First off Neil, you are not overbearing, your being a dad! Francis, once again spotlighting a superhero amongst mortals. Cheers for the season to all! Be safe.
BTW Ash - I mentioned to Francis.... i did have to smile on the Blood video when he complained about a single finger prick ... if you know anything about managing Type 1 you'll know what i mean 😆
Thanks for the video. My son was diagnosed with type 1diabetes a little over a year ago. He runs cross country and track. Always good to see positive stories for people living their lives and being active while managing their diabetes.
All power to you Neil 💪 Unfortunately Thomas is totally hypo-/hyper-unaware (he can drop to below 2 or shoot above 20 mmol/L and will still not have any idea) so a) it's quite challenging to manage his BG even with "good control" and the visibility that CGM gives (A1C of 6.2 for the past 18 months and 80% Time in Range) and b) his CGM is funded through the NHS because of this unawareness. Couldn't agree more on the final comment 👍👍
Tom and his dad are super heroes, as a Type 1 cyclist I fully appreciate the struggles with management of diabetes. Cgm's are a fantastic device, unfortunately I don't qualify for one, but it's great that someone like Tom does. Thank heavens for the NHS. Thanks Francis for producing such a brilliant video, btw, since watching your vids for the last few years I've recently bought a pair of Attacus bibtights, best ever, thanks again for bringing them to my attention.
@@nkelsall unfortunately I don't do either. I'm down near Hayling Island but can sling my bike in the car and come up, it's not that far. I'm on Facebook or WhatsApp. If not cyclingmrc@gmail.com. Cheers
As a subscriber to your channel, what a great surprise to see this video Francis! As a 49yr old who has had type 1 diabetes since I was 6, and someone who has been cycling the last 6yrs or so, I know the struggle with monitoring sugar levels before, during and after a ride. Very challenging, but tech today has enabled us to do all the things someone without diabetes can do. Thanks for the informative content. Now it's off for a nice 20mile xmas eve ride!
Much respect for Tom and his true grit. Neil continue to be the father you appear to be and allow Tom to inspire and motivate us all. Cheers to you all! Thanks for the Vlog Francis🤙🏾💪🏾🙏🏾
It's really cool seeing how people manage their conditions as they ride - I've been riding for 11 years with t1d and very pleased to see younger diabetics making the most of this incredible new technology. Personally, however, I've found that on longer-distance tours (3+ months) managing t1d presents many new challenges which I hope you can cover at some point in the future. Awesome and very heartening video!
I have been watching Francis for a while now and have only just come across this video. It really has blown me away, I am type 1 diabetic and an avid amateur cyclist and let me tell you, it’s not easy. Seeing what you do for your son really is special but for him to have the courage and strength to keep going and testing his boundaries really is amazing. I am very happy to have come across this video and would like to say thank you to Francis for using his platform to shine light on this side of the sport. Thank you
Came here after reading the Guardian article on Tom that was published today. Tom you are a legend and such an inspiration. Francis, thank you for sharing these stories through cycling. Love this!
YES! Catching up with the A team just made my heart explode out of the picture frame (like the Grinch). I'm sure there's a joke about going tubeless based on the puncture and Tom's amazing medical apparatus, but I'm too happy to put it together. Happy holidays, boys.
Great video Francis...thanks so much for sharing and for caring. What I love about your TH-cam channel is the diversity that you bring to us. One day will be a ride with friends the next will be Bike Fit Tuesdays (filmed on a Monday) and then we get these wonderful videos focused totally on someone else that helps inform us about life and its challenges. Really well done my friend. Cheers!
Type 1 Diabetic here, love your channel! Cycling has helped me get my sugars under such good control! BFT (never filmed on a Tuesday) has aided me in my ability to ride more comfortably!
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What a fantastic heart-warming video. That's made for a perfect start to my Xmas day whilst waiting for the kids to awake. Thanks so much Francis. Happy Xmas to you, Tom and Neil.
Rode with Team Novo Nordisk in April riding back from Reading. The squads even the crew are all Type 1 diabetic and all the information to keep their riders in top level was really interesting and unique youll never knew about it..... even 1 of the riders has to be keep getting injection if he riched at certain high levels
We're good friends with the Team Sam; they are true inspirations 👍 Phil Southerland is one of the most visionary people i have ever met or come across. Keep going 💪💪
Neil Kelsall yup a true man who started this whole type 1 diabetics pro cycling team and even outside of their day job they also do fund raising for a diabetic charities
Thanks for posting this, Francis. I, too, have Type-1 diabetes and am a cyclist and hiker. With the amazing technology that's now available, it makes participating in our favorite activities that much more enjoyable and safe. At Tom's age, good control can be a little challenging because growth hormone, testosterone, etc., are all coursing around in his blood that can further challenge blood sugar control. Shout out to Tom for his AMAZING long distance ride, and initiative to live an active and healthy life. And kudos to Neil for being such a caring and engaged dad. 🚴🚴♀🚴♂🚴🚴♀🚴♂
If that young guy can be so good at his young age, he’s got a great future ahead for sure. Very inspiring, this type of video touches the soul, well done Francis,keep them coming.
Cracking video Francis 👍🚴♂️, great for the young lad, that he can still do what he loves and doesn't give up, and should be proud of what he is achieving on a bike, well done fella 👍🚴♂️
I'm a type 1 diabetic and it's really hard at times but doesn't stop me doing anything I ever want too. Just another factor to think about in cycling and everyday life. Top video!
Excellent video thanks for bringing awareness on this topic. I enjoy every adventure and content of your chanel very much. Its fun to watch James and his sarcasms and the seriousness of Lawrence. The Vietnam series was brilliant keep it coming Feliz Navidad and a happy New Year.
