Beginning life with Parkinson’s at the age of 46 | Tim Hague Sr. | TEDxWinnipeg

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  • เผยแพร่เมื่อ 25 พ.ย. 2024

ความคิดเห็น • 65

  • @TheSurfRyder
    @TheSurfRyder 3 ปีที่แล้ว +8

    I’ve just recently been diagnosed with Parkinson’s. I’m 49 it took 6 years to come to this conclusion from MRIs to just thinkings I’ve lost my marbles.
    I’m a adrenaline addict. I skateboard snowboard and surf. While I’m not good at any of them anymore (not because of Parkinson’s more that I’m not 16 anymore) these are the things that I fight to keep in my life as far as active and mobility.
    Balance is way off but remembering how the sensation of catching a wave goes I’ve managed to overcome the falling every time aspect of surfing.
    They don’t make enough pads for skateboarding lol but getting together with old friends and pushing that wooden toy gives the feet the best vibrations.
    Returned to snowboarding at the right time. They have bindings that you don’t have to touch to get into. Makes fighting with straps and lack of coordination a thing of the past.
    It’s my goal to do these things as long as I can in life. Parkinson’s is going to have to make room

  • @michaeltanaka9011
    @michaeltanaka9011 ปีที่แล้ว +2

    I made every excuse for not going out. I was suffering from a movement disorder but yet I was still alive. One day, I looked out the window and saw a young woman in a wheelchair transporting her groceries. Does she consider herself disabled?
    What about my friends who spend most of their time watching TV. Disability is the inability to do simply task. I realized my disability was my thinking. Now I live a productive life. I’m slow and struggle with every day chores but I don’t consider myself disabled anymore.

  • @jeffreyvanness8592
    @jeffreyvanness8592 7 ปีที่แล้ว +41

    WOW! You are truly an inspiration. I was diagnosed at 42 and ended up having to take medical retirement at age 49. I'm now 52 and doing better than when I was 49, but still have lots of issues, especially with fatigue, anxiety, and depression. It's frustrating to lose the ability to do small things. Simple tasks now have become difficult. I'm single and worry what will happen to me in the future and if I will reach the point that I'm no longer able to take care of myself. It was all on my right side initially, but has now started on the left side. Physical therapy has helped quite a bit and even got me to give up walking with a cane. I did purchase a treadmill and force myself to walk on it every day. Some days are easy and others are hard, but the treadmill is a big help. I really appreciate the inspriation.

    • @paulrichard4945
      @paulrichard4945 4 ปีที่แล้ว +2

      This was great, thanks, I've been looking for "what are the end stages of parkinson's" for a while now, and I think this has helped. You ever tried - Siyortalie Astounded Smasher - (search on google ) ? It is an awesome one off guide for discovering how to control parkinsons disease minus the normal expense. Ive heard some unbelievable things about it and my cousin got cool success with it.

    • @Sunny1414100
      @Sunny1414100 3 ปีที่แล้ว

      Have you read Fighting Parkinson’s and Winning by Howard Shifke?

  • @Defender3d
    @Defender3d 2 ปีที่แล้ว +6

    Just amazing, courageous and emotional. Living is on the other side of fear, and we all need help getting there.

  • @davidmaxep5434
    @davidmaxep5434 3 หลายเดือนก่อน

    I am 62 and diagnosed with parkinson two years ago. Had it slowly coming on for fifteen years and didn't realise what it was. On medication now and its progress has slowed down greatly.

  • @MeenaDevi-we6db
    @MeenaDevi-we6db 7 ปีที่แล้ว +29

    diagnosed at 52 with early onset Parkinson's, I refuse to let it get to me. I am greatly inspired by others who achieve in spite of..

    • @ronancurtis2616
      @ronancurtis2616 7 ปีที่แล้ว +1

      Meena Devi that's great! The more strength you find in your ability to deal with something, the more the difficulties get buried

    • @BrijenDesai
      @BrijenDesai 8 หลายเดือนก่อน

      Its great Maam to sèe ur positivity , i am myself 53 n just detected with early onset of PD Can u pls give some words of wisdom to tackle early onset of PD

  • @extender21
    @extender21 3 ปีที่แล้ว

    Not being an English native speaker, I am impressed by people like him and his ability to just talk and get across so many facts and impressions. I wish I could do that in my native language (German) the way he does it in English. Congrats.

  • @juliet-m31
    @juliet-m31 2 ปีที่แล้ว +2

    Well done Tim! Thank you! I've seen you on some Davis Phinney webinars also. I hear you and I'm with you. God Bless!

  • @traceykerr572
    @traceykerr572 ปีที่แล้ว +1

    Similar to TBi and dystonia told I would never walk.. people thought I was drunk when fell over and slurred my words. After many years hard work, grit invited to do Mt Marathon in alaska. Great day
    Warriors persevere for the moments of truly living. Even in the face of challenges

  • @lynnpolizzilcsw9316
    @lynnpolizzilcsw9316 7 ปีที่แล้ว +10

    You look really good.... oh God have I heard that. Even after 27 days in a hospital. Thank you for sharing what it's like. I was diagnosed at 50 but had it for at least 5 years. Took a DatScan to confirm. You are so courageous.

