The NCI Li Fraumeni Syndrome Study: Ongoing Work to Guide Tailored Care

Excerpt from the July 2024 ICARE case conference featuring Megan Frone, MS, CGC from the National Cancer Institute (NCI) discussing Li-Fraumeni Syndrome (LFS) and the NCI's LFS study
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[@juliebeauchamp7704]

Hi i have li- fraumeni syndrome and i live in canada i had my diagnostic in 2016 because my twin sister die after having breast cancer at 24 and multiples metastases in her brain in 2018 ... i have really poor investigation i would like to know what exacthly my doctor need to screen cause she said to me i have nothing but i m scare i m 37 ... and not a lot of test also i m a novo variation because nobody in my familly have it just me and my dead sister