Fantastic video! Also type 1, also a cyclist, runner, climber... Looking to close the loop soon and this might have given me the kick I needed! Saw in the thread that Tom is hypo and hyper unaware - that must be truely terrifying, for Tom and Neil- I've always been SOOO lucky I can tell! Massive credit to you both, and Francis for making the vid - keep pedalling!
Francis is amazing for covering the subject. We didn't ask him ... we just went for a ride. I didn't even realise I'd spent so much time wittering on, on the subject 🙄
If you'd like to know more about our experiences with closed loop, feel free to drop me a line on Insta or twittet (@nkelsall if you do either) or if not let me know and I'll pop my email address below 👍👍
His hyper-/hypo- unawareness is a constant worry for us Emma. Tom himself is oblivious to it which is a curse and a blessing at the same time. If he goes high i just make him work that bit harder 😆 ... and if low, he gets to eat sweets and cake. He's a teenager... what could be better 🤔🤔?
Inspiring video. One of my riding pals is type 1 diabetic, but also an elite level track cyclist. They also happen to be a very smart software engineer, and there is a whole online community of tech-nerds/athletes that are "cracking" insulin pumps and monitoring devices and developing apps to see blood glucose in real-time and automating insulin release. Right now, they have it available to see via a smartwatch, but I think the dream is to have it integrated with a bike computer one day.
That's EXACTLY what Francis was showing Chris .... We have full visibility of Tom' blood sugar levels on our phones, smartwatches and via a web URL (neil-kelsall-cgm-remote.herokuapp.com/). He also has an insulin pump which delivers meal-specific insulin (we call "bolus") as well as "background insulin " (we call basal) as a regular drip feed (at different levels through the day as his body reacts to the physiological environment) 24x7. They were designed as separate standalone systems ... but some absolute boffins (people with Diabetes from MIT un the US) realised they could be joined together to create a "closed loop". It's far from foolproof because it depends in settings from fools like me .... but it's very nearly there. "The cure" is coming 👍👍
@@Cade_Media i have it on my Garmin watch .... and there's a data field that's been developed to put BG display onto a Garmin 520+ head unit. I realised this 4 weeks after replacing my very old 510 with a Wahoo Bolt ... 😖
Great informative video Francis, coming from another Type 1 cyclist keep up the riding Tom, you’ll be able to keep eating cakes through the festive season and keep your sugars under control easier. Another fun fact the running costs of the Dexcom or other CGM’s are about $100 per fortnight for the convenience of being able to check sugars without actually pulling over and doing the old finger prick test.
Thanks for the kind words Christopher. The CGM is [literally] a lifesaver for us. Through it and the remote monitoring capability my wife and i can see his BG levels wherever he is, any time of the day. And because of that, he can go off and do more things without us ... so it's also a life-giver 💪💪
Great video. Our daughter is a Type 1 and we would love to get her on a bike with me (I am the cyclist in the family so far)... Kudos to Tom and Neil for getting out there and also informing everyone. Thank you!
@@nkelsall Hi, she is on a pump and has been for the last 5 years or so. It was a big but very welcome transition. Her (Eilis) Diabetes came on at 6 years old, she is now nearly 21 so we and she have learned a lot over that time. No CGM but we have now switched to the patches that can be scanned and uploaded to her iPhone app, so semi automatic, as she prefers the control and intervention.
@@thomasconc she has all the building blocks to enable her to ride Thomas. I have experimented a lot with reducing Tom's basal (background) insulin and setting high bg targets when he rides, but experience shows he absolutely plummets with the slightest bit of insulin. I therefore now tend to switch his basal off altogether before we go out (and keep it off for a time after we finish) and try to keep his BG at the upper end of acceptable with food and reduced bolusing. But visibility is key ... your daughter's Freestyle Libre "flash" monitoring would enable you to see exactly what's going on whenever you needed to check. Good luck and here's to adding another person with Diabetes to the collective peloton 💪💪
@@nkelsall Thanks Neil - good advice. We have noticed (on long walks rather than rides), that there definitely is a 'temperature factor' involved - with a 0-3 degree winters day walk round the park when visiting relatives in Penn (outside of Wolverhampton) at Xmas, we practically needed a whole bag of snakes to keep her levels up. Definitely switching off the basal helps. Now we are back in Australia, with warmer temperatures a good (30-45 mins) walk has far less impact. Of course as we both know a ride takes a lot more calories so the change is magnified. My main issues are (a) getting her actually interested in getting on a bike and (b) thinking she can do it and enjoy it once on a bike. Oh well, time for some parent influencing and if need be incentives !! Great to see you guys so organised and involved, keep it up !
@@thomasconc bang on. Low temperatures = greater insulin sensitivity = tendency for BG to drop lower than in warmer weather in our experience. And she can DEFINITELY do it if she wants to 💪💪 All the best 👍👍
Fuck me what a video Francis. Surely worthy of a yearly ride organised by u trio to raise awareness and funds for people's like this guy annually. His dad is so fully invested in His sons condition it makes me embarrassed to have 2 healthy kids as I type this. 2 Warriors, they make me feel like I'm not doing enough with my life. Change will occur in January in the Kelly household due to this video!!
I'd like to think we'll see Francis sooner than next Christmas Allan 😉 We're no different than any other family - our battles are just of another variety 💪💪
It just shows how modern technology has helped this young man achieve goals he wouldn’t have been able to 10 years ago. Look forward to seeing him in more of your vlogs how about getting him together with Nick the mountain man now that could be something special Francis😊
He would, but in the past it was much much harder. But most people with diabetes (type 1 or 2) still have to prick the side of theirs fingertip with the needle and make a drop of blood and then check it with test kit to know the level of glucose. And then they have to inject insulin subcutaneously in to the abdomen. The CGM is big improvement in comfort and quality of life for people with diabetes. I don't know how it is in GB, but in my country people need to pay some amount of money (not the full price) for the monitor which last only for 2 weeks. So some people can't afford it. Btw insulin was discovered in 1921 by F. G. Banting and J. J. R. Macleod and C.H Best at the University of Toronto in Canada and they were awarded Nobel Prize in 1923. It was firstly used in January 1922, so its nearly 100 years. (fun fact) Good work with mentioning Team Novo Nordick! I would like to say big thank you to Francis for making such a great vlog about cycling and now bringing some new topics about health and health issues. Thank you and please continue in your work in next decade. And good luck and happy holidays to Neil and Tom. Thank you for sharing your deep passion for cycling and rising awareness about people with serious health issues among us.
