This is one of the best panels on this topic that I've seen. The patient who described the shock did so pretty accurately from my perspective, based on my own experience.
I am currently wearing the LifeVest defibrillator and expect to have an implant within the month. This video was very informative and helpful. Thank you all. Well done Michigan, from a Penn State alum. Haha.
After determining that I had ARVC my cardiologist in collaboration with other cardiologist determined that I needed a ICD. My surgery was on 10/02/2020 and went very well. I am currently in the rest and recovery stage. If you doctor determines that this procedure is necessary please do not hesitate to have it done.
I haven’t had any issues. I am still able to do all activities that I was previously doing like playing golf. My recent monthly report shows that I had an episode on June 16, but I didn’t notice anything that day. I will be seeing my cardiologist on 8/6 to get analysis of what happened. I will keep you posted.
This discussion was amazing. Thanks so much to Michigan Medicine for sharing this valuable information about defibrillators. I'm 80 and my doctor will be replacing my pacemaker with a defibrillator.
I had to have my mitral valve replaced at the age of 36 that is when they found that I have heart arrhythmia plus Wolff-Parkinson-White. A double whammy right there. I had no problem with my defibrillator until it went crazy. It shocked me 17 times before I was put in a medical induced coma. I had the defibrillator part turned off. My anxiety could not take it. It is a wonderful invention. My nerves just couldn’t take it.
I am thinking about getting a defibrillator real soon. I have conjured heart failure. My heart is only beating at 30%. I don’t want to take the medicine entrosro because is so expensive getting more expensive. I have to admit I am a little afraid, but I trust god that the defibrillator will give me more energy.
I have CHF, had it for years only was hospitalize once. I was having a hard time breathing and when I went to NYU Langone here in Brooklyn, about 4-5 years ago they said my EF was low I think around 12%. Doctor said I may not make it home alive, odd thing I didn't feel bad at all so I looked at the doctor like he was crazy. Stayed in the hospital like a week EF went up and was sent home. Fast fwd to today my EF say's between 35 to 40 % since I am a vet I also go the the VA. They gave me a LV (Life Vest) a couple of years ago. My cardiologist at the VA wanted to give me a ICD, but I never felt bad so I sad let me get a 2nd opinion from my cardiologist from NYU Langone. He stated I dont need it just yet, my CHF is not as bad as others. I go to the gym every morning I dont have shortness of breath so far. Only time I feel kind of bad is when I start taking my med's in the morning then I feel sluggish and bad. never had SCA or an hart attack so far. I will admit I really don't use the LV during the day much because I work from home. Only time I put it on during the day is after I start taking the meds and I start feeling like crap because I don't know if it's the meds or the CHF making me feel like this. I ways ware it at night for protection. I know I am supposed to where it all the time. But when I saw what happen to Damar Hamlin I said let me go for the ICD. But after researching I am on the fence about getting it? I read all the stories about getting unnecessary shocks which worries me, at least with the LV it's warns you before giving you treatment so if it's not warranted you can stop the treatment. I know the ICD is here to save your life, but I saw on TH-cam what a ICD malfunction did to this poor lady and it really left her with a bad scar :( Any words of wisdom would be appreciated, I am scheduled next month to get the ICD . From what I am researching I would prefer to say with the LV because to have some control over the treatment. Show less Reply
ITS TRUELY AMAZING message and excellent procedures and life saving and expanding for the hopeless patients IAM V RANI CHANDANALA IAM A RESPIRATORY WORKED IN NHS 18 YEARS . MY HUSBAND SUGGESTED TO HAVE THIS PROCEDURE ICD .
