Stand up and JOIN-HD!

(November 6, 2021) Dr. Lauren Byrne, University College, London. Dr. Byrne is on the Board of Trustees for HDYO, Huntington’s Disease Youth Organization. This presentation talks about the Juvenile-Onset Initiative for HD. Topics include, lack of disease knowledge contributes to isolation for families, difficulties of genetic testing in minors, how research of HD is vital, and more. JOIN-HD is a global patient registry for Juvenile onset Huntington’s disease aiming to connect with JoHD families to increase knowledge of JoHD, identify unmet needs, and facilitate future research. There are current plans for global recruitment for JOIN-HD.