Wrong. The modern technology is good and helps control diabetes better today than a few decades ago. But I toured Europe for 100 days and 4000 miles 27 years ago without any of the current modern diabetes technology. And I rode Paris Brest Paris 12 years ago with very little of the modern diabetes technology. The modern technology such as continuous glucose monitors and insulin pumps can result in better control and keeping blood sugars in a normal range more often. But the older medicines and technology from decades ago can still work just fine too. The new stuff is an improvement but its not absolutely necessary.
Loved this especially as I am a diabetic as well. I only wish there was more content of this nature and how people manage their diabetes and the different devices and pricing on them.👍
Wow didn’t know they had this app out there. Yeah pretty cool info. Thanks ! P.s. Merry Christmas Francis and everyone! it’s vids like these which keep me watching your channel. Great work.
This particular "arrangement" had been developed within the Diabetes user community by some VERY clever people Bernard. But it'snot long now until commercial versions are available. Some are completing clinical trials and getting regulatory approval as i type. The cure is coming ... 💪💪
@ Neil Kelsall Keep strong and live well. I am always amazed by how people cope with their conditions. I have a good buddy who has 3 kids , is going through a divorce and has a child with developmental delayed learning so I know how challenging it can be. Have a Merry wonderful blessed Christmas and a great year ahead! 🎄🍾
Great vlog Francis. My daughter Kayleigh has Type 1 diabetes and it’s good to raise the awareness if managed correctly you can live relatively unhindered 👍
Yes. The only things a Type 1 diabetic cannot do is join the military and become a commercial truck driver and an airplane pilot. Although with truck driving I think you can get a doctor to fill out forms to maybe allow the issuance of a CDL. And then get tested and reviewed frequently. You can live a completely normal life with Type 1 diabetes. With a lot of extra hassle and complications of course.
For anyone wondering, the bike shop / cafe we visited is Maison du Velo (@Maison_du_Velo on Instagram) in Reigate. If you're looking for the friendliest, tastiest, bike-porniest mid-ride stop in this part of Surrey (eastern edge of the Surrey Hills), you can't go far wrong. Wonderful bunch of people who look after Tom whenever we pop in 👍👍
Hi I ride with diabetes I am in a group Zwift team type 1 if you look for us on Facebook it's a great community for training and racing and a great social side.
Amazing Vlog Chapeau Francis really good to see how people overcome obstacles to carry on cycling. Totally inspirational. Similar to Alex Dowsett cycling with Haemophilia. Keep up the great work!!!
Amen 🙏 Teun It's all about visibility. If you can see what's going on, you have a better chance of managing things. Finger prick tests --> CGM is like going from the occasional still photo to a live video feed. I pray for the day that #T1D will be "cured". Until then I just hope any person with Diabetes can have access to the insulin they need, and once they have that, can access the game-changing tech we are showing and talking about here. We will overcome 💪💙💪
Yup. Use the Freestyle Libre myself, which is a bit simpler (but not as easily read remotely). just a swipe along my arm gives me all the information required. Perfect! 👍🚴 P.s. been a T1D since 1976
Thought you might've been in yesterday when we popped in Andy. We'll have Thomas out for more Thursday shop rides when the nights get lighter. Hopefully we can get you riding together 👍👍
I have type 1 diabetes and have never had to inject insulin during or after a ride, only thing you need to be worried about is blood sugar levels dropping low which would be treated by eating carbs so just like fuelling a normal ride. The harder you push the more carbs you need so cycling is actually good for you as long as you fuel correctly.
What can I say, Bank ...? Sometimes (like yesterday) we need to stop and give insulin mid ride (I obviously undercooked the dose for the huge slab of chocolate cake and mug of hot choc). And I can hand on heart tell you I've heard 1st hand from members of Team Novo Nordisk who have had to inject during a race. Sounds like your control is immaculate ... All power to you 💪💪
@@LeeHadley indeed We recognize how lucky we are that he has pump, CGM and insulin all funded ... but the flip side is that he qualifies for the pump & CGM mostly because of his hypo-unawareness ... which is as a result of his genetic syndrome. A bit of a bitter pill. Keep fighting the good fight my friend. I'm convinced "a cure" (whatever guise that may take) is just around the corner.
Neil Kelsall rewatched the video again and the biggest thing is the amount of chocolate ingested, cut this out and you will see less spikes in BSL also white bread is the devil but I’m sure you will know this. Not telling you how to suck eggs but as a T1 I don’t eat any chocolate let alone a slab.
@@LeeHadley he's a 15 year old boy ... A1C of 6.2 for about 18 months and Time in Range of ~80% .... we tend not to say "no" and are managing OK-ish 👍👍
Question on the glasses: are they the photochromic lenses or just less dark? Saw you wear them all thought Vietnam and Australia so I presume they also protect against the sun more than it looks. Thanks!
That's very kind of you to say but we just do what most other parents would for their children; especially those more vulnerable or in need of support than the norm. Besides, we "get back" from Tom WAY more than we "put in". 🙏
Cycling with Type 1 is a nightmare for me as I either spike to bm's of 20 and then when I stop cycling I drop to minus 5. No adjustments required due to the spike, if I give any adjustment insulin I go hypo before my ride is finished.