I got a Aicd they have had such hard time with vfib. I'm on many meds and now have a CRT-D I'm paced alot about 100% of time. 70% v paced so battery just don't last soon I maybe getting a LVAD if they can get vfib under control. I've been Cleveland clinic and many other places loved clinic for sure. I'm now going to uva charlottesville and I like it as well. I think the diagnostic information is the biggest help for the doctor. So many times your in hospital and go home and it will start. I l9ve ATP so thankful I really am it's saved me so many shocks and I'm thankful I have insurance without that I would be dead. I'm skinny and the crt-d is much thicker and pushes out alot. I love it connects to my phone for home monitoring
From what I understand from the little bit of research that I have done, it sounds like these devices are at least somewhat adjustable. If or when they adjustable to the point that they will only shock the patient when the device can detect that the patient is already unconscious, then only would I submit to, the implantation of one. Stay well all. Cheers
I thought I was getting just a pacemaker. After the surgery I was explained what an ICD was and that it would Shock Me. After getting hit five times I'd rather pass away. I'm more scared of getting shocked. I'm dreading the day my heart finally gives out and I have to be shocked repeatedly. That will be torture in my opinion. I hear if you ask to have the ICD shut off they will not do it.
I have had a ice for about six years and during that time, mine has gone off twice. Both times I was over exerting my self. So while they are made to jump start your heart should it be necessary, they are made to slow your heart down should it be necessary.
good day i just had my two chamber pacemaker implant last nov 21,2019. the mature of my work is that i constantly operate a 4000 lbs magnet. what would be the safe distance? i have a low heart rate 32-44 bpm and my heart stops 30+ a day for 6-8 secs that's why i got the pacemaker.
I am a musician a bass player in fact. One of the components in my rig is a Traynor Dynabass. Its a 400w amp with a single 15" speaker. The magnet on the speaker is only about 35 lbs but it inhibits the pacemaker if I stand directly beside it or sit on it. 12 ft is about the furthest I can stand away from it which isnt enough. however I CAN stand directly in front of it with no problems. My brother the Professor of Physics says this makes sense cos of the shape of the magnet. You are clearly dealing with a far larger EM field but perhaps looking at the shape of the field is an idea. The magnet I have is a flat round plate which produces a toroid (donut) shaped field. Depending on the shape of your magnet you might be able to still be in comfortable operating range and not put yourself at too much risk. if you cant beat the distance which seems likely with that beast (sounds like the MRI magnet we had in university) you may be able to exploit the magnetic field geometry and find weaker or even dead spots in the field.
From what I understand from the little bit of research that I have done, it sounds like these devices are at least somewhat adjustable. If or when they adjustable to the point that they will only shock the patient when the device can detect that the patient is already unconscious, then only would I submit to, the implantation of one. Stay well all. Cheers ( noticed the doctor on the right somewhat sugarcoat the pain from a jolt. I understand they don’t want to scare any patients off but this medical “ company line” that they are taught and trained is getting old to me. “ you might feel some discomfort “ or “ you will prove sore afterwards “ are some of the statements I have seen and read regarding a medical procedure or surgery.
Replying to myself. I found the titles: ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER A Collection of Patient & Family Stories and ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER A Collection of Stories from Women & Men
ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER A Collection of Patient & Family Stories and ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER A Collection of Stories from Women & Men
The "palpitations" you feel could be the result of your device pacing, that's possible. CRT devices are known to help many people improve their heart function by ensuring the various chambers beat in sync, which many of the newer ICD's provide, so yes, it's definitely possible it will help improve your heart function.
I have a St Jude device implant and it's going to be due for battery change in about eight months and I have Boston Scientific leads so they're thinking about putting a Boston Scientific device in me to replace the st. Jude device that way it will be MRI compatible
Hi good day, I just now see this video because before I never know about pacemaker or icd, I'm 32 a years old a mother of two from Philippines, but now I'm really worried because I just came from a surgery last September 27, 2020 but recently Its upgraded it to icd this Dec. 27,2020, I'm a housemaid here I'm Qatar (meddle east) my two surgery it's sponsored buy foundation and also help of my imployer here in qatar, but my worries now is now I cant take heavy things as a housemaid now mayb noone well accept me now because of my situation, I'm worried maybe 6 to 7 years it need to be replacement but I can afford it,!!!!! My question is I can be treated by a medicine and its no need to replace???? Thank you God bless pls. Like this if you read my comment!!!!
