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Inherited Cancer Registry (ICARE)
United States
เข้าร่วมเมื่อ 9 ม.ค. 2020
“To end the cycle of inherited cancer through research, education, and engagement”
The Inherited Cancer Registry (ICARE) represents an effort to improve access to cancer genetics expertise for patients and healthcare providers. We send clinical and research updates through newsletters, educational webinars, and other resources. The goal of our research includes maintaining a registry of individuals interested in participating in inherited cancer research studies. There is no cost to participate in ICARE and communications can be conducted via phone, email, or mail, with no need for an in-person visit. If you are interested in enrolling in our registry, please visit our website using the link below.
The information on our page is not a substitute for medical advice.
The Inherited Cancer Registry (ICARE) represents an effort to improve access to cancer genetics expertise for patients and healthcare providers. We send clinical and research updates through newsletters, educational webinars, and other resources. The goal of our research includes maintaining a registry of individuals interested in participating in inherited cancer research studies. There is no cost to participate in ICARE and communications can be conducted via phone, email, or mail, with no need for an in-person visit. If you are interested in enrolling in our registry, please visit our website using the link below.
The information on our page is not a substitute for medical advice.
EGFR and the INHERIT Study
Excerpt from the August 2024 ICARE genetics case conference featuring Diane Koeller from the Dana-Garber Cancer Institute discussing EGFR and the INHERIT study.
INHERIT study: inheritstudy.org/
Young Lung study: younglungstudy.org/
Follow us to stay informed on your favorite social media platform:
LinkedIn: www.linkedin.com/company/inherited-cancer-registry
Twitter: inheritedcancer
Instagram: inheritedcancer
Facebook: inheritedcancer
INHERIT study: inheritstudy.org/
Young Lung study: younglungstudy.org/
Follow us to stay informed on your favorite social media platform:
LinkedIn: www.linkedin.com/company/inherited-cancer-registry
Twitter: inheritedcancer
Instagram: inheritedcancer
Facebook: inheritedcancer
มุมมอง: 177
วีดีโอ
An Overview of the Inherited Cancer Registry (ICARE)
มุมมอง 165หลายเดือนก่อน
Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: inheritedcancer
The NCI Li Fraumeni Syndrome Study: Ongoing Work to Guide Tailored Care
มุมมอง 312หลายเดือนก่อน
Excerpt from the July 2024 ICARE case conference featuring Megan Frone, MS, CGC from the National Cancer Institute (NCI) discussing Li-Fraumeni Syndrome (LFS) and the NCI's LFS study Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Faceboo...
Coping with Hereditary Cancer: Managing Emotional Distress and Communicating with Family
มุมมอง 246หลายเดือนก่อน
We hope you enjoy our very first patient forum! The focus was how to manage emotional distress and communicate with family for those with hereditary cancer or hereditary cancer predisposition. Expert panelists include Dr. Tuya Pal who is a genetics physician at Vanderbilt University Medical Center, Dr. Deborah Cragun who is a genetic counselor at the University of South Florida, Dr. Lora Thomps...
SDHA Germline Genetic Testing and Surveillance in Clinical Practice
มุมมอง 7604 หลายเดือนก่อน
Excerpt from the May 2024 ICARE case conference featuring Dr. Helen Hanson from the University of Exeter and Dr. Ruth Casey from the University of Cambridge discussing SDHA germline genetic testing and surveillance. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: insta...
Full Recording of the May 2024 ICARE Genetics Case Conference
มุมมอง 7374 หลายเดือนก่อน
May 2024 ICARE case conference featuring Dr. Helen Hanson from the University of Exeter and Dr. Ruth Casey from the University of Cambridge discussing SDHA germline genetic testing and surveillance. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inherite...
ICARE Spring 2024 Newsletter Preview
มุมมอง 794 หลายเดือนก่อน
ICARE's principal investigator Dr. Tuya Pal provides a preview of the Spring 2024 newsletter. You may view the full newsletter on the ICARE website at inheritedcancer.net/newsletters. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebo...
Hereditary Kidney Cancer
มุมมอง 1914 หลายเดือนก่อน
Excerpt from the April 2024 ICARE case conference featuring Dr. Ramaprasad Srinivasan from the National Cancer Institute discussing hereditary kidney cancer. You can view the full ICARE Spring 2024 newsletter on the ICARE website at inheritedcancer.net/newsletters. To view the details of the Bevacizumab, Erlotinib, and Atezolizumab in advanced-stage kidney cancer clinical trial, you may visit c...