Is this perhaps a rare case in which a ketogenic diet would be a good suggestion? Planning on doing a video on keto diets for cycling with Will Girling (nutritionist) and why it's a bad choice for an average person... But looking at a bit of research recently it seems it could be a benefit to people with diabetes.
Would be v interesting@@Cade_Media .... We were fighting ongoing hypos (lows) from soon after you left, for most of the evening... at which point the carbs we'd been trying to treat the hypos with decided to rear their heads .... been a tough 36 hours all-told 🙄 But BOY was it worth it 👍👍 Would love to talk to hear from Will on this 👌
@@Cade_Media That would be interesting, my sugar levels without cycling are reasonably good and well controlled but when I do intense sessions it shoots up due to my body producing adrenaline .
Actually there is a full professional cycling team only with T1 athletes :) I have met some of the athletes there and I can only say that they are really cool guys and girls. Dont limit your dreams and passions because of a disease. ! :)
@@nkelsall I posted the comment before seeing the video. :) And the team has been mentioned I can check if it is possible foe your son to meet them / put you in contact.
@@evangeloskapris9558 we know them all VERY well thanks Evangelos. In fact, we'll be meeting up with one of them on Friday before he flies out to the next team camp. If you are on Instagram by all means seek me out (@nkelsall) ... you'll see some of our adventures with them on there 💪💪 (By the way, @teamnovonordisk are AMAZING and we love them DEARLY 😍😍😍)
Having thought about it for a few days @@evangeloskapris9558 i think one of the key take aways is you don't have to be a world tour racer to survive on the 🚲 with this hideous condition ... (so many comments on this film from so MANY amazing people (with #Diabetes) ...). But also, even the elite racers who inspire, empower and educate, have really BAD days (hypos & hypers) on the bike. Anyone who gets on with life DESPITE the condition is worthy of praise and admiration.
Very tough Kevin, but i hope they are well and able to live life to the max. Celebrate them for their achievements and tell them their condition need not stop them achieving their goals 💪💪
Dad!! You just fed your T1 Diabetic child "hot chocolate" and a "huge chunk of chocolate cake"? Shame on you. If you could feel how that made him feel, you'd certainly rethink this strategy.
Why is it everyone that rides with you or around you suffers from punctures all the time? Please do not come to Canada. Merry Christmas Francis and all the best in the new year.
First off Neil, you are not overbearing, your being a dad! Francis, once again spotlighting a superhero amongst mortals. Cheers for the season to all! Be safe.
I'm humbled.
Merry Christmas 🤗🤗
Cheers for sharing a ride in the life of Tom and his dad, they're awesome.
Thanks Ash. Tom's the awesome one. I'm just the idiot domestique who can't even bring the right spares on a ride 😖
BTW Ash - I mentioned to Francis.... i did have to smile on the Blood video when he complained about a single finger prick ... if you know anything about managing Type 1 you'll know what i mean 😆
Thanks for the video. My son was diagnosed with type 1diabetes a little over a year ago. He runs cross country and track. Always good to see positive stories for people living their lives and being active while managing their diabetes.
I’m type 1 diabetic and have good management out riding. The CGMs are incredibly expensive, another good reason to protect the nhs. Great vid👍
All power to you Neil 💪
Unfortunately Thomas is totally hypo-/hyper-unaware (he can drop to below 2 or shoot above 20 mmol/L and will still not have any idea) so a) it's quite challenging to manage his BG even with "good control" and the visibility that CGM gives (A1C of 6.2 for the past 18 months and 80% Time in Range) and b) his CGM is funded through the NHS because of this unawareness.
Couldn't agree more on the final comment 👍👍
Neil Kelsall he’s definitely a great lad.
Tom and his dad are super heroes, as a Type 1 cyclist I fully appreciate the struggles with management of diabetes. Cgm's are a fantastic device, unfortunately I don't qualify for one, but it's great that someone like Tom does. Thank heavens for the NHS.
Thanks Francis for producing such a brilliant video, btw, since watching your vids for the last few years I've recently bought a pair of Attacus bibtights, best ever, thanks again for bringing them to my attention.
🙏 thank heavens for the NHS indeed Martin 🙏
Merry Christmas 🥳🥳
@@nkelsall Merry Xmas to you too. It would be great to meet up with you guys for a ride maybe?
It would be our honour @@cyclingmrc .... are you local to us ?
If you "do" Instagram or Twitter I'm reachable on @nkelsall 👍👍
@@nkelsall unfortunately I don't do either. I'm down near Hayling Island but can sling my bike in the car and come up, it's not that far. I'm on Facebook or WhatsApp. If not cyclingmrc@gmail.com. Cheers
As a subscriber to your channel, what a great surprise to see this video Francis! As a 49yr old who has had type 1 diabetes since I was 6, and someone who has been cycling the last 6yrs or so, I know the struggle with monitoring sugar levels before, during and after a ride. Very challenging, but tech today has enabled us to do all the things someone without diabetes can do. Thanks for the informative content. Now it's off for a nice 20mile xmas eve ride!
Much respect for Tom and his true grit. Neil continue to be the father you appear to be and allow Tom to inspire and motivate us all. Cheers to you all! Thanks for the Vlog Francis🤙🏾💪🏾🙏🏾
It's really cool seeing how people manage their conditions as they ride - I've been riding for 11 years with t1d and very pleased to see younger diabetics making the most of this incredible new technology. Personally, however, I've found that on longer-distance tours (3+ months) managing t1d presents many new challenges which I hope you can cover at some point in the future. Awesome and very heartening video!
Really interesting to see how far medical technology has come. All the best to Tom and Neil and a merry christmas to them and everyone else in here.
Thank you Niels 🙏
Thanks
Merry Christmas mate!