    • @suetaylor8970
      @suetaylor8970 4 ปีที่แล้ว

      I was diagnosed with parkinsons 4 weeks ago and also had a datscan to confirm. I'm struggling still to accept it

  • @viviansmith407
    @viviansmith407 5 ปีที่แล้ว +9

    Inspired. I too have Parkinson’s diagnose two years ago🙏🏿🙏🏿

  • @ManuduBruxale
    @ManuduBruxale 3 ปีที่แล้ว +1

    Yes it's a constant battle. I was diagnosed with PD 4-5 years ago and today at 50yo I was confirmed with stage 3 parkinson. 3 days ago I had DBS surgery, starting to feel better. Now I hope it works like it should, so that I can tell this Parkinson disease, you wait ✋ I'll get my life back.

    • @Amira12895
      @Amira12895 2 ปีที่แล้ว +1

      Please tell us your opinion on dbs is it effective ??

    • @ManuduBruxale
      @ManuduBruxale 2 ปีที่แล้ว +1

      @@Amira12895 yes but you must be a good candidate for its requirements.
      Even though it takes time for the settings to get a good balance. And maybe walking and speech becomes difficult. Still better than before surgery. But everyone is different.

  • @thepatriotpartyofamerica
    @thepatriotpartyofamerica 7 ปีที่แล้ว +6

    I was diagnosed two years ago & it's rapidly progressed; I'm almost 60 but feel like 90

    • @christinecatalan8841
      @christinecatalan8841 5 ปีที่แล้ว

      I feel so sorry to hear that, Becky. I really understand how you're feeling since my mom was also diagnosed of pd a year ago. I hope that you will just be okay always. God bless you!

    • @whendis.roberts6817
      @whendis.roberts6817 5 ปีที่แล้ว

      becky Sawyer Get an appt. With Dr.Vansickle

  • @rubybrown3803
    @rubybrown3803 ปีที่แล้ว +1

    Tim has so much swag.

  • @oceanwonders
    @oceanwonders 6 ปีที่แล้ว +8

    Some of you will benefit from researching neuromuscular dentistry. There is 35 years (40 now, I guess) of Japanese research connecting misaligned bites and some Parkinson's symptoms. Unfortunately they were animal experiments where they ground down the teeth on one side only and induced all kinds of neurological & other symptoms. Dr. Dwight Jennings in California is somewhat of an expert. His brief yt video connecting jaw & Parkinson's is titled "Parkinson's TMJ Treatment Rational". Wishing you well.

  • @rainerschloemann6317
    @rainerschloemann6317 6 ปีที่แล้ว +3

    I got onset of parkinsons at 47 years old I also greatly inspired by others too take care

  • @hwg3575
    @hwg3575 5 ปีที่แล้ว +3

    Diagnosed after just turning 54. This is what I need to hear right now.

    • @rueffjam144
      @rueffjam144 5 ปีที่แล้ว

      Same ... diagnosed a couple weeks ago at 54. Afraid to start the meds because of the side effects.

    • @hwg3575
      @hwg3575 5 ปีที่แล้ว +2

      @@rueffjam144 I'm sorry that you have PD but I think if you are going to have it- now is a good time versus 20 yrs ago. There is a lot of great research going on. MJF has a lot to do with PD funding and making it more known. I'm on 1mg of Rasagiline. This is supposedly neuro protective. I had a few side effects the first- but not too bad. Talk to your neurologist. Don't be afraid to take medication. It can help. Hope this helps.

    • @lisacharlene2575
      @lisacharlene2575 3 ปีที่แล้ว

      Did they think you had anything else? How is your voice?

  • @davea5794
    @davea5794 5 ปีที่แล้ว +5

    This is very inspiring. I was diagnosed with Parkinson's, nearly 2 years ago, also at the age of 46.

    • @GoProGoalieUzi
      @GoProGoalieUzi 5 ปีที่แล้ว +1

      David Ashworth diagnosed at 41

  • @brxkenphexnix2065
    @brxkenphexnix2065 5 ปีที่แล้ว +4

    I have similar symptoms but my doctors say that i have ptsd and nerve pain the pain that lady gaga had. Yes i have people say if i am drunk by the way i talk and walk i also have depression, tired, difficulting thinking, slow at doing my daily activities, my bowel and bladder movements are not normal, i always feel hot . i try to find work but they see my condition and they say they will call me later but in reality employers dont want to hire people with physical conditions. No one wants to hire me i dont know if i can get social security disability because i am 36 yrs old. I do self exercises but nothing is working but i hsve a appointment with a neurologist on august 30 i hope they can diagnose my problem. The way i feel now is sad and lonely because no one understands the difficulty that i go thru everyday being unemployed and having a undiagnose condition.

