I have been diagnosed with MSA-C, but I am a fan of you guys ... and, if I may, have a question for Dr Patel ... I live in Spain 🇪🇸 and have seen some patients taking what I think is an overdose of levodopa because of the secondary effects ... what does he think about it ?
Six months post diagnosis and after trying many different meds that weren't working, my MDS started talking DBS. Me, still in denial, wanted to make sure I really did have PD and not something else so I went a functional med doctor. They did not test me for SIBO but after having IBD symptoms for years, they had me to thru the SIBO protocol of herbs, dietary restrictions etc. After going through that, my meds started working. I am sure that I was not absorbing the meds. I am now almost 8 years post diagnosis and although my PD is progressing, it is slow and still no DBS. My meds work well but now wear off way too fast.
That is so interesting! I don't know why SIBO testing isn't more well known. This was the first time I've heard of it and now that I'm doing more research on it, I'm starting to think that people who say their meds don't work or they get nauseated with taking them might have SIBO. Just a thought, but something I want to address with one of the Movement specialists soon. Thanks for sharing.
I try to go for a walk. If I am struggling with Dystonia while walking, my wife "quizzes" me while walking (count back from 193 by increments of 13, name all women's names starting with the letter "D", name NBA teams in the western conference, etc.). All these help me to get less anxious!
Thanks Jessica and Brian for SIBO
Thank you for addressing SIBO.
Any time!
I have been diagnosed with MSA-C, but I am a fan of you guys ... and, if I may, have a question for Dr Patel ... I live in Spain 🇪🇸 and have seen some patients taking what I think is an overdose of levodopa because of the secondary effects ... what does he think about it ?
Six months post diagnosis and after trying many different meds that weren't working, my MDS started talking DBS. Me, still in denial, wanted to make sure I really did have PD and not something else so I went a functional med doctor. They did not test me for SIBO but after having IBD symptoms for years, they had me to thru the SIBO protocol of herbs, dietary restrictions etc. After going through that, my meds started working. I am sure that I was not absorbing the meds. I am now almost 8 years post diagnosis and although my PD is progressing, it is slow and still no DBS. My meds work well but now wear off way too fast.
That is so interesting! I don't know why SIBO testing isn't more well known. This was the first time I've heard of it and now that I'm doing more research on it, I'm starting to think that people who say their meds don't work or they get nauseated with taking them might have SIBO. Just a thought, but something I want to address with one of the Movement specialists soon. Thanks for sharing.
I want to ask Brian , After his DBS does he have any problems with balance problems?
I’m struggling with anxiety any recommendations?
I try to go for a walk. If I am struggling with Dystonia while walking, my wife "quizzes" me while walking (count back from 193 by increments of 13, name all women's names starting with the letter "D", name NBA teams in the western conference, etc.). All these help me to get less anxious!