I have been watching Francis for a while now and have only just come across this video.
It really has blown me away, I am type 1 diabetic and an avid amateur cyclist and let me tell you, it’s not easy.
Seeing what you do for your son really is special but for him to have the courage and strength to keep going and testing his boundaries really is amazing.
I am very happy to have come across this video and would like to say thank you to Francis for using his platform to shine light on this side of the sport. Thank you
Came here after reading the Guardian article on Tom that was published today. Tom you are a legend and such an inspiration. Francis, thank you for sharing these stories through cycling. Love this!
thank you! Tom is a legend!
YES! Catching up with the A team just made my heart explode out of the picture frame (like the Grinch).
I'm sure there's a joke about going tubeless based on the puncture and Tom's amazing medical apparatus, but I'm too happy to put it together. Happy holidays, boys.
Great video Francis...thanks so much for sharing and for caring. What I love about your TH-cam channel is the diversity that you bring to us. One day will be a ride with friends the next will be Bike Fit Tuesdays (filmed on a Monday) and then we get these wonderful videos focused totally on someone else that helps inform us about life and its challenges. Really well done my friend. Cheers!
Thanks for watching and your kind words Jim!
I wish tom the best of health. Strong lad. Neil is the best dad 👍🏼
Type 1 Diabetic here, love your channel! Cycling has helped me get my sugars under such good control! BFT (never filmed on a Tuesday) has aided me in my ability to ride more comfortably!
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Thanks Chris! ... Er didn't mean to write all that gboard stuff 😂
What a fantastic heart-warming video. That's made for a perfect start to my Xmas day whilst waiting for the kids to awake.
Thanks so much Francis. Happy Xmas to you, Tom and Neil.
Thanks for such lovely sentiments Mark 🙏
Rode with Team Novo Nordisk in April riding back from Reading. The squads even the crew are all Type 1 diabetic and all the information to keep their riders in top level was really interesting and unique youll never knew about it..... even 1 of the riders has to be keep getting injection if he riched at certain high levels
We're good friends with the Team Sam; they are true inspirations 👍
Phil Southerland is one of the most visionary people i have ever met or come across.
Keep going 💪💪
Neil Kelsall yup a true man who started this whole type 1 diabetics pro cycling team and even outside of their day job they also do fund raising for a diabetic charities
Thanks for posting this, Francis. I, too, have Type-1 diabetes and am a cyclist and hiker. With the amazing technology that's now available, it makes participating in our favorite activities that much more enjoyable and safe. At Tom's age, good control can be a little challenging because growth hormone, testosterone, etc., are all coursing around in his blood that can further challenge blood sugar control. Shout out to Tom for his AMAZING long distance ride, and initiative to live an active and healthy life. And kudos to Neil for being such a caring and engaged dad. 🚴🚴♀🚴♂🚴🚴♀🚴♂
One word - fascinating
Biggup to Tom and Neil for putting life into perspective. Merry Xmas to you FC!
We get back more than we put in Rich 👍👍
Merry Christmas
Great to have an update with these two legends.
Crikey ... I've been called many things in my time Geth but I'm not sure I've ever been called a legend. Thanks 🙏😆
You are Neil!
If that young guy can be so good at his young age, he’s got a great future ahead for sure. Very inspiring, this type of video touches the soul, well done Francis,keep them coming.
Another great video and as for Tom .....nothing needs to be said ......he gets out there and does what he does ....brilliant 💫😎👍🇦🇺🌲
Thank you for another great video on a subject close to my heart. You're riding my local roads too. 🧡 Merry Christmas.
Cracking video Francis 👍🚴♂️, great for the young lad, that he can still do what he loves and doesn't give up, and should be proud of what he is achieving on a bike, well done fella 👍🚴♂️
I'm a type 1 diabetic and it's really hard at times but doesn't stop me doing anything I ever want too. Just another factor to think about in cycling and everyday life. Top video!
Excellent, well done, fantastic insight into what it's like to ride a bike with Diabetes. Keep it up Tom and Neil.
Very informative video Francis. I hope everyone has a Merry Christmas.
As another TD1 rider, thanks for this video! And also for the last one with Tom, I discovered the Zwift TD1 community through the comments below it.
Great to see Tom doing well and punching above his weight! Espacally not letting his challenges rule him and living his best
He's getting stronger and more confident day by day Paul 💪💪
Wow, it really puts things into perspective. Great determination by Thomas and super support from Dad. Bravo.
Thank you G Mac. We do what we can to keep him as unaffected by his condition as we can.
Superhero dad.thx for sharing,happy Xmas Francis
Great video! Very informative!
Constant glucose monitoring is a game changer! That rocks.
Excellent video thanks for bringing awareness on this topic. I enjoy every adventure and content of your chanel very much. Its fun to watch James and his sarcasms and the seriousness of Lawrence. The Vietnam series was brilliant keep it coming Feliz Navidad and a happy New Year.
Fantastic video! Also type 1, also a cyclist, runner, climber... Looking to close the loop soon and this might have given me the kick I needed! Saw in the thread that Tom is hypo and hyper unaware - that must be truely terrifying, for Tom and Neil- I've always been SOOO lucky I can tell! Massive credit to you both, and Francis for making the vid - keep pedalling!
Francis is amazing for covering the subject. We didn't ask him ... we just went for a ride. I didn't even realise I'd spent so much time wittering on, on the subject 🙄
If you'd like to know more about our experiences with closed loop, feel free to drop me a line on Insta or twittet (@nkelsall if you do either) or if not let me know and I'll pop my email address below 👍👍
His hyper-/hypo- unawareness is a constant worry for us Emma. Tom himself is oblivious to it which is a curse and a blessing at the same time.
If he goes high i just make him work that bit harder 😆 ... and if low, he gets to eat sweets and cake. He's a teenager... what could be better 🤔🤔?