Liquid Biopsies to Guide Breast Cancer Therapies
มุมมอง 5126 หลายเดือนก่อน
Excerpt from the March 2024 ICARE case conference featuring Dr. Ben Park from Vanderbilt University Medical Center discussing liquid biopsies. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: inheritedcancer
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V3.2024)
มุมมอง 3776 หลายเดือนก่อน
Excerpt from the March 2024 ICARE Genetics Case Conference with ICARE's principal investigator, Dr. Tuya Pal, outlining updates to National Comprehensive Cancer Network (NCCN) Genetic/Familial Guidelines Breast, Ovarian, and Pancreatic (V.3.2024) Check out the new guidelines below Breast, Ovarian, and Pancreatic: www.nccn.org/professionals/physician_gls/pdf/genetics_bop.pdf Follow us to stay in...
The Long Telomere Syndromes: POT1 Mutations in Cancer
มุมมอง 3997 หลายเดือนก่อน
Excerpt from the February 2024 ICARE case conference featuring Dr. Mary Armanios from Johns Hopkins discussing POT1 germline mutations in cancer. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: inheritedcancer
Transplant Eligibility and Inherited Cancer Results
มุมมอง 1157 หลายเดือนก่อน
Excerpt of the January 2024 ICARE case conference featuring Katie Lang from Vanderbilt University Medical Center discussing how genetic test results might affect transplant eligibility. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Face...
Full Recording of the December 2023 ICARE Genetics Case Conference
มุมมอง 3418 หลายเดือนก่อน
December 2023 ICARE case conference featuring Kim Zayhowski from Boston University, Sarah Roth from Johns Hopkins University and Sasha Weiss from Indiana University.
Care for Gender Diverse Individuals with or at Risk for Inherited Cancer Predisposition
มุมมอง 2628 หลายเดือนก่อน
Excerpt from the December 2023 ICARE case conference featuring Kim Zayhowski from Boston University, Sarah Roth from Johns Hopkins University and Sasha Weiss from Indiana University. Kim and Sarah discuss some of the challenges the LGBTQIA community experience in the medical system both in general and in the context of inherited cancer predisposition. Sasha offers his unique experience of being...
Full Recording of the November 2023 ICARE Genetics Case Conference
มุมมอง 24010 หลายเดือนก่อน
November 2023 ICARE case conference featuring Dr. Bryson Katona from Penn Medicine reviewing screening options and recommendations for pancreatic cancer. Follow us to stay informed on your favorite social media platform: LinkedIn: www.linkedin.com/company/inherited-cancer-registry Twitter: inheritedcancer Instagram: inheritedcancer Facebook: inheritedcancer
Management of Individuals with CHEK2 Mutations
มุมมอง 1.5K10 หลายเดือนก่อน
Management of Individuals with CHEK2 Mutations
Full Recording of the October 2023 ICARE Genetics Case Conference
มุมมอง 33110 หลายเดือนก่อน
Full Recording of the October 2023 ICARE Genetics Case Conference
Full Recording of September 2023 ICARE Genetics Case Conference
มุมมอง 33611 หลายเดือนก่อน
Full Recording of September 2023 ICARE Genetics Case Conference
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V1.2024)
มุมมอง 38211 หลายเดือนก่อน
NCCN Genetic/Familial Guideline Updates: Breast, Ovarian, Pancreatic (V1.2024)
Gene Expression Algorithm for Prioritizing Treatment Options in BRCA1/2 Carriers with Breast Cancer
มุมมอง 407ปีที่แล้ว
Gene Expression Algorithm for Prioritizing Treatment Options in BRCA1/2 Carriers with Breast Cancer
CHIP/Variant Interpretation in Li-Fraumeni Syndrome
มุมมอง 5Kปีที่แล้ว
CHIP/Variant Interpretation in Li-Fraumeni Syndrome
Benign Tumor Predisposition/DGCR8 and Other Related Syndromes
มุมมอง 795ปีที่แล้ว
Benign Tumor Predisposition/DGCR8 and Other Related Syndromes
Communicating about Inherited Cancer Risk, Uncertainty, and Decision Making
มุมมอง 184ปีที่แล้ว
Communicating about Inherited Cancer Risk, Uncertainty, and Decision Making
IMPULSS: A Service Delivery Model for Lynch Carriers
มุมมอง 152ปีที่แล้ว
IMPULSS: A Service Delivery Model for Lynch Carriers
CanRisk: Personalizing Cancer Risk Prediction
มุมมอง 809ปีที่แล้ว
CanRisk: Personalizing Cancer Risk Prediction
NCCN Genetic/Familial Guideline Updates (V1.2023 & V.1.2022)
มุมมอง 1.5Kปีที่แล้ว
NCCN Genetic/Familial Guideline Updates (V1.2023 & V.1.2022)