How Did I Find Out I Had Dementia
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- เผยแพร่เมื่อ 3 ก.พ. 2025
- The path to having a correct diagnosis of dementia, especially in early stages, which can help. Is fought with twist and turns. In this TH-cam article I discuss the process I went through and what some other friends have experienced.#dementiaawareness #dementiatalks #dementia
Thank you so much for this helpful information. So glad I stumbled upon your channel 😊
I appreciate your help. We are starting a clinical now. Haven’t been diagnosed yet.
Wow, this video is a very kind service. I truly appreciate your vulnerability with being so open and informative regarding this topic.
Hi, thank you for your information. I was dx’d 2/23/23 with FTD. I saw a neurologist, then MRI, then PET scan. I have atrophy in the frontal and temporal lobes. My symptoms are forgetfulness, anger, frustration and anxiety. My longterm memory is static for now. My ability to concentrate is slowed. However, following directions or having motivation for anything is gone. I experienced migraines for 20 years, some for a month long , unable to get out of bed. I practiced medicine for 25 years. Now, I’m practically bedridden and suffering emotional distress from all this. My licensure across the board have been suspended due to impaired mental function. Best of luck in your journey.
Thank you so much for doing these videos! This is very insightful
Thank you very interesting and informative.
Thank you for this video 🌼🌷 and best wishes
Off label for migraines is the NSAID - Mefenamic acid. It's brilliant for migraine but do take it with food.
Thanks. I believe I have Lewy Body Dementia based on my current symptoms (MCI, tremor, REM Sleep Behavior Disorder, etc.) I just say a local neurologist who doesn't seem interested in diagnosing dementia. I've got a referral for evaluation at the UNC Medical Center Neurology Center. They have a Lewy Body research group. I'm hoping I can get help there.
Great next step. My local neurologist just said your out of my league and referred me to Cleveland Clinic. The problem with local neologist is insurance doesn’t pay them enough for the advanced testing etc. to make a diagnosis.
@@Tador50715 Thanks for the response.
Thank you for sharing this
It really helps :))
My husband has had Eeg MRI CRT nothing showed on those tests. Neurological 5 hr test shows up the problem areas Cognitive executive Functions Paranoia delusions hallucinations Visual and audio.
We go back to the doctor on February 14th to get the results of the skin plugs test that they do for Dementia. We are new in this journey process ✨️ so any advice is welcome.
I only know the skin test as associated with MS snd neuropathy. Was the MRI done where they have the most current equipment? Either way Early Cognitive Disease only points to the start. It is like an idiopathic source for other disease.
I also have more white matter on MRI’s than normal for my age. It’s difficult not having any idea what’s going on in my brain. I have dystonia and that has it’s own challenges. Thank you for the information!
White mater is not normal. It doesn’t have to mean dementia, but it can be a sign of other issues like MS. Are the issues mainly in your thinking or are there other issues? If it is simple early cognitive issues. Remember they are subtle and may only be noticeable by you.
I diagnosed with white matter in the brain, I still don't know exactly what is the cause. My father had Alzheimer's. Our family started noticing, little things first, we would have to complete sentences for him. Would not recognize friends. He was a veteran, had an MRI that showed what they called tangles, is this the same as white matter. He lived from the late 1990's until 2017.
We know a lot more now, but there is a lot to learn. White matter is not normally associated with Alzheimer’s it more about the brain shrinking. Are you displaying cognitive issues or feeling them. Remember these changes are subtle. White mater disease just mean your Doctors don’t know
J
@@dementiatalks1769 , Thank you, Yes, to some of the cognitive issues. sometimes forgetting words and has progressed to even half a sentence, every now and then. My husband has started finishing off my sentences. Bursting into tears for even small things that I have never done. Remembering old friends faces but cannot recall names like I used too. Foggy feeling brain, also feelings as if my brain is not connected to my body, so bizarre sometimes. My elder sister was diagnosed with Alzheimer's last year as well. Maybe just the stress of thinking it could genetically related in my family after seeing what my father, his aunt, his first cousin and now my sister is going through. The fear of losing your memory is horrible.
@@TheLamba444 Hard not to be afraid, isn't it? I'll think of you and send good energy. Love! Everything will be ok!
I may have missed this in other videos, but we're the cognitive declines that led you to the 1st doctor visit.
I was forgetting things that were covered in meetings with no memory retention, this was not normal for me I was blessed with a good memory and a fast processor. Talking to others, people notice it first in themselves as long as they are honest. The straw that broke the camels back was a argument with my boss about a conversation he said I had with his boss.