Thanks for doing this Francis
Nice vlog Francis, very interesting and Tom and his dad are inspiring.
I’m so glad one of your videos came up on my feed; I’m hooked! 😎🚴🏻♂️
We only caught up with this one now. Thank you for the shoutout guys.
Inspiring video. One of my riding pals is type 1 diabetic, but also an elite level track cyclist. They also happen to be a very smart software engineer, and there is a whole online community of tech-nerds/athletes that are "cracking" insulin pumps and monitoring devices and developing apps to see blood glucose in real-time and automating insulin release. Right now, they have it available to see via a smartwatch, but I think the dream is to have it integrated with a bike computer one day.
That's EXACTLY what Francis was showing Chris ....
We have full visibility of Tom' blood sugar levels on our phones, smartwatches and via a web URL (neil-kelsall-cgm-remote.herokuapp.com/).
He also has an insulin pump which delivers meal-specific insulin (we call "bolus") as well as "background insulin " (we call basal) as a regular drip feed (at different levels through the day as his body reacts to the physiological environment) 24x7.
They were designed as separate standalone systems ... but some absolute boffins (people with Diabetes from MIT un the US) realised they could be joined together to create a "closed loop".
It's far from foolproof because it depends in settings from fools like me .... but it's very nearly there.
"The cure" is coming 👍👍
Neil reckons he can have it display on a garmin unit with an external plugin, or a hammerhead by Karoo as it runs android !
@@Cade_Media i have it on my Garmin watch .... and there's a data field that's been developed to put BG display onto a Garmin 520+ head unit. I realised this 4 weeks after replacing my very old 510 with a Wahoo Bolt ... 😖
@@Cade_Media the Karoo would need to be developed but if it's on Android it could be done (by smarter people than me) for sure
Great informative video Francis, coming from another Type 1 cyclist keep up the riding Tom, you’ll be able to keep eating cakes through the festive season and keep your sugars under control easier.
Another fun fact the running costs of the Dexcom or other CGM’s are about $100 per fortnight for the convenience of being able to check sugars without actually pulling over and doing the old finger prick test.
Thanks for the kind words Christopher. The CGM is [literally] a lifesaver for us. Through it and the remote monitoring capability my wife and i can see his BG levels wherever he is, any time of the day. And because of that, he can go off and do more things without us ... so it's also a life-giver 💪💪
Great video. Our daughter is a Type 1 and we would love to get her on a bike with me (I am the cyclist in the family so far)... Kudos to Tom and Neil for getting out there and also informing everyone. Thank you!
Does your daughter use CGM and/or a pump Thomas ?
@@nkelsall Hi, she is on a pump and has been for the last 5 years or so. It was a big but very welcome transition. Her (Eilis) Diabetes came on at 6 years old, she is now nearly 21 so we and she have learned a lot over that time. No CGM but we have now switched to the patches that can be scanned and uploaded to her iPhone app, so semi automatic, as she prefers the control and intervention.
@@thomasconc she has all the building blocks to enable her to ride Thomas.
I have experimented a lot with reducing Tom's basal (background) insulin and setting high bg targets when he rides, but experience shows he absolutely plummets with the slightest bit of insulin.
I therefore now tend to switch his basal off altogether before we go out (and keep it off for a time after we finish) and try to keep his BG at the upper end of acceptable with food and reduced bolusing.
But visibility is key ... your daughter's Freestyle Libre "flash" monitoring would enable you to see exactly what's going on whenever you needed to check.
Good luck and here's to adding another person with Diabetes to the collective peloton 💪💪
@@nkelsall Thanks Neil - good advice. We have noticed (on long walks rather than rides), that there definitely is a 'temperature factor' involved - with a 0-3 degree winters day walk round the park when visiting relatives in Penn (outside of Wolverhampton) at Xmas, we practically needed a whole bag of snakes to keep her levels up. Definitely switching off the basal helps. Now we are back in Australia, with warmer temperatures a good (30-45 mins) walk has far less impact. Of course as we both know a ride takes a lot more calories so the change is magnified. My main issues are (a) getting her actually interested in getting on a bike and (b) thinking she can do it and enjoy it once on a bike. Oh well, time for some parent influencing and if need be incentives !! Great to see you guys so organised and involved, keep it up !
@@thomasconc bang on.
Low temperatures = greater insulin sensitivity = tendency for BG to drop lower than in warmer weather in our experience.
And she can DEFINITELY do it if she wants to 💪💪
All the best 👍👍
Blesséd are the [Local] Routemakers! Well done Francis, always good to visit the old Characters from previous seasons ;)
I've learned from one of the greats Toby 😉
Fuck me what a video Francis. Surely worthy of a yearly ride organised by u trio to raise awareness and funds for people's like this guy annually. His dad is so fully invested in His sons condition it makes me embarrassed to have 2 healthy kids as I type this. 2 Warriors, they make me feel like I'm not doing enough with my life. Change will occur in January in the Kelly household due to this video!!
I'd like to think we'll see Francis sooner than next Christmas Allan 😉
We're no different than any other family - our battles are just of another variety 💪💪
It just shows how modern technology has helped this young man achieve goals he wouldn’t have been able to 10 years ago. Look forward to seeing him in more of your vlogs how about getting him together with Nick the mountain man now that could be something special Francis😊
He would, but in the past it was much much harder. But most people with diabetes (type 1 or 2) still have to prick the side of theirs fingertip with the needle and make a drop of blood and then check it with test kit to know the level of glucose. And then they have to inject insulin subcutaneously in to the abdomen. The CGM is big improvement in comfort and quality of life for people with diabetes. I don't know how it is in GB, but in my country people need to pay some amount of money (not the full price) for the monitor which last only for 2 weeks. So some people can't afford it. Btw insulin was discovered in 1921 by F. G. Banting and J. J. R. Macleod and C.H Best at the University of Toronto in Canada and they were awarded Nobel Prize in 1923. It was firstly used in January 1922, so its nearly 100 years. (fun fact)
Good work with mentioning Team Novo Nordick!
