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Good information, but PLEASE lose the background "music" consisting of two alternating notes on a piano over five minutes. It adds NOTHING to your video; indeed, you don't need any background sound. Cheers from a friendly musician.

Erin! Thank you so much, for sharing once again.. I hope to be at one of these conferences in the future.. Hearing similar success stories of hope and resilience from others, who will undoubtedly have received motivation and encouragement from your strength.... You're an inspiration, and if God is willing, maybe I'll have the strength to stand on a stage one day to tell my families story!

Great information!!! So glad to have found this video..

I have hd there is no cure

Thank you

Are there no studies with methylene blue?

one thing I am curious about is that if there is a cure, will people get it, Chorea largely isn't a condition where a person with it can't make there own decisions, if there is a cure I highly wonder if people will refuse treatment because it takes away what makes the unquie

It is genetic in my mom's side of the family. I'm due a test for it. If I have it I'm going out on my own terms. I'm not living like that

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I just got diagnosed positive and I am 28

What happens if the patient does'nt use the prescribed medications? They are very expensive for us and can't afford them for now

I would to talk to you for help. Been dealing with this my entire life

hygiene, end of life care , late stage HD , abnormal movements, TV remote, non pharmacology treatment, cedar Brooklyn facility

injury prevention communicate latest but not late, cedar Brooklyn care facility, we need to end this hunting disease ,

Thank you so helpful

my mom died last July due to huntingtons malnutrition,she was only 80-85lbs when she died of a severe ecoli/and pneumonia/sepsis. she didn't have anything left and could not fight,and her pneumonia turned into MRSA.She was perfectly fine 3 days prior to being this sick..talking to me telling me she is ok. two days later when I was supposed to pick her up on july 1st, she was found in her apartment slipping into a coma from septic shock.....she used meth to subside the hunger in her body,and feelings.....she was such a good mom/grandmother/friend...RIP-Rhonda Francis-We love you to the moon and back-

My husband was able to get into a clinical trial Dr. Sung lead at UAB. Even though the trial ended abruptly, it is coming back in a different way but my husband doesn’t qualify. I know without a doubt that we are heading towards end stage. I’m glad Dr. Sung follows my husband’s care.

No thank you! Somebody just give me a 38, and I'll give the middle finger to this curse.

Thank you for passing on information on HD no matter what the age. I don’t have it, but I am interested in learning about. I do have MS so I am interested in other chronic progressive diseases👍❤️

That was really clear and very useful in understanding this disease.

PERMANENT CURE TO IBS WITH DR OJE ABACHA IN LESS THAN 2 WEEKS NO SIDE EFFECT.

through dr idume I got cured using his herbal medicine and now I'm better and normal, thanks to him👇👇👇 th-cam.com/video/DahqD2Ijn_4/w-d-xo.html

My Huntington’s Disease story begins like most people in the HD community. With a family history. about a year ago I was diagnosed with having the defective Huntington’s gene. Yes, it is hard - and some days are much harder than others - but there are many positive noises coming from the Huntington’s experts about new research and treatments and that fills me with real hope. Have a look into gene silencing, it’s like something out of a science fiction movie, but it could be ground breaking! It was obviously gutting to have my fears confirmed but I at least know what I am up against and I know that it’s unlikely I’ll experience symptoms earlier due to having a similar CAG count. (A CAG count. Huntington's Disease is a devastatingly aggressing disease, I have known that neurological disorders were aggressive. As I learnt more about Huntington’s I wanted to do something positive in what was a negative situation. I know it’s hard at times but you should try not to focus on the negatives. Try to turn them into positives. I was hopeful that a cure will be found as science is really doing all they can. We took part in a research project which involves a two day trip to Florida to the Huntington’s Disease Centre, We were opportunity to meet with Dr Odia, A highly recommend herbalism with scientific medicine. There are lot to say about Dr Odia, I really want to thank God that this man was used to end my sorrow, All my pains and tears turn to joy from the day I came in contact with Dr Odia, We were educated more about the use of herbs and few purchase the herbs which I used for two month and three week's. To my greatness surprise it did work out for me. There is no need for anyone to have a date stamped on their forehead when they’re diagnosed with Huntington’s Disease. I would encourage anyone to seek a second opinion especially if they’ve been told there’s no hope. It’s also crucial to learn as much as you can about your diagnosis. Seek options. Find out about what’s out there that could help. Contact Dr Odia via( Dr Odia Herbalist Home on Facebook) or email: drodiaherbalistcenter@gmail.com).

What’s HD?

I wan to use this medium to say a very big thank to dr Ehimare on youtube who was able to cure and reverse my mother in_law from this Huntingtons disease and God will bless you continiously sir🙏. You can also contact dr Ehimare on his youtube channel or what +2349027349748.

I never know herbal medicine treatment are very effective and important not when i realize that my husband was cure permanently from Huntington's disease and this traditional herbal Dr Ehimare on TH-cam also cure HPV and Als disease You can also contact Dr Ehimare on TH-cam channel OR whatsap contact +2349027349748.