I think it depends on your cardiac needs more than your ejection fraction. I have a CRT-ICD in my chest and have an EF of 35%, but mine paces a lot, I have bradycardia (slow heart beat) a lot of PVC's and need CRT (cardiac resynchronization therapy) to keep my ventricles beating in sync, and have some occasional bouts with atrial fibrillation. So, an S-ICD wouldn't be appropriate for my condition. I have a friend who has an EF of 30%, like you, so is at risk of ventricular fibrillation or ventricular tachycardia, but she has no other rhythm issues and does not require regular pacing. So, the S-ICD works well for her situation.
Thanks for filming this and making it available. Two thumbs up.
This is one of the best panels on this topic that I've seen. The patient who described the shock did so pretty accurately from my perspective, based on my own experience.
I wish I watched this super informative video 2 years ago when I had pacemaker surgery.
This patient is an excellent educator for newbies like me. She was incredibly informative. Doc and NP too.
I am currently wearing the LifeVest defibrillator and expect to have an implant within the month. This video was very informative and helpful. Thank you all. Well done Michigan, from a Penn State alum. Haha.
If you see this... It's 7/10/22. I'll probably be getting a BiV soon and sure appreciate your talk. Lots of good information!
Thank you. I have had my ICD for 2 years and I still learned (relearned) something.
Thank you very much , i had mine fitted three weeks ago and recovering fine ,thanks for the much needed information from all of you
After determining that I had ARVC my cardiologist in collaboration with other cardiologist determined that I needed a ICD. My surgery was on 10/02/2020 and went very well. I am currently in the rest and recovery stage. If you doctor determines that this procedure is necessary please do not hesitate to have it done.
How is you’re recovery I got it done 11/2/2020 and this sucks lol
I haven’t had any issues. I am still able to do all activities that I was previously doing like playing golf. My recent monthly report shows that I had an episode on June 16, but I didn’t notice anything that day. I will be seeing my cardiologist on 8/6 to get analysis of what happened. I will keep you posted.
That’s good to hear mine shocked me when I was hiking a mountain not a good experience
Can we go for long drives. Is it possible
@@shejoemathews1 yea it’s possible just don’t stand over the engine while the car is on
This discussion was amazing. Thanks so much to Michigan Medicine for sharing this valuable information about defibrillators. I'm 80 and my doctor will be replacing my pacemaker with a defibrillator.
I had to have my mitral valve replaced at the age of 36 that is when they found that I have heart arrhythmia plus Wolff-Parkinson-White. A double whammy right there. I had no problem with my defibrillator until it went crazy. It shocked me 17 times before I was put in a medical induced coma. I had the defibrillator part turned off. My anxiety could not take it. It is a wonderful invention. My nerves just couldn’t take it.
I am thinking about getting a defibrillator real soon. I have conjured heart failure. My heart is only beating at 30%. I don’t want to take the medicine entrosro because is so expensive getting more expensive. I have to admit I am a little afraid, but I trust god that the defibrillator will give me more energy.
Since getting the device has your heart ejection number gone up?