I would like to say big thank you to Francis for making such a great vlog about cycling and now bringing some new topics about health and health issues. Thank you and please continue in your work in next decade.
And good luck and happy holidays to Neil and Tom. Thank you for sharing your deep passion for cycling and rising awareness about people with serious health issues among us.
Wrong. The modern technology is good and helps control diabetes better today than a few decades ago. But I toured Europe for 100 days and 4000 miles 27 years ago without any of the current modern diabetes technology. And I rode Paris Brest Paris 12 years ago with very little of the modern diabetes technology. The modern technology such as continuous glucose monitors and insulin pumps can result in better control and keeping blood sugars in a normal range more often. But the older medicines and technology from decades ago can still work just fine too. The new stuff is an improvement but its not absolutely necessary.
Happy Christmas Francis been great following you this year & look forward to your adventures in 2020 👍
chocolate cake - well worth it! tom's a warrior. great vid.
Awesome piece of kit, have a great Xmas Francis and family👍
Nice one Tom, Keep up the effort mate
Loved this especially as I am a diabetic as well. I only wish there was more content of this nature and how people manage their diabetes and the different devices and pricing on them.👍
Keep turning those wheels young man and thanks for the insight on how you control your condition 😊👍👍 merry Christmas
Awesome video. Wonderful people. Hopefully see you all soon!
Miss you!!! And happy birthday bossman!
Wow didn’t know they had this app out there. Yeah pretty cool info. Thanks !
P.s. Merry Christmas Francis and everyone! it’s vids like these which keep me watching your channel. Great work.
This particular "arrangement" had been developed within the Diabetes user community by some VERY clever people Bernard.
But it'snot long now until commercial versions are available. Some are completing clinical trials and getting regulatory approval as i type.
The cure is coming ...
💪💪
@ Neil Kelsall Keep strong and live well. I am always amazed by how people cope with their conditions. I have a good buddy who has 3 kids , is going through a divorce and has a child with developmental delayed learning so I know how challenging it can be.
Have a Merry wonderful blessed Christmas and a great year ahead! 🎄🍾
Wow. Happy Christmas Tom.
Shout out to you all! Very informative video..
Mega video, keep up the great work
Great vlog Francis. My daughter Kayleigh has Type 1 diabetes and it’s good to raise the awareness if managed correctly you can live relatively unhindered 👍
Yes. The only things a Type 1 diabetic cannot do is join the military and become a commercial truck driver and an airplane pilot. Although with truck driving I think you can get a doctor to fill out forms to maybe allow the issuance of a CDL. And then get tested and reviewed frequently. You can live a completely normal life with Type 1 diabetes. With a lot of extra hassle and complications of course.
yet another fab video Francis.
For anyone wondering, the bike shop / cafe we visited is Maison du Velo (@Maison_du_Velo on Instagram) in Reigate. If you're looking for the friendliest, tastiest, bike-porniest mid-ride stop in this part of Surrey (eastern edge of the Surrey Hills), you can't go far wrong.
Wonderful bunch of people who look after Tom whenever we pop in 👍👍
My great granny died from diabetes, such a short time ago , now insulin is a life saver! Nice video.
Brilliant video. Great to see Neil and Tom not letting diabetes interfere with their lives.
Thanks Brian
It interferes for sure 👿👿 ... But it doesn't stop him ...
Very interesting! And that's why I have breakfast with Fran!
Merry Christmas everyone! 🎄🚵♀️
Pretty cool to see this.. 🚴💪🦵
great information....thanks
Hi I ride with diabetes I am in a group Zwift team type 1 if you look for us on Facebook it's a great community for training and racing and a great social side.
That video makes me want to start cycling. I'm T1D diagnosed 6 months ago.
Amazing Vlog Chapeau Francis really good to see how people overcome obstacles to carry on cycling. Totally inspirational. Similar to Alex Dowsett cycling with Haemophilia. Keep up the great work!!!
Faster up hills than Alex
@@Cade_Media 😂😂Merry Christmas and Happy New year 🎄🎅👍
Good video - the new bluetooth sensors and CGMs are gamechangers 👍👍
Amen 🙏 Teun
It's all about visibility. If you can see what's going on, you have a better chance of managing things.
Finger prick tests --> CGM is like going from the occasional still photo to a live video feed.
I pray for the day that #T1D will be "cured". Until then I just hope any person with Diabetes can have access to the insulin they need, and once they have that, can access the game-changing tech we are showing and talking about here.
We will overcome 💪💙💪
Yup. Use the Freestyle Libre myself, which is a bit simpler (but not as easily read remotely). just a swipe along my arm gives me all the information required. Perfect! 👍🚴
P.s. been a T1D since 1976
It’s truly incredible what you can do on a phone.
I’m glad those wheels ended up where they did.
He puts them to very VERY good use, thank you 🙏
Was in MDV this am.... great vid, inspirational
Thought you might've been in yesterday when we popped in Andy. We'll have Thomas out for more Thursday shop rides when the nights get lighter. Hopefully we can get you riding together 👍👍
Merry Christmas. looking forward to 2020!!
grand merc . pour tous ces riders d'un autre monde..
Happy Christmas
That's incredible
Just wait until we go bike-packing 😉
The calorie king app works wonders for finding the right amount of carbs too! Pro tip for all diabetics! Im t1d!
I use a medtronic pump 670g with a sensor that reads my Blood sugars and adjust automatically.
