Hypersomnia in Adulthood: What is the Role of the Family - Dr. Jennifer Mundt + Matthew Horsnell

Dr. Jennifer Mundt asks, "What is the role of the family?" from a psychological perspective. Dr. Mundt details the latest research on the mental and emotional effects for people with a rare sleep disorder and their loved ones. Matthew Hornsell joins Dr. Mundt to discuss what is the "on the ground" response through the vibrant online support group community.
Matt Horsnell is a father of three living with the type 1 narcolepsy (narcolepsy with cataplexy) and obstructive sleep apnea. His N1 symptom onset was before age twelve and he searched for a diagnosis for thirteen years. His OSA diagnosis was seven years following his N1 diagnosis.
Before diagnosis Matt attended Belmont University studying Exercise Science. Matt serves as a facilitator for two weekly Wake Up Narcolepsy online small groups.
Dr. Jennifer Mundt provides behavioral treatments for sleep disorders including insomnia, nightmares, NREM parasomnias, narcolepsy, and idiopathic hypersomnia. She is the director of the Northwestern University Behavioral Sleep Medicine Training Program. Dr. Mundt’s research interests include behavioral treatments for parasomnias and hypersomnia disorders.
Matt is a trained Rising Voices of Narcolepsy speaker he is a leading legislative advocate for the sleep community with Project Sleep. He works in the rare disease field and as a consultant for pharmaceutical companies and sleep research.
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[@Adam-ot1fu]

31:03 was a problem that's driven me to almost completely cut off relations with my parents. The subsequent responses have helped me to understand that I need to stand up for myself and advocate for myself even when they don't see it. This has given me some helpful resources that I can give to them to try to extend another olive branch. I don't want to stop them from talking with me completely, but they're not understanding and every encounter with them has become painful. I'm going to keep trying because I love them, but this has become very hard. Thank you for these videos, they may have a limited reach with the low view count but as someone living with IH I'm happy this reached me.

[@subjectively-observered]

Thank you so much! This information is so helpful. I hope that my parents will watch this and will fill out the questionarre to further this research.

[@meman6964]

It's me, please let me find a doctor who cares and knows about IH