day by day ...I swear...
I wouldn’t even trust anything that’s just come out or is coming out.
I tested negative for HLA B27 gene but i apparently have AS or spondylosis of the spine. also my ANA changes. one test it’s negative another it’s positive 🤷🏽♂️ i had a sudden onset of joint pains in my shoulders arms and hands then as the inflammation hit my neck and back I began having severe burning and stiffness in my thoracic and lumbar spine. then after 3 months of pain i suddenly began losing weight
Sounds very similar to me. I have psoriatic arthritis.
@@trentgay3437 do u get peeling raised patches of irritated skin on your face or chest when u have pain or stressful moments?
@@tjgrafiks I get scalp bumps and patches of bumps on fingers and a patch of rough elbow skin. Oh and a red rash in armpits for the psoriasis. I'm currently on cosentyx 300mg I have sacroiliitis, plantar facilities, tennis elbow and pain in just about every joint at some point. Fatigue and even some foggy brain where I forget what I'm doing lol. I'm only 38
@@trentgay3437 start eating more plant based if you haven’t. it will help with fatigue issues and brain fog but that also could be do to the drugs/meds ur taking as well
@@tjgrafiks I have adjusted my diet, minus my espresso addiction. I'm recently diabetic around a year now and cut all added sugar/ low salt diet. My last visit I found out I have fatty infiltration of the liver, non drinker. I also have fibromyalgia. So take your pick what's causing the fatigue lol. My issues started around 15_16yo playing sports. I weigh the same as high school 😁. How are you doing?
Interesting, my granddaughter’s stepfather has AS & chrones.
He refuses to believe that women have it
Therefore no way could I have it
That's not so. In my family it's the women who get it. I have 2 aunts and 1 cousin who have it, HLA-B27 positive, and I was diagnosed based on MRI, family history, and symptoms, but am negative for the gene.
@@BettinaBlanco digestive issues causes the development of AS. improper digestion and absorption of nutrients causes breakdown of digestive tract which leads to leaky gut and onset of inflammation and breakdown on joints
I AM FEMALE AND I AM HLA-B27 +
SFB is in humans. --> candidatus savagella.
I said before I’m gonna Troller they Canned my last comment because I let everybody know that Google is controlling your editing so you better read it carefully I did that over five times and it did not go through
If you have bowel inflammation or any inflammation change your diet. Preferably plant based.
#JesusChrististheanswerfortheworld #prayingforacure
Oh well looks like my doctor of 25 yearz , should have faced the malpractice board ,
What a collaborative creep , Plenty of evidence of this disease bloods symptoms xrays etc .
Hmmm.... interesting. I think Doc Ebringer is owed an apology?
I am so happy to share this wonderful testimony thank you dr.okpodo for the help you restored to me I will be forever grateful to you now my Husband is back to me and everything is alright now if you have a problem with your ex or in your relationship with your partner contact dr.okpodo today dr.okpodosolutionhome@gmail.com or whatsapp +234815105617 or my website too okpodosolutionhome.blogspot.com/?m=1
Three months carnivore. AS gone in 3 weeks. How about that?
When I did low carb, my inflammation decreased greatly
Please explain your diet,
@@amylynnlee3 I went full carnivore after 3 years of linoleic acid FREE ketogenic diet.
What I avoid is all seeds, processed seed oils, anything sweet exept occational honey to bump insulin when needed.
I avoid all plant stems, leaves and pretty much all plants. Plants with oxalates, lectisns and other storage proteisns are a concern to me.
Seasonal fruit is possible but the fiber in them kills my carnivore/fat adapted microbiom. One apple costs me 3 days and two diarrheas.
I have consumed cacao and coconut fat, but lately I have taken those away of my diet too due to plant cholesterol. I did not realize how easily plant cholesterol takes the place of animal cholesterol as they share the same reseptor. This does not suit me well.
My willingness to affect my lipid values opened the door to absolute recovery not only on the subject but to all of the underlaying mitochondrional dysfunctions.
No high blood pressure, no more ashtma, no allergies, no arthritis, no neuropathy, no mental disorders, no fatique and no longer any trust to the patented medical drug cures for these life-style choise derived abnormalities.
Note my tot. chol is 10+ and I am happy with it. Check LMHR term. This is my phenotype. Dave Feldman. At 55 six pack one leg squats, 30 chin-ups in 30 seconds. Just few things I never was capable of. Getting younger.
It was not easy to start trusting oneself when
the medical establishment says differently.
I am not alone in this. My choise, the carnivore approach is not a small one. Neither is veganism. The similarities are the key. We share the same sun, the same genome, the same grounding, the same electricity the same reductionism. We do not mix fats and carbohydrates on the plate EVER: Check the Randle Cylcle aka carbohydrate fatty acid cycle.
To succeed, I had to educate myself about, insulin (resistance) functionality of cholesterol, salt, PUFAs, glucose, fructose, processed foods. Even the history of food substances and lobbying. I am so sorry that we the humans are subject to utter greed and political wars.
I eat a 17% fat content ground beef diet. At least 600g per day. Half of it raw.
If I cook my meat, it is always no more than medium minus. Sometimes I eat pork but the seed feed makes me a bit worried. Same goes with chicken. Beef and other ruminant animals are a safer bet for me. I eat good fatty matured cheese and some dairy.
Yes I eat many eggs a day. I prefer pastured eggs but mostly they are just normal eggs. I can vary my cholesterol as I wish. From 10 to 4 in a week. European units.
I want to live a healthy life. This is my approach and my family does it too. This is biohacking and the hobby is more than 10 years old. Carnivore is 4 years. I see every where mixing of carbs and fats and life-styles that are lightyears apart of mine. What I see is a rise in hyperinsulinemia and avoidance of open air sun exposure, poor adaptation to cold and extreme heat. Lack of strength gaining excersize, alieanating from the roots of natural life. Tap water, chemical substances. I do not use any chemicals.
Addiction plays a big role as does social stress accumulation.
Well there it is. It was not easy. It took ten long years and a total 180 degrees turn. Now I would bet against the 93% of people who have at least one marker of metabolic disorder. By accepting this it has been possible to find motivation in contrasts re life choises.
I believe that moderation is leathal. It should not be, but it is. Connecting many dots, reading tons of studies, listening to months worth of debate and experimenting years and years, has shown this be the most beneficial strategy to fix the probable root cause of illness. Simply by doing the opposite worked for me. I wish you all luck and willpower. Fake food is not the answer.
@@OIOnaut this man is 100% correct, carnivore diet will fix the issue because it's mostly about what you are and not eating
@@OIOnaut like the daughter of Dr. Peterskn...i wnat to try.