I never know herbal medicine treatment are very effective and important not when i realize that my husband was cure permanently from Huntington's disease and this traditional herbal Dr Ehimare on TH-cam also cure HPV and Als disease You can also contact Dr Ehimare on TH-cam channel OR whatsap contact +2349027349748.

I wan to use this medium to say a very big thank to dr Ehimare on youtube who was able to cure and reverse my mother in_law from this Huntingtons disease and God will bless you continiously sir🙏. You can also contact dr Ehimare on his youtube channel or what +2349027349748....

I wan to use this medium to say a very big thank to dr Ehimare on youtube who was able to cure and reverse my mother in_law from this Huntingtons disease and God will bless you continiously sir🙏. You can also contact dr Ehimare on his youtube channel or what +2349027349748...

I'm helping my friend he don't even what stage his at ..knowing him for pass 8yrs. .he just told me last year..sadly I can see his going down..I'm watching videos to help him as much as I can😢😢😢😢😢😢

this is hereditary, so if everyone with it made a huge sacrifice in their lives and didnt have children eventually it would go away completely. thus insuring the lives of those yet to come.

Back when my mum was young as HD was on her side of the family..My sister’s and I never knew about this disease and the aunties never said anything..There motto was if you make it over 30ish your safe..An uncle from Canada came to visit his sister’s mum had already died he found us and he told us what disease we could inherit and that the testing is here in Australia that was 25 yrs ago I’m 65 it got my two sister’s which are now in a Nursing Home

The first cure according to Huntington`s disease was in 1973. It took 22 months. The proceeding is documented in the book “Orthomolecular Medicine For Everyone”, written by Abram Hoffer, MD, PhD, and Andrew W. Saul, PhD. Abram Hoffer was asked, if a treatment with a meagavitamin therapy might slow the rate of deterioration. He and his patient understood that there had to be no expectations of recovery on anyone´s part. Relating to the start of the treatment the Patient remained well at its end.

Best friend from the military has had it since 2002. Now in hospice/ palliative care. Sad...

would it be possible to repost this vid in a format supported by older viewers

Thank you immensely for this nicely made video.. Many of my family members are in denial of my father having these symptoms. Our local Neurologist diagnosed his physical symptoms with HD on a few occasions, and now we are waiting for the blood results to come in. It is good my father feels like his usual self at heart. However, I want documentation for the rest of the family to acknowledge that awareness and education is important. Not dusting these changes under the rug like it's not happening.

Very helpful thank you

They say the only cure for HD is understanding...very different way understanding something as serious as this and no one else in my family has done any form of research on. Very extreme

Then, how come it only happens at certain times?

my ex boyfriend has it but i dont understand why he is declining so fast . its been 3 years since he has syptoms he was diagnose this summer . Now i dont understand what he says

Great job, Dr. Bonnie! Very informative and easy to understand!

My brothers age is 37 years he shows involuntarily motion of neck and shoulders hands please suggest me good treatment for it

the format of this video is different than the others and I am unable to view

I hope I understood that allowing "unawareness" was not a problem in its self (just the consequences). I have made it my life to ensure my Wife is not made aware she has HD. There is a considerable back story and some very interesting incidents. Here is an excerpt from a letter I have given to the few medical personnel she has seen. "When speaking with Wife, please DO NOT use the word “Huntington’s”, “Chorea”, nor discuss HD with Her. Doing so will cause anxiety, which can result in MORBID depression. Her perception is “I do not have”. (refer to Anosognosia below) Discussing the symptoms, chronic pain and restlessness (impaired muscle control), is desired so that treatment in hopes of relieving them can be attempted." Unfortunaely there have been several Doctors that have tried to force telling her. Thank you for the videos...

that make me cry. my mother diagnose with that disease last week and i am shock that everything you say , its like i see her in front of me.which doctor shall i go to have that therapy please

Thank you so much for these videos, it helps us to understand the disease

This video makes a lot of sense, and would be a help for us all that are near this HD. My dad was not diagnosed for a long time, back then not many knew about this illness, it was fear of the unknown. I remember the volcanic episodes of rage that my dad went through all too well, I still have flashbacks and nightmares 50 years later... . It was like living with a Jekyl and Hyde. We loved him through it all

It is a tough decision to be made. This is a most devastating disease. I am contemplating...

wow, I became irritable when my father took his life last year and left my mother alone at 76 to fend for herself and my wife and I had decided to give up our lifestyle of happiness to live back in with my mom to support her as best we know how at 43 years old. Just after deciding to move all back to where we came from again with mom this time she took a terrible fall and broke her hip!! now she is in rehab for a month and while we are left to unpack the whole house she sold into a tiny apartment... she is recovering and I have to drive my wife and back to her job 20 minutes away each way and visit my mother a few times a week also. I do all the driving and my wife doesn't have a license! My mother is getting to old to drive, and won't be able to when she gets out of rehab anyways. The only good thing about all of this is that my mother has the money from the sale of the house and we needed to use that to get this apartment, and some furnishings and a newer car!

my mother, aunt and uncle all have Huntington.