ฝัง
- เผยแพร่เมื่อ 9 พ.ค. 2024
- In this episode, we invited Larry Gifford to the show! What an inspiration he is! Larry was diagnosed with Parkinson's in 2017 and since then, he launched his own podcast, "When Life Gives You Parkinson's", co-founded PD Avengers, on the MJFF Patient Council, and is now hosting the podcast for the Brian Grand Foundation, "On Time"....among many other advocate-like things. He talks about his recent DBS, his advocacy work and ways others can get involved. Thanks, Larry!
Great episode!
Best video ever, this was an extremely informative video I loved it, thank you for doing that what you do. I signed up for PD Avengers
Hi, I'm newly diagnosed with YOPD. I am a regular viewer of your TH-cam channel which is presenting good content. The Q&A with Dr Patel is very helpful. As newly diagnosed, I'm worried how will be the progression of the PD for me. I know it will be different for each person. But it will be helpful if you make an episode on how PD progressed in both of your case. Also I noticed that the PD symptoms gets intense when infected with some other illness like viral fever and it gets cured when that illness is cured but some PD symptoms stay back for long...
Great interview! Thx for introducing me to Larry & his PD resources.
Larry (and you guys) ROCK!!! Thank you. 🙏
I spin bike during your podcast.. nice to see you !
I’ve been diagnosed with PD about 2 years ago, after the death of my beloved husband. I think the stress of his cancer and his death brought out the PD. (My opinion). Now I am alone and I hear everyone speak of how wonderful that their spouse is helping them, their caregiver. I have 3 adult children and will help, but for how long before it is
a burden? Have you done a podcast on PD persons with no caregivers?
I'm so sorry to hear about the loss of your husband. I have heard how stressful situations such as yours can bring out a Parkinson's diagnosis (Episode #36: th-cam.com/video/FT5xq2ks3_A/w-d-xo.html). While we haven't done a podcast episode on the topic of a single person with no caregiver, Brian is single. Karen (Episode #33: th-cam.com/video/XiZgFpS4lmI/w-d-xo.html) is also single with no caregiver. It is a topic we can incorporate in future recordings though!
I also just saw this in my email. It's an online virtual event on May 28th by the Parkinson's Foundation for people with PD living alone: www.parkinson.org/events/2024/PDSolo-May28
It is the depression medication that they gave you that helps you stop crying and not be a sensitive as you were. Many of the help you not to cry at all even if you wanted to
Loved this talk with Larry Gifford. I would like to have an app as a one stop shop. On Time is not yet ready for prime time. Very confusing and cumbersome.
"On Time" is a podcast that Larry Gifford hosts for the Brian Grant Foundation. TurnTo AI is the app that is the one stop shop. It's not ready yet because we need to get more people in the Parkinson's community on board. But I have faith that this is going to be a great app for all of us!
@@thesecretlifeofparkinsons Like you I'm not a Podcast person. Time to teach an old dog new tricks. I do keep an eye out for Brian Grant Foundation since I'm in Miami and he used to play with th Heat. Thanks for all you do!
Does anyone have problems with balance issues after the DBS.??
The doctor I saw wanted to do both the leads in 1 surgery with the generator after, but said they could to all 3 at once if I wanted, and he said I would be asleep for all of it.
How do we sign up on the waiting list for TurnTo AI app?
Here's the link: waitlist.turnto.ai/parkinsons