    • @marinaheau962
      @marinaheau962 5 ปีที่แล้ว +1

      jelly bro1223 understandable but never give up good luck good wishes

    • @Mellinds
      @Mellinds 4 ปีที่แล้ว

      You’ll get through it. You’re really strong already dealing with all of that. Patience, you’ll end up finding your community and the support you need. Until then, lots of love and light to you 💕✨

  • @Terradiva
    @Terradiva 5 ปีที่แล้ว +1

    Worthy of a LOVE SCREAM!!!!!!!!!!!

  • @user-fh7lo6si8f
    @user-fh7lo6si8f 5 ปีที่แล้ว +3

    High dose thiamine hcl, improvement is likely missed if one is not observant. That is why we take video record and depend on outside observers. Generally over 4 months. First week, no more constipation. One year No more micrographia.

  • @Joe-gu6oe
    @Joe-gu6oe 6 ปีที่แล้ว +2

    Time passes so slowly. TY

  • @tudormiller8898
    @tudormiller8898 4 ปีที่แล้ว +1

    I'm 47, and have the early signs of Parkinson's. Like slight tremors in my hands, losing my balance easily. Often tired and fatigued most days. Often forgetting things. I just put it down to my Dyspraxia. I haven't been tested yet. Watching from London UK.

  • @janemccourt5022
    @janemccourt5022 3 ปีที่แล้ว

    Great chap!! xxx

  • @barbelreuter6117
    @barbelreuter6117 4 ปีที่แล้ว +1

    This is the Moment

  • @glenmeditation6481
    @glenmeditation6481 6 ปีที่แล้ว +5

    how much research goes into non medical solutions for parkinsons? how much is spent on diet research?

  • @imeldanavarro425
    @imeldanavarro425 6 ปีที่แล้ว +1

    i have pd too, but i got surgery for pacemaker in 2014. life goes on buddy

    • @beekaGo
      @beekaGo 6 ปีที่แล้ว

      Imelda Navarro how is it working for you any side effects ?

  • @funnyberries5897
    @funnyberries5897 6 ปีที่แล้ว +1

    My tremors are quite similar to yours, its also in my left hand and tends to gets worst when i stand for long in church service. My legs also tremor when I am resting as well as my left hand, i feel like my speech is slurring which is really annoying! I have a neurologist appointment next month! Im 31 but it has been gradual i didn't even know there's was an illness to the shaking I though its normal until my hand started shaking uncontrollable sometimes then I though something's not right and so did my doctor and has referred me to a specialist.
    Hope for the best

    • @user-fh7lo6si8f
      @user-fh7lo6si8f 5 ปีที่แล้ว

      High dose thiamine hcl, improvement is likely missed if one is not observant. That is why we take video record and depend on outside observers. Generally over 4 months. First week, no more constipation. One year No more micrographia.

  • @landi2244
    @landi2244 7 ปีที่แล้ว +2

    Oh wow:) so awesome!!

  • @troyhagen587
    @troyhagen587 6 ปีที่แล้ว +4

    YES SIR, Best when your boss calls you a retord, REALLY. PARKINSON I'm 61yrs new JOURNEY and LIFE.

  • @barbelreuter6117
    @barbelreuter6117 4 ปีที่แล้ว +1

    Help is coming and this is a Recep❤️🙋‍♀️🇩🇪🙏👍🍀🇳🇿😅

  • @motelman6036
    @motelman6036 5 ปีที่แล้ว +3

    Parkinson's indicates unresolved rejection, massive amounts of abandonment, rejection and hope deferred. I read a book called"A more excellent way" by Henry Wright.

  • @barbelreuter6117
    @barbelreuter6117 4 ปีที่แล้ว

    Look T yourself

  • @joereid2610
    @joereid2610 4 ปีที่แล้ว

    Daily x

  • @suffiankhan9471
    @suffiankhan9471 5 ปีที่แล้ว

    secret formula.. ~24

  • @kathydear48
    @kathydear48 4 ปีที่แล้ว +1

    I have Parkinson at 56 .

  • @frankkahler1431
    @frankkahler1431 4 ปีที่แล้ว

    Someone share the following video with Tim Please!? On TH-cam "Medical Cannabis And Parkinsons part 3 of 3"!!! This will blow ALL of your minds!!!!! PEACE!!!

  • @kathydear48
    @kathydear48 4 ปีที่แล้ว

    Iam having alot of shaking and off balance.

  • @frankkahler1431
    @frankkahler1431 4 ปีที่แล้ว +1

    Cannabis Folks!!!!!!! Watch on TH-cam, "Medical Cannabis and Parkinson's part 3 of 3"!!!!!!! Seeing is believing folks!!! The gentleman in the video is a retired cop!!

  • @margarettomlin4708
    @margarettomlin4708 4 ปีที่แล้ว

    H

  • @ezra2662
    @ezra2662 7 ปีที่แล้ว +2

    Omg stop crying.