I have type 1 diabetes and have never had to inject insulin during or after a ride, only thing you need to be worried about is blood sugar levels dropping low which would be treated by eating carbs so just like fuelling a normal ride. The harder you push the more carbs you need so cycling is actually good for you as long as you fuel correctly.
What can I say, Bank ...? Sometimes (like yesterday) we need to stop and give insulin mid ride (I obviously undercooked the dose for the huge slab of chocolate cake and mug of hot choc).
And I can hand on heart tell you I've heard 1st hand from members of Team Novo Nordisk who have had to inject during a race.
Sounds like your control is immaculate ... All power to you 💪💪
Neil Kelsall luckily he has a pump, I’m old school pen. Each persons body is different, I can only speak from my experience 👍🏻
@@LeeHadley indeed
We recognize how lucky we are that he has pump, CGM and insulin all funded ... but the flip side is that he qualifies for the pump & CGM mostly because of his hypo-unawareness ... which is as a result of his genetic syndrome.
A bit of a bitter pill.
Keep fighting the good fight my friend. I'm convinced "a cure" (whatever guise that may take) is just around the corner.
Neil Kelsall rewatched the video again and the biggest thing is the amount of chocolate ingested, cut this out and you will see less spikes in BSL also white bread is the devil but I’m sure you will know this.
Not telling you how to suck eggs but as a T1 I don’t eat any chocolate let alone a slab.
@@LeeHadley he's a 15 year old boy ... A1C of 6.2 for about 18 months and Time in Range of ~80% .... we tend not to say "no" and are managing OK-ish 👍👍
I am Type 1 Diabetic . I am old school ( no pump ) . You can do a lot . Like 1000 miles in 7 days . Good luck with the diabetes Tom .
Good job my friend....I WANT YOUR GLASSES .. Good Christmas Eve my friend...we will see each other one day ...Happy Holidays to all
hi, sorry if OOT any thoughts on "cyclist syndrom" ? how to avoid it and what's the symptoms? bikefit video maybe?
Merry Chrissy! Btw
Question on the glasses: are they the photochromic lenses or just less dark? Saw you wear them all thought Vietnam and Australia so I presume they also protect against the sun more than it looks. Thanks!
It's just a clear lens!
Dad of the year.
That's very kind of you to say but we just do what most other parents would for their children; especially those more vulnerable or in need of support than the norm.
Besides, we "get back" from Tom WAY more than we "put in".
🙏
Cycling with Type 1 is a nightmare for me as I either spike to bm's of 20 and then when I stop cycling I drop to minus 5. No adjustments required due to the spike, if I give any adjustment insulin I go hypo before my ride is finished.
Is this perhaps a rare case in which a ketogenic diet would be a good suggestion?
Planning on doing a video on keto diets for cycling with Will Girling (nutritionist) and why it's a bad choice for an average person... But looking at a bit of research recently it seems it could be a benefit to people with diabetes.
Would be v interesting@@Cade_Media ....
We were fighting ongoing hypos (lows) from soon after you left, for most of the evening... at which point the carbs we'd been trying to treat the hypos with decided to rear their heads .... been a tough 36 hours all-told 🙄
But BOY was it worth it 👍👍
Would love to talk to hear from Will on this 👌
@@Cade_Media That would be interesting, my sugar levels without cycling are reasonably good and well controlled but when I do intense sessions it shoots up due to my body producing adrenaline
.
Please explain the thumbs down 🤔
Maybe it was schwable tyres
pretty awesome. does Tom and Neil on any social media
I do a bit of Twitter and Instagram (@nkelsall on both) but I'm not in the same universe as Francis... I'd love to see you there though Patrick.
Hellooo, it this nice first day of Christmas. Rapha festive 500?
#MincePie :-) Merry Christmas Francis!
Actually there is a full professional cycling team only with T1 athletes :) I have met some of the athletes there and I can only say that they are really cool guys and girls. Dont limit your dreams and passions because of a disease. ! :)
Yes. We talked about them in the film 👍👍
@@nkelsall I posted the comment before seeing the video. :)
And the team has been mentioned I can check if it is possible foe your son to meet them / put you in contact.
@@evangeloskapris9558 we know them all VERY well thanks Evangelos. In fact, we'll be meeting up with one of them on Friday before he flies out to the next team camp.
If you are on Instagram by all means seek me out (@nkelsall) ... you'll see some of our adventures with them on there 💪💪
(By the way, @teamnovonordisk are AMAZING and we love them DEARLY 😍😍😍)
Having thought about it for a few days @@evangeloskapris9558 i think one of the key take aways is you don't have to be a world tour racer to survive on the 🚲 with this hideous condition ... (so many comments on this film from so MANY amazing people (with #Diabetes) ...).
But also, even the elite racers who inspire, empower and educate, have really BAD days (hypos & hypers) on the bike.
Anyone who gets on with life DESPITE the condition is worthy of praise and admiration.
14.2?!? Crazy high for a bike riding T1 Diabetic. If I'm >10, I've go about as much energy as an old pair of bedroom slippers.
Mum and Sister have diabetes, it’s a tough one to manage.
Very tough Kevin, but i hope they are well and able to live life to the max.
Celebrate them for their achievements and tell them their condition need not stop them achieving their goals 💪💪
The passing cars are giving me anxiety.
Me too.
Just worried that the mince pies you ate may have been made with lard? It caught out some of my vegetarian/vegan friends recently.
They got me vegan ones !
@@Cade_Media Tom went shopping for vegan mincers especially for our special guest 😉
Dad!! You just fed your T1 Diabetic child "hot chocolate" and a "huge chunk of chocolate cake"? Shame on you. If you could feel how that made him feel, you'd certainly rethink this strategy.
Festive first
More like festive fir-st 🎄
lolz
lasT
Why is it everyone that rides with you or around you suffers from punctures all the time? Please do not come to Canada. Merry Christmas Francis and all the best in the new year.
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