I think you still have to take medication
@@cynthiaworden3972 no it will not
I want to thank you for for taking care of me when I was there
I have CHF, had it for years only was hospitalize once. I was having a hard time breathing and when I went to NYU Langone here in Brooklyn, about 4-5 years ago they said my EF was low I think around 12%. Doctor said I may not make it home alive, odd thing I didn't feel bad at all so I looked at the doctor like he was crazy. Stayed in the hospital like a week EF went up and was sent home. Fast fwd to today my EF say's between 35 to 40 % since I am a vet I also go the the VA. They gave me a LV (Life Vest) a couple of years ago. My cardiologist at the VA wanted to give me a ICD, but I never felt bad so I sad let me get a 2nd opinion from my cardiologist from NYU Langone. He stated I dont need it just yet, my CHF is not as bad as others. I go to the gym every morning I dont have shortness of breath so far. Only time I feel kind of bad is when I start taking my med's in the morning then I feel sluggish and bad. never had SCA or an hart attack so far. I will admit I really don't use the LV during the day much because I work from home. Only time I put it on during the day is after I start taking the meds and I start feeling like crap because I don't know if it's the meds or the CHF making me feel like this. I ways ware it at night for protection. I know I am supposed to where it all the time. But when I saw what happen to Damar Hamlin I said let me go for the ICD. But after researching I am on the fence about getting it? I read all the stories about getting unnecessary shocks which worries me, at least with the LV it's warns you before giving you treatment so if it's not warranted you can stop the treatment. I know the ICD is here to save your life, but I saw on TH-cam what a ICD malfunction did to this poor lady and it really left her with a bad scar :( Any words of wisdom would be appreciated, I am scheduled next month to get the ICD . From what I am researching I would prefer to say with the LV because to have some control over the treatment.
Show less
Reply
ITS TRUELY AMAZING message and excellent procedures and life saving and expanding for the hopeless patients
IAM V RANI CHANDANALA
IAM A RESPIRATORY WORKED IN NHS 18 YEARS .
MY HUSBAND SUGGESTED TO HAVE THIS PROCEDURE ICD .
I got a Aicd they have had such hard time with vfib. I'm on many meds and now have a CRT-D I'm paced alot about 100% of time. 70% v paced so battery just don't last soon I maybe getting a LVAD if they can get vfib under control. I've been Cleveland clinic and many other places loved clinic for sure. I'm now going to uva charlottesville and I like it as well. I think the diagnostic information is the biggest help for the doctor. So many times your in hospital and go home and it will start. I l9ve ATP so thankful I really am it's saved me so many shocks and I'm thankful I have insurance without that I would be dead. I'm skinny and the crt-d is much thicker and pushes out alot. I love it connects to my phone for home monitoring
How r u now
Very helpful. Thank you all!
Very helpful! Thank you.
From what I understand from the little bit of research that I have done, it sounds like these devices are at least somewhat adjustable. If or when they adjustable to the point that they will only shock the patient when the device can detect that the patient is already unconscious, then only would I submit to, the implantation of one. Stay well all. Cheers
I thought I was getting just a pacemaker. After the surgery I was explained what an ICD was and that it would Shock Me. After getting hit five times I'd rather pass away. I'm more scared of getting shocked. I'm dreading the day my heart finally gives out and I have to be shocked repeatedly. That will be torture in my opinion. I hear if you ask to have the ICD shut off they will not do it.
Very helpful , thank you
Your video is very helpful for the patient having icd I have a one questionHow patient gain weight after icd implant
Excellent
Don't have any remote transmission devices in Australia'
I have had a ice for about six years and during that time, mine has gone off twice. Both times I was over exerting my self. So while they are made to jump start your heart should it be necessary, they are made to slow your heart down should it be necessary.
good day
i just had my two chamber pacemaker implant last nov 21,2019. the mature of my work is that i constantly operate a 4000 lbs magnet. what would be the safe distance? i have a low heart rate 32-44 bpm and my heart stops 30+ a day for 6-8 secs that's why i got the pacemaker.
I am a musician a bass player in fact. One of the components in my rig is a Traynor Dynabass. Its a 400w amp with a single 15" speaker. The magnet on the speaker is only about 35 lbs but it inhibits the pacemaker if I stand directly beside it or sit on it. 12 ft is about the furthest I can stand away from it which isnt enough. however I CAN stand directly in front of it with no problems. My brother the Professor of Physics says this makes sense cos of the shape of the magnet. You are clearly dealing with a far larger EM field but perhaps looking at the shape of the field is an idea. The magnet I have is a flat round plate which produces a toroid (donut) shaped field. Depending on the shape of your magnet you might be able to still be in comfortable operating range and not put yourself at too much risk. if you cant beat the distance which seems likely with that beast (sounds like the MRI magnet we had in university) you may be able to exploit the magnetic field geometry and find weaker or even dead spots in the field.
