Skegness - Bottons Pleasure Beach - Let's Help Arthur (The King) Fight his battle with a rare cancer
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- เผยแพร่เมื่อ 27 ส.ค. 2024
- www.gofundme.c...
We are reaching out to you with broken hearts to share Arthur’s story. On the 15th of August 2023, Arthur was diagnosed with a very rare brain tumour called AT/RT which has spread aggressively throughout his brain and spine.
Arthur is a 4-year-old boy and a big brother to his baby sister Annie who was only 10 months old at the time of diagnosis who had to move in and live with immediate family since Arthur’s diagnosis…… Mum, Dad and Arthur had no choice but to move to Nottingham. Arthur is always full of fun and always spreading joy, kindness, and laughter wherever he goes! Unfortunately, he has being diagnosed with an extremely aggressive stage 4 cancer. A diagnosis which has shaken the family to its core.
Sadly, this diagnosis has led to Arthur having 2 major brain surgeries including an 11 hour resection of the initial tumour where 75% of it was removed. The second surgery was to have an Ommaya Reservoir drilled and fitted in his skull and brain to directly allow multiple injections of chemotherapy to the remaining 25% of his tumour. Both surgeries were successful, however, the remaining 25% of the tumour is wrapped around the main stem of his brain and is simply too dangerous to operate on without having a devastating impact on Arthur’s future life. Arthur then had to undergo further surgery for a third time to have a central line fitted to the major arteries of his heart to directly treat him with high doses of chemotherapy…….
Following this, Arthur started his first round of 12 weeks intense chemotherapy. After a complex first round of chemotherapy Mum, Dad and Arthur had to pack up their bags and move to Birmingham for Arthur’s radiotherapy at Queen Elizabeth, which consisted of him being put to sleep for 30 days every single day…… but before radiotherapy could start Arthur had to be tattooed and also have body and face mask made specifically to him; so that they could absolutely be sure that they delivered the high doses of X-Ray beams to the right places without room for error when treating the whole brain and spine……. Arthur successfully completed his radiotherapy on the 29th of December and was then transferred back to Queen’s Medical Centre in Nottingham where he started his second round of chemotherapy on the 2nd of January 2024.
In the last 7 months Arthur has been put to sleep around 50 times and we have lost count of the amount of blood and platelet transfusions he’s needed. He’s had shingles, infections, fevers, 2 emergency lumbar punctures, countless MRI and CT scans, heart scans, kidney tests, hearing tests, allergic reactions the list goes on……
As a result of treatment, he is often neutropenic which leads to Dad injecting him daily to stimulate Arthur’s bone marrow to make more blood cells quicker to fight infections, which can be tragic whilst undergoing such intensive treatments.
The journey ahead is long and challenging, emotionally and financially…… both Mum and Dad who are self-employed haven’t been able to work since the diagnosis in August. The endless medical treatments, scans and consultations being miles away from home results in having to stay hotels and air B&B’s and with cost of living, the bills don’t stop and are adding up placing a burden of worry on their shoulders.
This is where we can make a difference! We have set up a GoFundMe campaign to rally support for Arthur, Annie, Mum and Dad to alleviate some of the mental and financial stress they are experiencing. We want to allow them to have the best quality of life whilst having to undergo devastating daily battles and missing out on being a family unit without baby Annie for the past 7 months.
As a family we want to make it possible for them to make amazing memories together and to raise money for Arthur and Annie to make all his wishes come true and hopefully give him the quality of life he deserves!
I’m sure everyone can appreciate that this is an exceptionally difficult time for Arthur and the family and although we are reaching out for help and support, we do also ask that their privacy is respected.
Despite being in the face of adversity Arthur is STILL STANDING, YEAH, YEAH, YEAH!
his favourite song LOL!
Here's how you can help:
Donate: Every contribution, no matter how small, makes a significant impact. Visit our GoFundMe page [insert link] to make a secure donation.
Share: Spread the word! Share Arthur’s story on social media, email, and within your networks. The more people who know about this campaign, the closer we get to reaching our goal.
Encourage: Leave a supportive message on the GoFundMe page. Your words of encouragement mean the world and provide strength during this difficult time.
Arthurs family have always been there for others, and now it's our turn to be there for them. Let's come together as a community and show our support in their fight against this challenging illness!
Great to see so many helping raising funds for Arthur, good whack of money too, thanks for capturing it on your vlog Neil 👍
Well done bottons n neil will be donating pday
Hugs n prays to Arthur n his family hope he gets help he needs
Great video as allways
Awww it's heart breaking when anyone gets cancer especially if it's terminal cancer but when it's a child it truly is heartbreaking, Life can truly be cruel. Massive WELL DONE to everyone that attended and you yourself Neil for helping to raise a decent amount of money for Arthur go fund me page. I wish I could have attended but due to my own poor health my days on rides are well and truly over, My healing thought and prayers goes out to Arthur and his family and all the children around the world that been diagnosed with cancer and other life threatening illnesses.
Thank for this special vid
Great video, love what your doing for the area ❤
Thank you 🙏
Hi neal thanks for this amazing video, hope the young man makes a full recovery my heart goes out to him and his family, i lad i went with school took very ill but did get better he had the same thing kind regards.
Bless his heart 😢 good luck lad u have got this !! . Life can be so cruel
What a great cause I wish him well hope he gets on the mend one day at a time mark Tracey jodie jazz from Loughborough ❤
Love skeg go every year
brill video mate 🥰
An excellent cause. What a great day raising money for amazing Arthur. I so wish him well. I hope he can get fully cured. Thanks Neil.
What do you use to record your videos want to start making family videos for memories we are coming Skegness next week 😊
Hi, Dji pocket 2, GoPro 10, iPhone 14 👍
@@neilrgreatestadventures thanks you so much
Help this little guy ! NFFC ** For Arthur ! Lufc