From what I understand from the little bit of research that I have done, it sounds like these devices are at least somewhat adjustable. If or when they adjustable to the point that they will only shock the patient when the device can detect that the patient is already unconscious, then only would I submit to, the implantation of one. Stay well all. Cheers ( noticed the doctor on the right somewhat sugarcoat the pain from a jolt. I understand they don’t want to scare any patients off but this medical “ company line” that they are taught and trained is getting old to me. “ you might feel some discomfort “ or “ you will prove sore afterwards “ are some of the statements I have seen and read regarding a medical procedure or surgery.
Does anyone know the title of the two books that are shown in this video?
Replying to myself. I found the titles:
ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER
A Collection of Patient & Family Stories
and
ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER
A Collection of Stories from Women & Men
Good video. Didn't catch the name of the 2 books.
ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER
A Collection of Patient & Family Stories
and
ICD CONNECTION: LIVING WITH AN IMPLANTABLE CARDIOVERTER
A Collection of Stories from Women & Men
what might be causing a buzzing sound nobody can hear it but me I've had my defibrillator since 1916.
1916?????
which is implantable good S-ICD or ICD
😊 why does my heart beat so strong sometimes
Is it normal to have palpitations after the ICD? Will it also help my heart only working at 20% please someone answer me please
Ask a doctor? I don't know I'm a retired traindriver -Keep well.
The "palpitations" you feel could be the result of your device pacing, that's possible. CRT devices are known to help many people improve their heart function by ensuring the various chambers beat in sync, which many of the newer ICD's provide, so yes, it's definitely possible it will help improve your heart function.
I have a St Jude device implant and it's going to be due for battery change in about eight months and I have Boston Scientific leads so they're thinking about putting a Boston Scientific device in me to replace the st. Jude device that way it will be MRI compatible
I have a defib that sometimes vibrates, only a short time...
Thats a notifier means go in to let them check it
What to expect when traveling
International
@@jamesmichael3998
I am having a iced in augsst we are flying to San Francisco in October from NY what to expect
Hi good day, I just now see this video because before I never know about pacemaker or icd, I'm 32 a years old a mother of two from Philippines, but now I'm really worried because I just came from a surgery last September 27, 2020 but recently Its upgraded it to icd this Dec. 27,2020, I'm a housemaid here I'm Qatar (meddle east) my two surgery it's sponsored buy foundation and also help of my imployer here in qatar, but my worries now is now I cant take heavy things as a housemaid now mayb noone well accept me now because of my situation, I'm worried maybe 6 to 7 years it need to be replacement but I can afford it,!!!!! My question is I can be treated by a medicine and its no need to replace???? Thank you God bless pls. Like this if you read my comment!!!!
Which defibrillator is better, SICD or V ICD,
My EF is 30.
Safdar
I think it depends on your cardiac needs more than your ejection fraction. I have a CRT-ICD in my chest and have an EF of 35%, but mine paces a lot, I have bradycardia (slow heart beat) a lot of PVC's and need CRT (cardiac resynchronization therapy) to keep my ventricles beating in sync, and have some occasional bouts with atrial fibrillation. So, an S-ICD wouldn't be appropriate for my condition. I have a friend who has an EF of 30%, like you, so is at risk of ventricular fibrillation or ventricular tachycardia, but she has no other rhythm issues and does not require regular pacing. So, the S-ICD works well for her situation.
CAN POWER OF SHOCK BE LESSENED
Exercise ?
Is it advisable to have an icd for congestive heart failure or can it be treated ny medication
Best aicd available in India
Go sub-muscular. I can’t even tell it’s there. Either can others. Just a thin horizontal line.
You need to sack the sound engineer
This is too long